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Hi from the land of snow and ice
Hi Loves, Just wanted to "check in" with update. I've now done 4 years straight of chemo, with the last 29 months on cisplatin/gemzar. Is there an Olympic chemo event? If so, I'm going for the gold. The good news is that I remain stable and able to tolerate this chemo cocktail. (((((HUGS to all)))) Maria
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stomach pain
Hi, I'm posting for a friend who is legally blind. She had ovarian cancer 2 years ago and had surgery and has also had chemo ever since. the cancer came back in her stomach and she has now been told that she will never go into remission again. her stomach always hurts and pretty bad. she has oxycodone but it makes her sick…
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hair loss on Doxil
Has anybody on Doxil had any hair loss. My Oncologist told me he didnt think that I would lose any hair with Doxil, but I am losing like strands. It is like when you brush your hair and you have loose strands that fall down. Its not coming out in clumps like it did with Taxol.
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My most important post yet...and I am sorry..
Hello to everyone. I need to apologize, and ask you to read my latest blog entry at www.ourovariancancertrip.com. This is for everyone, but especially those of you that have just been diagnosed, and are being crushed by the negative information you are finding on the web. Please visit my blog and read my latest post. Joan…
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UP AND DOWN
A roller coaster ride and I am terrified of heights. Since my last post I have been up and down emotionally. Had a cat scan and was told that I am cancer free YEAH! But in the interim my chemo blasted me. It was burning me up from the inside out. I could not walk without pain and/or use my hands. Bottom of feet and palms…
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what to do now???
Short version of my situation. My last three treatments we used cytoxen and on the fourth visit the ca125 went from 84 to 115. We took January off from treatment so they could do Genomics testing to help target what might work now. Testing came back not offering anymore options i do my scans this Tuesday. Has anyone else…
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Doctors have my completely confused and in the dark. Please help
.I have had a light dull lower back ache for about 4 months now that increased in pain a bit toward the end of december. On new years eve That pain suddenly radiated around my whole lower back, side and lower abdomin. I wound up in the ER, treated for what they said they didnt think was but had no other explaination for a…
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clear CT scan just less than 1 yr since dx 3 more txs to finish then back to Onc for follow-up plan
Hi all great news yesterday!- cCLEAR CT SCAN-- a year ago in May I was deiagnosed - had 8 liters ( qts) ascites drained CA125 = 4,000 -- started chemo to shrink tumors finally - debulking Oct '13Last CA= 16 Can harley believe I'm here Anxious to finish last 3 tx's to goito onc for follow-up plan. thanks tlo the wonderful…
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UPDATES: RADIATION FOR ME, GOOD NEWS FOR DAUGTHER!
Many thanks to all of you for your concern and support for my daugther who underwent a cervical cone biopsy. ALL BENIGN! In fact, she currently has NO cervical displaysia at all! This surgery was done by my gynecologic/oncologist who did both of my OVCA surgeries, and I know he is extraordinarly thorough. As you can…
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Questions about my results
Hello Friends! I'm finally back, I had my surgery on January 22nd. My gyno/oncol did not think my very large mass was going to be cancer, but unfortuntualty when he removed it during surgery and took it to the lab they said yes it was cancerous and he then went ahead and did a total hysterectomy. The mass was totally…
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HAPPY v.d.
Happy St. Valentine's Day... OH my... Roses are reddish, violets are bluish... It's Saint Valentines Day... and yet I am Jewish.. Guess it does not matter, I wish all you ladies well.. Don't run after me.. cause one day I'm going to He** Yes this is all in jest and you can plainly see.. This is the day the candy is on…
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Concerned tests. Now what?
Hello everyone. I am new here and hoping to get some opinions about some recent tests. Here is a quick timeline of whats been going on. Prior history- Ablation in 2011 to remove endometriosis, ovarian cyst removed, 4 previous abnormal paps. Tubes tied in 2000. No period since 2011. Experienced significant weight loss over…
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Any survivors out there of nonsmall neuroendocrine ovarian cancer with mets to brain?
