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Libby's Update
My update from app't yesterday. Stopped Doxil as CTscan showed disease progression - ascites & 5mm (very small) spot on Peritoneal in upper abdomen. With rise in last CA125 this tells my doctor that Doxil is not working, so since I am in a clinical trial I have to stop the doxil. We have elected to cross over to the PARP…
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For lindaprocopio
Linda Would you mind sharing your experience w/ taxol? I understand that it was disappointing. Were you treated weekly or every 3 weeks? Thanks, Carolen
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PET Scan tomorrow, possible recurrence.
I started feeling bloated and fatigued a couple of months ago. For approximately one year my CA-125 has been 5 or 6. I was diagnosed stage 3b February 1, 2010. Before surgery my CA-125 was only 72. I had an optimal de-bulking surgery on that date. I completed six rounds of chemo: Taxotere and Carboplatin. Then I was given…
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My mom's surgery is this Thursday
My mom's surgery for her ovarian cancer is this Thursday at 11:00 am central time. I'm very worried. The gyn/onc said he's not doing the surgery to prolong her life, as her cancer was already spread, but rather, to keep her from extensive bleeding later on. Never have heard such a thing. I asked him if he found it in the…
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Update...and vent....
Mom was diagnosed with pneumonia 10 days ago.....that on top of the stress fracture in her back has made it quite the uncomfortable past two weeks....her lungs seem to have responded very well to the anti-biotics and except for the fatigue and weakness in her legs, she is doing better....Today was pretty rotten…
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Gemzar chemo - to take or no to take?t
I am living with ovarian for the last three years. Had Taxol, Carbo,Doxil, and now they are suggesting Gemzar. Doxil made me horribly sick and the tumors worse, so stopped after only two courses, and now, after two months, am still recovering. Read on Gemzar that it may makes you even sicker: Kidney and lung infections,…
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Anyone get acne on chemo?
Has anybody had acne as a side effect of chemo? I am breaking out under my chin and side of my head and low back. I never even had acne as a teenager. It is so annoying.
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I have no marker with the CA125 test
I have no CA125 test as a cancer marker. I had a test done last July and it came back 7. My gyn. said it looked like nothing wrong but sent me for a ultra sound inside and outside. That showed that my uterus was a bit thick and he suggested that I have a D&C and a lapro. surgery. When they got in with the lap. they found…
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Caelyx and Carboplatin
Has anybody had this combination? Had 9 months cancer free but it is now back, multiple modules AROUND the liver and spleen. does hair loss occur with this treatment/
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Cancer Treatment Centers of America
Does anyone here have any info on these folks with regards to Ovarian Cancer....My wife is going to be treated by the Head of Gyn Oncology at Emory University.....I feel much more confident things will turn out ok when we go in for her consult and tests....But I still am interested in any info on the CTCA
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How to Access Chat Room
I have tried to access the chat room by clicking on "Chat" at the left of the screen and come to a blue page where nothing happens. Am I doing something wrong? Thanks, Chris
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Mskcc process sucks
Mom has fracture in her back..getting over pneumonia and we checjed in for chemo at 11.20 still waiting...i hate the process her..hate hste hate it
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CA125 Rising after chemo
This is a big topic on this discussion board but I did not see anything specific to my question. Diagnosed last June, Stage 3C. Did not have cancer surgery then because of condition I was in and had to have colon surgery/colostomy. Had 6 carb/taxol treatments and my CA 125 went consistently down until the last test when I…
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My Bucket List
This is my FaceBook post for today. I thought I'd post it here for those who don't FaceBook. . Before I go, I'd like to have high cheekbones. I'd like to talk less like New Jersey, and more like Claire Bloom. And whenever I enter a room, I'd like an orchestra to burst into my theme song. I'd like to have a theme song…
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fallopain tube cancer
Hi all, First of all my prayers with all the patients. My mother is 74 and diagnosed with ovarian cancer ( letf one, 8 cm tumor) 7 months ago. she had her womd removed 5 yaers before. The only symptom was her swollen left foot. After scan and blood test the doctor diagnosed a tumor but due to her age surgery was not an…
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Turmeric?
