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Delaying Radiation
I am wondering if anyone has delayed their radiation for a couple of months. What was your outcome? I ask because my employer has notified me that I will lose my job after 6 months as is company policy (currently in my 5th month off, completed chemo, and ready to do radiation for 6 weeks).
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I am sure I have asked this before, but I am going to ask again
How many weeks did it take before you felt better.. Like able to move around without a problem, lowering your pain dosage and eating? My husband vomited yesterday and he has been dry heaving most of the day today. It seems like he should show some signs of improvement, but in some ways he seems worse. I do not know…
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When was the last roll call? Earth to Hawvet.............come in Hawvet??
Sorry, I have not been online for a long time. But, doing very well now almost 4 yr. post treatments. So, has there been a Roll Call lately?? JKINOBAY
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Hypoglossal Nerves
Hello everyone...it's been quite awhile since I've been on the boards and I feel guilty not staying in touch after all we'd been thru know that I had some to share with everyone. My husband has been doing wonderful after a left RND two years ago and a moderate neck dissection last summer to take care of the right side of…
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I've done it before
and I can do it again. Not how I planned to spend the rest of my summer vacation. Last August I had surgery for a lump on my upper lip. Squamous cell, spindle cell varient, peri-neural invasion. Stage I, clean margins, HPV-. Had radiation (with amifostone), ended Mid October 2010. I went back to work in January. Major…
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Mentally Coping With Everything
A couple of months before I was diagnosed I had lost my 10 plus year job. I was on unemployment at the time and switched over to disability later on ( I should have done it sooner). I'm having real issues coping with everything. While I am getting better physically slowly but surely I'm finding my mental state is really…
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G-Tube feeding diet suggestions durning chemo!
Hi everyone my dad is on his second week of chemo and the doctors are very impressed with the results they are seeing. The swelling in his face has gone down a lot and as of now they think things are moving in the right direction! But we are still not out of the woods yet, he is still on a G-tube and still has a trach. We…
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G-Tube feeding diet suggestions durning chemo!
Hi everyone my dad is on his second week of chemo and the doctors are very impressed with the results they are seeing. The swelling in his face has gone down a lot and as of now they think things are moving in the right direction! But we are still not out of the woods yet, he is still on a G-tube and still has a trach. We…
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Water and swallowing
Anyone who has had a partial larengectomy knows that liquids and water are the most challenging to swallow without having it go into the lungs. Wifey has tried water thickner powder, which she says is like swallowing bad tasing slime. ANY IDEAS as to ways to get water/liquid intakes by mouth to ensure hydration. I know…
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recurrence
A few weeks ago I posted that they thought my husband's cancer had metastasized to the bone. Well the biopsy showed that it was true. Sooo...we are now in our 2nd battle and trying to regain hope and strength. He will be on standard chemo for the mestastisis and hopefully we can kick this canceer's **** a second time. Wish…
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Kinda Worried
Hi, My dad is a little over a year out of treatment and he told me yesterday his has a place on his tongue. When he showed me it appears to be a cut with a small red looking bump. My dad has no teeth and has been eating Ritz crackers and using that side of his tongue to break them up. He also eats at least on large tomato…
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Prayers Please
Hi all: Basketcase here. I just wanted to ask for prayers for a lady in my church Donna. I think I posted a few months ago; she went in for her welcome to medicare physical and they found a tumor in her lung and one on the liver and further investigation it had progressed to her bones. She had started a clinical trial and…
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Are you different now?
Maybe a weird/dumb question, but I want to know how many of you feel like you have survived treatment and now truly feel like a different person than you were before? I'm not talking about the physical stuff, that's obvious. And I don't really mean, "I am just thankful to be alive," either. I mean thinks like how you view…
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still in complete shock ...
my mother NEVER used her feeding tube! i cant believe it! i know it was still the right decision given her 107lb weight and all the stories i heard. but i am in shock that she NEVER used it. she still eats some things by mouth - eggs, oatmeal, pasta, cheerios, hot dogs, french toast... but on bad days she drank ensures and…
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8 rads in!
