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bump on tongue
July 4, 2011 - 9:41am bump on tongue I noticed that there is a sore on the side of my husbands tongue and it's on the same side he received radiation on. It protrudes out about a 1/4 inch. I noticed it has been there for a long time. Just a little worried because before treatment he was complaining of his tongue hurting.…
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Been awhile - I've been bad
"Bad" in that I haven't kept up with my CSN friends. Sorry about that. I've actually been pretty good. December CT/PET showed my NED and my follow up CT in June was still clean. I was suffering from L'Hermittes - but my chiropractice rehab work has all but cured that. I only feel it when I run. I was suffering from some…
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Has anyone spoken to Hal61?
I haven't spoken to Hal since March. Just wondered if anyone has heard from him? I am hoping he is just busy working and living life. Hal, if you are lurking, check in, please. :) Sweets
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Possible thyroid problems
I am wondering if my thyroid in not functioning correctly, I have absolulty no energy. Yesterday we took the boat out, all I did was drive to the lake 30 miles not stressfull and sit in the boat all day under the bimi top. The only time I got in the water was up to my knees to hook the boat up to the trailer and pull it…
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HPV
A couple of months ago I noticed a small skin flap on the inside of my cheek, it was small and did not seem to get any bigger, last week I decided to have it looked at. Doc injected the area to numb it and then cut it off and cauterized. he said he believed it was a small benign papiloma. Also said he would send it to…
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Useful Info for all of us
This was sent to me by a friend. Format didn't copy too well but I thought a good read anyways. Johns Hopkins Update - This is an extremely good article. Everyone should read it. AFTER YEARS OF TELLING PEOPLE CHEMOTHERAPY IS THE ONLY WAY TO TRY ('TRY', BEING THE KEY WORD) TO ELIMINATE CANCER, JOHNS HOPKINS IS FINALLY…
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Half way done: week four is almost over.
Hello all, I am half way done, although the hard part as most of you veterans know is just starting. My RADONC said it best yesterday "the honeymoon is over, it gets tough from here on". He is right. My throat is very painful, swallowing is tough and talking above a raspy whisper takes effort. Feeding tube is coming, the…
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Back to work
I went back to work last week. Guided hikes and mindful walks in the Palm Springs area all last week. Some at 10,00 feet and some in the valley in 115 degree heat. It felt so good to be back helping people get outdoors. First time working in over a year. 6 months post treatment was Tuesday. The body does heal.I'm back. Bob
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Peg Removal Advice
Hi Folks, I did read through the super thread and have tried to garner as many tips as possible, but I still feel I need some guidance. I finished radiation on May 25. I have a button feeding tube in place. It's a pain for me, as the tubing is too small and leaks gastric juices. I have to use a combo of Marathon skin…
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windpipe transplant
News just broke that Swedish Drs just performed the first "man made" windpipe tansplant. Done using patient's own stem cells, and doesn't have to take anti-rejection meds. Patient was stage-4 C of the larynx/voice box, and is said to have had no other options. Have a couple more planned this year, also. FYI kcass
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Hondo
I went to see a myofacial doctor for my jaw pain and he sent me to physical therapy for treatment. I was supposed to have some osscalating treatment but she would not give it to me because she said that before i could get that she had to make sure i did not have cancer. She showed me 3 excercises to do that she said would…
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Food Ideas and Such
Hi everybody! I hope all is well or getting that way for everyone out there. I've posted recently that I am six weeks over my last of 33 rad treatments for tonsil cancer. The doctor (and most folks here on this board) said the rads continue to work their magic for three months afterwards. So, I am slowly working my way to…
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breaking the gloom
How do you guys handle these situations? You know when an aquaintance comes to you and asks in a timid fashion ...How are you? Almost like they are scared of the response that your gonna give them. I keep trying to come up with a humorous way to respond to these nice folks who are genuinely concerned about you but dont…
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Thinking of Skiffin today
Skiffin's big two year post PET is today. Thinking of him and sending prayers and best wishes his way and to everyone who is, has, or will battle this disease. Here is to good news for Skiffin. Myka
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back in the glass shop!
Hi Everyone, I feel compelled to tell you all that I FINALLY went back into my little workshop, after almost 6 months of not even stepping foot in there..and finished a piece of glass that I started last September. It is FINISHED!!! It was intended for my hubby's Christmas present 2010, then became the March birthday gift…
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Done with Treatment; No Follow up Scan?