Has anyone information about the benefits of turmeric and curcumin for cancer and if it does have its benefits what would be the best sources of it? Thank You, Chris
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Stage II OVC post chemo cyst in L pelvic
Hi Ladies: Cudos to all of you. As I was reading some posts, I admire you for strength and determination to fight this dis-ease. I have been diagnosed with stage II bilateral ovarian ca in Oct 2010, had total hysterectomy and ovaries removed in Nov 2010. Started in carbo/taxol and just completed 6 rounds in March 2011. CT…
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new treatment
The team of doctors decided I should change treatment. I will be starting Topo on Monday. 3 days in a row every 3 weeks. I also have significant ascites. I will talk to my doc about having it tapped out. Even though it doesn't look like alot I know there is a lot there. I am tall with a long torso...I'm sure I can carry…
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Encouraging new study
Thought everyone would want to read this. God bless!! http://newsroom.ucla.edu/portal/ucla/experimental-drug-slows-ovarian-201547.aspx?link_page_rss=201547
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how to deal with the uncertainty of the cancer returning
I am 37 and was Dx with Stage 1 ovarian cancer almost two years ago. All my test have been good thus far but my Ca125 goes up 1 point everytime I take it. It is still well within normal range but I can't help thinking about it coming back. It almost consumes my mind sometimes. Does anyone have any help for moving on and…
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ANITA 1216 - PLEASE READ!
ANITA: Please consider my gynecologic/oncologist in Southfield, MI not far at all from Dearborn. He works out of Providence and is the best of the best! His number is 248-849-8140. There will be a long wait at his office, but it is well worth it. Please let me know if you get in. (((HUGS))) Monika
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Sugar/white flour?
I have been told by a few people and read a few articles that sugar/fructose/white flour feeds the cancer. Has anyone else read this or do you know if there is any truth to this? Thanks, Kelly
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If it's not one thing...
Been AWOL again and trying hard to catch up. I was supposed to start my new chemo (cisplatin/gemzar) last Tuesday BUT... I came down with strep throat and a horrible ear infection. I'm amazed that we all don't have more of these problems while our immune systems are taking such hits. I'm having such a hard time shaking…
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Just needed to vent
It's been about a month or so since I have been on this site and since then its been crappy, even though I am truly trying to stay positive. I about 3 weeks ago I had to have 2 emergency surgeries within 24 hours because my intestines kinked. I had a complication from the fist surgery. A stitch busted open inside me and I…
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Gyn/Oncs point of view
Elevated CA125 shows an upward trend. When it passes 100, he recommends treatment. Briefly considered Tamoxifen, but decided against it. He said, if it were his wife, he would wait until it passes 100 and then opt for second line chemo. The question is this, which second line is the best choice? I'm not worried about…
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Does anyone get scared having a pet scan??
had a pet scan this week and dreaded going under the machine as it almost touches your face. The tech told me some people put a towel over their eyes so they don't see at all. I had one of my little chemo caps on so I pulled it down over my eyes and it really worked wonders I wasn't as scared this time. Some people get…
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Dear Laundry Queen,
I tried to find the article you recommended to Libby about cancer and inflammation: http://www.cancernetwork.com/binary_content_servlet but hit a dead end blank screen. It sounds interesting, do you know what I'm doing wrong? Thank you, Chris
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Just signed up for clinical trial at MD Anderson
I just signed up for a Phase 1 clinical trial, this one includes Doxil, Avastin and Torisel. They said it has had some real good results so far with other cancers and is close to going into Phase 2. I hope it works for me. I don't look forward to giving up some of my favorite things, fresh tomatoes (that are riping in my…
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Dr's office staff pi$$ing me off.
Hello everyone!! I haven't been on for a few weeks. I have been hospitalized twice with bowel obstructions. I was VERY lucky to have them resolve on their own over a few days in the hospital. I am trying to go back to work. I am a nurse in an Emergency room. I have been on medical leave since Feb 2010. Since I was gone for…
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port has flipped, on avastin, what to do?
So my port has flipped over. I have 2 doctors, an oncologist and gyn-onc. One says I can have it surgically flipped back and possibly it needs to be reattached, no problem while on Avastin treatment. The other says, "no" you will have to wait for 28 days after your treatment with Avastin is done. Hummm................ And…