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#5 Could today get worse?
OK, this one may not be so amusing.....I just left sister's house (lets call her W for future reference). She had just gotten off phone with Mom's gyn/onc who sounds like she bursted sister's denial bubble big time....Now I feel badly for W. Doctor told W that there was no way Mom was going to get avastin next week (yes…
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Hospice
Finally, it has happened to Mom.....the gyn/oncologist spoke with her GP today and she said there was no more they could do.....the docs spoke with my sister, who spoke to me. They are calling Mom tonight....not sure what the wait is...she is in great pain....I am frustrated it has taken this long,…
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Hard getting on with life
My mom completed her carbo/taxol tx last month. She was NED at completion. You would think I would be jumping for joy at this news but there is this big part of me that can't stop worrying for the other shoe to fall and for a reoccurance. My mom has been through a lot in the last 10 months----if she had been in a car…
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Journal Entry #4...Everything is back to normal now.....
My sister has informed me that things are fine....Mom isn't going anywhere any time soon...The hepparin is just to help the swelling and she had a great night....and day yesterday.....her nausea is under control as well.......MY VIEW: I arrived this morning to a nauseaous and paned mother who was told this am by her MD…
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Feeling frustrated
I was supposed to start the clinical trial last week but I couldn't get my insurance to put it in writing that they would pay for the meds. I had all the new tests and scans done. My CA-125 is up to 114 and climbing. The tumors are growing in number and in size. It is so scary. I had plueral effusion back when they…
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Update and thanks
What a nightmare day..........baseball size tumor on her liver.....FINALLY, FINALLY, a doctor who was straight with her and who called a program in her town, which has palliative care, bridge care and hospice all in one.........Mom is very sad but kind of knew.....I am relieved that she is going to get the care she…
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Journal Entry 3 ..... The sad state of the medical doctors ...and froggy handkerchiefs
Well, so far, neither doctor has called to talk to my mother about her scans from Monday and the fact that there is no more they can do....she's sitting upstairs waiting to discuss what we're going to do next........what a poor reflection on these doctors who are supposed to walk her through this process...i think it's…
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Weight, exercise and cancer risk
Hi everyone I picked up a MacMillian cancer booklet the other day at my hospital called "Exercise after cancer treatment" as I am wanting to get my fitness back. Half way through the booklet there was a section about how oestrogen plays a part in our cancers: "The female hormone oestrogen is linked with breast cancer and…
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Update on Nancy591
Nancy called me this morning. She is still in the hospital - the main hospital of Memorial Sloan-Kettering on York Ave - and the ascites is building up at an alarming rate. They are draining 3-4 liters off every day. One of her doctors offered to refer her to the palliative care team. He said she is not well enough for…
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Devastated
Hello Everyone, My name is Janeth & my Mom was diagnosed for the 2nd time with ovarian cancer stage 4 :-( I'm devastated with the news!!! I'm afraid she won't be able to handle her chemo treatment that will b starting next week. what can I do to make things more easy for her??? Please help!!!!
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Going in the right direction
So I just finished my 4th chemo today and before treatment they took my blood and came back to tell me that my ca-125 is 13! I hope after this one it goes down even more. This is the the fact my genetic testing came back negative have been the fisrt good news I 've heard in a while. I needed it. My WBC was at 4.0 right on…
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Ascites ....... It's back
Mmmmm , help what do you think , the ascites slowed down , it has been four weeks since the let drain , we were hoping that would be it, however it is now back , is the treatment working?????? Or has it stopped working???. Jesus this **** is relentless , opinions please , thank you xxxx p.s the ca125 on the last draw. Was…
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Saying hey, with pic!
Hello everyone. First a word of thanks for your encouragement over the years. My wife was first diagnosed and treated in 2005. We have been through two recurrences since then. One in 2007 and another last year in September 2010. Blessedly the cancer has been beaten back with chemo each time. We all know what a challenge it…
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allergic reaction to carbo
I've been on carbo/taxol for the last 15 weeks, I've since have had a allergic reaction to carbo and have to have my last carbo treatment in the hospital and was informed it would take all day. Has anyone had a allergic reaction to carbo? Hoping all goes well, Joan
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Has anyone been on Avastin, & experienced High blood pressure & took bp meds?
