-
Mygirlsnlady, where did you go?
Melissa, I sent you a pm but you have to sign in to read it. We're all here for you, so please ask any questions you have or look for support. Everyone here has experienced some of what you are going through. Susan
-
meet with Doctors this Friday
Thank you all for sharing your thoughts and ideas about taking a break from chemo. I meet with drs in a couple of days and im due for my third round of Alimta at this point in the week im not sure which way im leaning towards i told myself i would do three rounds of the new chemo and then take three months off and repeat…
-
Immunotherapy (from The Clearity Foundation newsletter)
Immunotherapy offers a woman battling ovarian cancer a way to further personalize her cancer treatment using her own immune system to attack the tumor. Some of these immunotherapies are generated by using live tumor tissue that has to be properly saved at the time of surgery, so it is critical to know the requirements for…
-
Mom passed
My mom died, Friday, March 21. She had been in pain for a very long time. So, it is great to know she is free of the pain. She was surrounded by her loved ones as she passed in her sleep. She was 71. I have a sister with significant disabilities, now I am her guardian. Dad died in 2009.
-
fiscula - please help
Hi Everyone, If you know any hospitals or doctors that are good at Vesicovaginal fistula (VVF, after hystectomy) repair, please let me know. Appreciate your support! twjk
-
when to take a break
Next month it will be a year since ive been in remission. I have tried carbo/taxol,avastin, cytoxen and now im currently on Alimta.My scans from Feb are unchanged I still have three areas of disease present however in six months they have not gotten bigger in some areas they have decreased abit. When i started last year i…
-
ca125
im 16 months from my last chemo treatment. my ca125 have been 5-6 since ending treatment untill last month when i was a 9 and this month a 10... i know it is still normal level... i have no real symptoms other than irritable bowel but have had that since surgery.... im somewhat worried about a reoccurance.any advice??? i…
-
March Check In
Hello Ladies... It is hard to believe it is March already. I don't know anybody else but i have had it with snow. The snow doesnt bother me as much as the cold.... Today is sunny and it suppossed to be 45. Compared to how it has been 45 is a heatwave. I am taking a trip back home to see my friends. I miss them so much. I…
-
Natural approach along with chemo? link enclosed
http://www.integrativewellness.org/ HI Ladies. I am seriously considering setting up an appointment at this intergrative wellness center. Do or have any of you used this approach? I've had carbo/taxol/avastin with about 6 or 7 months remission. avastin for maintenance. recurrence in lymph nodes (May ,2012) one year after…
-
ca125
On Thursday I had my 3rd round of Doxil. My Oncologist told me that me Ca has come down from 250 to 149 which surprised him because it usually doesnt happen this early on. He might consider doing 6 rounds instead of 4 depending on how future labs turn out. Anything to avoid radiation. Quite happy
-
planned mainteance on CSN this morning
Planned maintenance will be done on CSN this morning between 5:00 and 8:00 Eastern Time. There may be one or more outages during this time. We apologize for the inconvenience. Greta
-
Scared and looking for help!
My heart breaks as I have read all the stories on this site. My journey started 8 weeks ago with pelvic pain, back pain, no heavy bleeding but some descent size clots. Went to my GYN that did ca 125 and internal US. CA 125 came back at 85 and ultrasound showed a couple small follicle cyst and a distorded endo stripe. So a…
-
2 year diagnosis
Two years ago I was diagnosed with ovarian cancer at my local hospital ER room. My husband cried. I was was glad there was a reason for all my symptoms. It made sense to me. What a journey the past two years has been.
-
Has anyone been treated for Hydronephrosis as a side effect
During my recent CT scan and then PET/CT, it appears that my soft tissue mass has grown slightly and that I have what is called moderate hydroureteronephrosis. Apparently the ureter from my left kidney to my bladder is going through the soft tissue and is getting dialated. I now have to see an urologist. I was wondering if…
-
My Fault?
