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Venting.
I have been in great to good shape most of my life, I was always a gym rat and liked working out and staying in shape then 20 years ago I was walking down the hall at work when it felt like someone stabbed me in the left eye with an icepick, caused me to fall to the floor. That was the start to a 20 year headache, the pain…
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New to Kidney Cancer - What should I expect?
Hello, I’m a 44 yr old male and a father of three boys. October 24 - I had a partial nephomentcy on right kidney to remove a 6.9 cm tumor. It was confirmed through the biopsy post surgery to be renal cell carcinoma (clear cell). Urologist feels confident that all of it was removed and localized. There is no indication of…
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Has anyone had this happen after surgery
I had my open partial Monday, and i experienced a first last evening and twice since that has me baffled. I passed gas finally, which apparently is a big deal after surgery, but then i was urinating and at the end passed gas out of my urethra. It was the strangest thing. I then read about something called a fitsura. I…
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I was Ned on my birthday
I was Ned today three an1/2 years one more six month scans then it will go to yearly doctor said he would be shock to see it show back up now
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Visit From Uncle NED & MRI Question
For a 3rd year in a row, uncle NED came to visit. This year instead of a CT scan, I asked for an MRI. (Just to eliminate the ionizing radiation exposure). During the MRI the skin on my back started to heat up. The heating sensation occurred for a few seconds and only when the machine was making a certain noise. This…
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Fatigue and fear of eating after open radical neph and ileus
Hello everyone, I'm 38, german, had erythema nodosum on and off for the last 25 years or so, had a particulary hefty bout starting late December 2022, left me bedbound for over six months, PCP checked my blood, creatinine was 1,2, referred me to a nephrologist. She found a mass in my abdomen, X-ray, MRI and CT confirmed an…
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Complex Renal Cyst
HI, Any information you can share will be gratefully appreciated. 45yr old Female. I'm a Registered Nurse so I know enough to be concerned. Aug 5th I was having abdominal pain thought possibly appendicitis, went to ER and they completed a CT with contrast. I did not have appendicitis and they did not find the cause of my…
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Sole caregiver. RCC and parapelgia
I don't even know where to start. I just signed up and put this in my bio. Long story short, I am completely and utterly heartbroken and overwhelmed. Our lives feel like a **** nightmare we can't wake up from for the past two months since we got the news that my husband has stage 4 RCC and due to a tumor in his spine, is…
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My scans are next month
I have my scans next month
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Kidney Lesion
So I'm not actually diagnosed with kidney cancer. I'm 21, fixing to be 22 in October and a little over a month ago I was diagnosed with papillary carcinoma of the thyroid. Done the ultrasounds and fna's. All that fun stuff. About three days after my first biopsy I had my first ER visit for ear pain/pressure that was…
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Any new treatments available for Kidney Cancer?
Has anyone hear of any promising new treatments or research studies for Kidney Cancer?
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kidney cancer
I am so scared. There is a cyst on my kidney. Have had an mri and ct...They are suggesvine of renal cell..I do not have a support system or anyone to talk to. My husband passed in 2011..Dont know what next step is they will take...
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I’m a survivor but never dealt with cancer
Hello Ny name is Rich and I’m 56. I had kidney cancer at age 35. I’m lucky and blessed that my cancer was contained within my kidney. I had a RT Nephrectomy with no chemo or radiation at age 35. At that time I was a carpenter and my wife also worked and we had a 6month old son. I thought I had another kidney stone but it…
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Just Checking In
Hi everyone! I had my Nephrectomy Aug 2021....stage1 grade 1. I'm 2 years out and still NED. Seems surreal sometimes, like it happened to someone else. It's weird. I can remember two years ago and thinking that I would never feel the way I do now about it, I was sure that I would never feel better about it. I do though, so…
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Potential Prognosis?
I have a family member who has stage 4 Grade 3 renal cell carcinoma that has spread to her lungs and brain. She had a nephrectomy of her right kidney to get rid of all of the cancer on her kidney. She is going to undergo Gamma Knife radiation and 2 infusions of immunotherapy. When I look online it shows that the prognosis…
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Essiac?
Has anyone tried Essiac tea? A friend of mine insists it helped her father-in-law with his cancer, although not kidney. Just wondering if this is yet another way to get me to spend money and not be helpful.
