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This is my first post, been lurking for about 2 weeks
Hi everyone. I have stage 4 left tonsil CA diagnosed 4-1-11.You can read my story if interested as I just signed up to board and posted it. I am T2 n2a M0. Just started radiation today and currently hospitalized for PEG site infection. I wish all the best and will chime in form time to time. I have HPV related tonsil…
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Neck dissection and what to expect
I'm scheduled for a partial right side neck dissection on May 17th and am wondering if anyone else has had this and what to expect. I've had 33 radiations, 2 chemos and am currently 11 weeks post radiation. The ENT said that he's planning on taking my right lymph nodes and jugular, cutting me from right ear to inside of…
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Stage 4a tonsilar cancer - newbie
My husband just had day 4 of radiation for his recent diagnosis of tonsilar cancer, 4a. He had both tonsils removed, cancer only in left, 25 lymph nodes removed, two were squamous cell, rest benign. Our local cancer team (WA state) met after needle biopsy and suggested surgery & radiation. He's six weeks post surgery, had…
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stats
Hey Y'all, I'm not tryin to be too nosy here but I would like a few info. from everyone. This is helpful to me and my hubby as we're dealing with my recurrence from nasal cancer. it's in my orbital eye area now. I'm 50 years old... married 21 years and have an 18 year old daughter and a 16 year old son. My daughter just…
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PET scan
Sorry I haven't posted much lately, I've been on a bit of an emotional rollercoaster lately and didn't feel I could really be of much help to anyone so I've been staying away from the boards. I usually only respond to the posts to congratulate someone on a good scan or when someone has finally met NED. A brief background…
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NED
Hello and I hope all is well with the group. Yesterday I had a follow up chest CT to compare a CT that was taken last December when some type of mass that they assumed was either scar tissue from radiation or inflamed tissue. I am happy to report that it must have been inflamed tissue as there was nothing visible on the CT…
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Saliva and taste....does it get better?
One of the greatest loves I think I have is food. I'm in the middle of my fifth week of rads. No peg, drinking a lot of ensure, and missing; pizza, steak, tacos, cheeseburgers, beer, gin, vodka. :) I can taste very little at this point and most food burns my tongue. The dry mouth is particularly frustrating as I talk a lot…
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Why am i so cold
Before surgery i was never cold now i am cold most of the time. Any ideas. Thanks David
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Still NED
Just had my last 6 week follow up exam and now I switch to visits every 3 months. I'm almost 14 months out and my Doctor says everything looks great. I was diagnosed with SCC unknown primary with 1 lymph node testing positive. I had a left neck dissection with tonsillectomy and everything came back negative except for the…
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Skin Breakdown, Peg Tube
Good Morning All, I am usually on the Colorectal Cancer Board, but I thought I could get some better information over here. We are having a issue with hubbys PEG Tube, where the bumper is stiched into his adbomen around the bumpber he is having quite a bit of skin breakdown, we do have some leakage in this area that I…
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Radiation treatment question
My mom is on Rad 18 Of 35. They told us today she needs a CT scan tomorrow to see if they need to narrow the radiation fields. I was wondering if this is standard practice? We are stressed as it is with moms cancer and dad passed away May 31st from cancer.
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taking anger out on caretaker
OK, I am confused, my husband seems to be angry and short with me over simple things which is bringing me to tears. I am so stressed with trying to read and fill out forms, schedule, and coordinate, add to that we had to move this weekend and I am surrounded by boxes and can't find things and my stress level is through the…
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I just read on line that; having a high level of pain after treatment is a possible sign for a reacu
I just read on line that; having a high of level pain after treatment is a possible sign for a reacurrence.I found the article interesting, being that my husband had a high level of pain before, during and afterwords. Kinda freaked me out.. I am always worried about the reacurrence thing. I guess I need to quit getting…
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Spicey Food or things that burn my mouth...
Question for long-term post radiation patients: Will I ever be able to eat Ketchup, Tex-Mex, or anything acidy again?? Is this due to the lack of saliva? I am currently 5 months post radiation.
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Is radiation related hair loss permanent?
