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Scans coming up
I have my three year scan March 28 then April six I leave for England woo hoo will be there a month I’m not going to let this cancer win
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Does The CT scan w/Contrast Differ Vastly from the MRI?
56 year old man. Summer of 2021, while visiting my brother dying from colorectal cancer, I noticed a stream of blood after urination and stopped. Chalked it up to a possible bruise to kidney. Four months later happen again, briefly. As there was no pain, Thought I would bring it up to my GP next visit. Late 2022, I did.…
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Just had my 6.5 years scan and it is NED!
Can't believe it is another 6 months already. Just want to share that I just had my 6.5-year follow-up. It has been 2 years since my last CT, so I felt more nervous than the last few US/X-ray follow-ups. But it is worth it as it is a NED visit, although it always picks up other issues... Life is uncertain, I wish everyone…
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First week partial robotic had 3/07/23
hi im Jane today is the one week mark of the day I had robotic partial nephrectomy I can’t help but notice this yucky taste in my mouth. Has anybody experienced that? I go for post op appt. On the 20 th I’m 61. What is to be expected? Thank you
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My cytology says: Suspicious for high grade urothelial carcinoma
What does my cytology results mean by : Suspicious for high grade urothelial carcinoma?? I had a TCC in right kidney pelvis. The kidney was removed in Nov 2022. I am on Plavix so my urol doctor does not want to do a bladder scope yet. I am sheduled for a CT next month. All info is helpful. Thanks
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At The Beginning
All this came up really fast, man. In late November I saw the doc because I had a sore shoulder. She suggested a quick blood test since I was there anyway for the shoulder -- she had been keeping an eye on my creatinine levels (but they had not been terribly out of bounds). Fast forward one week, and I'm looking at an…
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Coping with my dad’s decline
I’m not really sure why I’m posting this. I don’t know what I’m trying to get out of it, or what I want to hear. Or if there’s anything anyone can say to make me feel anything other than the immense grief that I already feel. My dad (53) has stage 4 Renal Cell Carcinoma. His diagnosis was sudden- he went into the doctor…
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Urothelial (kidney) cancer which has metastasized to the lungs
Following cisplatin chemo which successfully arrested the disease progression, the bi-weekly Avelumab (immunotherapy) infusions which I subsequently received for almost 12 months are planned for completion. Has anyone in similar situations received Avelumab for a longer period and if so, please share your details.
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2.9 cm lesion Bosniak 3
HI i was just diagnosed with a Bosniak 3 lesion on my right kidney. Saw a urologist who recommended surgery or told me i could follow it.. I am confused.. I was wondering if anyone here has followed their lesion if so for how long and did you eventually to have surgery?
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Any treatment for Chromophobe cancer?
I recently had kidney and tumor removed, with confirmation of Chromophobe cancer. The conventional medical opinion is to watch n wait to see if cancer re-appears. But is anyone's doctor treating their cancer? The literature is unclear if there is no accepted treatment because: 1) the sample size of Chromophobe patients is…
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Partial Nephrectomy in 5 days - pre-surgery advice from those who've been there?
Hi everyone. I basically am getting nothing from the urology/oncology group...having to discover information and tips from online. My question: What helpful tips would you give to me on how to conduct myself with 5 days left? Things to gather together....things to avoid eating....things you wish you had done…
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Pre surgery question
Hi, this is my first post here, I have recently been diagnosed with renal cell carcinoma stage 1. They found it by accident because I have a benign 8cm tumor in my other kidney and started to bleed. They had to embolized it and that’s when they found the cancer. I had a biopsy and I will be having a robotic partial…
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Chemophobe renal cell carcinoma
Hey everyone, my name is Kimberly I'm a 29-year-old kidney cancer survivor. I was diagnosed last year with a rare form of kidney cancer. It's been ten months now since my surgery and I have been in pain with nerve damage and where the procedure was done has been hurting terribly. Do anyone have any suggestions on what I…
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NED 7 years
Had ultrasound and xray Today. All good just have a stable simple cyst for past 2 years tho. I still sweat these out till I get results.
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Uncle NED is that you?
Well yes it! On Dec 14 2022 I had my yearly CT scan and it was normal!!!!
