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Leesag, how are you doing?
I have thought about you often. I know you have been a great strength of source for myself and others on this board. Carla
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HELLO, LADIES!
I haven't forgotten about any of you. I've had trouble getting onto the website. Had it set as a 'favorite', but after I googled ACS I noticed the address had changed. Anyway, tried to do a little catching up today. Some of you may not know me, but I've been around here for a long time (dx in 2000, recurrance in 2006, and…
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G'day, dear Aussies!
To all our beautiful Sheilas Down Under - Happy Australia Day!!!
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frozen section vs full pathology
I had a large mass removed from my right ovary. (size of a softball) CA 125 was high at 120 frozen section came back neg while I was in surgery has anyone had that happen but then had the full pathology came back positive for cancer? I don't want to put my guard down just yet. 7-10 days to hear the full news. Please let me…
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hello...
I want to thank the ladies that have welcome me to this site. Some asked how did I hear about the site, I found it searching the Internet. I was suppose to get my scan today, but it was cancel due to bad weather here today. It was reschedule for tomorrow.
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does it deem like carbo/taxil side effects worsen after a long time on it?
I started tx in May '13 & felt I had very few real problems Recently had a tx last week & feeel aches & titredness might be more intense--also I am post debulking - from Oct. have any of you thought this thanks for your time Susan P from Alberta Canada
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abnormal pap and positive hpv
In 2005 I had a total hysterectomy for stage 3 ovarian cancer. Everything removed. Now I have had 3 abnormal paps last being high grade and a positive hpv test. I have had 2 scope tests that have been normal. Being sent back to my cancer doctor. What could it be?
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scan of the liver was clear...
Everything looked fine except for some 'nodularity' on the omentum (which I thought was removed). I'm taking it as all good. So grateful! Susan
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Alexandra.....
I love your hair. Is it your own or one of your wigs? You look fantastic....
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m
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Lasting Effects from Chemo being brushed aside by my oncologists.
Hi, this is my first time posting here. I was diagnosed with Ovarian cancer 5 1/2 years ago and recieved chemo (Bleomycin, Cisplatin, and Etoposide) for 4 months then cancer free! Yay!!! However during the treatment i kept asking my oncologist about the increasing numbness in my feet. Each time I asked this question it was…
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Emotional Roller Coaster
I don't know where to start but I guess with alittle history - I was 38 years old when I was diagnosed with Ovarian Cancer in stage 3b. I found out December 23, 2008 and I had surgery December 28, 2008. It took forever to get diagnosed because of the insurance company. By the grace of God, my doctors kept pushing for the…
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Doctors of the Future...
FUTURE PROCTOLOGIST? FUTURE UROLOGIST? FUTURE NATUROPATH?
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How to survive cancer?
Hi I am new here. I feel terrible because my best friend has ovarian cancer, she is only 26 years old. She undergoes surgery and a lot of medications. She is in deep pain and I feel that I can't do anything to make her feel alright. I searched every information I can find to know how to survive cancer, but I know your…
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Went in for what I thought would be a routine onco visit and pow!
had my every 3 month blood work done for my medical oncologist visit today (breast cancer) and was ok with a slight rise in my ca125. It's the 4th rise in a row....4, 5.1,8,14, and now 17. The onc told me that my liver enzymes have been rising and he is concerned that with the rising ca125 that there might be mets to the…
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CSN study FAQ
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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Struggling and losing hope
I could really use some help. My mom was diagnosed with Stage IIIB ovarian cancer in September. Total shock. She is in her early 70s, has led a clean, active life. She had debulking surgery in early October. That surgery included a colon resection (doc says he cut some cancer off the outside wall of the colon - whatever…
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Sad news
Hello Ladies, Just received some very sad news. My sister in law just had surgery and has ovarian cancer. They have said it is either stage 2 or 3. I have been praying that she would be fine. Her CA 125 was very low and within normal range. But she has had many other symptoms and issues that we all know so well. I just…
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Genomic testing
Im kind of at a crossroad with treatment I started back in May of 2013 This is the short version of where im at now . In May did a couple rounds of carbo had reaction and had to stop that treatment Ca125 went from 151 to 51, continued on and used Avastin that maintained it for short time numbers went to 99 did 3 rounds of…
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Poor and sick.