Hi, I was just wondering if anyone experienced high blood pressure while on avastin and what did you take? I always like to take the lowest amount of medication, if possible. Thanks for any replies.
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Stop the Madness
I hope you all don't mind, but I feel a need to "express" myself and don't want to continue stalking Barbara53....I'm afraid she has blocked my number, and although she lives 4 states aways, she is probably getting a restraining order out against me....I have never been one for journals so I just decided I am going to make…
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My sister is not a copy cat
Thank you all for your prayers and good thoughts for my sister. Surgery today went well with no sign of cancer. She does not get to be a copy cat. Hooray!!!!!! Lori
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tumor assay for chemo sensitivity
Just wondering if anyone has had the chemo sensitivity on their tumor done and if so, approx. when that was done and what the outcome was. One oncologist offered that to me as an option while another said that Medicare stopped paying for it when it didn't seem to be reliable so he didn't see any point in doing it. I…
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Dr Oz Show on OC
Just got a reply to my email, regarding the Dr Oz show on ovarian cancer. The Associate Producer says it will air May 26th. Carlene
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aaaaahhhh!
what am i supposed to do when my mom is soooo depressed. She only had one chemo. She can handle her nausea. But the bone pain and the depression is what is getting to her. I try to stay so strong but i don't want her to suffer. I don't know what to say to her to make her feel any better. She keeps saying she wants to die.…
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ovarian that spread to bone
Hello,I writing about a friend.Just wanting to know how well tolerated chemo is with bone involvement.Anyone know the best place to star looking for resources.Will she need a gyno onc? She does not have all her info from her scans etc so not sure if bowels are also involved.Anyone else here have this in the bones or organ…
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Mom admitted to hospital this am...
I am relieved....finally.....hopefully someone will mention hospice....she needs relief...
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fluid retention in legs/groin/peritoneal area
Has anyone experienced fluid retention in their legs/groin/peritoneal area - unrelated to ascites? My mom has been experiencing this and they tried to drain her peritoneal area yesterday only to find that the fluid problem is not related to ascites.(She does have lung ascites. This seems unrelated.) Her Primary Peritoneal…
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My story
My story begins with a trip to the ER because of some insane pain. That Doctor came back and told me there was a grapefruit sized growth on my ovary but not to worry because woman my age"26" don't get this type of cancer. I was refereed to gynecologist surgeon who took one look at the scans told me not to worry "Women your…
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Nancy591
I got a text from Nancy today. She has been in the hospital since Saturday. I will try and see her tomorrow. She has been plagued with colitis, ascites, and pain. No bowel obstruction, per the x-rays. They drained 4 liters of fluid but she is still in lots of pain. Hopefully the drugs she just started on for the pain will…
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Question for Clamryn (Linda)
Hi Linda, thanks for responding to my question about blood pressure medicine and Avastin. I'm really happy to hear that you're doing so well on Avastin. How fast did the Avastin start to work on you? I started on it end of Dec. 2010 along with Cytoxan and in March, there was still some tumor increases. So, the doc took me…
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Sheer cost
One of the things that is staggering is the sheer cost of this. Just to get diagnosed I: -Went to Urgent Care ->Had various radiology and labs test run -Then went to the regular OB/GYN -After that went to the an Oncologist GYN ->Had surgery ->spent multiple days there ->the sheer amount of labs were eye crossing -Had more…
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Best friend diagnosis - Stage 4 Ovarian Caner - Looking for successful treatments to share with her
My best friend found out she has Stage 4 Ovarian Cancer. They say...3 months to 5 plus years. She has started chemo...cancer has traveled from lymph nodes to lungs and liver. I have read where there are women living pass 5 years. Who is and what are they doing to get pass the 5 year mark? Laurie
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Choosing not to monitor CA-125 unless symptomatic
I finally found this article about research that I had heard about regarding whether there is any benefit to monitoring CA-125 after remission in the absence of symptoms. http://www.medscape.com/viewarticle/703649 I'll be meeting with my oncologist this week & I'm gonna ask him if he's OK with me not monitoring any cancer…
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Anyone heard if Nancy591 is home from hosp & how she's doing
I was just wondering how Nancy591 is doing. Anyone heard if she's home and how she's doing?