Do I have surgery to remove the endo even though they think it's a very low chance it's cancer?

starrynight5626
starrynight5626 Member Posts: 8 Member

My story is that I had a CT scan back in March when I was sent to have due to stomach pains which, at the time, they thought was appendicitis but just wanted to confirm before sending me to the hospital. It ended up being diverticulitis but they found a mass and a fibroid in the CT scan which required further looking into.

I went for an abdominal and transvaginal ultrasound in April and once again they could tell it was a fibroid but didn't know if it was pedunculated or if there was a mass associated with it. I was sent for an MRI scheduled for end of May, but ended up having to cancel that due to my mother's death and rescheduled for late June.

At the end of June I had the MRI, which showed it to be a 3.2 cm (what they think) is an endometrioma along with a 1.5 cm pedunculated cyst. The OB/GYN I saw the week after the MRI said they could do a laparoscopy and take it out as that's the only way to tell what it is or she said, since I don't have any pain or symptoms (the only pain was when I was diagnosed with diverticulitis and that's when this was noticed as an incidental on the CT scan) that it could be monitored by getting an ultrasound in 3 months and then again 6 months after that and see if it grows. If it grows, then have the surgery, but if it stays the same or shrinks then we can discontinue monitoring it after a year.

I opted to see how it goes with ultrasounds. It was measured at 3.2 cm back in March when first noticed, the ultrasound in April measured it as 3.6 cm, but then in June it was measured back to 3.2 cm. I don't know if those numbers are negligible or if it grew a bit and then shrunk again, if that's even possible, or if it's just how the scans were read.

And I don't know if any of this is related, but in the past year I've had leaky bladder when I get up in the middle of the night. I don't even realize it until I feel dripping down my leg. I also feel like I've gained weight around my middle. I mean I'm not super active so the weight gain is indeed probable due to that, but I just feel like if I could expel some gas it would go down.

I know they can't be for certain until they get in there to see it and do a biopsy but not having any pain and them not seeing anything else unusual on the MRI or ultrasound or CT makes me think there's not a lot to worry about.

What do you think and what would you do?