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A post from Chefdaddy.
Chefdaddy posted to me on the superthread, so I thought I would place it here. Please pray for him and his son and daughter. He has really had a hard time. June 17, 2011 - 5:15am Hi Kiddo, A lot going on, Hi Kiddo, A lot going on, unfortunately, some is very bad. I got a call from my son's oncologist this morning regarding…
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Gone A While
Hi, everybody. I've not posted for a while and I'm sorry about that. It seems that everything built up and came crashing down on me and I have been really down. I have been experiencing a great deal of facial pain and I have been to numerous doctor visits to try and get relief. My main doc and my ENT surgeon think that I…
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Chef Daddy Mikes Son up-date
Hi everyone I talked to Mike last night and the pore man just can’t get a break. His Son was told the bad news yesterday by his doctors that more than likely his Liver will not allow him to do more Chemo again for his Leukemia. Mike and his Son was all day running from one doctor to another and was pretty exhausted by the…
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skull base institute
Does anyone know any info. about the Skull Base Institute in los Angeles....just wondering if anyone has had any experience with them. I guess I'll also post this on the brain page.
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squamous cell ca of tonsil
I am wondering if anyone has had or heard of someone having been treated for squamous cell ca of the tonsil, being "cured" and then 6 months later on a PET scan showing lymph nodes lit up? This is what happened to someone very close to me and I can not understand it. Could it be just an infection? What happens if it is…
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July Fourth & Military
Please remember those that have and still pave the way for the freedoms that we enjoy.... Our men and women in the service, their families, those that are serving and those that have served. Those that have paid the ultimate price, those that have signed on the dotted line and know at what cost that could be.....ready 24/7…
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Radiation burns
Hello Everyone, Of course I have another question about Connie's condition. Around her neck her skin is very dark and looks burnt. She is three 1/2 months out of treatment but this skin has become darker every week. I think we both thought this skin would peel like a bad sunburn, but so far that's not happening. It…
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OPINIONS PLEASE
Hello Everyone! Happy 4th Of July, I hope your all enjoying it! I have a few questions and I'm not sure where to begin. My Dad has vocal chord cancer, and as of right now he is doing NON traditional treatments, and so far the cancer is NOT getting any worse. We just weren't comfortable with the surgery they wanted to do,…
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Has anyone ever used Caphasol?
Has anyone ever used Caphasol for the mouth sores? I spoke with a fella that swears by it. He didn't hear about it until week 3 or 4 and reported huge success with it after initiating use. What does it actually do for you? All comments welcome and requested. Thanks to all, Mike
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Husband's anger -- embarrassed...
We have a small mobile home in a nice neighborhood that I use as an in-town office for my business as our main home is in a small rural town (pop 250) 15 miles away with limited internet access and no businesses on "Main Street." I'm so embarrassed to say that I slept here last night, leaving my 58-year-old husband to…
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New Allergies/Reactions?
Team, Happy Fourth of July. Thank you founding fathers, revolutionaries, military personnel (deceased, retired and active and formerly active), and people who stand, put their hand over their heart and join in when the Pledge of Allegiance is beginning. Now - haven't had a whine in a while - that dry patch is over. I broke…
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does anyone have the same form of cancer?
I have been dx'ed with metastatic Melanoma with no known primary. While I have gotten excellent info from some very caring and knowledgeable people here, I am wondering if there is anyone with the same type of cancer I have. I guess while not unheard of it is not very common. I would love to hear from someone in the same…
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Gratitude
"Be grateful for those who have opened the door before you, they have shown you new possibilities." When I came across this quotation, I immediately thought of all of you here at CSN. Thank you all! As I read these posts, I am still learning of how I can take better care of myself. God bless you! Love & Prayers, Patty
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I am so blessed....
Hi Fellow Fighters, I know I have not been posting, but I come here for support. This site, my friends here, people I have never met, have gotten me through the worst days of my life. They gave me advice, answered my questions, comforted me, and supported me. I could not have come this far without YOU. I am NED as of 2011.…
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treatment
Who on here has been in remission after doing chemo only or clinical trials? Have any of you had pallitive chemo...whatever that is.
