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Ovarian Cancer

Does anyone get scared having a pet scan??
had a pet scan this week and dreaded going under the machine as it almost touches your face. The tech told me some people put a towel over their eyes so they don't see at all. I had one of my little chemo caps on so I pulled it down over my eyes and it really worked wonders I wasn't as scared this time. Some people get…
Dear Laundry Queen,
I tried to find the article you recommended to Libby about cancer and inflammation: http://www.cancernetwork.com/binary_content_servlet but hit a dead end blank screen. It sounds interesting, do you know what I'm doing wrong? Thank you, Chris
Just signed up for clinical trial at MD Anderson
I just signed up for a Phase 1 clinical trial, this one includes Doxil, Avastin and Torisel. They said it has had some real good results so far with other cancers and is close to going into Phase 2. I hope it works for me. I don't look forward to giving up some of my favorite things, fresh tomatoes (that are riping in my…
Dr's office staff pi$$ing me off.
Hello everyone!! I haven't been on for a few weeks. I have been hospitalized twice with bowel obstructions. I was VERY lucky to have them resolve on their own over a few days in the hospital. I am trying to go back to work. I am a nurse in an Emergency room. I have been on medical leave since Feb 2010. Since I was gone for…
port has flipped, on avastin, what to do?
So my port has flipped over. I have 2 doctors, an oncologist and gyn-onc. One says I can have it surgically flipped back and possibly it needs to be reattached, no problem while on Avastin treatment. The other says, "no" you will have to wait for 28 days after your treatment with Avastin is done. Hummm................ And…
Thank you Clamryn (Linda) for your response
Thank you Linda. I am glad to hear that you are on Coumadin and Avastin. As I said, I'm on injections of blood thinner and my body is so bruised from the injections, it isn't funny. I plan on letting my dr. know that I will give the injections only a few more months and then if I have to will go back on coumadin. My…
first line chemo checkup dilemma
my sister, who was diagnosed with UPSC IVB in February, 2011, is coming up on her third carbo/taxol treatment. Her oncologist tells her that she will get a CT scan as well as a CA125 test to see if the treatment is working. Unfortunately, the CA125 test does not seem to be a marker for her--she has been under 30, including…
Question for anyone on or had been on Avastin
Hi,I would really appreciate any responses from people who are currently on Avastin and a blood thinner. Or anyone on Avastin and Coumadin? Or, on no blood thinners at all and never had a problem with the Avastin? I know one other person on this board is on an injectable blood thinner. Last year I had developed a small…
PARP Inhibitors in Ovarian Cancer
Some cell-based assay labs have explored the biology of PARP inhibitors, alone and in combination, in actual human tumor primary culture micro-speheroids (microclusters), in breast, ovarian and other cancers. In these investigations, the lab applies the functional profiling platform to understand how PARP inhibitors…
Avastin/taxol not working what next??
Well, been on this **** of a ride for close to 4 years now. Had avastin and taxol for a bout a year. What a wonderful combo. Low dose no hair loss pretty stable blood counts now for the 2nd month my markers are up to 43. So low, but I am so sensitive to the markers that even when they were 20 I still showed small disease…
Mom going downhill FAST
Mom has pneumonia.....sodium 120.....BP 113 over 55.....I think she needs to be in the hospital, but I am not there....not sure what the hesitation is on part of the doctor....I fly out tomorrow and arrive at 7:00pm.....I fear this is my last trip....I am surprisingly calm....will keep you all posted....
Phase I/II clinical trial: viral therapy
I found this on the Ohio State University Comprehensive Cancer Center web site (866-627-7616) This is biological therapy instead of chemotherapy. Viral Therapy in Treating Patients With Ovarian Epithelial Cancer, Primary Peritoneal Cancer, or Fallopian Tube Cancer That Did Not Respond to Platinum Chemotherapy Identifier…
Cancer is not only the tumor; it's also the process
The "targeted therapy" (such as Avastin) approach towards the treatment of cancer demonstrates a paradigm shift towards changing the environment that promotes cancer. Included with this is understanding the "epigenetic" triggers to cancer & how the individual can actively lower their risk of cancer occurrence & recurrence.…
My mom was laid to rest today
only 10 months after being diagnosed with OVCA. Trying to be thankful that she's in a better place with no suffering and no more pain. I miss her already and can't imagine my life going on without her in it. To realize I can't pick up the phone and call her to tell her something funny that happened or to vent about…
Re: Nutrition Question..... Flaxseed?
