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Another new pic
Hi all: Wasn't sure that this pic had come thru until I signed on this morning and saw it. But those are my babies! Rowdy is the brown sheltie, Blue is the grayish/blue looking one and Sammy is the dachshund. Blue is the one I had to put down in March but he was cremated and is now on the entertainment center with his…
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Radiation done - what now?
My husband just finished his 33 radiation treatments, and until last week, he was really doing quite well (considering all the things they told us could happen, etc.) But interestingly, day 30 he just hit a wall, feels so exhausted, started having some pretty good pain, dizzy, blocked ears - all the things I've read about…
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15 Down.....and really appreciate your encouragement!
Just got home from a long day at the hospital, was sent up for iv fluids again, and hydrocortisone and iv stuff for my thrush....spent about 12 hours at the hospital today. I am being booked for a gtube to be put in. I wanted to say THANK YOU so much to all of you before I go to bed, as I just read your encouragement to me…
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New Date for Surgery
Just got a call from Stanford. Surgery this Friday at 7:30 a.m. Dr. Sunwoo will be doing surgery. Glad I didn't unpack. On the road again Thursday. FYI surgery is a neck dissection, lump on neck, mets to last years cancer.
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Do I tip or not
I have three women here cleaning my really dirty house that were provided because I have cancer. I have never used a cleaning service. Do we tip these women???
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What next
Hi All I just completed my 35 radiation treatment 7 days ago and my 3rd (final) round of Cisplatin 14 days ago. My mouth cheek has sores on the right side that seem to be improving and my tongue has a large sore on the same side. Luckily my throat never really got that bad and it seems to be improving as well. My saliva is…
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Ensure or Boost
I was just wanting the opinions of some of you who have had to drink these for your nutrients. My husband is struggling getting in his food due to the swelling of the graft in his mouth. He is basically drinking his food and we are thinking we need to get more nutrition into him. Of these two.....the ensure and…
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1st Oncologist Vist
Can anyone tell me what to expect; I had my right tonsil removed on June 27th, I have a lump on the right side of my neck. My oncologist, after another PET scan said she wants me to have a course of chemo, 3 infusions , 1 every 3 weeks, then a course of chemo/radiation. I go back to the oncologist on Aug 1. Everything that…
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Lock Jaw?
I have no idea if this is related to radiation or anything, but I thought I'd ask you geniuses on here! Lately I get lock jaw! Like a lot, it's usually while I'm brushing my teeth, but more and more it just happens for no reason. I guess you'd call it lock jaw. I can't really open it and it starts feeling kind of numb,…
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Is it back?
I'm two weeks away from my 9-month check-up and I'm feeling a bump right above my collarbone. Oddly enough it's just right underneath one of the draintube scars from my neck dissection a year ago. Haven't told the husband, or anyone except you folks for that matter, about this. Just trying to spend the next few weeks…
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need encouragement
I am so afraid and scared this morning. Jim still is nauseaous and very week. He had a hard time walking from the car to the house yesterday after tratment. Doc says he needs more calories but he can't tolerate any more than 4 cans of osmolite. That is only 1200 calories. He is 6'2" and down to 159. I am afraid he is going…
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My new wish
On vacation with grandchildren. My new wish: I wish Johnson and Johnson would invent a diaper that would "heat Wrap" the wonderful presents left by children while still in the diaper. This would prevent the angels from sticking their hand down the back of a full diaper and pulling out a gift for grandpa (lets not forget to…
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Any tips to help with the nausea from Cisplatin?
Good Morning! I am hoping someone may have some suggestions if there is anything else I can do to help my husband,Sam, with some relief. He had his 1st of 3 chemo treatments on Tues - 7/12. We were told he would probably not feel any side effects till the next day or possibly even Thurs. Well he ended up being sick an hour…
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Tat #2
Hey Kids, Hope all my CSN buds are hanging in there! I've been a lurker lately, only able to check in once a week or so as it's been a hectic summer for me. Back to my 55+ hour work week plus playing catch-up for everything (fun) I missed last summer. My wife and I have been traveling every weekend with a few weeklong…
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My wish for today
That everyone still in treatment have a restful low stress day and kill of 14,848,482 cancer cells - (I made up that number thanks to my grandaughter - couldn't spell KA-TRILLION) That those near the end of treatment have the strength to make it through the process. The light at the end of the tunnel is not a train...it is…
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No Chemo today due to low blood
hi all, my dad suppose to have his 2nd cycle of chemo today but after blood test due to low blood (accordingly to him). he unable to do his chemo and have to wait next week to see how again. is it normal? will it affect his treatment by miss one of his cycle? what happen if he miss again next week? so sad!!!
