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Susan Neighbors
I received this message from Katheryn Turner today.... Hi, Susan Neighbors (Susan523) passed away yesterday. I thought it should be on the board, but I just can't bring myself to do it. I don't know any details.... I only knew she wasn't doing well. Kathryn I am numb. It feels like this disease is just devistating lives,…
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Disneynutt, found that info!
I posted it under the platinum resistant heading. Liz x
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Should We pull Away When Our News Is Good?
Good Morning, Should we pull away when our news is good? We are torn on this subject, because we do not want to post when others are not doing well. Thank-You, Paula
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Board Etiquette
I am never sure if I am supposed to respond to everyone that answers one of my posts or not. Please know that i am very greatful to everyone that helps me out by answering my questions. The wealth of information and support you provide are priceless. I hope each and every one of you get the miracle you are searching for…
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Tethys41, Where do you receive your Vit C IV treatments?
Tethys41,Thank you for sharing this information. I remember reading much of what you shared about 2 1/2 years ago when I was researching to help my brother who was dying of colon cancer. He had started the treatments, and supplements too I believe, at the Wellness Center I think it was called started by Dr. Whittaker in…
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Bitter sweet !!
Fantastic news ,the sweet side , the doxil is working for mum!! Happy days! Her ca125 has come down from 247 to 120 after one treatment! Yes yes yes, thank you god! But the bitter side, mums consultant said he wanted a chat with me on my own to see how I was coping, we talked really about mums treatment plan, and the…
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The numbers game
Saw my oncologist on Friday for a regular appointment. He explained to me that the CA125 has a 12% margin of error. the HE4 has a similar margin of error, but I forget what he said it was. Added to that, there's just a bit of normal jumping around that the numbers do. Finally we both agreed that even if there is a rising…
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Acupuncture
If anyone is having acupuncture, I am interested in hearing about your experience with it. The local hospital is opening a Cancer Wellness Center with a physician who does acupuncture and other healing modalities. I've been having acupuncture treatments for several months and the doctor made a comment about the…
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A Possible Reason for Lifestyle Changes
In my opinion, the following information (published in Cancer Research, April 15, 2003, Volume 63; page 1727) supports the benefit of lifestyle changes a person might do to improve their survivorability after OVCA & PPC. Although the research has not actually been done on OVCA, some OVCAs and PPC are considered to be…
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Exhaustion Question and the ladies of the board.
This may seem like a silly question but i read about a lot of you ladies continuing with your regular life, some continue to work, some still go on daily walks etc. I have often wondered why my mom is unable to do any of these things. She doesn't even really cook anymore, or do laundry or clean the house. I know she does…
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Low-Grade Ovarian Cancer?
I think I must have low-grade ovarian cancer. I was diagnosed in January of 2006. Altogether, I was on at least 6 different chemos and even added Avastin but my CA-125 would briefly fall and then would start climbing again usually before I finished any of the rounds. I started going to MD Anderson Houston, in September…
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Re-bound growth after Avastin therapy?
I found & copied the following post on the Inspire discussion board and don't know the original source of it. Is anyone knowledgable about this information? ********************************************************************************************* Serum (testing human serum derived from colon cancer patients who had…
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New Number
36 I admit it, I'm scared. It's doubled. Leesa
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study re chemo prior to debulking surgery
Study re doing chemo prior to debulking surgery in later stage ovca diagnosis... Study Suggests Wider Role for Neoadjuvant Chemo in Ovarian Cancer Elsevier Global Medical News. 2011 Apr 6, D McNamara ORLANDO (EGMN) - Neoadjuvant chemotherapy with interval debulking surgery yields similar overall and longer progression-free…
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CA 125 went up some
I am sorry to post this with all the sad news we've been getting here lately.....My last ct scan March 8th showed close to remission but still some small tumors in the abdomen. Both my gyn/onc and chemo dr.'s recommended that I take a three month break to get stronger after the surgery Sept. 10 and six rounds of chemo. I…
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some good news
I've been ease dropping on your, now our, discussion board for a few weeks now. I'm new to the board but was diagnosed a year ago, April 30, after a "routine" hysterectomy (a la de Vinci) revealed the source of health issues that had gone un- and mis-diagnosed for years. Debulking of tumors and surgeries on major organs…
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Proton radiation therapy - anyone know about it?