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At 25 should I feel stuck?
I had a my kidney partially removed after finding a mass 2.4cm in December and ever since I’m lucky but I don’t feel it. Am I ungrateful? Should I feel like this is a gift that’s suppose to be life changing? Sorry just wanted to share. Hope all goes well with you all in this coming year. God Bless Noah
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Six Year Tests
I haven’t been around for a while…..traveling…..woo hoo. But back home and had tests/scans needed for my annual survivorship program appointment. The results are already in. Creatinine was 0.94, better than before my merry-go-round started. eGFR was 89, also a high for me. Chest x-rays were clear. And the ultrasound showed…
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Night sweats?
Hi, since I had my partial nephrectomy on 12/20 I've been having night sweats just about every night the room is cool so I don't understand it don't know has something to do with the surgery recovering or what has anyone else experienced this? Also 10 days after catheter removal still having issues, the stream is still…
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Jelmyto
Hello, my father has been battling bladder & kidney cancer for a few years now and at his last follow up they spotted a suspicious spot on his remaining kidney. He’s already had his bladder, prostate, & one kidney removed. The biopsy is being scheduled but in the mean time his surgeon has asked him to think about his…
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Radical Nephrectomy
I am facing a radical nephrectomy, and I want very much to hear from people who have had either laporoscopic or open surgery. (Laporoscopic surgery might not be feasible in my case, but it will only be when the anesthetic has worn off that I’ll actually know which method was used.) Can anyone help me by sharing your…
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RCC with renal vein invasion
I am 53 yr old male and I had a partial nephrectomy a month ago. It was a 2.5 cm tumor and confirmed to be clear renal cell carcinoma. The pathology report indicated grade2 but stage3. (PT3a). This was because of vein invasion (renal vein). The resection had negative margins which is comforting, but I am worried about the…
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Feet nerve pain 2 months after radical nephrectomy
Hello everyone, I'm new here. I had a radical nephrectomy 3 months ago after a large tumor was found in one of my kidneys. I had had some nerve pain in my feet before the surgery but it disappeared in a few days on it's own. Now it's back and getting way worse, to the point I barely can walk. I have a scan in a few days…
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What if your Doctor said No to Tylenol?
It's Thursday. The radical nephrectomy of my left kidney was done on Monday. As everyone here can understand, pain is an issue. I got out of the hospital yesterday. The standard advice seems to be, take a more serious but limited number of pain meds (Tramadol, Oxycontin, etc.) every six hours and then fill in the blanks…
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Biner
Has anyone heard from biner lately just wonder how he was doing
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Biopsy results
Update - appointment with oncologist Dec 1st. Will know more about treatment and let you know. Did find out that there will most likely not be surgery. Hi I got the biopsy results and the RCC has spread to the pancreas. Will hear about next steps soon. I'm definitely scared but I know God is helping me. Thanks for your…
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Kidney Tumor
Hi I have just been informed by my doctor that after waiting almost 3 months for the information from ultrasounds and CT Scans that I have a tumor in my right Kidney. He wanted me to wait and see if it got any bigger 6 months from now, but I opted to see a specialist. There is a lot of Cancer in my family. Does anyone know…
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Left Kidney removed
I am 36, got 5.8cm mass on left kidney. Both mass and the left kidney was removed laparoscopically. It’s been 6 weeks since the removal. Life has changed, emotionally too. Should I be on a specific diet. Should I specifically do something. Can I lift weights and go for runs?
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problems after nephrectomy...anyone else have this?
Hi! I had a full nephrectomy 5 months ago and I am still severly swollen on that side. I am numb (feels like when your hand goes to sleep) from my hip to 1/2 way down my thigh all the way over to my groin area. This is all the time... I have not had feeling since my surgery. I have sharp stabbing pains all the time in this…
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My Four-Year Scans: NED!
Had my four-year scans this week. I've been so busy with work and family and upcoming holidays , I haven't had time to get nervous about them. No time for any scanxiety. Oh, but it eventually got me. Scanxiety is a clever monster, I'll give it that. Had my CT scan of my chest, quick and easy, no problem. Had to wait a…
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Holiday Season
Happy Holidays to everyone! Wishing everyone a”Negative” 2023!