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swallowing
Any of you that lost your swallow because of radiation treatments, how did you get it back and what foods did you start with the get it back?
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Specific question re: mouth sores
My wife is 6 mos. out from rad/chemo for squamous cell lodged in her tonsils which resulted in a tonsillectomy & lymphectomy neck dissection as well. She is doing OK ~ actually really well compared to my own experience ~ and just got a clear PET scan. One residual problem she has, however, is an ulceration on the right…
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5 weeks out
Well we are 5 weeks out. Husband seems to be healing up nicely. He went to his onco appt yesterday and he seems to be doing fine. Still sitting at 146 pounds. She said he needs to gain weight. But, he still can't eat. The left side of his mouth/tongue is still pretty fried. We will keep trying. I told him try to eat every…
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Positive Post-I've finally kicked my Roxicet
After surgery, radiation treatment, and recovery, ohhh about 7 months worth of total time on Roxicet, I can say I've finally kicked it. On my 3rd day w/o it. :)
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muscle pain
My husband is having muscle aches in his legs. They are not cramping up, they just hurt and he can't walk for long periods of time they ache too bad. Anyone suffer from this or have any ideas what may be causing this problem.
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Input regarding Peg Tube
I completed my radiation treatment back on 5/18/11 and hear I am over a month later still not able to really eat. I have been going to speech/swallow specialist once per week for three weeks now. She just released me to start being able to eat what I want. The problem I am having is that I find alot of things still burn on…
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New pic
Hi all: Hope this does right this time. When I went to preview my post; it gave me some weird message about post splitting and had the date as December 31, 1969! Weird! Anyway since tomorrow (the 28th) is our 36th wedding anniversary I thought I'd put a new pix in. Obviously it's when we got married so it's 36 years old!…
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Distant Mets-Mick
Mick, My husband origianally had tumor on right tonsil with one lymph node involved.(Diagnosed 6/4/2009) He did 35 rads and two rounds of Cisplatin. All the cancer in the neck is gone but on his first PET they found some activity in a lymph node in his chest area. So now he is doing erbitux, carboplatin, & 5-FU for six to…
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6 months post chemo chills
Along with the array of anticipated complications and changes, my husband is still experiencing severe chills (especially during/after eating (even warm foods)- but at least he can eat now!). He is 6 months post last chemo treatment for NPC IVB. He did radiation and cisplatin then followed with cisplatin and 5fu. Just…
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The hardest part...
I found out today that the hardest part wasn't hearing the bad news, it was having to tell everyone that I love that my cancer is not only back in my left lung but I have "advanced stage" with lymph node involvement in my right lung. I even felt sorry for my doctor today when he was giving me all the bad news, he sounded…
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Finished week two of treatment
Just looking for some insight from you all: My affected lymphnodes are not shrinking. I realized that I am just wrapping up week two of treatment (chemo/rads) but I guess I was hoping to see them shrinking. My ENT Dr. said that it will shrink and the neck dissection won't be very invasive, post treatment. I suppose I am…
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PET scan results
Hello Everyone, I just wanted to say "Hello" and share the good news that Connie's PET scan was all clear. She is still on the peg tube and starting to eat some foods so getting her off the peg is our next challenge. It has been one hell of a roller coaster ride but we just held on and it's slowing down to let us off…
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TUMOR BACK
I had stage IV-a head and neck cancer with a tumor under my tongue and a 6.5 cm tumor in my left lymph node. I had 35 rads, 7 concurrent chemos and a selective neck dissection in Nov 2010. Now, my Radiologist has found a tumor in my Larynx. He has scheduled a PET Scan for this Wednesday, and referred me to Chapel Hill for…
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Help...Need Advice.
