Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

I’m a survivor but never dealt with cancer
Hello Ny name is Rich and I’m 56. I had kidney cancer at age 35. I’m lucky and blessed that my cancer was contained within my kidney. I had a RT Nephrectomy with no chemo or radiation at age 35. At that time I was a carpenter and my wife also worked and we had a 6month old son. I thought I had another kidney stone but it…
Just Checking In
Hi everyone! I had my Nephrectomy Aug 2021....stage1 grade 1. I'm 2 years out and still NED. Seems surreal sometimes, like it happened to someone else. It's weird. I can remember two years ago and thinking that I would never feel the way I do now about it, I was sure that I would never feel better about it. I do though, so…
Potential Prognosis?
I have a family member who has stage 4 Grade 3 renal cell carcinoma that has spread to her lungs and brain. She had a nephrectomy of her right kidney to get rid of all of the cancer on her kidney. She is going to undergo Gamma Knife radiation and 2 infusions of immunotherapy. When I look online it shows that the prognosis…
Essiac?
Has anyone tried Essiac tea? A friend of mine insists it helped her father-in-law with his cancer, although not kidney. Just wondering if this is yet another way to get me to spend money and not be helpful.
19 years since my Surgery Trifecta began
08/01/2002 Left Nepherectomy done Laprodcopically 09/30/2019 Robtic Prostetectomy 12/31/2019 (New Year's Eve) Open Gallbladder Removap All surgeries on first or last daY OF Month No new surgeries scheduled/ Was 78 years young, 10 days ago. icemantoo
Got a letter from the Oncologist...
This one was more of a "Dont' let the door hit you on the butt on the way out." kind. It was addressed to my PC doc, letting him know that I was to be under his continuing care, and would not be seen by my oncologist in the future, as I was deemed to be not at risk of having a recurrence. HOORAY! It's only taken 17 years…
16 months after partial nephrectomy for stage1 PRCC Grade 4
Hello everyone. I hope everyone is doing well. I haven’t been on here since I had my partial nephrectomy April of 2022. I felt like a new person after surgery in regards to my energy level. I felt like I walked out of a fog a few weeks after surgery . I wanted to get as far away as I could emotionally from being told I had…
I think I have kidney cancer
a few weeks ago I woke up with severe lower left abdominal pain. I almost passed out . Could not stand up and I was sweating profusely and felt like vomiting. It lasted about an hour after that my abdomen was tender. Three days later I went to the ER. They did a CT scan with contrast to rule out diverticulitis. The doctor…
What's is like after kidney removal
Just told my left kidney has to come out due to a tumor. The only symptoms I've had is the usual blood in urine, fatigue, weight loss and slight back sensation. The actual description is: Left upper tract TCC. Discussed robot left neph-U. Recommend intravesical gemcitabine. The urologist didn't indicate that there was any…
Hospitals and surgeons recommendation
Hope everyone is doing fine on this forum. I am shocked to learn today that my wife is diagnosed with ~ 2 cm Kidney mass which doctors suspect is malignant. Doctor is recommending a partial nephrectomy. We are currently out of USA, plan to return back to US for surgery and need suggestions on good hospitals & surgeons. We…
NED!!
Partial nephrectomy in January 2020 and most recent scans August 31 2023 again show no evidence of recurring disease. Now I can relax for 11 months😁 (also 6 years undetectable PSA for prostate cancer)
After surgery pains
Hi all! I am 1 week post surgery and the past two days have been my best feeling days. I am not in any real pain, not super tired, probably because I slept so much the first 5-6 days it was crazy! So I am a very active person normally and I have been walking around my house as often as I can and me and my husband decided…
Chemo with kidney removal
I was prepared for the surgery to have a kidney with a tumor removed. Now the doctor says he just got new guidelines for my issue. That is to have weekly chemo for 3 months prior to the surgery instead of after. I wasn't aware of going to be having chemo after but he said that after surgery he would send me for an…
Sore muscle opposite side of kidney with tumor removed.
So I had my left kidney removed on july 5th, I’m just about 6 weeks post surgery and the right side of my back is sore and has been sore since the surgery. Has anyone else experienced this? I did mention it to my oncologist, but he didn’t say anything about it. I have told my surgeon too and I am waiting a response. I’m…
Cancer in my left ureter
I was diagnosed with a tumor in my left ureter down by my bladder and according to my uroligist they have to remove the kidney and ureter. My question is should there be any tests or scans done to see if the cancer has spread and if it has spread what kind of treatment is there. I don't understand what all this means but…