Hey everyone! Has anyone hearrd of Proton Therapy and it's results in Ovarian Cancer that is localized in a particular area? (stomach, liver etc. . .) Thanks! Lauren
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Anyone have pain with Taxol?
Mom has been having severe back pain this past week....of course, I immediately think she has bone mets...I purchased her a heating Pad today that seems to minimize the discomfort a little. She says that extra strength tylenol doesn't help...anyone have bone mets or is this normal taxol side effects......? Her CT is…
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Had my 3rd Surgery in 2 yrs last week. 24 is too young for this.
I had surgery July 8th 2010 to remove a football sized malignant tumor, right ovary and fallopian tube, as well as a few other pieces. The pathology came back as mucinous adenocarcinoma, stage I. I've had 7 ultrasounds since July, and I was referred to an gyn oncologist at the U of M. She did a CT scan and they couldnt see…
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My husband and i have been married 24 years today
what a wonderful blessing to live another year to celebrate 24 wonderful years with my honey. I am so grateful for life. Hugs Lynda
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New Number
36 I admit it, I'm scared. It's doubled. Leesa
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Reoccuring Ascites
Can anyone tell me about reoccuring ascites? After two years of treatment for ovarian cancer my friend has developed ascites and has the paracetesis procedure done approximately every other week. Will it eventually go away? Any light you can shed on this would be greatly appreciated.
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Just need answers and encouragement!
My mother, who is 66, was diagnosed with cancer in February. Keep in mind that the CT showed a mass in her pelvic area. The docs are not really sure what type of cancer it is, but it presents as ovarian cancer. The abdominal fluid caused concern and her surgeon opted to start chemo before attemtping surgery. She has been…
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vaccine trial cvac (dendritic cell vaccine) phase IIB
Hi everyone, I'm considering going on a cvac trial for stage 3/4 ovca who are in their 2nd remission. Has anyone else been on a cvac trial? Thanks for any input Take care, Carolyn xx
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Radiation Treatment
Hello my name is Gret, I'm looking for some information. I have stage2 11b ovarian cancer. About to start radiation treatment, I'm very scared and neverous, want to know what to expext...please any info will help me
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My mom lost her battle with Ovarian cancer today.
My beloved mom, my hero, my best friend, died this morning. 11 months after she was diagnosed to the day. My family is fortunate that we were prepared for the death, better than a sudden death. I know she loved me very much, but my biggest fear is that she didn't know how much I loved her. That is tearing me apart inside,…
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I have EYEBROWS!!!!
At last! And my hair is coming back in, as well, but it's really short and patchy. But my eyebrows are totally back to normal. I might even have to shape them soon! My eyelashes are reappearing, but more slowly. I can wear mascara, though. When my hair first started re-growing, it had no color, I swear. Not gray, or even…
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3 Clear CT Scans during chemo, 2 months later they found small leasions in lower pelvic, but CA 125
This is so hard, just when my hair was growing back, my CA 125 went from almost 6,000 down to 26. I had two clear CT scans, no evidence of disease, but now, just 8 weeks after I completed chemo, CT scan two weeks ago shows small leasions in lower pelvic area. I don't understand how the disease could be growing back and my…
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venlafaxine (effexor)
hi my doctor prescribed to me venlaflaxine for hot flushes , even though it is anti depression/anxiety medication, please let me know if any of you Ladies know anything about it or taking it, what are the positive effects, and negatives. Side effects? thank you Victoria
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new article Apr. 2011: Overview of Anti-Angiogenic Agents in Development for Ovarian Cancer
Overview of Anti-Angiogenic Agents in Development for Ovarian Cancer Gynecol Oncol. 2011 Apr 1;121(1):230-238, RA Burger Abstract Objective: To review the rationale for targeting the vascular endothelial growth factor (VEGF), platelet-derived growth factor (PDGF), and fibroblast growth factor (FGF) pathways for…