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Keytruda immunotherapy
Has anyone had experience with Keytruda infusions? My first infusion is this Friday. Any tips on what to bring/expect? My regimen is planned for every 3 weeks for a year currently.
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Advice On Home Medical Equipment Required For Recovery
Hello all you courageous and fierce cancer fighters. My elderly father is going in for a radical nephrectomy and I’m taking time off to care for him after he is released from the hospital. My question is what home medical equipment would you recommend I purchase to make the recovery slightly more comfortable? Things I’m…
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"Translocation" RCC
I received a phone call from my Drs office this week stating thet were performing more tests and stains on the mass they removed from my kidney. Originally I was told it was clear cell now they are saying it may be "translocation." type. This has me very worried based on what I've read about this type of cancer. Anyone…
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Ultrasound shows one thing, CT scan does not.
I had a ultrasound that showed a 2 CM mass on my left kidney suspicious of neoplasm. My doctor called and told me it looked highly suspicious for kidney cancer and she would refer me to a surgeon, but first I needed a CT. I had a CT with contrast and is showed no mass on my left kidney. Which is great news, but is a CT…
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How to overcome fear of losing your spouse?
Hi, kidney cancer family. My wife's story is a unique one. She found out about her kidney cancer in May of this year and by July she had a full nephrectomy of her right kidney. After analyzing the stage 3 tumor, the surgeon said there is no evidence of spread and that they were able to completely remove the cancer. He…
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New Here - what comes next...
Hi, I have been reading and just wanted to say hello. 5 years ago the urologist found "something" on my kidney. The oncologist reviewed and said its quite small, no interference with kidney function lets monitor. Fast forward to March 2024 my MRI came back with 3cm Clear Cell Renal Carcinoma. Of course this stopped me on a…
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cryoablation for RCC kidney cancer
Does anyone know or had Cryoablation for RCC Kidney cancer on tumors smaller than 4 cm, in Texas. This is my second one in 3 years they removed the first one open type surgery. but my health isnt as good now as it was then. I understand that this is a better option for me. I would appreciate other views on this.
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Just looking for support. Anxiety level = 1000
I'm a 44 year old male. I was in Argentina (my home country) on vacation and the last day I had a horrible pain on my lower back. I went to the ER d after an all day stay and lots of meds, they told me they found kidney stones. The ER doctor seriously recommended seeing an Urologist when I return to the US because there…
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3 years NED
Haven't checked in for a bit, but I wanted to update everyone. Just had my 3 yr check up and NED. I am not expecting it to come back as it was stage 1a and grade 1, but it still feels good to hear him say what we were expecting. The doc has kicked me out to yearly visits instead of 6mo and life continues. I just want to…
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I am a 35 year wilms tumor survivor
Hello Folks, I am a 35 year wilms tumor survivor. I had my left kidney taken out when I was 2 1/2 years old. On Tuesday of I will be 38 years old. I am doing great. Would like to know if there are any other wilms tumor survivor here. Thankyou
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New to group
I’m Nancy from Chicago. A 2cm solid mass was found on my kidney by CT scan, incidentally. During the past 6 months my creatine has increased to 1.3 and my GFR to 47 with trace protein in my urine. We were keeping an eye on it. I have a history of Hurtle Cell Carcinoma of the thyroid 5 years ago with my thyroid being…
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Lung Nodules after RCC
Hello - i had a 10 CM tumor removed in 2008 that was clear cell renal carcinoma, pathology put as grade 1. In 2021 i had a recurrence in my right solitary kidney of 2 tumors that were noted as grade 3. I have been doing my followup scans with NED but a recent CT for a pain i was having now shows a 6.5mm nodule in my lung…
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Just diagnosed
Hello all, TI have just been diagnosed with kidney cancer. My chest CT is on Friday. The following is the MRI results. My doctor said that it is clear cell cancer. KIDNEYS: There is a partially exophytic mass arising from the medial aspect of the upper pole of the left kidney and is well-circumscribed. It measures 4.3 x…
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recently diagnosed with RCC
I am a 75 year old woman, very active and always thought healthy and have been diagnosed with RCC. It has metastasized to my lungs. I am trying to find a support group to give support and to receive it.
