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At her fingertips
Linda has had sore fingertips, especially the nails. Today at her scheduled chemo appointment the nurse called everything to a halt and consulted the medical oncologist, who called our gynecological oncologist (different hospital.) The Cisplatin/Taxotere mix was called off for today. I guess the sore nails are a bad sign,…
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Need some insight
So Mom went to have her 7th treatment today and my sister tagged along for the first time. Mom is going for a second opinion on Wednesday so the oncologist did not do the chemo incase the other oncologist wants to do something else. Otherwise chemo will go forward next week. Here is what we learned: 1) Mom's tumour has not…
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Chemo tomorrow.. then parole
Hi Loves, I go in for my zillionth chemo tomorrow, well actually I've been chemoing since last January and then I've been given the rest of the month off. I'm giddy with feeling of freedom that a mere three weeks will allow me. My CA-125's are still elevated, but a cat scan shows that my disease is stable, so I intend to…
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New here...
Hi, I'm Tawny. My mom got diagnosed with ovarian cancer on Nov 4th. She just turned 50 in April. As devastated as we all are, I'm planning on arming myself with the best info I can to help her through this. She had a full hysterectomy on the 23rd of Nov with an appendectomy, removal of her omentum, and debulking. Got a…
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What kinds of things do you do to take your mind off this monster?
Thank you all for your suggestions about diet in fighting this cancer. You have helped me to let go a bit and enjoy a few of the pleasures of life like eating some of my favorite things. I guess I'm learning about not allowing this monster to completely control my life. I was wondering, what kinds of things do you do that…
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Where is everyone from?
I live in Ontario, Canada. Any other Canadians here?
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Jayne Armstrong....world's most amazing woman
Jayne posted a couple of days ago on Face Book that she had been out bike riding with a friend. She must be the only patient in the history of Hospice who can do that! Jayne has just passed her 8th anniversary with OC and continues to fight, even though she is no longer doing active treatment. The world needs more heroes…
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Neuropathy ?
I am waiting for my doctor to get back with me but thought I would check with you all too. Have you ever had a neuropathy sensation that is a sharp electrical shock feeling go up your back and neck? I had this with another chemo treatment along time ago but I've had so many treatments in the last 4 1/2 years that I can't…
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Going back for a real second opinion
So as many of you may remember Mom's surgery was unsuccessful due to the location of her tumor. We asked for a second opinion at Princess Margaret Hospital in Toronto and Mom's oncologist begrudingly sent her for one Sept 27th. Well it turns out Mom did not see a oncologist or a surgeon. She saw a clinical studies doctor.…
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Our favorite things (Just for fun)
As you are out and about (or surfing the net this holiday season) reply here to post a few things on your personal wish list (selfish, material things only...) This post inspired by my new favorite nightgown.... a fleecy, long sleeved, knee length, lavender cardigan knit nightgown from Walmart @ a very affordable $15.00.…
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new report: Functional Role and Prognostic Significance of CD157 in Ovarian Carcinoma
This research results is particularly hard to understand, but for those of you who have or want to have tissue assays, especially those with serous ovarian, it may be useful. (Please post if you can interpret this in layman's terms; this is a HARD one to understand): Functional Role and Prognostic Significance of CD157 in…
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primary peritoneal?
A group of us women are terrified for our dear friend. She was resently diagnosed and is visiting her first oncologist tomorrow. We have read that the debulking surgery is the intial tratment done prior to chemo. Tumors were not located using a PET scan. We understand that merely means that the tumors are under 2cm.…
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Next round of testing....
Just an update... New: weird, soft, lump on my left ankle (disappears when I'm not standing)...not a blood clot...Doc has no clue MRI scheduled for Dec. 14. Also scheduled for Dec. 14: Mammogram (routine) 6 month blood draw: Jan. 5 6 month CT scan, abdo, pelvis, chest: January 12 6 month Onc. appt: January 17 7 month Gyn…
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Good news I think
Mom and I went to the oncologist today. Her tumor markers with chemo only are down to 102, she's had two chemo's. They started at 770. So we are hoping and praying that the chemo will get it in remission before she even has surgery. The onc said the gyn/onc was very hesitant to do surgery on her because it might be…
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Second surgery anyone?