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Is he cooking too long?
Hi all. My husband has been feeling really good and getting his energy back. Last rad was June 7 and PEG has "left the building" so he is eating on his own. The first scan is scheduled for August 1...however, his throat really is still quite sore when he swallows. His ears were bothering him but that does seem to be…
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Thrush
Just had my 13th rad today...have been on iv fluid and a cortisone for inflamation. The doctor noticed that I have bad thrush in my throat now..and has prescribed iv meds for that now along with my iv fluid....has anyone else been done this road with thrush and can let me know what I can be expecting.... Thanks
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Damn it... I hate this cancer...hate it..hate it...
I just got a phone call from my husband and I'm sitting here trying to work but instead, I can't...cause I'm crying again. I hate this cancer. Gawd, I hate this cancer!!! I keep thinking that everything is going to be fine and then I get these huge reminders that it's not going to be at all. Damn it. Husband, 58, was dx…
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I want to know why????
I want to know why some people have cancers that come back and/or they have metasis to other parts of the body and others don't. Hell, I think doctors do not know the why's... It just saddens me to see that some people have to battle this beast over and over again. Why is cancer meaner to some folks and nicer to others.
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Heroes
I generally lurk here but do occasionally post. I would like to state for the record that the heroes on this planet are not the ones that score the touchdowns or hit the grand slam home runs. The heroes, my recently discovered ones, are everyone on this site that takes the time to help us by answering our questions and…
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Fine Needle Aspiration
Hey all again. I just have a quick question. I have an appointment for a Fine Needle Aspiration of my Lymph Node on Thursday. When I try to look it up in google, I get several different responses as to what to expect. Do they put me to sleep? Is it just a local numbing agent? How long will I be there after its done? Is it…
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Thanks for all your support, help and love....12 rads down
So went through my 12 rad, ended up speaking to the doctors and nurses...Going to try to manage pain with liquid Tylenol 3 with Codeine every 6 hours and 5mg (pill form..think I may need it in liquid)of Codeine 3 hours after each Tylenol dose. The doctor also prescribed 3 days in a row of 2L IV fluid with cordisone to calm…
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Completed treatment!!
Hi everyone! Just wanted to let everyone know I FINALLY finished chemo/rads on Wednesday! I managed all 3 rounds of cisplatin (last 2 at a reduced dose) and 35 rads. Had a couple delays due to chemo related side effects, a few shots of nupagen, a unit of blood, a bout of pneumonia, a couple hospital stays, and one ugly…
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I can eat a GYRO! I can eat a GYRO! I can eat a GYRO!
..not that I am excited or anything..It has been over 18 months...yum. Stacey
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Good scan results
Hey everyone, just wanted to share some good news. I got results from my MRI today and was told my tumour has shrunk quite a bit from the chemo which I am ecstatic about. I have stage IV Nasopharyngeal Carcinoma and instead of going straight into radiation/chemo treatment which I am told is apparently the standard…
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90 day post-treatment shows lung inflammation/"warm" spots
I went in for my 90 day post-treatment PET and CT yesterday. All the disease in my neck and lymph nodes is GONE!! Wiped out, eliminated, kaput. BUT, they discovered what they described as "warm" spots in my upper lungs. They say these are caused by inflammation, infection or metastatic cancer. There is still a lot of…
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Black Tongue
I am on the verge of becoming a "registered Chow Dog" - my tongue has several black spots and they are growing. If this were on someone else I'd probably stare, smile (possibly giggle to myself) and throw them bone but the fact is it is happening to me. My Dr told me "don't worry about it" but that is hard to do when you…
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I just downed a boost!
Reading about everyone eating....I am starving...I decided I would just bite the bullet and just downed the boost.....hope that helps me sleep better. I cannot wait to get to the other side and enjoy meals again.....wonder what that will be, I love such variety...mexican...greek......japanese.....and much more that gyro is…
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Low Country Boil
I have to say first that I'm sorry for those of you still struggling through taste and saliva issues....I do have compassion as I have been there also. But after two years post treatment, I have regained a huge amount of both and do enjoy good eats....so I was watching one of the fishing shows the other day and they were…