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hondo dr. sebi
Hello Hondo, I don't know if I am "supposed to" write you directly. I went to Dr. Sebi's site and plan to call them. I did not see under their product list the 2 that you mentioned you take (Chelation and Electro Cell). Just wondering. My husband's cancer has metastisized and we are trying to learn about alternative…
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2 Questions
I have 2 questions frist I had my feeding tube removed 5 weeks ago now around where the tube went in it's swallen like fluid around it it's not sore or red like it might be infected I dont know if it may need to be drained or not has anyone had this problem. Next question 2 weeks ago I started taking Salagen to help with…
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ONE YEAR AGO THIS WEEK
Wow,how time flies by. One year ago this week I was told by my doctor I had cancer. My wife was on a weeks vacation with here girlfriends when I got the news. Ironically this very week, she is on vacation with her girlfriends. She was in a shoe store at an outlet mall in line to buy a pair of red high heeel shoes when I…
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Help!!!!!!!!!!
Mymother completd her tests at mdanderson...now the onclogist called and said the paranasal recurrence was in the eye orbit. and now is growing along the nerve toward the base of the skull!!! He saw on mri. I am scared to death. We haven't heard from surgeon but oncologist said it will be too dificult to operate. He said…
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Best short tips for handling chemo/RT
In the course of my recently finished 37 RT sessions and 6 chemos for a tumour on the root of my tongue, I came across a few good ideas and suggestions which I had not found amongst all the tips in the basic help literature. I thought it might be a good idea to start a "discussion" so that people could contribute their…
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Trip to the MDA Dentist
I went to see my Dentist Doctor at MD Anderson yesterday and he said it looks like the Jaw is open as much as possible using the new Dynasplint device. I went from 14mm to 21.5mm of opening, that is still a little under an inch of opening but to me it is a lot. He said the next step is to get injections of Botox, but after…
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Anniversary
Hi all: Basketcase here. Just thought I'd report that it has been rough; this being our first wedding anniversary since Charlie passed away. It was a pretty good day; but very rough. I did see Mr.Popper's Penguins. It is a cute movie and I enjoyed it. Good thing I had a gift card though. It was $9 for the ticket and 12.25…
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Vocal cord nodule or lesion
My mother is 91 years old. The dr just did a biopsy on her Monday as she is having horseness while talking. He said there is a 50-50 chance it may be cancer. If it is he is suggesting radiation. She is 91. What can he be thinking? She is in good health otherwise and he dsadi he took it all out. My husband passed away in…
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checking in
Well I havent been on here that much latley, anyway have not had a pet scan latley but have been feeling ok. Around 3 months post neck disection over 3 months post radiation and chemo. I had a tumor grow on my left ear, big nasty thing that was SCC, had a moess procedure done at the dermetologiest office to remove it, any…
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Another good check up
I have been reading these posts for close to 2 years. They have been helpful. I saw my Doc yesterday and he suggested I come back on a yearly basis. I'm 22 months post treatment (tonsil, lymphnodes, stage 3). I feel very greatful. I like reading the success stories and so far I'm one of those. I do miss seeing DelNative's…
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residual tumor
What is residual tumor? I aksed this dctor here at emory and he looked at me like i was crazy! I've heard it discussed on here before...or do I not know what i'm talking about???
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Port removal
How long did you have your port in?
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Pathologic Fracture
Just found out my husband has a pathologic fracture of his lower jaw bone on the left side. He is a almost 3 yr cancer survivor from oral cancer in this same jaw area and also in lymph nodes. He has had teeth pulled in that area over a year ago and did 30 hyperbaric treatments. Jaw was swelling and painful. During a…
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Fear and... Can I believe this.
Hey ya'll! Went to the doc today..he looked down my throat and saw no cancer!!!!! Well, I can tell you that I am thrilled! Just thinking (tho it is 12 something a.m.) that I just might be able to sleep through the night. Yay! To those of you that are feeling fear or insecurity at all; I understand as most everyone here…
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Question about teeth
I had to have all my teeth pulled before I started radiation. I'm wondering if anyone is/was in same shape, When were you okayed to get dentures? I'm not sure if its a dental question or radiation question.