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Robotic Complete Kidney Removal - Help
Hello, My tumor is around 7 cm. I’m 47 and will have it removed on 1/16. I am trying to find helpful tips to prepare and heal. ROBOTIC surgery only please. For example, I read people get really painful gas. Can I just take Phazyme? Will it help? Others say ice helps with pain, so I’m getting ice packs. Is there itching? I…
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Stage 4 RCC - Don't give up, don't ever give up
I am a 54 yr old male who prior to my annual physical in Mar 2022, experienced night sweats and unexplained weight loss. Lab results from annual physical showed anemia and increased Calcium level. CT scan was ordered and revealed 15cm tumor on lower pole of left kidney, numerous metastatic lesions in both lungs, and…
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Kidney Cancer
My journey started mid-March. In a visit with my PC doctor I mentioned having a tender area in the left kidney area of my back. The ultrasound showed a 1x1 area that was possibly an angiomyolipoma in the upper pole of the left kidney and CT was recommended. CT was done with and without contrast…it showed a small (5mm) area…
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Where do we start
My older brother is a mid-30's male who has never had any significant health issues until yesterday. He ended up having 2 grand mal seizures within 10 hours of each other, released from one hospital after the first one and threw the second one about 9 hours after the first. The located the mass, 7.5cm x 6cm on his left…
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Ned since 2015
As you may remember, I underwent surgery in 2015, and shortly after, I faced the challenge of a cancer diagnosis at stage one with a 2.5 cm tumor. The journey has been marked by regular scans, tests, and a rollercoaster of emotions. However, the most recent chapter in my health story brings me immense happiness. Just a…
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Any good stories of stage 1 and long remission rates?
Post yours
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Carcinoma renal
Soy de España. Lo ciento no se inglés pero os estoy leyendo y aprendiendo muchísimo. Operada de cáncer renal. Tumor de 7 sm. Estadio, g2 el día 18 de septiembre. De momento sin recidiva. Deseo a todos mucha suerte
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A mass the size of a cinder block!! 4" x 8" Tumor
I was diagnosed in July of 2023 with a mass the size of a cinder block on my right kidney (it was cancer). On July 21st 2023 it was removed and I was found to be cancer-free. This all happened within a few weeks, which, in itself is life changing. I was immediately kicked off of my health insurance and I'm left with no way…
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Maybe Cancer?
Hi All, So backstory, in 2021 I was in the hospital for collapsed lung due to asthma and pneumonia. A CT scan showed a 1.3 cm thing on my kidney that may or may not be a cyst and I was recommended to follow up. My lungs were my first priority and actually I forgot all about it. At this point no one mentioned cancer and I…
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Many MRIs (with Cysts) over the years - now incidental suspected kidney cancer after CT
Hello guys, I'm from Germany and I'm so happy that I found this community. I'm a researcher (non-medical) myself and I was reading through hundreds of scientific papers regarding kidney cancer (tumor size, subtype, recurrence, CT sensitivity ...) which made me highly depressed as the papers are often written very…
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Nerve Damage from Nephrectomy
Hi there: 13 weeks after my Nephrectomy, I am still experiencing significant pain. I was referred to a pain specialist and was diagnosed with extensive nerve damage. I have been on a nerve blocker for a few weeks, which has helped, but I am certain the dosage has to be increased. The pain is debilitating and keeps me…
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Bosniak 3 kidney lesion
I have a kidney lesion 3cm big that i have been following for about 6 months. 60% of being cancer and i am sitting on it.. As i am Completely afraid of doing surgery i have chosen to follow the mass. My question is i have a doctor who wants to do the Partial Nephrectomy. And another who wants to do thermal ablation. The…
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Flank Bulge after OPN
Had an OPN last week. I feel great except I unfortunately developed the dreaded flank bulge….Are these common with OPN and if so do they go away on their own or do they require surgery to fix?
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Xp11.2 2023
I just had a partial nephrectomy of a 2.2 cm xp11.2 It had gone into the fat but not beyond the fascia that surround the kidney. So the word was "clear margins." In 2023 I'm wondering if anyone knows the following: 1. What doctors by name specialize in this kind of cancer in what locations, and preferably for adults (I'm…
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Small indeterminate kidney lesion - Very Nervous
Just had Abdominal CT Sscan due to right side cramp/discomfort and it found a 11mm indeterminate lesion on right kidney. I am in the process of getting an MRI as recommended by the reading radiologist. I am very nervous and just wanted to know your thoughts or any helpful guidance or insight. Thank you so much in advance.
