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Question for Clamryn (Linda)
Hi Linda, thanks for responding to my question about blood pressure medicine and Avastin. I'm really happy to hear that you're doing so well on Avastin. How fast did the Avastin start to work on you? I started on it end of Dec. 2010 along with Cytoxan and in March, there was still some tumor increases. So, the doc took me…
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Sheer cost
One of the things that is staggering is the sheer cost of this. Just to get diagnosed I: -Went to Urgent Care ->Had various radiology and labs test run -Then went to the regular OB/GYN -After that went to the an Oncologist GYN ->Had surgery ->spent multiple days there ->the sheer amount of labs were eye crossing -Had more…
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Best friend diagnosis - Stage 4 Ovarian Caner - Looking for successful treatments to share with her
My best friend found out she has Stage 4 Ovarian Cancer. They say...3 months to 5 plus years. She has started chemo...cancer has traveled from lymph nodes to lungs and liver. I have read where there are women living pass 5 years. Who is and what are they doing to get pass the 5 year mark? Laurie
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Choosing not to monitor CA-125 unless symptomatic
I finally found this article about research that I had heard about regarding whether there is any benefit to monitoring CA-125 after remission in the absence of symptoms. http://www.medscape.com/viewarticle/703649 I'll be meeting with my oncologist this week & I'm gonna ask him if he's OK with me not monitoring any cancer…
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Anyone heard if Nancy591 is home from hosp & how she's doing
I was just wondering how Nancy591 is doing. Anyone heard if she's home and how she's doing?
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I am new...told I have recurrent ovc
Hello. I've read a lot of posts here, and my heart is warmed by the friendly voices. I am 37 and finished my chemo in November for stage2 ovc. Recently my Ca was rising, and a CT scan shows what my doctor says are lesions(?) in my abdominal cavity, they say I need to start treatment again in about 2-3 weeks. I also have a…
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Just not feelin it today
So everyday I get up and have a good attitude towards how my life is right now and am usually in a good mood...for the most part, but today I am just not feelin it. I am sad and weepy and I don't really know why. I know everybody in my life has been so supportive and positive and I am grateful for it. I never had people…
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Could it be true?
Hello ladies, Mom began her third line treatment of Doxil April 21st. She goes for her second treatment May 19th. Yesterday, we noticed Mom's stomach has really shrunk the last few days. I know I am grasping at straws but is there any chance the chemo is starting to work?
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Had partial hysterectomy 4 years ago, NOW have a period????
Hi, I am new to the board. May 1,2007 had a partial hysterectomy for Borderline Ovarian cancer, no chemo or radiation. On May 2,2011 I started cramping and spotting. I now am having a full menses cycle. Has this happened to anyone else? I must admit I am afraid. Before surgery I had horrible cramps and bleeding. I can…
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CA125
My CA125 is still in the "normal" range, but it has gone up exactly 2 points a month, for the last 3 months. Both my local gyn/oncologist and the gorgeous NY doctor seem unconcerned. Still....I hate it when it goes in this direction. DOWN, damn number....DOWN. It's now 13. Carlene
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Not Diagnosed but have questions about symptoms
I am not sure if I am on the correct board but I was unable to find answers to my questions anywhere else. I am 54 years old and post menopausal, had a hysterectomy at age 32 for pelvic congestion, I had varicose veins coming from my left ovary, removing my uterus was the only way to stop the monthly pain. I started having…
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Good news!
Mum had her third lot of doxil yesterday , and her ca125 is now down to 36!!!!! Happy days! :) xxx
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Carlene, May I forward your email on to my group in San Diego?
Hi Carlene, I am in a support group of women who have ovarian or uterine cancer here in San Diego. I am rather new to the group, but I understand there is a group of these women who give presentations to doctors and other medical groups with their testimonies and the goal of early detection of the disease. May I forward…
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Hi Nancy591
Hi Nancy, saw the posting that you have not been feeling well and were in the hospital. I wrote you on 5/9 on this discussion group as I was wondering how you were doing. I was sorry to hear that you've been in alot of pain. I hope you are on your way to recovery and you are in my prayers. I think you are very courageous…
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Abstract from First Ovarian Clear Cell Carcinoma Symposium
Abstract of article those with clear cell ovca may be interested in. Full article requires purchase tho can probable be accessed elsewhere. Interesting that there was a Symposium dedicated to this specific histology.... Clear Cell Carcinoma of the Ovary: A Report From the First Ovarian Clear Cell Symposium, June 24th, 2010…
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Joint and Bone Pain?