Im 27. For the last month I've had multiple symptoms including bloating, cramping, lower back pain, dull achey lower back, my right side has a dull pain as well, constant urge to go, weird bowel changes, shortness of breath. I'm not sure if I have an apetite or not but I've never had much of one. For the last year or so…
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Who diagnosed your ovarian cancer? I am so frustrated! Please help
I posted recently in this forum about some issues i have had recently, and i was waiting on results from my well woman exam, and then i was going to discuss the issues i have been having with my OBGYN. I sent the doctors office a message online, seems you can send it directly to your doctors office (their phone system…
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Second opinion? How do you know when you should seek one?
Got the results from my latest CT scan last week. Long story short, it shows “something” on my spleen. My gyn/onc surgeon thinks it may be a recurrence of my primary peritoneal cancer (which is treated exactly the same as ovarian cancer). My CA-125 number has been slowly rising since summer & is now 44. The surgeon…
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Did anyone else have similar symptoms?
Around mid November i had extreme bloating. It was really bad and came on randomly. I have had this once before back in May, accompanied by lower abdominal pains due to being constipated. One visit to the doctor, and he prescribed me something that helps with constipation/bloating/constipation pain, and within 5 days all…
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2 Years ago today
It was two years ago today that I had my debulking surgery..... I am very thankful for all of you for your support and love. You truly are a great bunch of people. I am feeling great and my last ca 125 was 5.8... Love you all.
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Trans-America Road trip
I've done a lot of overnight travel for work, but it was always on a tight schedule with no time left to stop and smell the roses. Places I mostly covered were: MI, OH, IN, KY, SC, TN, MS, AL and Mexico. I always wanted to travel across America. Just me and my GPS, with no planning, no hotel reservations, to drive, to stop…
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Looking for answers
In short. Mom 81 recurrent ovarian cancer on 4 th recurrence only in lymphnodes behind stomach small spot on lung that has been there for ever and same with thyroid lite up during scan . She doesn't want anymore treatments. How slow growing is this monster. Also began suffering from delirium. Trying to keep her at home…
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Scans were bad... so scared...,.
Hi Ladies. I received my scans from yesterday this morning. There has been significant change in my abdominal area. A mantle of lymph nodes the report read. My doctor said we are in a tough spot. He stopped Doxil and started Topotecan today. On a positive note, so far my vital organs are still clear. I am just SO scared.…
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Remember Harry Potter and the game of Quidditch? Life imitates art
JAPANESE TEENS PLAYING QUIDDITCH AMERICAN TEENS PLAYING QUIDDITCH US ARMY SOLDIERS PLAYING QUIDDITCH IN AFGHANISTAN RUSSIAN SOLDIERS PLAYING QUIDDITCH CUTENESS OVERLOAD QUIDDITCH IN LADYBUG FORM AND FINALLY... SOLID PARENTAL ADVICE
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The Gerson Therapy ?? Has anyone tried it?
I had been researching this diet/ therapy for treating all sorts of Cancer ..it sounds so logical to me and all the things I have read about it sound like they have incredibly good results . Netflix has several great documentaries that reference it : Beautiful Truth/ The Gerson Miracle/ Food Matters they state they have…
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Thinking of Those in U.S. Midwest & Northeast Bracing for COLD
I hope you all are able to stay warm and dry as you brace for even more cold/snow in the next few days. It's a different story here in Northern California where we are desperate for rain and snow in the Sierra Mountains. Drought and water rationing measures appear to be on the horizon unless we get lots of rain and snow in…