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Ovarian Cancer

A long time without a scan
Hello! I will be seeing my doctor this week after 15 months without a visit. I am a 6 year survivor of stage 3C. I am feeling alittle nervous now about having to have a cat scan soon. It has been over 2 1/2 years since my last one. My question.... do you think that is a very long time between cat scans?
It's go time! Update in pictures
CA125 = 891 same as when I was first diagnosed almost 2 years ago. Doubled in 9 days! I am having core needle biopsy under conscious sedation tomorrow. I have been waiting for it for 7 months. Finally! If it goes ahead successfully and tissue samples are usable, I will qualify for the PARP trial. Big IF. I was told today…
Ca125 has doubled
I am now at 44 which signals a recurrence. was 17 just 2 months ago. I was prepared for the news but it still made me cry. I'll have another ct scan Thursday and meet with my gyn/onc on Friday. He had warned me that there was "nodularity on the omentum" that was new from the last scan in 2012. so, I had a 2 year remission…
noni fruit
Has anyone heard of the noni fruit? My neighbors just came back from Hawaii and are raving about it healing. Kim
Check up post poned
Hi all.... I hope this post finds you well.... First off Alexandra I just want to say that I am beyond overjoyed that you made it into the trial. That is such awsome news.... I was suppossed to have a check up yesterday but got a call on Monday that we needed to postpone it a few weeks. Hey no problem there. lol. It seems…
Congratulations Alexandra
I am so excited that you are starting a PARP trial. Your persistence (stubbornness) has paid off! I want a full report...I expect to hear about your twice daily 5 pill ingestion with vodka.... xoxo Susan
Political correctness on crack
Yesterday I got my urine test result and yes I have a UTI. I googled UTI and the first site that popped up belonged to Hassle Free Clinic in Toronto, a Canadian equivalent of STD / STI / VD clinic. I want you to imagine executive steering committee meeting at Hassle-Free Clinic dedicated to developing their new web-site.…
my mother has ovarian cancer
Hi, I'm not really very good at communicating and if I say anything over the line, please just let me know. I've been a follower of csn since my mother was diagnosed and have only recently signed on. She was diagnosed and had a hysterectomy and debulking surgery in January of 2013. She was given carboplatium and taxol for…
Weekly Cisplatin and Etoposide for recurrent ovca
New study showed promising results http://www.dailymail.co.uk/health/article-96824/New-drug-treatment-beating-ovarian-cancer.html Overall, 80% of the women's tumors shrank and an unprecedented 43% showed a complete response, with all signs of their cancers disappearing.
Happy Passover!
Hipec Surgery
I am a 43 year old women who was diagnosed with Stage III Ovarian Cancer 3 years ago. I had 6 rounds of chemo and a total hysterectomy in 2011. I went into remission for about a year and then it returned in 2012. I once again went through 6 more rounds of chemo and again went in remission for another year. December 2013…
On Denying Denial. This Article may resonate with many of us “living in between” of recurrent cance
On Denying Denial - by Daniel Rayson, MD, FRCPC, Division of Medical Oncology, Queen Elizabeth II Health Sciences Centre and Dalhousie University JOURNAL OF CLINICAL ONCOLOGY VOLUME 31 _ NUMBER 34 _ DECEMBER 1 2013 I was providing clinical coverage for a vacationing colleague and had an internal medicine resident working…
Etoposide VP-16
I started this new drug I have been with diferent drugs for 3 years but my last treatment stop working since my CA125 went from 76 to 146 and my Dr recomended this Etoposide VP-16, it is a pill everyday for 14 days, one week off I dont know what to expect, any advise?
Intestinal obstruction
Hi everybody. My aunt was diagnosed with ovarian cancer at the end of 2013. Since then she started chemo with a drug named Carbo / Taxol. However, her belly has increased in size tremendously due to a fluid and she had to drain it once. In addition, on the latest days, she hasn't been eating enough, she has been spending…
BRA IDEAS AFTER LUMPECTOMY
Hi, Ladies! I posted this on the breast cancer forum, and did get 2 answers. But I wanted to run it by all of you, as I know some of you have been through breast cancer as well. I come here as often as I can, and continue to pray for all of you and think of you often. I can't get here as much as I used to, but it doesn't…
My "chemo holiday" is over. :-(
As I also posted on the peritoneal cancer forum -- remission was sweet, but it seemed SO short. For weeks at the end of last year, every time I worried about my escalating CA 125 number my oncologist said, "But it's still in the normal range!" That was true until December, when it went up to 44; but I was soon advised to…
