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Getting Rid of Peg
This is the first time I've written on the board. I have cancer of the larynx and finished radiation and chemo about a month ago. I still have my peg tube as I haven't really been able to eat anything but yogurt, ice cream and sorbet. My throat is still really sore and I feel like something is in the back of my throat.…
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Friend's Mom
Hi all! Basketcase here. I had posted in the last few weeks about my friend Tamara's mom. She was diagnosed with some aggressive form of leukemia in April and chemo did not work so on May 26 was told she had days/weeks. Tamara has been a basketcase and there were issues with her sisters. Bluntly put Tamara was the one with…
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this is fun
Well my tube finally sprung a leak I'm in the ER with a new white tube waiting for an x-ray to verify placement. Wow this is fun for a Monday morning :-)
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prayers
we see the doctor tomorrow
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Waiting
Hi, I've been lurking here reading discussions as I wait to find out whether or not I'm gonna have to have radiation. Boy does waiting suck. I had a parotid mass removed that was graded as intermediate grade mucoepidermoid carcinoma. The slides have been sent to MD Anderson for further analysis before my rad onc doctor…
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Ear Pain after treatment and work
I am 4 weeks post treatment and for the last week or so I have been having some stong pain in my left ear, this is the side with the tumor. Also I have a question about work, how many went back to work and how many called it quits. Just currous, I have a very high paced and stressfull job and my brother in law does not…
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2 month checkup
Great news. Had my 2 month CT scan and results came back clean. Was diagnosed with 4a, vocal cord, lymph node and larynx, in January. 33 rads and 3 chemos later all is going well. Thanks to everyone for your support, prayers and advice. Hopefully this is the 1st of many good reports. Thanks again too all. Stay positive
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Long Weekend - Husband is now on IV fluids at home
Friday's appointment didn't go so well. He has lost 10 lbs and he was dehydrated. They gave him fluids and he's getting a bag a day at home for six days. My first experience learning how to hook up an IV bag to his picc line. We didn't have an IV pole so we used a floor lamp...it works but it looks so redneck. They are…
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I would like to chat with other Laryngectomy's ....... * not many of us out there *
Most times I feel so alone and have no one to talk to about being a total Laryngectomy .It would be nice to meet someone with same .I had vocalcord cancer and this June 9 will be my 1 yr surgery date .I have alot of anxiety attaches , which keep me homebound .I am single and use to be fairly active ...So if your out there…
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Inner ear loss and post-tx nausea/vomiting
I'm still new to posting here, I am CG to husband, surgery Feb 2011, finished chemo mid April and radiation Ap 29, parotid tumor with metas to earbone and 35 lymph nodes. Last night after many weeks of successful tube feeding with near zero problems, he vomited the whole dinnertime feeding and has been nauseated ever…
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still not able too eat
Well.................it's right at a year now since I had solid food........My throat is about the size of a straw..........swallow test didn't go too well.......now they are talking about swallowing therapy?????....Doctor said there was not a very big chance of it working and surgery might be necessary........My ENT…
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losing weight
Hi, My husband wanted me to ask if anyone on this site keeps losing weight before all this started 8 months ago he was 180 lbs, last time at doctors office was 150 lbs today he saids he weighs 144 lbs . He had a biopsy done last Wed and we go back to the ENT this Tuesday for the results. Sue
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Phlegm/Stomach
Oh how I'd love to return the day when Phlegm made me recall the Monty Python routine in which there was a contest to come up with an insensitive name for the Belgians--the Phlegms (probably more properly the Flems) and the Sprouts took second and third place. Hell, where is that Way Back machine when you need it? So…
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Anyone Heard From RMKBrad Lately?
I think about him from time to time - haven't heard from him in a while.