Hello, Two years ago my dad was diagnosed with Stage III NPC. He went through chemo and radiation and they told us it was one of the easier cancers to treat and that he should be fine. In December of last year my dad was complaining of back problems so he went into the hospital for a CT scan and that's when they informed…
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Juice Recipes Anyone
Hi everyone, I know at times we have all done the juice or let’s say the juicing thing. Just wondering if anyone is willing to share their recipes for making something good to drink? My wife makes me Carrots with a green apple in the evening, but the same thing everyday gets old so I need something new to add. I promise…
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HNC Superthread. A collection of links with answers to frequently asked questions. EXCELLENT INFORMA
HNC Superthread. A COLLECTION OF HELPFUL LINKS ONLY. (please post only informative links here) Help for some FAQ. Head and Neck Superthread. ***PLEASE ADD ONLY INFORMATION IN THE FORM OF LINKS ON THIS THREAD**** There is a separate thread for any commentary about this one. I would like this one to be just a place for…
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Two Year Post PET Scheduled
My Turn Coming Up for the Anxiety - PET is scheduled for July 6th, 8:30 AM.... It doesn't seem to matter, these things still give me anxiety. Not the tests themselves, the waiting of the results. Usually I have them make me a desk copy that I can pick up 24 hours later and a week before the follow-up with the MD. With all…
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News from Rabarbar
OK, I have done a FNAB biopsy (tumor of parotid gland) today and I am waiting for the result. Probably I will be the most difficult week in my life. There are two news: one bad, one good: * The bad is that the tumor is located very deep in the gland which means that the surgery will be more difficult because of the facial…
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Squamus cell carcinoma
do most of yall on here have squamous cell carcinoma? Is it similar to the SCC that the people with skin cancer have, do you know? i just happend to go on their site and it scared the jibbies out of me because so many of them had it come back over and over. Mine is SCC and it has recurred in ethmoid sinus into orbital area…
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whats your cancer fight song.
I think everyone who has to do treatment should have one, heck even if u don't have to do treatment. What's that song that gets u threw the Monday radiation session? I have a couple,my main one is The killers-sweet talk. The nurses who gave me radiation always played me the same cd and when I was about 5 minutes away from…
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gell pad for skin burns?
anyone ever use radiapres gel pads for skin? moms skin is starting to burn, just red like a bad sun burn no blisters or open sores. the nurse gave her radiapres gel bads today to try. we'll see how it goes! they were refrigerator so the coolness also alleviated symptoms. if anyone HAS used them did you also use your…
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update
Hello everyone, just a brief update on my husband. We went to a meeting this morning had a appt. at 7 am. About four of the docters came in and felt my husband neck, and they all went over his med records. Then his ENT doctor came back in and said " Well, it looks like the cancer is still there the 33 rad treatments and 12…
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Disability - Dysphagia
Several months ago I was at my doctor's office at the Kirkland Clinic and he told me that basically there was nothing else he could do (long term after effects)and now we would simply treat symptoms. My comment to him was "what you're saying is I'm in the Sh@# pile". He smiled and said "yes but you are on top of the pile…
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Stage 4 Mouth SCC- Chemo last hope
So my dad stared his chemo today, finally saw doctor. Doctor said it is stage 4 and the chemo should help swelling. Said nothing positive, is it possible to beat stage 4 oral cancer with just chemo? Amanda
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mixed visit
well I and my mom and sister are at md anderson and i have learned that the original surgeon at MUSC IN charleston probably didn't get the whole tumor out last year from the sinus from mom. now she's 83 and the surgery this doctor is talking abbout maybe doing is 9 hours to totally remove eye, muscles socket, nerves and…
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not so good
Husband and I went to ENT for the results of his biopsy last week. The doctor said " I don't have very good news" There is still cancer on his larynx. So my husband said So what do we do now? He said because my husband had a liver transplant and his immune system is so compromised that he probably would not be able for…
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prayers
please pray for my mom. We are finally at md andrson to see new doctor.. pray that things go well. please
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Coughing up blood and sleeping too much
My husband has been sleeping non stop since saturday afternoon. I don't know what's up with my husband, but he seems to be sleeping all day and night. He may wake up every now and then and watch a little tv but his eyes just roll and he falls out. I know he was on methadone for awhile and that caused some of the…
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New Cigarette warnings push the envelope
What dose everyone think of the new graphic warnings. Picture of diseased lungs, Person holding a cigarette up to hole in neck and smoking? I'm a bit surprised our government took such a pro-active stance after all the years of the lame warnings on the box. This will get your attention and I think it's a leading step in…
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A guy at work just told me his wife has Squalamous cancer
What a trip!!! A guy at work brought a paper to me yesterday and asked me if I recognized anything. I did, she has a large mass on her mandibular (sp?) and it's Sqaualamous Cell. She originally went to the dentis thinking she was having problems with her wisdom tooth. Unfortunately, it was the tumor. Please keep his wife…