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so sad and upset
I posted a while back about my grandma. She was diagnosed with PPC in Oct 2005. She started carbo and tax right away and lasted 3 1/2 years before her relapse. Then they did some rounds of carbo. She relapsed again 10 months later and they did 4 rounds of doxil. She relapsed again after only 2 months. She has decided to…
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Holidays
Anyone have any ideas on how to manage the holidays while on tx. Sometimes I am too tired to shop and decorate.
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Advice for Linda
Having just read the heart-rending testimonies to Saundra from her husband Joe, and thinking about Bonnie, too, and further the post just recently on a 12 year survivor journey...want you all to know how much appreciated your encouragement has been to Linda and I during the last 5 years. I'm writing today for some specific…
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first time contributor
I have been reading this board for awhile and decided I should contribute. I was diagnosed on June 15th 2007 with Stage 1V ovarian cancer. Fluid on my lung was cancerous. I had 6 infusions of carbo/taxol and have been NED since. I know that this is the kind of news I needed to read when I was first diagnosed and hope that…
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Drama in the chemo room
A bit of drama in the chemo room yesteday. After a few minutes of the decadron and anti-nausea pre-meds went into my drip, i began to feel a tightness in my chest. At first it was very mild, but quickly became a pain, and then more intense like my heart was being wrung out. Then a wave of numbness down my arm, and then…
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So confused about mom's cancer
Ladies, I really need some help here. Ok, we've been told that mom's CT scans showed nothing in the way of any tumors in her abdomen. Her liver was unremarkable. But she has some thickening in her uterus. She also had severe ascites, that had to be drained four times before her first chemo. And it showed adenocarcinoma,…
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Afraid
I am really afraid right now. When I went to the bathroom to urinate today, I am seeing pink. I have put a call into my doctor but I am just scared to death.
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Pray for my niece think she has cancer
My niece just lost her Mother to cancer and now she may have cervical cancer, she get ultra sound the 10th if yuou can all pray for her
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Great NEWS- re: mom's surgery
The Dr told her she had the "best scenario she could of had" after surgery--- she did NOT have any colon issues and her spleen did not have to be taken! She had a hysterectomy and a tumor taken- and a few more chemos will take care of that. She needed a day to really recover after the surgery..lots of nausea- but it's now…
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Wishing
all to have a Happy Thanksgiving with their family and friends and to enjoy their time together and not to think about what we are going through!! Toast to all, Joan
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I hate Insomnia :)
it's 4am.I'm up for the 6th time tonight. you would think that with all the meds I'm on for neuropathy,hot flashes,leg pain,joint/body aches,stomach cramps and so forth, that one of them would help me sleep!!?? No such luck!!! I wake up 5-7 times a night. I don't want to add more meds to what i'm already taking. Isn't…
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BLESSED, HAPPY THANKSGIVING!
I thank God for all of you today and always. May you all find something to be thankful for tomorrow in your quiet moments, even in the midst of all that you are going through. God bless all of you. Luv & (((HUGS))) Monika
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New TSA guidelines
Just an FYI....although we all know that the metal detector at the airport will not pick up your port, the new body scanners most certainly will. And once they see something on the scan that isn't completely ordinary, you will be subjected to a pat down. This has happened to me repeatedly, since they installed the body…
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Can someone help me
I was diagnosed in Feb,2010 with stage 3 ovarian cancer. I had surgery which was not successful, they couldn't remove the tumor. I had 6 carbotaxoil treatments after the side effects were over I felt wonderful. Last month I started feeling a little nauseous & not wonderful. I went to my primary Dr & had CA125 test which…
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MOM is getting her surgery at 4 PM today..eastern time
Hi everyone..it's Michele- haven't been here in a while because mom has been waiting for surgery. Her BP was way too high last Friday to have her surgery so her surgeon got her in today. She is having a hysterectomy and spleen is diseased so they are taking that and we are not sure about her colon but the Dr felt something…
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Saundra is close to leaving
Dearest Survivor Friends, this is Joe, Saundra's husband. She is in her 16th day in the hospice inpatient unit, and has amazed all the nurses and her oncologist by hanging on this long. Since last Monday she has been heavily sedated to control intermittent spasms. All three of our children have visited while she was lucid…
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Never Give Up
I am having a recurrence of my 2009 ovarian cancer. Two months ago after a trip to the emergency room because of severe pain in the bowel, I had a CT scan that showed cancer specks all over the bowel and up on the liver. I was told that the reason I was in so much pain was because the bowel had pretty much adhered to…
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Not my wife, but that of a good friend
A couple weeks ago the wife of my freshman year college roommate passed away from ovarian cancer. How strange that two young men should grow up to share this challenge with their wives in middle age. I finally talked with him as I could not attend the funeral in Iowa as my wife was in throes of treatment here at home. But…
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I know I'm taking a break but...
