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Stage 3c, BRCA2 postive and liver metaste
I was diagnosed Dec 17/2009, stage 3c, and had the usual surgery dec 31. 6 chemo tratments of carboplatin and taxol. I responded well to these treatments and CA125 levels came down to 6, last treatment May, 2010. November, 2010, 6 months later the level was 8. They didn't do a CA125 test at the 9 month checkup. Genetic…
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in need of information
Hello fellow members; I am a 33 year old survivor of ovarian germ cell cancer, I was first diagnosed at the young age of 21, and have now been told im cured. However I am also now being told that due to the chemo regimend i was on ( bliomycin) that I now have bliomycin enduced lung injury. well the Dr's speak in tongues so…
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Platinum-resistant disease
Are there any good stories from or about people with platinum-resistant disease? I feel so hopeless right now after my appointment at MD Anderson. I guess I am going to have a good cry. Thanks a bunch all. Kate
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Some Good News
Just wanted to post some good news.....my CA125 is 6 and I am still dancing with NED. It has been 3 yrs since surgery. ((((HUGS))) to all my teal sisters.
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Results Day
Just getting back from Houston. I met with the good doc to hear the results of my scans , X-ray and labs. The cancer is back. I am platinum resistant. My options are Doxil or go into a clincal trial. I am going to meet with them soon at MD Anderson to see about the clinical trial. The CA is on my (left side)diaphragm and…
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Ovarian / Peritoneal Cancer
Hello, I am from Germany so please forgive me for mistakes in language and terminology. My mom got diagnosed with Peritoneal Cancer that originated in Ovarian Cancer. The ovaries were taken out, as well as the bigger knots of the cancer but it spread everywhere so there is no way to remove it all. We have looked into the…
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platinum refractory
Hi gals, I stumbled across this abstract on topo, and found it interesting. It is on the PubMed site Ovarian cancer is the fifth leading cause of cancer death in women. Most patients with ovarian cancer respond to first-line chemotherapy, but many relapse within 18 to 22 months. The development of efficacious salvage…
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Giving myself a new look
I have ordered one last wig - I hope. This one is different than the others. I have 3 - one human hair and 2 synthetic - that are almost identical. This one, though still short (I no longer have the patience for long hair), is a new look. I will post a new pic when it arrives. Carlene
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stomache ache
Dear All, I've been "lurking" on this message board for some time. You all are amazing ladies. My mother was recently diagnosed with stage 3 ovarian cancer. She did a few rounds of chemo (carbo/taxol) then last week she had the debulking surgery. It went well. She's in the hospital recovering, but she has been having a…
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Doxil making mum poorly.
God , when is she gong to catch a break hey, she was almost in tears on the phone this morning. The doxil has made mum feel really rough, she says she feels like she has the flu. Has anyone else felt like this on doxil , and how long did it last after each infusion? It seems most people tolerate doxil quite well ( except…
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Journal to eternity
San_Antonio_Lassie (Inspire board) has been in home Hospice for a month now. Her goal is to journal the details of the last leg of her journey, if it does turn out to be worst case scenario. I'm impressed and surprised because Inspire is a very different dynamic-mostly posters who are less receptive to end stage…
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"Should we pull away when our news is bad?" continued...
I am taking the liberty to re-post LInda's words to be able to continue this discussion on a new thread. Her quote is below: Nancy opens an interesting point for us to discuss, maybe not on this particular thread, but something I wonder about. Should we pull away when our news is bad? Is it too disheartening for this…
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Yes..cancer sucks...
Well. of corse it was the worse news ever...i am in the car now with mom and sister...growing growing everywhere...stress fracture in her back....taxol is out and avastin starts next week...mom sobbing...wendy and I trying to cope and distract her...i have nothing to say....knew it was coming....
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AH! C'MON!
After my post yesterday about getting my CA125 checked last week, earlier than waiting the three months as my dr.s had recommended and having it go up from 22.7 to 37, I decided okay enough tears for now I'm going to fight this thing! So.....this morning I took my daily brisk walk, about one mile into it I thought about…
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Susan Neighbors
I received this message from Katheryn Turner today.... Hi, Susan Neighbors (Susan523) passed away yesterday. I thought it should be on the board, but I just can't bring myself to do it. I don't know any details.... I only knew she wasn't doing well. Kathryn I am numb. It feels like this disease is just devistating lives,…
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Disneynutt, found that info!