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Undefined Renal Cell Carcinoma with Translocation Xp11.2
Just wondering if anyone has had experience themselves or family members with this sub-type of kidney cancer. We were told that this sub-type is usually seen in children, but is rarely seen in adults. My husband is 30 years old and had a radical nephrectomy of his left kidney back in February. Since surgery the cancer has…
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38 yo female - worried.
I was having frequent UTIs and I got sent for an ultrasound. I had no other symptoms. Otherwise healthy, no diabetes, not over weight, don't have high blood pressure. Bladder was fine but there is a serious problem with the kidney (as per the technicians comments). He said "it was serious".. I get my results in 2 days but…
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My experience after radical nephrectomy
I thought I would share my experience losing my kidney to renal cancer. I have questions about some of my post-op observations, and I've engaged physicians for advice and solutions, but to little or no avail. Maybe this community can do better. I know you can do better than my urologist, who requires that patients ask the…
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Venting.
I have been in great to good shape most of my life, I was always a gym rat and liked working out and staying in shape then 20 years ago I was walking down the hall at work when it felt like someone stabbed me in the left eye with an icepick, caused me to fall to the floor. That was the start to a 20 year headache, the pain…
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New to Kidney Cancer - What should I expect?
Hello, I’m a 44 yr old male and a father of three boys. October 24 - I had a partial nephomentcy on right kidney to remove a 6.9 cm tumor. It was confirmed through the biopsy post surgery to be renal cell carcinoma (clear cell). Urologist feels confident that all of it was removed and localized. There is no indication of…
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Has anyone had this happen after surgery
I had my open partial Monday, and i experienced a first last evening and twice since that has me baffled. I passed gas finally, which apparently is a big deal after surgery, but then i was urinating and at the end passed gas out of my urethra. It was the strangest thing. I then read about something called a fitsura. I…
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I was Ned on my birthday
I was Ned today three an1/2 years one more six month scans then it will go to yearly doctor said he would be shock to see it show back up now
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Visit From Uncle NED & MRI Question
For a 3rd year in a row, uncle NED came to visit. This year instead of a CT scan, I asked for an MRI. (Just to eliminate the ionizing radiation exposure). During the MRI the skin on my back started to heat up. The heating sensation occurred for a few seconds and only when the machine was making a certain noise. This…
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Fatigue and fear of eating after open radical neph and ileus
Hello everyone, I'm 38, german, had erythema nodosum on and off for the last 25 years or so, had a particulary hefty bout starting late December 2022, left me bedbound for over six months, PCP checked my blood, creatinine was 1,2, referred me to a nephrologist. She found a mass in my abdomen, X-ray, MRI and CT confirmed an…
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Complex Renal Cyst
HI, Any information you can share will be gratefully appreciated. 45yr old Female. I'm a Registered Nurse so I know enough to be concerned. Aug 5th I was having abdominal pain thought possibly appendicitis, went to ER and they completed a CT with contrast. I did not have appendicitis and they did not find the cause of my…
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Sole caregiver. RCC and parapelgia
I don't even know where to start. I just signed up and put this in my bio. Long story short, I am completely and utterly heartbroken and overwhelmed. Our lives feel like a **** nightmare we can't wake up from for the past two months since we got the news that my husband has stage 4 RCC and due to a tumor in his spine,…
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My scans are next month
I have my scans next month
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Kidney Lesion
So I'm not actually diagnosed with kidney cancer. I'm 21, fixing to be 22 in October and a little over a month ago I was diagnosed with papillary carcinoma of the thyroid. Done the ultrasounds and fna's. All that fun stuff. About three days after my first biopsy I had my first ER visit for ear pain/pressure that was…
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Any new treatments available for Kidney Cancer?
Has anyone hear of any promising new treatments or research studies for Kidney Cancer?
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kidney cancer
I am so scared. There is a cyst on my kidney. Have had an mri and ct...They are suggesvine of renal cell..I do not have a support system or anyone to talk to. My husband passed in 2011..Dont know what next step is they will take...