Hello, This question is for Monika (Mopar) and anyone else who might know more about the benefits or risks of flaxseed for ovarian cancer. Please correct me if I'm wrong, Monika you said that flaxseed as related to estrogen should not be used? Can you or anyone else expand my understanding as to the risks or benefits of…
Marty
You asked if anyone else is suffering with pain. Since starting my Avastin I am having such terrible pain everywhere even my toes hurt ! I think the Avastin is ramping up my athritis but I hurt in places that never hurt before , my neck , arms and shoulder too. I was already on medication for the athritis and back pain and…
I woke this morning and felt cancer was gone
it felt really good to have no pain or nausea and I had a great feeling for the first time in a long time that my ca was gone. I have a pet/ct scan on Wed but I am almost sure I will be ned for a awhile. Has anyone else felt this way? Do you feel when your ca is gone or back
CA125 Levels and Relation to Remission/Survivability
Hello again Teal Warriors! My wife, Cindy, is still in remission after 7 cycles of maintenance Taxol Chemotherapy! Her CA125 level has hovered between 1-3. This has prompted me to wonder if a low CA125 has any correlation to delayed disease progression and overall survivability. Do any of you good ladies know of any…
Information on IV vitamin C use for cancer treatment
Sugar, Cancer, & IV Vitamin C As far back as 1971, Linus Pauling claimed that high dose vitamin C helps cancer patients. He conducted studies that indicated this. The Mayo Clinic conducted studies that disproved it, but they used a different form of Vitamin C and did not follow Pauling’s protocol. High dose vitamin C is…
Latest test results
I had blood drawn two weeks ago. CA-125 is 2. HE4 is 37, down from 49 (normal range is 1 to 150). Keep the faith! Wishing you all the best.
CT results
I got my CT results las Thursday. CT was clear in the bowel, and the pesky tumor on the cava vein was 2.7 cm, up from 2.2. So, it grew a bit but the lymph nodes were zapped by the taxol/carbo, we can assume. My comment to my doctor was that I'm sure that if we were to take a PET, there would be small tumors on the bowel…
Weight loss and OVCA
I saw LaundryQueen comment that she has noted a correlation with weight loss and initial diagnosis of OVCA. My wife was diagnosed (Stage IV) 6 months after losing 40-50 pounds. Any others have a similar experience?
TA-65
hello, i would like to know if any of you ladies taking TA-65 and what are the benefits of it and what are the side effects if any. can it be taken while on chemo and where do you buy it. thank you Victoria
Dear Carlene re: your response to Sarah re: antidepressants
Dear Carlene, I was so happy to hear what you wrote to Sarah re: antidepressants. I couldn't agree with you more. I've been battling this for several years and most recently the oncology nurse said to me, that I should be on antidepressants and maybe should talk to a psychiatrist. I was so furious with her because I felt…
A tribute to my Mom.... FYI I did not write this.
Without You Mom, without you, there would be no me. Your love, your attention, your guidance, have made me who I am. Without you, I would be lost, wandering aimlessly, without direction or purpose. You showed me the way to serve, to accomplish, to persevere. Without you, there would be an empty space I could never fill, no…
EASTER BLESSINGS
TO EVERYONE HERE - EASTER BLESSINGS TO ALL OF YOU. MAY YOU FIND RENEWED STRENGTH AND JOY ON EASTER AND ALWAYS, AND MAY YOU KNOW THE LOVE WE HAVE BECAUSE OF OUR RISEN SAVIOR. MY LOVE AND HUGS TO ALL OF YOU AS YOU CELEBRATE IN YOUR WAY, WITH YOUR FAMILY, AND WITH YOUR TEAL FAMILY. MONIKA
Tinnitus
Hi, I have continued to receive support from all of you, even though I do not post much, since my dx in Aug., 2009. You all are blessings!! I am a little over a year post-chem (a blessing to be sure). I have a question - has any one had difficulty with tinnitus (ringing in the ears). It began about six months ago, just…
Third Time Survivor - Advanced Stage IV Ovarian Cancer
Since 2003 , I have been going through this up and down rollercoaster of being "chronic." Last time I had Carbo/Gemzar on a 2 week on 1 week off for OVER a year--until I had a reaction to the Carboplatin. That was in 2007. When I regressed this time, I chose a super-experimental chemo pill because after all the expenses of…
Hi Carlene - no I didn't take your info re: antidepressants negatively
Hi Carlene, No, please be sure you didn't leave me with that impression. I also take an anti-anxiety pill but I guess I just don't appreciate the way nurses take it upon themselves to recommmend anti depressants to a patient. I just feel that people with cancer are dealing with just some type of stress because of the…
Sarah (The Carcinista)
Sarah has made the decision to discontinue treatment. The current drug is not working, and Taxol or Topotecan, according to her doctor, might give her an additional week or two, but no more. She posted: I’m TIRED. Tired of feeling rotten, of being stuck in the house, of not being able to do anything for anyone but myself…

Ovarian Cancer

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