The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Parp Inhibitor

BadassMom
BadassMom CSN Member Posts: 13 Member
in Ovarian Cancer #1

Any ovarian cancer ladies here on a Parp inhibitor? I thought I was finished with treatment and had the medicine for 3-5 years bomb dropped on me. I was so shocked I didn’t even write anything down. I was bummed the first week. Now I need knowledge!

Me: ovarian cancer, 2a, hysterectomy & 6 rounds of chemotherapy (carboplatin and taxol) completed.

Like 1Care

Comments

  • katalina333
    katalina333 CSN Member Posts: 7 Member
    #2
    https://csn.cancer.org/discussion/328445/parp-inhibitor
    Like Care
  • katalina333
    katalina333 CSN Member Posts: 7 Member
    #3

    hello Badassmom,

    I am surprised there are no comments here? I’m also on PARP inhibitors Lynparza. Started 2 months after chemotherapy ended, also a big shock for me. I had assumed I would get a little break before beginning maintenance drugs. So I was sad for a bit but also grateful that there IS something to help keep the cancer at bay ( stage 3c). It took me about 3 months before I started to not feel tired and low level nausea. Now, 5 1/2 months in, I mostly feel pretty good, although there are some days that I am more fatigued. I am 69 years old, almost 70, and was treated for stage 2b breast cancer in 2008, so this old body has been through a lot! I just try to be patient and gentle and know that healing takes time. The worst part of the PARP symptoms for me are a lot of gas and occasional indigestion, and a bit of a decrease in appetite. I hope you’re adjusting well to the addition of the PARP inhibitors and enjoying your life.. without too much fear of future recurrence. Let us know how you are doing. I’d like to hear more from the PARP ladies on this site!

    Like Care
  • BadassMom
    BadassMom CSN Member Posts: 13 Member
    #4

    thank you Katalina333 for your reply. In the end I did not have to go on the Parp inhibitor. I’m so happy you are having a good experience with it. You are such a positive warrior. Thank you for reaching out.

    1Like Care
  • katalina333
    katalina333 CSN Member Posts: 7 Member
    #5

    happy to hear you didn’t need the PARP inhibitor. thanks for your reply and I hope you continue to do well!

    Like Care

Discussion Boards