Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Ovarian Cancer

I am new...told I have recurrent ovc
Hello. I've read a lot of posts here, and my heart is warmed by the friendly voices. I am 37 and finished my chemo in November for stage2 ovc. Recently my Ca was rising, and a CT scan shows what my doctor says are lesions(?) in my abdominal cavity, they say I need to start treatment again in about 2-3 weeks. I also have a…
Just not feelin it today
So everyday I get up and have a good attitude towards how my life is right now and am usually in a good mood...for the most part, but today I am just not feelin it. I am sad and weepy and I don't really know why. I know everybody in my life has been so supportive and positive and I am grateful for it. I never had people…
Could it be true?
Hello ladies, Mom began her third line treatment of Doxil April 21st. She goes for her second treatment May 19th. Yesterday, we noticed Mom's stomach has really shrunk the last few days. I know I am grasping at straws but is there any chance the chemo is starting to work?
Had partial hysterectomy 4 years ago, NOW have a period????
Hi, I am new to the board. May 1,2007 had a partial hysterectomy for Borderline Ovarian cancer, no chemo or radiation. On May 2,2011 I started cramping and spotting. I now am having a full menses cycle. Has this happened to anyone else? I must admit I am afraid. Before surgery I had horrible cramps and bleeding. I can…
CA125
My CA125 is still in the "normal" range, but it has gone up exactly 2 points a month, for the last 3 months. Both my local gyn/oncologist and the gorgeous NY doctor seem unconcerned. Still....I hate it when it goes in this direction. DOWN, damn number....DOWN. It's now 13. Carlene
Not Diagnosed but have questions about symptoms
I am not sure if I am on the correct board but I was unable to find answers to my questions anywhere else. I am 54 years old and post menopausal, had a hysterectomy at age 32 for pelvic congestion, I had varicose veins coming from my left ovary, removing my uterus was the only way to stop the monthly pain. I started having…
Good news!
Mum had her third lot of doxil yesterday , and her ca125 is now down to 36!!!!! Happy days! :) xxx
Carlene, May I forward your email on to my group in San Diego?
Hi Carlene, I am in a support group of women who have ovarian or uterine cancer here in San Diego. I am rather new to the group, but I understand there is a group of these women who give presentations to doctors and other medical groups with their testimonies and the goal of early detection of the disease. May I forward…
Hi Nancy591
Hi Nancy, saw the posting that you have not been feeling well and were in the hospital. I wrote you on 5/9 on this discussion group as I was wondering how you were doing. I was sorry to hear that you've been in alot of pain. I hope you are on your way to recovery and you are in my prayers. I think you are very courageous…
Abstract from First Ovarian Clear Cell Carcinoma Symposium
Abstract of article those with clear cell ovca may be interested in. Full article requires purchase tho can probable be accessed elsewhere. Interesting that there was a Symposium dedicated to this specific histology.... Clear Cell Carcinoma of the Ovary: A Report From the First Ovarian Clear Cell Symposium, June 24th, 2010…
Joint and Bone Pain?
Just a quick question. My mother just had her first chemo. It was Carboplatin and Taxol. She had this Mon. She was fine all of Tuesday. She went and had her Nulesta shot yesterday. She has not experienced any nausea or fatigue. She woke up this morning feeling like she had been in the boxing ring and lost. I knew you could…
I am ned!!!
It is official. God is good. Thank you my teal sisters for all of your help and advice and encouragement. Keep the faith and stay strong...val
May I introduce myself?
Hi everyone I've just plucked up the courage to join. I've spent many months reading lots of forums and came to the conclusion this is the most active and most supportive, positive and honest bunch of people. So here I am. However, this is about my mum. I live in the UK, luckily not far from my parents. My mum is 75 and…
Mom given 6-12 months
Its PPC, and it is not responding to chemo. As a matter of fact, her gyn/onc said it has spread and there is a mass sitting on her liver. We are devastated and shocked. She is not a surgical candidate and clinical trials will not take her because of her deconditioned state. She is stoic and taking the news far better than…
Soy lecithin
