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Kidney Cancer

Here we go!
I’m a 49 married ,mother of two. This summer I was experiencing some back pain and went to 6 weeks of physical therapy and nothing seemed to work. Finally I was able to get an MRI. A 11 cm mass was found on my left kidney. On Thursday I’m going in to get a nephrectomy as well as my left ovary removed. Doctor seems…
New Need Info
My son, who is now 49 was diagnosed with Stage 4 Renal Cell Carcinoma, in July 2020. It had already spread in his body, and had one kidney removed. He has suffered thru the treatments, and meds, pain, weight loss, etc. Afraid, now he is going on the last Med that generally last only 4 months. Any info for Clinical trials,…
cc RCC and MITF mutation
Hello everyone! I am a female diagnosed at 32 with 3cm cc RCC on left kidney, lower pole. I had open partial nephrectomy. I am going to be 6 years remission on 1/20/2024. I had genetic testing done and I came up positive for mutation MITF. It causes cutaneous malignant melanoma. This mutation also causes cc RCC, but…
Pathology report post nephrectomy
I’m 34 years old and was in a car wreck 1/4/24, where I was rear ended on a major highway. I followed up at the ER for neck and hip pain only to discover I had a complex cystic mass growing on lower pole of my left kidney via CT results. MRI 2 weeks later confirmed that it was over 8cm. I never had any symptoms whatsoever.…
Incidental kidney cyst
Hi, my GI doctor ordered a CT scan with barium and iodine contrast because I was constipated. There was nothing abnormal except they found a possible 1.3cm lesion on my right kidney. It said it was "subtle" and possibly solid. It sounds like the imagery wasn't great for some reason. The radiologist report recommended an…
Mental breakdown and constant nightmares
In November I went to the ER for a gallbladder attack and they found a 4.4 cm lesion on my left kidney. I had blood in my urine for a year or so that my GP blamed on kidney stones, because I do have those as well. I am seeing a urologist in a couple of weeks for my first consult and I am assuming it will be cancer as it…
Hip pain after radical nephrectomy
Hi, just wondered if anyone suffered hip pain after radical nephrectomy?? I seem to be feeling this in both hips but more so in right! im scared it’s a new tumour x
?RCC
Recently had an ultrasound for abdominal pain with a 3.8cm mass found highly suspicious for RCC, now waiting for further imaging. Having a hard time waiting and know what to do next! What do you wish you knew leading into your diagnosis?
Second year follow up CT was good news
I'm two years and four months out from robotic partial nephrectomy. This is the third CT scan (the first was four months after surgery). No obvious evidence of recurrence. Feels grrrreat! Doctor will start rotating ultrasound and CT every other time going forward to limit radiation. Would urge anyone in the same or similar…
New to this...
I'm still processing all this... I'm a 58 YO male. October '23 my primary doc sent me for an ultrasound to look at my liver because of some high ALT/AST blood test numbers. Well, it confirmed no cirrhosis, just a bit of fatty liver. It also identified a 5 CM mass on my left kidney. I freaked out!!! A couple CT scans later…
Five years of NEDDDDDDDDD!
Went in for my five year scans. By now, the process is familiar - get bloodwork so they know I can handle the contrast, get really scanxious beforehand, get in there, get it over with, get a Starbucks afterwards. As they set up my MRI, they asked me if I wanted music inside, so they put on a Movie Soundtracks channel for…
Four year scans
Well next month I’ll go for my four year scans Doctor said we will switch to yearly scans for. My last year then start doing ultrasound scans what a relief this has been a ordeal to go thru but doctor did state last time I was in he be shock to see it come back now let’s hope for the best
Multilocular cystic renal neoplasm of low malignant potential
They found a bosniak 2f incidentally during scans. I am only 32. I chose to have it removed rather than following it. Turns out it was multilocular cystic renal neoplasm of low malignant potential. I am only 32 years old so it is freaking scary. stage 1/grade 1/2.2cm My surgeon basically told me it’s not “really” cancer…
Open Partial Nephrectomy Complications
I had a open partial nephrectomy back in May of 2023. Very invasive. Had a rib removed and my kidney had to be reconstructed. I had a rough recuperation but slowly made progress. After 12 weeks I was back to work part time and after 5 months back full time. The problem I am having is that shortly after the 6th month mark I…
Post Neph Pain
My right kidney was removed this past November. I still have some pain where the kidney was. When I twist certain way, or sneeze or cough I have a little pain. Is this unusual?
New kidney lesion fast growing