Hi ladies, Mom had her initial surgery Sept 3rd and it was unsuccessful due to the location of the tumor. It was pretty well contained but it was too close to the blood supply to tell where the tumor started and the blood line ended. Today Mom had her fifth round of chemo. After four rounds her CA-125 number is 4,056 which…
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Any suggestions for fighting OVC through diet?
I am at almost 3 months out from surgery and 3 chemo treatments for Stage IV . I have struggled with weight for years, and now wonder if it had anything to do with the crap that's probably been going on in this 54 year old body for years. I struggled with infertility to have my son for 9 years and had surgery for…
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need advise
a very close friend of mine has stage 4 ovarian cancer,any thing i can do to help her.i have myself been though chemo and radiation for lung cancer ,i have tryed to help her any way i can,but i know it has spread to a lot of other places.so what do i do? I am tring to keep her as up as poss.what do you think/
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CT results
Mom had a ct scan November 22nd, we got the results today and this is what they said. Mom has no fluid in her lungs or surrounding her tumour. The mass has not grown. I was hoping they would say it shrunk, I really want them to try again to remove it but it doesn't sound like that is going to happen. We were told the…
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Hospital bashing
Does anyone remember me posting something awhile back about a friend who bashed my cancer center? She spoke about my hospital receiving federal funding and this was influencing their diagnosis. A friend of her's has a spouse who had went to my well known cancer center for treatment. They told him he was terminal. She took…
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anyone with mixed mullerian cancer
my wife has this type of cancer.the doctors said two years survial
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Dieting while on tx
My md says not to diet while getting chemo but i am gaining weight again. I lost 20 pounds last year and gained it all back. I try to eat healhly but i am hungry all the time it seems.
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Diarrhea
I was diagnosed with stage 2 Ovarian Cancer two years ago. I went through a hysterectomy and chemotherapy. In the year and a half since I finished chemo I have been battling diarrhea. My CA 125 has been very constant, at or close to 5, and my overall health has been improving steadily, but I can't trust my bowels anymore!…
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Dieting while on tx
My md says not to diet while getting chemo but i am gaining weight again. I lost 20 pounds last year and gained it all back. I try to eat healhly but i am hungry all the time it seems.
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Dieting while on tx
My md says not to diet while getting chemo but i am gaining weight again. I lost 20 pounds last year and gained it all back. I try to eat healhly but i am hungry all the time it seems.
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Worried about my mom catching cold
Ok, this may be silly, but I know that mom's white blood counts are down. They aren't too terribly low, but lower than normal. And just this evening I've started running a small fever and having a sore throat, and I'm the primary care taker. How worried should I be about this? I've got to go to her house tomorrow and set…
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December is break time
for me and my body. After my drama in the chemo room last week, I did go in for a heart US, and everything checked out fine. My doctor thinks it was "overall fatigue" and suggested that I take some time off to refresh. I am going to take him up on it, and so I might not be checking in so often in December. Over the last…
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Feeling scared
A friend of mine who also has OVCA doesn't have much longer to live. Hospice was called in last week. She was diagnosed one year before me, she didn't even last 3 years!! This news has me really shaken up and freaked out. It will be 2 years since my diagnosis in April 2011. I'm only 32, so I have age on my side but I'm…
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Saundra is at peace
This is Joe, Saundra's husband. Sandy died peacefully at 1:30 p.m. CST after 27 days in the oncology department and an additional 18 days in the hospice unit. Before she left us, she was visited by all three of our children, their spouses, and all six grandchildren—ages 14-22. Her courageous battle ended just as our…
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ca 125 test
what does the result numbers mean
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Doxil
This is my 3rd treatment for OC, I was less than 6 months in remission when my numbers flew off the chart. I had my CT Scan and it showed 3 small tumors 1 in the pelvic, 1 in the Lrg intestine and 1 in the omentum. the Dr has me on Doxil now since I can't go back on Carbo/Gemzar or Carbo /Taxol ( due to nerve damage in my…