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19 years since my Surgery Trifecta began
08/01/2002 Left Nepherectomy done Laprodcopically 09/30/2019 Robtic Prostetectomy 12/31/2019 (New Year's Eve) Open Gallbladder Removap All surgeries on first or last daY OF Month No new surgeries scheduled/ Was 78 years young, 10 days ago. icemantoo
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Got a letter from the Oncologist...
This one was more of a "Dont' let the door hit you on the butt on the way out." kind. It was addressed to my PC doc, letting him know that I was to be under his continuing care, and would not be seen by my oncologist in the future, as I was deemed to be not at risk of having a recurrence. HOORAY! It's only taken 17 years…
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16 months after partial nephrectomy for stage1 PRCC Grade 4
Hello everyone. I hope everyone is doing well. I haven’t been on here since I had my partial nephrectomy April of 2022. I felt like a new person after surgery in regards to my energy level. I felt like I walked out of a fog a few weeks after surgery . I wanted to get as far away as I could emotionally from being told I had…
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I think I have kidney cancer
a few weeks ago I woke up with severe lower left abdominal pain. I almost passed out . Could not stand up and I was sweating profusely and felt like vomiting. It lasted about an hour after that my abdomen was tender. Three days later I went to the ER. They did a CT scan with contrast to rule out diverticulitis. The doctor…
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What's is like after kidney removal
Just told my left kidney has to come out due to a tumor. The only symptoms I've had is the usual blood in urine, fatigue, weight loss and slight back sensation. The actual description is: Left upper tract TCC. Discussed robot left neph-U. Recommend intravesical gemcitabine. The urologist didn't indicate that there was any…
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Hospitals and surgeons recommendation
Hope everyone is doing fine on this forum. I am shocked to learn today that my wife is diagnosed with ~ 2 cm Kidney mass which doctors suspect is malignant. Doctor is recommending a partial nephrectomy. We are currently out of USA, plan to return back to US for surgery and need suggestions on good hospitals & surgeons. We…
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NED!!
Partial nephrectomy in January 2020 and most recent scans August 31 2023 again show no evidence of recurring disease. Now I can relax for 11 months😁 (also 6 years undetectable PSA for prostate cancer)
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After surgery pains
Hi all! I am 1 week post surgery and the past two days have been my best feeling days. I am not in any real pain, not super tired, probably because I slept so much the first 5-6 days it was crazy! So I am a very active person normally and I have been walking around my house as often as I can and me and my husband decided…
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Chemo with kidney removal
I was prepared for the surgery to have a kidney with a tumor removed. Now the doctor says he just got new guidelines for my issue. That is to have weekly chemo for 3 months prior to the surgery instead of after. I wasn't aware of going to be having chemo after but he said that after surgery he would send me for an…
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Sore muscle opposite side of kidney with tumor removed.
So I had my left kidney removed on july 5th, I’m just about 6 weeks post surgery and the right side of my back is sore and has been sore since the surgery. Has anyone else experienced this? I did mention it to my oncologist, but he didn’t say anything about it. I have told my surgeon too and I am waiting a response. I’m…
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Cancer in my left ureter
I was diagnosed with a tumor in my left ureter down by my bladder and according to my uroligist they have to remove the kidney and ureter. My question is should there be any tests or scans done to see if the cancer has spread and if it has spread what kind of treatment is there. I don't understand what all this means but…
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confused newby - pT3a N ccRCC
With no real symptoms or history of any kidney issues, my mass was found 6/3/23 in the ER. On 6/29 I had a radical open nephrectomy and was confirmed to have a 14cm pT3a N ccRCC. I consciencely stayed off google along the way (for the most part) because each step of the way things were only suspected and I knew it would be…
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Soft Tissue Nodule in Pelvis
Hi My r kidney, ureter and bladder cuff was removed in Nov 2022. My last CT says: Questionable soft tissue nodule in the right pelvis approx 1 cm. Maybe post surgery change. A pet scan has been ordered. QUESTION: my gfr is 25. Is that too low for chemo if I need it? Thanks
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Nephrectomy GFR Question
I am 3 weeks post op nephrectomy. My pre op GFR was 50. Now my GFR is 27. Question: what problems if any will I have with this low GFR Thank you