News
Hi ladies, just wanted to let you know that I still am here reading the posts. Just very busy with my newest granddaughter. I've been spending all my time at my daughters home so very tired with all the driving. She lives a few towns away. I've posted a picture on my expression page since I just can't seem to figure out…
Three Years NED Today
Three years ago today I had my last session of carbo/taxol and I'm grateful to say that I have been living with NED (no evidence of disease) ever since. I know there's plenty of NED to go around. My biggest wish is that NED become a permanent fixture in your lives too. Wishing the best for all of us, Kelly
liver lesion found
I was Dx with ovarian Cancer 1c in 2013. i had debulking surgery and 6 rounds of chemo. Prior to my surgery, a CT scan showed a tiny lesion on my liver. My scan immediately after chemo was completed, show it again and said it had not changed. I recently had another CT scan and the report shows it is "slightly increased in…
How have people felt on topotecan?
Just returned from my oncologist's office. I was on a regiment of carbo/taxol. Was being premedicated before each treatment due to a carbo reaction. Advice is to stop carbo for now and try topotecan. Anyone out there on this and how is it going?
Constipation
Hi - I could really use some help. My dear mother was diagnosed with stage IiiB ovarian cancer in late September. She is currently on paclitaxel/carboplatin and is struggling with bad constipation every day. She is using laxatives almost daily. Does anyone have ideas on how to counteract the affects of the chemo and…
My dr. called with yesterday's scan results. I start Gemzar Friday.
Not great, but could be worse. A few of the lymph nodes were stable on topotecan. Some increased in size. He doesn't see any reason to stay on topotecan. I start Gemzar Friday. Any one have any thoughts on gemzar? thanks, Carla
I ha an allerfgic reaction to Carbo yesterday Feb 19 & a m worrfied about completing thjis round of
Hi:. Wise, experienced, teal ladies:l Lowered oxygen saturation – from pulse/ox reader heart rate + 160 full face flush tight chest Nurse immediately stopped infusion – gave me sublingual Benadryl & oxygen- I started relaxation breathing & the heart rate settled down This T x was 8-9th – standard reaction time Current…
starting carbo/gemzar/avastin next week ugh
Saw my gyn/onc today and had my recurrence confirmed. For one wonderful fleeting moment, it looked like I could start the Clovis 2 Parp trial that just started at Siteman Center this week......until the fact that I had had breast cancer within 3 years disqualified me from this and all other parp trials...I had been warned…
Persistent nausea
Hi! Just joined this site today. I was diagnosed with stage 3c ovarian cancer in December 2011. Since then I have had surgery, gone thru 6 rounds of carbo/taxol which gave me 14 months of remission and when my counts started to creep up (18) had 6 rounds of Doxil/Avastin. It seemed to be working but then my counts started…
Post-chemo insomnia
Just wondering...why do you suppose I got assigned to the "new" nurse today? I like all the regular nurses...I didn't want a new nurse. Why me? Because I am a nurse myself? That intimidates some nurses; it causes other nurses to be extra kind, like we are kindred spirits. Maybe because I try to be a really nice person. I…
Mygirlsnlady, where did you go?
Melissa, I sent you a pm but you have to sign in to read it. We're all here for you, so please ask any questions you have or look for support. Everyone here has experienced some of what you are going through. Susan
meet with Doctors this Friday
Thank you all for sharing your thoughts and ideas about taking a break from chemo. I meet with drs in a couple of days and im due for my third round of Alimta at this point in the week im not sure which way im leaning towards i told myself i would do three rounds of the new chemo and then take three months off and repeat…
Immunotherapy (from The Clearity Foundation newsletter)
Immunotherapy offers a woman battling ovarian cancer a way to further personalize her cancer treatment using her own immune system to attack the tumor. Some of these immunotherapies are generated by using live tumor tissue that has to be properly saved at the time of surgery, so it is critical to know the requirements for…
Mom passed
My mom died, Friday, March 21. She had been in pain for a very long time. So, it is great to know she is free of the pain. She was surrounded by her loved ones as she passed in her sleep. She was 71. I have a sister with significant disabilities, now I am her guardian. Dad died in 2009.

Ovarian Cancer

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