First grandma had been diagnosed with ovarian cancer 2006, passed away from it 2010 (I think it spread to intestine, no where else). Then my mom got it, but a different cell type-nonsmall cell neuroendocrine ovarian cancer, Jan.2013, had hysterectomy, finished Etoposide and IP Cisplatin July 2013. Everything "fine" for 2…
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Planned CSN Outage Tonight
Dear Users, CSN will be down for routine maintenance tonight from around midnight to 3:00 AM Eastern Time. We apologize for any inconvenience. The site will be up and running as quickly as possible. Thank you for all you do for CSN! CSN_Nick
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Any of you ladies on facebook
Just wondering if any of you ladies are on facebook
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My day
I made it another year! Today is my birthday....not long ago I didn't think I would. I don't mind getting older..I am alive and living my life! I will eat good stuff today and celebrate more birthdays. Have a great day everyone and stay strong.....Val. :)
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February Check In....
Good Morning Everyone and Happy February 1st... Oh my lord, where did January go??? How is everyone doing? Monika how is your daughter feeling? I met with my new oncologist on Monday. He is a gem.. Love him. When I left NY my onc told me I could see her twice a year and my gyno twice a year. He said since I am seeing a doc…
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Evil Broccoli
Love your response Alexandra!! Julie x
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hello...I am newbie here
I was diagnosed with an rare ovarian tumor back in October 2013. I had to do 20 rounds of chrmo therapy 5 days straight and 2 weeks off. I did my last round the January 6-10. I get my ct scan this Tuesday. I have been keeping a positive attitude since all of this has occurred. I hope this forum is as supportive as I was…
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Scared but Still Here
Ok, I know it's been a long time since I've been active here...(that's good though, right?) But tonight, I've got some things that I have to unload. Please bear with me. Those of you who've been here since Hissy Fitz and Dorian may remember me. I'm not a whiner or a fatalist. I'm a survivor. But tonight I find myself in…
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Leesag, how are you doing?
I have thought about you often. I know you have been a great strength of source for myself and others on this board. Carla
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HELLO, LADIES!
I haven't forgotten about any of you. I've had trouble getting onto the website. Had it set as a 'favorite', but after I googled ACS I noticed the address had changed. Anyway, tried to do a little catching up today. Some of you may not know me, but I've been around here for a long time (dx in 2000, recurrance in 2006, and…
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G'day, dear Aussies!
To all our beautiful Sheilas Down Under - Happy Australia Day!!!
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frozen section vs full pathology
I had a large mass removed from my right ovary. (size of a softball) CA 125 was high at 120 frozen section came back neg while I was in surgery has anyone had that happen but then had the full pathology came back positive for cancer? I don't want to put my guard down just yet. 7-10 days to hear the full news. Please let me…
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hello...
I want to thank the ladies that have welcome me to this site. Some asked how did I hear about the site, I found it searching the Internet. I was suppose to get my scan today, but it was cancel due to bad weather here today. It was reschedule for tomorrow.
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does it deem like carbo/taxil side effects worsen after a long time on it?
I started tx in May '13 & felt I had very few real problems Recently had a tx last week & feeel aches & titredness might be more intense--also I am post debulking - from Oct. have any of you thought this thanks for your time Susan P from Alberta Canada
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abnormal pap and positive hpv
In 2005 I had a total hysterectomy for stage 3 ovarian cancer. Everything removed. Now I have had 3 abnormal paps last being high grade and a positive hpv test. I have had 2 scope tests that have been normal. Being sent back to my cancer doctor. What could it be?
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scan of the liver was clear...
Everything looked fine except for some 'nodularity' on the omentum (which I thought was removed). I'm taking it as all good. So grateful! Susan
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Alexandra.....
I love your hair. Is it your own or one of your wigs? You look fantastic....
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