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Feeling very discouraged
I had my first check-up today since starting carbo/doxil for my first recurrence. Sadly my CA125 went from 16 to 34. While this may not seem that high, my "original" baseline was 5. I was crushed. The doc said we will wait until another chemo cycle, then evaluate. The first carbo/taxo knocked it down right away. I feel…
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Neupogen shot advice
Can anyone give me any advice for my mom about the neupogen shot? She's scared to death of needles and the idea of getting these shots has her questioning whether she'll continue with the chemo. She has 4 infusion of carbo/taxol down with four more to go. She's petrified of the "bone pain" that the nurse told her about.…
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Double Take on my diagnosis
I was diagnosed 2 1/2 years ago with stage 3 ovarian cancer. I've had my ups and downs. I seem to be doing good = Today I had to go for a "routine" CT scan of my pelvis, abdomen and chest. While waiting I read my Drs. report - stating I had "relapsed peritoneal carcinomatos due to ovarian cancer". Has anyone experienced…
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I hate cancer
I am having an emotional morning. I have hardly slept and today for some reason i am feeling angry. Mom's chemo went well yesterday, she is continuing on with at least three more treatments so that will be 9 in total. I feel like this is going to be her life from now on and that the Mom i used to have is gone. Thanks for…
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Chemo has made me stupid!
So I am baking whoopie pies from a mix from crate and barrel. I am added the water and the batter was so runny. I am saying, "I am so mad I could spit!" I asked my daughter to read the directions and she confirmed I followed the instructions. So hubby says let me see if a man can figure this one out. So he looks in the…
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Freaking mother in laws!!
Quick rant! Mother in law visited earlier and started going on about mum, she is so bloody insensitive. Her comment was "well if your body is giving up then you should listen to it, I wouldn't take a 100 pill day to stay alive!" I immediately said to her well I would! I then said you would rather die then ? Silence was the…
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Anybody see "Wit"?
It is a movie about a young-ish professor that gets diagnosed with stage 4 OVCA. It has Emma Thompson in it and received rave reviews. I thought it might help me understand my mom better. Any thoughts?
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Freaking Doctors
I get so frustrated sometimes. I went out to Moffitt Cancer Center in Tampa yesterday. I live 3.5 hours away, so between the hotel room the night before, food, gas, and tolls I was well over 125 dollars just to GET to this all day marathon of testing to get me started on my clinical trial. So they call me this morning to…
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YIKES! What's that bulge in my belly?
Several people have recently discovered bulges that they feared might be tumors. Here is some information, in its own thread, that might help. Incisional hernias are VERY common when you have (1) had a "big belly" surgery and (2) had your omentum removed, as is typical of OVCA de-bulking. So....if you suddenly notice a…
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For those who don't Face Book....
Today is Lessa G's birthday! Happy B Day, Leesa.
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HELP: On feet all day with Doxil
Hi all - hopefully you can help, my mom is now starting Doxil. Her oncology nurses haven't been very helpful, I'm basically repeating instructions from the Doxil website, and it's like it's the first time they heard it. They didn't know you're supposed to ice the day before and up to 5 days after. They said they just wait…
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I'm thankful for....
the ladies on this board who, may not always agree, but are always open to listening and sharing and not passing judgement. The best thing about this board is the lack of drama! Hugs to all! Leesa
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OMG!!!! Was it a sign?
I cannot believe it! I was just letting the dog out , and was thinking of mum, looking up at the sky , I was thinking give me a sign,that she will be ok, low and behold I saw a shooting star! Who knows , I am choosing to believe that was a sign from dad and my grandparents up there that she will beat this! Hope so xxx
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An answer found to my mother's post chemo vision disturbance. Not good
Today they did an MRI and found four new small stokes that have caused the issues. Neuro indicated that cancer can thicken the blood. From what I read chemo can also cause issues. So here we are. They do not know if her vision will return. She says she can't see well enough to walk safely or even change her colostomy bag.…
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Thought for the day....