Hi Everybody! This board has given me much comfort over the last couple of months. I finished my last of 33 radiation treatments for tonsil cancer six weeks ago. I didn't have chemo but I did have my right tonsil and what the doctor described as a tumor removed from the right base of my tongue. The cancer was apparently…
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Carnation Instant Breakfast Program
Hey everyone. I know money is tight, especially when some of us have to take a leave of work. The thought crossed my mind to share this with the board. Feel free to share it with anyone else. At the hospital where I am being treated, they have a great program for carnation. I do not know how widespread this type of thing…
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Update on my husband
For those of you that may remember, I had ask alot of questions a couple weeks ago about buccal mucosa cancer. My husband had his surgery this past Thursday. They did dissection of the tumor, skin graft from forarm and thigh, and selected neck dissection. Things went well for the first several hours. On Friday he was found…
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after treatment scans
Ok, I really need some feedback on this. July 2006 completed chemo/rad for scc base of tongue. Following November had surgery to remove 5 lymph nodes on side of neck. Cancer free since then. My ocn who performed the surgery told me he doesn't schedule scans after 2 to 3 years. My rad/ocn and chemo/ocn are still…
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Glass trout!!! and PEG (weird)
Hey ya'll! Well, here it is...this is from a free pattern found online. My hubby DOES fly-fish when we go to the mountains so he has alot of flies. When this photo was taken I did not have any E6000 on hand to attach a real fly to the piece. (and do not want to use anything else) Like most endeavors, it takes time and…
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A post from Chefdaddy.
Chefdaddy posted to me on the superthread, so I thought I would place it here. Please pray for him and his son and daughter. He has really had a hard time. June 17, 2011 - 5:15am Hi Kiddo, A lot going on, Hi Kiddo, A lot going on, unfortunately, some is very bad. I got a call from my son's oncologist this morning regarding…
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Gone A While
Hi, everybody. I've not posted for a while and I'm sorry about that. It seems that everything built up and came crashing down on me and I have been really down. I have been experiencing a great deal of facial pain and I have been to numerous doctor visits to try and get relief. My main doc and my ENT surgeon think that I…
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Chef Daddy Mikes Son up-date
Hi everyone I talked to Mike last night and the pore man just can’t get a break. His Son was told the bad news yesterday by his doctors that more than likely his Liver will not allow him to do more Chemo again for his Leukemia. Mike and his Son was all day running from one doctor to another and was pretty exhausted by the…
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skull base institute
Does anyone know any info. about the Skull Base Institute in los Angeles....just wondering if anyone has had any experience with them. I guess I'll also post this on the brain page.
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squamous cell ca of tonsil
I am wondering if anyone has had or heard of someone having been treated for squamous cell ca of the tonsil, being "cured" and then 6 months later on a PET scan showing lymph nodes lit up? This is what happened to someone very close to me and I can not understand it. Could it be just an infection? What happens if it is…
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July Fourth & Military
Please remember those that have and still pave the way for the freedoms that we enjoy.... Our men and women in the service, their families, those that are serving and those that have served. Those that have paid the ultimate price, those that have signed on the dotted line and know at what cost that could be.....ready 24/7…
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Radiation burns
Hello Everyone, Of course I have another question about Connie's condition. Around her neck her skin is very dark and looks burnt. She is three 1/2 months out of treatment but this skin has become darker every week. I think we both thought this skin would peel like a bad sunburn, but so far that's not happening. It…
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OPINIONS PLEASE
Hello Everyone! Happy 4th Of July, I hope your all enjoying it! I have a few questions and I'm not sure where to begin. My Dad has vocal chord cancer, and as of right now he is doing NON traditional treatments, and so far the cancer is NOT getting any worse. We just weren't comfortable with the surgery they wanted to do,…
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Has anyone ever used Caphasol?
Has anyone ever used Caphasol for the mouth sores? I spoke with a fella that swears by it. He didn't hear about it until week 3 or 4 and reported huge success with it after initiating use. What does it actually do for you? All comments welcome and requested. Thanks to all, Mike
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Husband's anger -- embarrassed...
We have a small mobile home in a nice neighborhood that I use as an in-town office for my business as our main home is in a small rural town (pop 250) 15 miles away with limited internet access and no businesses on "Main Street." I'm so embarrassed to say that I slept here last night, leaving my 58-year-old husband to…