confused newby - pT3a N ccRCC
With no real symptoms or history of any kidney issues, my mass was found 6/3/23 in the ER. On 6/29 I had a radical open nephrectomy and was confirmed to have a 14cm pT3a N ccRCC. I consciencely stayed off google along the way (for the most part) because each step of the way things were only suspected and I knew it would be…
Soft Tissue Nodule in Pelvis
Hi My r kidney, ureter and bladder cuff was removed in Nov 2022. My last CT says: Questionable soft tissue nodule in the right pelvis approx 1 cm. Maybe post surgery change. A pet scan has been ordered. QUESTION: my gfr is 25. Is that too low for chemo if I need it? Thanks
Nephrectomy GFR Question
I am 3 weeks post op nephrectomy. My pre op GFR was 50. Now my GFR is 27. Question: what problems if any will I have with this low GFR Thank you
Post surgery concern
I am 8 weeks post surgery (open partial nephrectomy) and I am still having what I describe as feeling like a 2x4 is jammed into my side. This feeling began immediately after the surgery and is getting better, but I have never heard of anyone else complaining about this particular issue. Has anyone had this problem after…
End stage nearing hospice
I am so scared. I have never had to go through anything like this in my life. I am the caregiver to my 62 year old husband. He was diagnosed 7 years ago and I feel so blessed to have had this time with him. At our last appointment we were told that there were no more treatment options and that the next step is hospice. I…
When can you do heavy weights at your old pace after robotic partial nephrectomy?
Hi, I'm a hard core body builder, in my early 40s, no steroids because I went every day, but I ended up having 5.2 cm of my left kidney removed because of stage 1 grade 3 kidney cancer. It was growing fast, thankfully the margins were negative... Anyway I do heavy weights. I'm one of the biggest guys at the gym. I've been…
Kidney removal surgeon Central Florida
Hello; My 88 yr old brother needs to have a cancerous kidney removed asap. I do not know how to find the best surgeon to perform the procedure. ER suggested a clinic that does it on outpatient but that doesn't sit right with us. He is in good condition for his age.
On Pazopanib for 5 years with Stage 4 Renal Cancer
Hi to you all I was wondering if there are other people using Pazopanib for a longer time, my kidney with tumour was removed April 2011 and I was diagnosed stage 4 in December 2012. My oncologist used to ask me for feedback on my side effects to compare with other people in the USA who had been using the drug about 9…
post radical nephrectomy developed a flank bulge
My husband had a radical nephrectomy from Stage 1 kidney cancer this past August. He almost immediately started developing a huge bulge - NOT a hernia. After a CT scan in October it was determined he has a denervation, flank bulge due to the nerves not regenerating from the flank incision. The muscle wall has thinned out…
2 year old with clear cell sarcoma of the kidney (ccsk)
Hello my two year old is currently having treatment for ccsk it’s really hard to find anyone else who has this type of cancer would love to no if there is anyone else out there.
Extreme claustrophobia and need an MRI
Hope everyone here is doing well. I have a question. I have been diagnosed (by a biopsy) with breast cancer and now they want to do an MRI. I am being told it will be a closed MRI and I will be given two valium. I am EXTREMELY claustrophobic (had a donut CT scan and freaked out even on that) so am wondering if there are…
radical neph March 22. 2023
Good afternoon I felt like I had an obligation to sign up and post for this site helped me tremendously. I didn't have time to do it before surgery but now I am in the position to be thankful, grateful, and willing to help others. Here is my story and some tips for others> 62 years of age, history with uric acid stones…
Just wanted to check in and say hi
Well I don’t get on here much but I’ve been Ned 3and a half years now. One more six month scan then doctor said he’s going to move them to yearly I sure do miss talking to everyone I hope you all are doing great just got back from being in England for a month don’t think about my cancer much anymore which is a good thing
Cancer returned
I was looking in the messages here for people I knew back when I first got my diagnosis back in 2012. I don't see a lot of familiar names. Not sure if that is a good sign or a bad sign. In 2012 I had my left kidney removed because of a massive tumor. At the time of of removal they told me that I was stage 3A. It was clear…
Yearly check up
Hi Everyone and especially my summer 2016 cohort, I had my annual trip to see my surgeon/oncologist/urologist (I love my 3-in-1 doc), annual physical, derm, etc and all is well with my kidney. Always a relief. I know there has been discussion here about creatinine and eGFR - mine came out this time at 1.23 and 46. Pretty…

Kidney Cancer

Discussion List

Discussion Boards