It's go time! Update in pictures

Alexandra
Alexandra Member Posts: 1,308
edited April 2014 in Ovarian Cancer #1

CA125 = 891 same as when I was first diagnosed almost 2 years ago. Doubled in 9 days!  image

I am having core needle biopsy image under conscious sedation tomorrow.  I have been waiting for it for 7 months. Finally! image

If it goes ahead successfully and tissue samples are usable, I will qualify for the PARP trial. Big IF.  image

 

I was told today by a different doctor that breast biopsy I had in September was inconclusive. She wanted me to repeat it as a lumpectomy.

I refused. If they find breast cancer, it will disqualify me from any ovarian trials. image

I started bleeding vaginally today.   image     I bet my girl parts grew back from all CT scan radiation image and I will soon develop other super-powers.  

Another CT scan on Friday.  image

Also I am re-doing ECG tomorrow because the last one for some reason showed anterior and interior infarctions and sinus tachycardia.  image

No food or drink after midnight. imageStuffing my face with pizza while I still can. image

 

Thank you for listening. Love you guys. image 

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Comments

  • 2timothy1 7
    2timothy1 7 Member Posts: 345
    #2
    Prayers

    Praying its a "go" for you Alexandra! 

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #3
    2timothy1 7 said:

    Prayers

    Praying its a "go" for you Alexandra! 

    Dear Alexandra

    Sending lots of prayers your way (and keeping my fingers and toes crossed too!) that things go your way with the needle biopsy!

    Hugs,

    Kelly

  • kimberly sue 63
    kimberly sue 63 Member Posts: 421 Member
    #4
    Hang in there..... kim

    Hang in there..... kim

  • forme
    forme Member Posts: 1,161 Member
    #5
    Hugs

    Dearest Alexandra,

    I just want to say that I am thinking of you tonight and through out the coming days.

    You always amaze me with your strength and your humor.

    Giant gentle hugs from me to you.

    Lisha

  • scatsm
    scatsm Member Posts: 296 Member
    #6
    Alexandra you WILL get into a PARP trial goddamnit!

    I couldn't but you can....I insist!

    Use that humor to get you through and use this board for the same reason!

    You are amazing and we need you on this planet...xoxo

    Susan

  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #7
    scatsm said:

    Alexandra you WILL get into a PARP trial goddamnit!

    I couldn't but you can....I insist!

    Use that humor to get you through and use this board for the same reason!

    You are amazing and we need you on this planet...xoxo

    Susan

    I second that

    you will get into the trial...I can feel it. We love you too! PS..I love pizza. Player and hugs coming your way....STAY STRONG!....Val 

  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #8
    poopergirl14052 said:

    I second that

    you will get into the trial...I can feel it. We love you too! PS..I love pizza. Player and hugs coming your way....STAY STRONG!....Val 

    Prayers..not players...but you can have them too..lol

    Ok

  • Hearty Pioneer
    Hearty Pioneer Member Posts: 158
    #9
    Wishing you the best

    think of the Rocky music theme.... We are here supporting you. Praying for the PARP trial for you.

     

     

  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    #10
    Good Luck!

    You are amazing you are such an asset to this board. Your humor and knowledge help us all ,I hope it helps you as well. I am crossing my fingers a nd toes you get into the trial you want and send that graph off the charts downward !

    Colleen

  • ConnieSW
    ConnieSW Member Posts: 1,678 Member
    #11
    Cafewoman53 said:

    Good Luck!

    You are amazing you are such an asset to this board. Your humor and knowledge help us all ,I hope it helps you as well. I am crossing my fingers a nd toes you get into the trial you want and send that graph off the charts downward !

    Colleen

    Waiting for good news

    Wish we could all come with you and stand behind you, arms folded and stern browed.  We would be a force to be reckoned with.

  • mopar
    mopar Member Posts: 1,972 Member
    #12
    (((HUGS))) AND PRAYERS TO YOU, ALEXANDRA!

    Hang tight, Girl Friend.  We're here for you and hoping that all will be well soon.  YOU ARE AN OVERCOMER!

     

    http://www.youtube.com/watch?v=b8VoUYtx0kw

     

    Monika

  • seatown
    seatown Member Posts: 261 Member
    #13
    Kick butt!