I posted it under the platinum resistant heading. Liz x
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Should We pull Away When Our News Is Good?
Good Morning, Should we pull away when our news is good? We are torn on this subject, because we do not want to post when others are not doing well. Thank-You, Paula
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Board Etiquette
I am never sure if I am supposed to respond to everyone that answers one of my posts or not. Please know that i am very greatful to everyone that helps me out by answering my questions. The wealth of information and support you provide are priceless. I hope each and every one of you get the miracle you are searching for…
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Tethys41, Where do you receive your Vit C IV treatments?
Tethys41,Thank you for sharing this information. I remember reading much of what you shared about 2 1/2 years ago when I was researching to help my brother who was dying of colon cancer. He had started the treatments, and supplements too I believe, at the Wellness Center I think it was called started by Dr. Whittaker in…
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Bitter sweet !!
Fantastic news ,the sweet side , the doxil is working for mum!! Happy days! Her ca125 has come down from 247 to 120 after one treatment! Yes yes yes, thank you god! But the bitter side, mums consultant said he wanted a chat with me on my own to see how I was coping, we talked really about mums treatment plan, and the…
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The numbers game
Saw my oncologist on Friday for a regular appointment. He explained to me that the CA125 has a 12% margin of error. the HE4 has a similar margin of error, but I forget what he said it was. Added to that, there's just a bit of normal jumping around that the numbers do. Finally we both agreed that even if there is a rising…
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Acupuncture
If anyone is having acupuncture, I am interested in hearing about your experience with it. The local hospital is opening a Cancer Wellness Center with a physician who does acupuncture and other healing modalities. I've been having acupuncture treatments for several months and the doctor made a comment about the…
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A Possible Reason for Lifestyle Changes
In my opinion, the following information (published in Cancer Research, April 15, 2003, Volume 63; page 1727) supports the benefit of lifestyle changes a person might do to improve their survivorability after OVCA & PPC. Although the research has not actually been done on OVCA, some OVCAs and PPC are considered to be…
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Exhaustion Question and the ladies of the board.
This may seem like a silly question but i read about a lot of you ladies continuing with your regular life, some continue to work, some still go on daily walks etc. I have often wondered why my mom is unable to do any of these things. She doesn't even really cook anymore, or do laundry or clean the house. I know she does…
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Low-Grade Ovarian Cancer?
I think I must have low-grade ovarian cancer. I was diagnosed in January of 2006. Altogether, I was on at least 6 different chemos and even added Avastin but my CA-125 would briefly fall and then would start climbing again usually before I finished any of the rounds. I started going to MD Anderson Houston, in September…
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Re-bound growth after Avastin therapy?
I found & copied the following post on the Inspire discussion board and don't know the original source of it. Is anyone knowledgable about this information? ********************************************************************************************* Serum (testing human serum derived from colon cancer patients who had…
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New Number
36 I admit it, I'm scared. It's doubled. Leesa
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study re chemo prior to debulking surgery
Study re doing chemo prior to debulking surgery in later stage ovca diagnosis... Study Suggests Wider Role for Neoadjuvant Chemo in Ovarian Cancer Elsevier Global Medical News. 2011 Apr 6, D McNamara ORLANDO (EGMN) - Neoadjuvant chemotherapy with interval debulking surgery yields similar overall and longer progression-free…
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CA 125 went up some
I am sorry to post this with all the sad news we've been getting here lately.....My last ct scan March 8th showed close to remission but still some small tumors in the abdomen. Both my gyn/onc and chemo dr.'s recommended that I take a three month break to get stronger after the surgery Sept. 10 and six rounds of chemo. I…
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some good news
I've been ease dropping on your, now our, discussion board for a few weeks now. I'm new to the board but was diagnosed a year ago, April 30, after a "routine" hysterectomy (a la de Vinci) revealed the source of health issues that had gone un- and mis-diagnosed for years. Debulking of tumors and surgeries on major organs…