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Newly Diagnosed with Metastasis--HELP
I need some words of wisdom and hope ... my husband's MRI, CT scan, and ultrasound show a 14x14x10 cm presumable renal cell carcinoma, extensive metastatic disease in right and left liver lobes, metastasis in T11 and T12 spine, metastasis in 4+ nodules in the lungs, and suspicious tumor thrombus in inferior vena cava. He…
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71 year old discovered renal cell carcinoma incidentally
Hi, this is my first post, but I’ve been reading everyone’s experiences. My cancer was found by accident(thank God). I’m told my 5.3x 4.3 mass at the lateral aspect of the upper pole is at stage 1. I am scheduled for surgery at Moffitt Cancer Center in Tampa Florida on the 27th of the month. It will be a total removal of…
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Kidney Cancer Survivor since 2021 - My Post- Cancer life
Hello, I also wanted to share my story and hope it gives others hope. I was sick for almost a year of waking up and dry heaving for no reason. Being nausious 24 hrs a day. Everything I did didn't help. I was in good shape, overweight, but not obese in any way. I also had a hernia that was getting bigger on my lower left…
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kidney cyst results
jan 2023:There is 3.7 cm cyst extending off the lower pole of the left kidney. There is a 3.9 cm cyst extending off the lower pole of the right kidney with minimal complexity along its posterior margin, with question of punctate calcification. No hydronephrosis. april 2024: Bilateral renal cysts again noted measuring up to…
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Renal cell carcinoma
Had right kidney removed laparoscopy surgery in February. The mass was found on a CT scan that doctor was checking me for pneumonia. No symptoms. During surgery I developed a collapsed lung which was treated while still in hospital post surgery. 3 months have passed and still dealing with times during day I am exhausted .…
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6 cm renal cell carcinoma solid mass - surgery upcoming
CT scan for something else, no symptoms. Been doing some reading on cancer sites for info - had no clue about anything to do with kidney cancer and pathology wording doesn't sound good per my reading. On a better note, no evidence of metastatic disease. Dr. seemed encouraging it was contained but need full removal due to…
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Diagnosed with mcrnlmp
who else is diagnosed with the same? Multilocular cystic renal neoplasm of low malignant potential
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Lenvima dosage
Hello all! I've been on Lenvima 18mg since Oct. 2023 for stage 4 renal cancer. I've had 2 surgeries where I had to stop the medicine for approx. 3 weeks. Cancer grew during those times. Once back on Lenvima it knocked it back some. My question is, has anyone reduced their dosage (ex. 18mg to 14mg) and continued to have the…
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Ned
Well I had my four year scans yesterday and was Ned went to yearly scans and I thought I would be done after five years but since I was stage three I won’t be done untill my tenth year oh well it’s only once a year now
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Gerald White
Has anyone hear of Gerald White? He has a book called 3 months to live. Apparently he had a 20lb Kidney tumor and went go to live a good life for many years. Well I ordered the book. Terri
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Keytruda/Lenvima side effects
Hello group. I've been dealing with my kidney cancer diagnosis for 11 years now. I've had surgeries, radiation, immunotherapy, you name it over the years to knock the disease back, and I've handled it all pretty well. Last fall my doctor started me on a combination of a Keytruda infusion, every 6 weeks now, and a daily…
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Small Renal Lesion - Very Nervous
49M. Had abdominal issues (likely unrelated) in October 2023. Abdominal/Pelvic CT w&w/o contrast showed 11mm (1.1cm) indeterminate renal lesion on right kidney. Follow up with Renal Ultrasound in December 2023 revealed no renal lesion (though US report stated it was limited study due to bowel gas). Going for MRI…
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Reconstructive surgery after partial nephrectomy
I am currently 9 months post-op from an open partial nephrectomy. I began having really bad pain and swelling approximately 6 months after the procedure. After multiple emergency room visits, and absolutely no answers from my urologist/surgeon , I finally got a second opinion with a new urologist. He referred me to a…
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4 years…NED!
Yesterday was my annual CT scan 4 years after my partial nephrectomy on Feb. 20, 2020, and there was no evidence of recurrence or metastatic disease! I am beyond thankful to God. Posting this as an encouragement for those who are new to their kidney cancer journey...there is always hope!
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Stage vs Grade?
Hello everyone, I just came across this message board, what an awesome resource. My story, like most, begins with an incidental finding during an MRI for an issue with a pinched nerve in my lower back. I was soon referred to a urologist and a CT scan confirmed the MRI....a suspected 3.5 cm RCC tumor on my left kidney. 4…
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Waiting Phase of Diagnosis- Bosniak 3
Hello Warriors A typical case of going to hospital for an infection and by chance a Bosniak III renal cyst was discovered. At the stage where no doctors or urologist wanted to commit and state their diagnosis and prognosis.So waiting patiently and hoping that it is not kidney cancer.Although all the symptoms are pointing…