    OMG on the CA 125 escalation. Surprised  Good luck on the PARP trial. Tongue Out Wish I had the emoticons you dredge up!

    Best, Carole

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,368 Member
    #14
    You are in my prayers,

    You are in my prayers, Alexandra.   

  • Alexandra
    Alexandra Member Posts: 1,308
    #15
    Thanks again for all your kind words and wishes

    Biopsy went well. Three clicks, like a stapler - and done, not painful at all. According to the radiologist tissue samples should be usable.

    Repeat ECG was normal.

    Vaginal bleeding had nothing to do with cancer, but rather with some fissures and misguided enthusiasm. Bad Alexandra! image

    Had urine test to rule out UTI and stocked up on lubes.

    Afterwards we went out for sushi and ice-cream.

    image                   image  image

                                                     

  • forme
    forme Member Posts: 1,161 Member
    #16
    Alexandra said:

    Thanks again for all your kind words and wishes

    Biopsy went well. Three clicks, like a stapler - and done, not painful at all. According to the radiologist tissue samples should be usable.

    Repeat ECG was normal.

    Vaginal bleeding had nothing to do with cancer, but rather with some fissures and misguided enthusiasm. Bad Alexandra! image

    Had urine test to rule out UTI and stocked up on lubes.

    Afterwards we went out for sushi and ice-cream.

    image                   image  image

                                                     

    Happy

    happy all went so quick and easy for you. Very glad the bleeding was not cancer related .

    thanks for always giving me a smile. 

  • wholfmeister
    wholfmeister Member Posts: 315
    #17
    What the hhhh....?!

    I miss logging in for one night and all Hhhh breaks loose!

    Well, even though I didn't know until it was over, I am happy they think the samples are good.  You have to get I to treatment!!

    Hope you enjoyed the sushi!

    We love you.

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #18
    wholfmeister said:

    What the hhhh....?!

    I miss logging in for one night and all Hhhh breaks loose!

    Well, even though I didn't know until it was over, I am happy they think the samples are good.  You have to get I to treatment!!

    Hope you enjoyed the sushi!

    We love you.

    Sushi and ice cream sound delicious!

    And things sound very good with regard to your tissue samples.  Still keeping my fingers and toes (and eyes) crossed for you!

    Big hugs,

    Kelly

  • Mwee
    Mwee Member Posts: 1,338
    #19
    Alexandra said:

    Thanks again for all your kind words and wishes

    Biopsy went well. Three clicks, like a stapler - and done, not painful at all. According to the radiologist tissue samples should be usable.

    Repeat ECG was normal.

    Vaginal bleeding had nothing to do with cancer, but rather with some fissures and misguided enthusiasm. Bad Alexandra! image

    Had urine test to rule out UTI and stocked up on lubes.

    Afterwards we went out for sushi and ice-cream.

    image                   image  image

                                                     

    Good news

    on the bleeding and ECG, now lets hear great news on the biopsy... no "enthusiasm" is misguided :)

                                                         (((((HUGS)))))))    Maria

  • JoWin615
    JoWin615 Member Posts: 150 Member
    #20
    Hey Alexandra,

    Where do you get all these cute little animated thingies?!  They are perfect!  The face, demurely licking the pink ice cream cone, cracks me up. 

    Anyway, we will all be praying our butts off that you get into that trial. 

    Love, Jo

  • mopar
    mopar Member Posts: 1,972 Member
    #21
    Alexandra said:

    Thanks again for all your kind words and wishes

    Biopsy went well. Three clicks, like a stapler - and done, not painful at all. According to the radiologist tissue samples should be usable.

    Repeat ECG was normal.

    Vaginal bleeding had nothing to do with cancer, but rather with some fissures and misguided enthusiasm. Bad Alexandra! image

    Had urine test to rule out UTI and stocked up on lubes.

    Afterwards we went out for sushi and ice-cream.

    image                   image  image

                                                     

    YAY!

    Glad to hear all the good news, now we will wait with you for the tissue results.

    SUSHI AND ICE CREAM?  You're the best, Alexandra!

    (((HUGS)))

    Monika

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