Never give in--never, never, never, never, in nothing great or small, large or petty, never give in except to convictions of honour and good sense. Never yield to force never yield to the apparently overwhelming might of the enemy. Sir Winston Churchill
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Libby - another ctscan today
Quick update so you can pray!! Doctor's office called and CTscan showed POSSIBLE blood clot in pelvic area. So as soon as Jerry gets in from hunting (Icalled him right away and I was shopping) we are on our way to James Cancer Center in Columbus, Ohio. Thanks for your prayers. Love, Libby
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So terrified right now
for the past few days i have the same symtoms i had last year when i first got sick. Pain in the stomach and middrift area, lots of gas and belching. Please please oray this has not returned to me. do not know if it may be the stress of loosing my sister or what, but i am just teriffied right now please pray
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MUGA Scan
Hello Everyone, On Wednesday I had a MUGA Scan for the first time in preparation for my treatment (AMG386/Doxil). Well, I got a call saying that the test results came back and my hearts major ventricle is functionimg at 50.3%. Because of that fact my oncologist is pulling me from the Doxil since its already toxic to the…
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Is this normal?
Hi ladies, I popped over to mums this morning, and she says that she can feel a lump in her tummy , it is in the middle to her right. She has had 3 lots of chemotherapy followed by surgery, and has since had 2 more lots of chemotherapy , she says it has been there for about a week, (wish she had told me sooner!!!) she has…
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Saundra is now in hospice care
This is Joe, Saundra's husband. Last night our two sons and I transferred Sandy to the hospice in-patient unit at Midland Memorial Hospital. She was ready for this after 27 days in the hospital. The home-like atmosphere, caring nurses, and accommodations for families made this an easy move. In fact, I had served on the…
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Next installment.............the wonder of anti-sick meds
Right, I ended up going back to the pharmacy a third time for a third set of anti-sickness meds. I never realised there were so many different types and the way they affect and control the nausea is amazing. So I now have Ondansetron (Zofran) - these block the "sicky" messages being transmitted from the stomach to the…
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Sometimes I just want to drink myself numb
Honestly, This isn't even my disease and I feel like I'm barely hanging in there. Maybe this is just a down period. I'm not coping well. I really hate this disease. I feel like I will survive my mothers illness and then get it myself. Even if caught early, it seems like it still gets you. I can't believe we are going…
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Mom back in hospital after her first carbo/taxol last Monday
Just for the record, ovarian cancer sucks. I mean really--- all this misery with my mom and then to come to the site and discover Saundra and another in hospice care--- not to even mention that woman with the incredible blog. Ugh. I was hoping that the carbo/taxol would go well, but my mom seemed to get progressively…
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I am glad I am back on chemo !!!!!!!!!!!!!!!!!!!!!!!!
Had my first Caelyx (doxil) yesterday and it was a pure breeze compared to carbo/taxol regime. It only lasted 90 minutes as opposed to 6 hours which in itself seemed far to short - but was good. Because the nurses here said it can cause total hair loss (brand name for the Caelyx is (liposomal doxorubicin) So I use d the…
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Good news day
I just returned from a long day at the hospital. First, I visited my onc/gyn who reported that the CA125 had taken another dive since last month, to 22.7. It was 76.7 last month and 167 the month before, and this last year it hovered around 150ish all year on doxil. He sent me down to the port doctor, to check out why the…
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Putting it in perspective
Today, I went to my favorite restaurant to get my favorite Prime Rib Sandwhich to go. I noticed a cup asking for donations because of the death of a co-worker. I realized that it was for the wonderful server/assistant manager who had always been so kind to me. Giving my kids an extra large helping of vegetable beef soup…
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nancy591: Looks like we have scans planned roughly the same time; same fears (((hugs)))
Hi, Nancy! I saw the news of your upcoming CT/PET buried in another thread. Couldn't help but think that our journeys are running parallel lately. I had my 3rd round of Doxil this morning, and don't have today's CA-125 back yet. But my CA125 has been insane on the Doxil so far, with labs taken every 3 weeks, sig-zagging…
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Funny how "De-sensitised" we become to cancer
Thought I'd share my little experience with you to illustrate how we can become so used to having cancer that we ALWAYS assume everything that goes wrong in our bodies "MUST BE CANCER" I had to go for a follow up cervival screen because my routine test came back with "changed cells" Well my first thought…
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My sister passed away today
Darlene fought the fight for several months but went home to be with Jesus this morning. She is out of her suffering and pain now.
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Maybe it's just me....
I have a friend - a lady a few years older than me, who calls/visits every few months. She is the same friend who, when I was in the hospital last year, unable to eat and vomiting uncontrollably, that told my husband I might be making myself throw up - an absolutely ludicrous notion. Anyway, this friend came over yesterday…