Good morning, Starting in on a new journey. There never seems to be enough information and much that is there seems contradictory or confusing. So, here’s my story: I’ve been having upper back pain for months, and some reduced kidney function. Incidental CT findings have been pointing in a different direction than kidney…
Help! Newly Diagnosed
Hello all! In early January 2024 a 2.8cm solid mass was found on my right kidney via a CT scan. Luckily I got into a urologist in just two days to discuss the findings. I have never been so anxious! The urologist stated it is probably cancer but we can't confirm with a biopsy because of the location. He suggested we take…
My 7th year scan - NED
Hi all, hope everyone is doing well! Have check the group for a little while. I would like to share my NED result after my 7th-year scan (Ultrasound+Chest X-Ray). Somehow, my scanxiety is much lower this time and I found that CT causes a lot more anxiety to me. I still haven't talked to my urologist, but I've read the…
Robotic Complete Kidney Removal - Help
Hello, My tumor is around 7 cm. I’m 47 and will have it removed on 1/16. I am trying to find helpful tips to prepare and heal. ROBOTIC surgery only please. For example, I read people get really painful gas. Can I just take Phazyme? Will it help? Others say ice helps with pain, so I’m getting ice packs. Is there itching? I…
Stage 4 RCC - Don't give up, don't ever give up
I am a 54 yr old male who prior to my annual physical in Mar 2022, experienced night sweats and unexplained weight loss. Lab results from annual physical showed anemia and increased Calcium level. CT scan was ordered and revealed 15cm tumor on lower pole of left kidney, numerous metastatic lesions in both lungs, and…
Kidney Cancer
My journey started mid-March. In a visit with my PC doctor I mentioned having a tender area in the left kidney area of my back. The ultrasound showed a 1x1 area that was possibly an angiomyolipoma in the upper pole of the left kidney and CT was recommended. CT was done with and without contrast…it showed a small (5mm) area…
Where do we start
My older brother is a mid-30's male who has never had any significant health issues until yesterday. He ended up having 2 grand mal seizures within 10 hours of each other, released from one hospital after the first one and threw the second one about 9 hours after the first. The located the mass, 7.5cm x 6cm on his left…
Ned since 2015
As you may remember, I underwent surgery in 2015, and shortly after, I faced the challenge of a cancer diagnosis at stage one with a 2.5 cm tumor. The journey has been marked by regular scans, tests, and a rollercoaster of emotions. However, the most recent chapter in my health story brings me immense happiness. Just a…
Any good stories of stage 1 and long remission rates?
Post yours
Carcinoma renal
Soy de España. Lo ciento no se inglés pero os estoy leyendo y aprendiendo muchísimo. Operada de cáncer renal. Tumor de 7 sm. Estadio, g2 el día 18 de septiembre. De momento sin recidiva. Deseo a todos mucha suerte
A mass the size of a cinder block!! 4" x 8" Tumor
I was diagnosed in July of 2023 with a mass the size of a cinder block on my right kidney (it was cancer). On July 21st 2023 it was removed and I was found to be cancer-free. This all happened within a few weeks, which, in itself is life changing. I was immediately kicked off of my health insurance and I'm left with no way…
Maybe Cancer?
Hi All, So backstory, in 2021 I was in the hospital for collapsed lung due to asthma and pneumonia. A CT scan showed a 1.3 cm thing on my kidney that may or may not be a cyst and I was recommended to follow up. My lungs were my first priority and actually I forgot all about it. At this point no one mentioned cancer and I…
Many MRIs (with Cysts) over the years - now incidental suspected kidney cancer after CT
Hello guys, I'm from Germany and I'm so happy that I found this community. I'm a researcher (non-medical) myself and I was reading through hundreds of scientific papers regarding kidney cancer (tumor size, subtype, recurrence, CT sensitivity ...) which made me highly depressed as the papers are often written very…
Nerve Damage from Nephrectomy
Hi there: 13 weeks after my Nephrectomy, I am still experiencing significant pain. I was referred to a pain specialist and was diagnosed with extensive nerve damage. I have been on a nerve blocker for a few weeks, which has helped, but I am certain the dosage has to be increased. The pain is debilitating and keeps me…
Bosniak 3 kidney lesion
I have a kidney lesion 3cm big that i have been following for about 6 months. 60% of being cancer and i am sitting on it.. As i am Completely afraid of doing surgery i have chosen to follow the mass. My question is i have a doctor who wants to do the Partial Nephrectomy. And another who wants to do thermal ablation. The…

Kidney Cancer

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