I try to eat a healthy diet since having ovca in 2009,very little dairy no red meat drink almond milk,my question is should we be concerned about soy lecithin it is in so much food impossible to find bread with out it, yesterday I noticed quite by chance my mint tea also. I would appreciate any input on this subject. Oska
Anyone else get an email about the Dr Oz show?
They are taping a show about ovarian cancer in Manhattan, on May 14th. Unfortunately, I will be in NYC on the 11th, so I won't get to participate. You can send in your photo for the slide show, though. Or, if you live near Manhattan, you might contact them, if you're interested. Here is a cut-and-paste of the text I…
Mom Update and spoke with Head of Patient Advocacy at MSKCC....
Hi everyone.....Mom went to PT yesterday, which I think is a good thing as she hasn't gotten out of bed in 4 weeks....she needs to move around...although she says she is in pain, today she seemed a little better in attitude and I hope she follows through.....ON the really good side, I called Dr. Jorge, Head of patient…
Has anyone heard from Nancy591?
She has not posted on here or on FB in several days. Carlene
Diet for PPC?
Does anyone have any tips on what kind of diet is suitable for this cancer. My mother has porblems with certain things. Like any lettuce makes her sick. I know she has to eat small amounts but i want her to get protein. Last nite and had a sandwich with only a little lettuce and she was sick. Today rice and a little…
hi, newly diagnosed wanting to talk
Hi, was just diangosed on monday 4-25-11, couldn't sleep just wanted to talk... anyone here
Hello- I am new here
I am unfortunatly a newly diagnosed ovarian cancer pt. I am having surgery on Monday 5/9/11 at UK hospital in Lexington, KY. I have been reading some posts, and I have to say there is a lot of support and love here. All my gyn/oncology told me yesterday has just flown out of my head. It was too much for me to hear. I am…
My 5 year survival anniversary!
Dear Loves, May 5th will be my 5 year anniversary of my diagnosis (OVCA 3C)! We all hear the statistics and I intend to celebrate for the whole month. I also intend to take Linda's good advice and "live large". Hmmmm.... wonder if I can find some teal balloons to tie on my mailbox? (((HUGS))) Maria
Chemo side effect question
So I was wondering what type of side effects people had and if you tolerated chemo relatively good or bad? I am curious because I am in carboplatin/ taxol mx and I am taking chemo really well for the most part. I go once every 3 weeks for 6 rounds total. I have 3 down and 3 to go. I did devlope acne and got tired after…
How are you feeling Nancy591
Hi Nancy, was wondering how you were doing? Hope you're feeling good and how are you doing on the Topotecan? I'm also on the Topotecan and have not been feeling well, I'm extremely tired because my blood counts keep going down. I'm on a treatment plan that is 1x a week, 3 weeks in a row, but don't know if that's going to…
Happy Mother's Day
Teal Sisters.....Happy Mother's Day. Have a wonderful day. All of us know that we must make the most of every moment. Today is one of those special special days to make some memories. A big hug to all of you. Linda
I am telling on my sister!
I have been NED for 21 months now. My younger sister was just told she has a growth on her Uterus and will need a hysterectomy and a biopsy. We are adopted so there are no Genetics between us and we have no medical history. ( our records are sealed in the state of California) I am writing this to let you know that little…
Primary Peritoneal Cancer
Hi- This is the first time I am writing. My 62 yr. old mother was just told she has Primary pappilary serous peritoneal carcinoma. I think this is how you say it. It starts in the ovaries. Her ovaries are swollen but it is not present there. It is on her omentum, a little in her stomach, some in her colon, some touching…
Sad News- Sarah the Carcinista passed away
I'm so sorry to share with you that The Carcinista died today. I heard that she died peacefully and surrounded by her family. RIP Sarah. Very sad.....she will be missed.
Using henna while on chemo
Has anybody used henna while on chemo?
Kidney Stones?
I am being treated for a UTI...the doctor is concerned about kidney stones. Is this another lovely door prize from chemo? Has anyone out there had kidney stones after chemo? On a side note: it is, (in a super weird way), nice to go to a doctor for a "normal" ailment and get a prescription that cost $00.87! Odd, eh? Mary

Ovarian Cancer

Discussion List

Discussion Boards