Well I have had 8 rads so far on my throat. Starting to feel the pain, swallowing is hard.
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8 rads in!
Well I have had 8 rads so far on my throat. Starting to feel the pain, swallowing is hard.
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Another milestone
Hi all: Basketcase checking in here. Yesterday, the 8th was a year ago when we found out how bad Charlie's cancer was when it returned. However, I had quite a busy day. My friend's husband came over and finished the things my brother was going to do around the house when his tragedy struck in Oct. So, now I do have a new…
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Thyroid Medication
Please give me some information on thyroid medication. I have used the drug most commonly prescribed for the thyroid which is Synthroid and have recently been prescribed Liothyronine. I was having side effects with the Synthroid such as shortness of breath etc. and now am having side effects from the Liothyronine such as…
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Cousin
He's not one of us, but thought you might be interested in my Cousin's story. About my age (56), he was a heavy drinker and smoker. Couple years ago developed problems swallowing. Dr. kept telling him it was acid reflux, until last fall, when a tumor was found. Getting the correct info from him has been difficult, but it…
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Thrush
My husband keeps getting thrush. When he gets Thrush it seems like it takes 2-3 prescripts to knock it out. How often have you been affected with Thrush?
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Radiation treatment is finished!!
Yesterday was her last treatment! She has done so well and she is so very amazing!! Computer is broke :( ... Will give more update later!!
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Allow me
Hello to all. Im a little embarrassed to admit that I have followed your posts religiously for months without saying a peep. Im contacting you all on behalf of my dad, Tony, a 64 yr old man diagnosed in february 2010 with stage 4 cancer of the tonsil with spread to lymphnodes. I am one of his 8 daughters, 25 yrs old. And i…
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bump on tongue
July 4, 2011 - 9:41am bump on tongue I noticed that there is a sore on the side of my husbands tongue and it's on the same side he received radiation on. It protrudes out about a 1/4 inch. I noticed it has been there for a long time. Just a little worried because before treatment he was complaining of his tongue hurting.…
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Been awhile - I've been bad
"Bad" in that I haven't kept up with my CSN friends. Sorry about that. I've actually been pretty good. December CT/PET showed my NED and my follow up CT in June was still clean. I was suffering from L'Hermittes - but my chiropractice rehab work has all but cured that. I only feel it when I run. I was suffering from some…
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Has anyone spoken to Hal61?
I haven't spoken to Hal since March. Just wondered if anyone has heard from him? I am hoping he is just busy working and living life. Hal, if you are lurking, check in, please. :) Sweets
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Possible thyroid problems
I am wondering if my thyroid in not functioning correctly, I have absolulty no energy. Yesterday we took the boat out, all I did was drive to the lake 30 miles not stressfull and sit in the boat all day under the bimi top. The only time I got in the water was up to my knees to hook the boat up to the trailer and pull it…
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HPV
A couple of months ago I noticed a small skin flap on the inside of my cheek, it was small and did not seem to get any bigger, last week I decided to have it looked at. Doc injected the area to numb it and then cut it off and cauterized. he said he believed it was a small benign papiloma. Also said he would send it to…
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Useful Info for all of us
This was sent to me by a friend. Format didn't copy too well but I thought a good read anyways. Johns Hopkins Update - This is an extremely good article. Everyone should read it. AFTER YEARS OF TELLING PEOPLE CHEMOTHERAPY IS THE ONLY WAY TO TRY ('TRY', BEING THE KEY WORD) TO ELIMINATE CANCER, JOHNS HOPKINS IS FINALLY…
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Half way done: week four is almost over.
Hello all, I am half way done, although the hard part as most of you veterans know is just starting. My RADONC said it best yesterday "the honeymoon is over, it gets tough from here on". He is right. My throat is very painful, swallowing is tough and talking above a raspy whisper takes effort. Feeding tube is coming, the…
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Back to work
I went back to work last week. Guided hikes and mindful walks in the Palm Springs area all last week. Some at 10,00 feet and some in the valley in 115 degree heat. It felt so good to be back helping people get outdoors. First time working in over a year. 6 months post treatment was Tuesday. The body does heal.I'm back. Bob