Just a quick question. My mother just had her first chemo. It was Carboplatin and Taxol. She had this Mon. She was fine all of Tuesday. She went and had her Nulesta shot yesterday. She has not experienced any nausea or fatigue. She woke up this morning feeling like she had been in the boxing ring and lost. I knew you could…
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I am ned!!!
It is official. God is good. Thank you my teal sisters for all of your help and advice and encouragement. Keep the faith and stay strong...val
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May I introduce myself?
Hi everyone I've just plucked up the courage to join. I've spent many months reading lots of forums and came to the conclusion this is the most active and most supportive, positive and honest bunch of people. So here I am. However, this is about my mum. I live in the UK, luckily not far from my parents. My mum is 75 and…
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Mom given 6-12 months
Its PPC, and it is not responding to chemo. As a matter of fact, her gyn/onc said it has spread and there is a mass sitting on her liver. We are devastated and shocked. She is not a surgical candidate and clinical trials will not take her because of her deconditioned state. She is stoic and taking the news far better than…
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Soy lecithin
I try to eat a healthy diet since having ovca in 2009,very little dairy no red meat drink almond milk,my question is should we be concerned about soy lecithin it is in so much food impossible to find bread with out it, yesterday I noticed quite by chance my mint tea also. I would appreciate any input on this subject. Oska
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Anyone else get an email about the Dr Oz show?
They are taping a show about ovarian cancer in Manhattan, on May 14th. Unfortunately, I will be in NYC on the 11th, so I won't get to participate. You can send in your photo for the slide show, though. Or, if you live near Manhattan, you might contact them, if you're interested. Here is a cut-and-paste of the text I…
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Mom Update and spoke with Head of Patient Advocacy at MSKCC....
Hi everyone.....Mom went to PT yesterday, which I think is a good thing as she hasn't gotten out of bed in 4 weeks....she needs to move around...although she says she is in pain, today she seemed a little better in attitude and I hope she follows through.....ON the really good side, I called Dr. Jorge, Head of patient…
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Has anyone heard from Nancy591?
She has not posted on here or on FB in several days. Carlene
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Diet for PPC?
Does anyone have any tips on what kind of diet is suitable for this cancer. My mother has porblems with certain things. Like any lettuce makes her sick. I know she has to eat small amounts but i want her to get protein. Last nite and had a sandwich with only a little lettuce and she was sick. Today rice and a little…
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hi, newly diagnosed wanting to talk
Hi, was just diangosed on monday 4-25-11, couldn't sleep just wanted to talk... anyone here
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Hello- I am new here
I am unfortunatly a newly diagnosed ovarian cancer pt. I am having surgery on Monday 5/9/11 at UK hospital in Lexington, KY. I have been reading some posts, and I have to say there is a lot of support and love here. All my gyn/oncology told me yesterday has just flown out of my head. It was too much for me to hear. I am…
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My 5 year survival anniversary!
Dear Loves, May 5th will be my 5 year anniversary of my diagnosis (OVCA 3C)! We all hear the statistics and I intend to celebrate for the whole month. I also intend to take Linda's good advice and "live large". Hmmmm.... wonder if I can find some teal balloons to tie on my mailbox? (((HUGS))) Maria
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Chemo side effect question
So I was wondering what type of side effects people had and if you tolerated chemo relatively good or bad? I am curious because I am in carboplatin/ taxol mx and I am taking chemo really well for the most part. I go once every 3 weeks for 6 rounds total. I have 3 down and 3 to go. I did devlope acne and got tired after…
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How are you feeling Nancy591
Hi Nancy, was wondering how you were doing? Hope you're feeling good and how are you doing on the Topotecan? I'm also on the Topotecan and have not been feeling well, I'm extremely tired because my blood counts keep going down. I'm on a treatment plan that is 1x a week, 3 weeks in a row, but don't know if that's going to…
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Happy Mother's Day
Teal Sisters.....Happy Mother's Day. Have a wonderful day. All of us know that we must make the most of every moment. Today is one of those special special days to make some memories. A big hug to all of you. Linda