does anyone blame them selves they got cancer....I have learned so much AFTER I got cancer...where was this info before?? I always had my screenings and exams..that is why we need to educate women to listen to their bodies. I know a lot of woman were misdiagnosed and cancer spread. I did blame myself for a long…
-
Those dreaded scans
Hi Ladies, I had my scans this morning. This is after 3 months of topotecan. Just hoping and praying that it's helping. Easy drug to tolerate for the most part. I hate these scans. I am SO nervous about the results. Wish I would overcome becoming so scared, but I haven't been able to so far. Hopefully I will know something…
-
New member
Hi there, I had an operation a year ago for ovarian cancer and uterine cancer, since then I have had 6 months of chemo. Now I feel angry with myself because my body hurts, sore joints and muscles, I don't seem to be able to complete many of the tasks I used to do with ease. Is there anyone else out there with the same…
-
Curious
Good Morning Ladies I am curious about somnething - What are your schedules for seeing your doc? How often do you go? I am nearly 2 years out of chemo and feeling great. Last April when I met with my Onc for a 3 month ck up she told me I had made it through the first year and graduated up a level. She said I would see her…
-
Mom begins hospice
Starting today my mom begins hospice. She is 71, she has arhythmia, pneumonia, COPD, osteoporosis, fibromyalgia, triple bypass, and just recently her left kidney has died and her right is operating at less than 30%. She has lost a lot of weight and is down to 87 pounds. When my dad used hospice in 2009 it was for three…
-
can ovarian cancer actually be cured?
My mum got diagnosed feb this year, and was set to have 6 sessions of chemo, surgery then another 6 sessions of chemo. After her first 3 chemo sessions she was told she could have her surgery which was done this tuesday.surgeon said he thinks he got all of the cancer out, and that he was vey pleased with how it went.She…
-
is taxol alone worse-easier-same as carbo/taxol for after effects?
next Weds 12th I have my first tx of taxol alone - allergic reaction to Carbo - There's an event the folowing Sat 15th st dinner visiting& a movie could leave whenever. My usual reaction to carbol/taxol has been- lots of peeing day 1-4 no nausea/vomitting achy & ukky for a week my question is flr those of you that went…
-
Just to make us smile. sweet Ella sings Elvis and loves on her Daddy!
https://www.youtube.com/watch?v=fmWa1gKrp6Q Absolutely precious. Hope all of you are having a great day. Carla
-
Opinion from Moms
I am NED after having had stage 3C ovarian cancer. Tomorrow is my 2 month anniversary of ending chemo. Now that my hair is growing back, I finally went out in public this week without a scarf or hat. This was a huge step and I was very proud of getting past my vanity and celebrating that I made it through. Everywhere I…
-
Repeating drugs? How many different drugs are there for OVCA?
Hi Ladies. I posted that my latest scans were not good, as lymph nodes in the abdominal increased not only in size, but now there are numerous more, including a mantle of them. I was stable for about ten months with Doxil. I am now on topotecan, 3 weeks on, one week off. I have had 3, and resume this upcoming Friday. Dr.…
-
Doxil
Today I had my 4th round of Doxil. My CA started out at 250 then went to 125 and today it was 118. Am quite happy we opted to do 2 more rounds then do a scan. Anything to avoid radiation.
-
5 year cancerversary!
I was dx 3c OVCA in April 2009 at age 30. I'm still here!! It's been awful at times, but I am thankful to still be alive! I really didn't think I would survive this long. I had a short 11 month remission in 2011. Then it came back. I will beat it again! Blessings to all of you -Natalie
-
Can't beat free!
This author is offering her book on ovarian cancer, Cured, My Ovarian Cancer Story, free for the Kindle version on Amazon for the next few days. She's also offering another of her books, on breast cancer, free. I believe the 2nd book is titled My Breast. I have the ovarian cancer book in my Kindle library but haven't read…
-
Hi from the land of snow and ice
Hi Loves, Just wanted to "check in" with update. I've now done 4 years straight of chemo, with the last 29 months on cisplatin/gemzar. Is there an Olympic chemo event? If so, I'm going for the gold. The good news is that I remain stable and able to tolerate this chemo cocktail. (((((HUGS to all)))) Maria
-
stomach pain
Hi, I'm posting for a friend who is legally blind. She had ovarian cancer 2 years ago and had surgery and has also had chemo ever since. the cancer came back in her stomach and she has now been told that she will never go into remission again. her stomach always hurts and pretty bad. she has oxycodone but it makes her sick…
-
hair loss on Doxil
Has anybody on Doxil had any hair loss. My Oncologist told me he didnt think that I would lose any hair with Doxil, but I am losing like strands. It is like when you brush your hair and you have loose strands that fall down. Its not coming out in clumps like it did with Taxol.