I lost 2 weird looking semicircle patches of hair at the base of my neck. May have been related to that plastic molding my neck sat on during radiation. Now have very fine hair, perhaps 1/16" in those areas. Also, my facial hair is for the most part gone. I'm sure others here have lost hair due to radiation. Does it ever…
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rad mask question
My husband had a test run with his Rad Mask on Thursday. He said there was a piece that went in his mouth that pushed up on the roof of his mouth and was very painful. Is this normal or should he let the doctor know. He said that the he told the tech it hurt and he ignored him. Thanks, I Debbie
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Question for myself- gallbladder attacks
Hi guys, This is a question about an issue I am having. For about 3 years I have been having these episodes of pain. It is located in the top part of my stomach area. They always happen at night and start off with a little gas like discomfort and then turn into horrible pain. It is so bad that I can not get comfortable. I…
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No the news we were hoping for
Buzz had a PET scan June 2 and the results are not the clean scan we had hoped for. A new spot has showed up on his tongue since the last scan 3 months ago. The suspicious area in the right neck is now larger and "brighter". To add insult to injury, he has a clot in his left Jugular vein and so is on Lovenox, transitioning…
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Radiation question
I finished radiation treatment in October. Now i have been having really bad ear pain. The doctor finally did a ct scan and i have a cyst by my ear and jaw bone. Also the socket that holds the jaw in place radiation deteriated it. I am in more pain now than ever. Any body have anything like this happen to them. My doctor…
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Fever Reporting
How long after your final chemo/rad treatments do you have to report any fever over 100.4 to your oncologist?
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PEG tube beinng installed this morning.
Well they are installing the peg tube today. So, all you experienced pegers, can you give some info on how long it takes, recovery time, pain, etc? Thanks all... : )
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glucose and cancer
I have read and heard many people remark on Cancers use of glucose. Basically, what i keep hearing is that cancer feeds on glucose (sugars) so avoid glucose. But i am thinking that your body also runs on glucose, so i don't know if they are correct in their assumption to "avoid all sugars and as many carbs as practical." I…
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Half way done!!
Hi everyone! Just wanted to pop in and update... Thursday I had my second chemo and Friday I had rad # 17 of 35. I think as far as symptoms go, I'm holding my own. Saliva is non-existence but luckily I have almost no pain (yet). I did end up with thrush with was not pleasant at all but once it cleared, back to no pain! I…
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arndog64 ~
Anyone heard any word since the PEG being scheduled for install last Wednesday June 8th.... JG
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Regaining appetite and taste
Hi everyone, I'm new to the site, an Englishman living in Germany. Finished 6 weeks of Cisplatin 3 weeks ago (1 dose a week) and finished 37 sessions of RT last Thursday - hooray! My tastebuds were shot after just 2 sessions of RT and 0 chemotherapy, but worse was the fact that I developed an aversion to food (and drink)…
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checking in - delayed
Hi Everybody, Sorry I have not been on the site in awhile. Just trying to move ahead with life. No excuses I know. Sorry about that. I do think of everyone on this board very frequently and still think how lucky I was to find this site to help my husband (and me) through treatments. An update on my husband, Joe, (SCC…
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Just diagnosed with Mucoepidermoid Carcinoma of the Larynx
Hi I am new here, I have recently been diagnosed with Mucoepidermoid Carcinoma of the Larynx. Does anyone here have this or know anyone who does? I most likely will be having my larynx removed and following up with rads.
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Mike (jeepman)
Hey Mike, as you said..."full steam ahead"!!! Good luck tomorrow beginning your tx. Let us know how you're doing as you go along. Peace, Love and (((((((HUGS)))))) Laurie
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Recurrence
Husband just had first pet scan and two spots lit up. One In hip. One in femur. We are baffled because I have never seen anyone post in head and neck forum about metastasis to bone. His biopsy is Friday. Anybody have experience like this. Needless to say we are scared... Robinleigh
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Question about PEG TUBE
I had my last of 33 radiation treatments for throat stage 4a on April 25th. Praise God, I am able to swallow and don't even use me peg tube. I have to flush it daily but no feedings. Ive had a endoscope that came back clean and have a CT scan on thwe 15th of June. I am wondering if anyone has an idea as to how long I have…