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CANCER-FREE But New Problem
CT-Scan, Brain MRI, Vocal Cord Biopsy all came out clean. I had radiation last July/August for vocal cord cancer. Voice is a challenge; but I can swallow. All in all, the throat portion of my treatment is coming along fine. HOWEVER: I have a new neurological problem. My visual fields "jump" in both eyes; and this is linked…
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"Even if we're just dancing in the dark"
(Bruce Springsteen reference) I promised myself that I would not jump back into the 'natural' thing, but a couple of posts, one in particular, where a great number of tentative sites (at best) are cited as if they are legitimate information resources, lead me to come back one more time. I apologize in advance to all of you…
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Healed from BOT excission/tonsillectomy
Two weeks today since BOT excission/tonsillectomy and I am eating normal again and swallowing well. I start chemo/rads on Monday, 13 June. I am really not all that worried, most folks agree that a tonsillectomy is more painful than treatment. I can just say that I hope that holds true, as it was pretty tough. I am just…
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OFF TOPIC: some pictures i posted, and the pastel i finished
i posted some pictures of radom things that i photographed with my new Nikon camera. i sold my old subaru, and i bought a new camera, as the button on my old camera was broken. i was without a camera for like two years, so i am happy to be taking photos again, as i enjoy it. I love to take close up photos. one of my…
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Made it through my first week of treatment
Hello all, I made it through my first week of treatment. Monday was chemo: cisplatin and taxol. Tuesday - Friday rads. The mask didn't phase me. I just laid there and let the machine do it's thing. Chemo: Different report than rads. I have been very nauseous all week. Zofran didn't seem to help so I am switching to…
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Emotional Issues
Do you feel like you are "wasting" your second chance at life?
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one month check up
What was your first one month check up like after chemo and rads?
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There is some light ahead
Had my one month follow up on June 14th. I had been off work for 3 going on 4 weeks. All my follow ups have been with the radiation oncologist and my oncologist. I have not seen my ENT since he referred me to oncology. I was told that eventually I'll see the ENT again. I know that for many here ENT is the coordinator. My…
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How long were you out of work
I have been out of work since July 2010. I get ssi short term dissability. It pays all my bills with my wife working. She pays half the bills and i pay half. My problem is i am sitting home getting more and more depressed. I went from working 60 to 80 hours a week to nothing. I dont feel like i am able to go to work yet. I…
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HPV Research
I came across this article regarding HPV, the vaccine and a summary of the latest research. I think there is some good info here. http://www.slate.com/id/2296748/pagenum/all/#p2 Cheers, Jimbo
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Did you keep your mask?
Just wondering if everyone kept their mask and what did you do with it? I kept mine and am collecting different animal fur to make a halloween mask (or wall hanging) out of it! BILL
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Has anyone experienced Head Sores
Has anyone ever gotten head sores after the first round of treatment? A week ago yesterday my husband had his first treatment Cisplatin and Docetaxel and then he had 5 days of Flurouracil. Tuesday he had the Neulasta injection. He started getting sores in his mouth last Saturday and now he has sores in the lower back of…
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Throat infection
Hi All, As I have posted, I finished rad treatment on May 11. Cancer of left tonsil. This past Monday I went to my ENT doc (had a sore throat) and have a throat infection. Does anyone know how common that is? Is it an 'afterthought' of the radiation? I have follow-up with my oncology doc next week. Guess I'll find out…
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Adenoid Cystic Carcinoma
Hello everyone. I was diagnosed with AdCC in January of this year after having a tumor removed from my soft pallet. After surgery came 7 weeks of radiation to "mop up" any left over cells. 35 treatments later I lost all of my facial hair leaving me with only a partial neck beard that actually looked rather amusing but I…
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Cancer and Dreams
Last night I had a dream about cancer. In my dream I had cancer, but later in my dream it was gone. I also dreamed that my husbands cancer came back in his neck and he needed surgery and wanted a hospital bed for the living room and I told him that was silly getting a hospital bed for just 3 months. We always question our…
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hangin in after neck dissection
Updating on Neil..about 3 weeks ago he had a modified radical neck dissection. Chemo was not affecting his lymphnode at all, so this seemed like the next thing to do. They took out 77 lymphnodes and had to take out quite a bit of muscle. Pathology report showed Thyroid cancer, so now we are on the path to find out more…