I know I'm taking a break but I wanted to repost this here. This was in response to a post on Inspire, and I think perhaps my "break" has helped me to begin to sort out some stuff. I thought I'd throw it out there for you to comment on. This was a response to the lack of OVCA attention. "Part of the issue is that we are an…
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HIVES!
I've been battling hives since Friday night. Going into my 4th week of the new trial chemo regimen of daily oral pills. UGH!!! I've been on Benadryl all weekend and they keep coming back. I have to call the doctor on Monday to see how we will proceed. I haven't taken the pill since Friday. I am hoping a lower dose is in…
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Getting used to "new normal"
chemo has started...I still have my hair, however I have always used high end hair products because my hair is very fine and thin and my big hope was always if I used the best product my hair would...well be more what I wanted it to be like (never really happened). As I was in the shower yesterday (my first day for chemo)…
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Thinking about Saundra
Just thinking about Saundra this morning. Bonnie and Linda too.
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There is hope, after all....
I met two OVCA ladies in the waiting room today, when I went for labs. One is 3 years post-diagnosis and the other is almost two years. The first one was getting her semi-annual CA125 and the other was getting her 3 month blood draw and port flush. Both of them were stage 3c. Neither has had a recurrence. I would soooooooo…
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I should start a log.....
on all the different ways my 7yr old has come up with to cure cancer. From the weird 'why can't they just use a big shovel?" (A shovel???) To the simplistic, "can't you just find a doctor who knows how to get rid of the cancer?" Some nights he says to me, "Mom, I'm so happy you are still alive" It must weigh on his mind…
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Its not over until the fat lady sings!
Well today was meant to be mums last chemo! But her bloods have come back low :( . She will be having a blood transfusion on Tuesday so hopefully will be able to finish her treatment next week. On the plus side her ca125 is now at 9 :) Gutted I thought today was the final hurdle for her for (finger crossed) a long time.…
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Skeerd and anxious
Most of you have been there before....my first chemo is Friday, Carbo and Taxol. I will be doing IV, no port. I'm sitting in Buffalo airport after visiting my elderly Dad and getting ready to fly back to CA. The reality hit me when I checked my email and there was a confirming email from my local pharmacy confirming I have…
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Anti Nausea Meds
I'm wondering about these meds, if there are stronger ones or lesser ones or whatever. I've only had prochlorperazine (generic of compazine, I believe) but looking into starting the doxil in a few weeks, and especially after all the grief it gave Tina, I am wondering if I should ask for something stronger perhaps? I don't…
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CA 125 went up to 7.5 :(
This is my post-treatment CA125 history: May, 2010: 7 June, 2010:7.3 July, 2010:4.8 Aug, 2010: 6.9 Sept, 2010:6.9 Oct, 2010: 6.4 Nov, 2010: 7.5 I know it's still very low, but that doesn't stop me from fretting and fussing. Crazy, I know. And obsessive. I hate that I can't seem NOT to allow these damn numbers to rule my…
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Back in the land of living
It is 2 weeks since my first infusion of Caelyx (Doxil) and I am actually feeling OK. It was a total shock to me to have such terrible nausea and to feel so ill. No one warned me about these side effects with this drug. I was warned about the sore mouth and the hand and foot syndrome (Which in fact I do NOT have!!!) But…
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A good day
I went into my office today for the first time since 2/26/2010. I am retiring effective 11/30 and needed to clean out my office. I had been putting it off because every time I thought about going in, I got emotional. I worked there for 17 years. Well happy to report it was all upbeat. I got so many hugs and they were just…