Has anyone ever used Caphasol?

jeepman

Has anyone ever used Caphasol for the mouth sores? I spoke with a fella that swears by it. He didn't hear about it until week 3 or 4 and reported huge success with it after initiating use. What does it actually do for you? All comments welcome and requested.

Thanks to all,

Mike

RushFan

I have used it...
I've used it, though when I needed it most I was too sick to want to use it.

It is good relief of mucositus, dry mouth and mouth sores. My problem was that I had enough fatigue and nausea that I would rather sleep and stay still. Waking hours were for forcing myself to drink Ensure and keep up with my pain meds. Sounds like I was a mess doesn't it!

I was...but now I'm just over a year post treatment and feel terrific. Eating well, working out, back to work full time for the past 10 months.

Salt & baking soda rinses work very well too.

Best to you Jeepman and all here!
Chuck

rush1958

Caphasol
Mike,

I used a little of it and donated the vast majority of it. I found baking soda and salt mixed in water actually did better for me. I didn't get mouth sores during treatment.

Just remember, everyone is different. What works for one person may not work for another.

Rush

jeepman

RushFan said:

I have used it...
I've used it, though when I needed it most I was too sick to want to use it.

It is good relief of mucositus, dry mouth and mouth sores. My problem was that I had enough fatigue and nausea that I would rather sleep and stay still. Waking hours were for forcing myself to drink Ensure and keep up with my pain meds. Sounds like I was a mess doesn't it!

I was...but now I'm just over a year post treatment and feel terrific. Eating well, working out, back to work full time for the past 10 months.

Salt & baking soda rinses work very well too.

Best to you Jeepman and all here!
Chuck

I does sound messy
Chuck,

Thanks for the help. My Chemo nurse gave me six cases of it. I suppose it was donated to the clinic or something...

Mike

jeepman

rush1958 said:

Caphasol
Mike,

I used a little of it and donated the vast majority of it. I found baking soda and salt mixed in water actually did better for me. I didn't get mouth sores during treatment.

Just remember, everyone is different. What works for one person may not work for another.

Rush

Preparing for what will work for me
Rush,

Thanks for the post. I am just stockpiling whatever I can get my hands on. I get the feeling that I will have plenty of opportunity to figure out what's going to work for me.

Prayers for your continued cancer free life,

Mike

adventurebob

Used it
Hey Mike,

I used it all through treatment and beyond until the sores were gone. I didn't have mucositis problems and only a few sores; unfortunately they were in the worst place possible and prevented eating early on. I think the Caphosol worked quite well and was really convenient. I recommend it.

Bob

buzz99

Caphasol
Buzz says the Caphasol helped a little bit and he faithfully used it. The baking soda/salt rinse probably helped more as well as the magic mouthwash.

D Lewis

I did not use it.
I asked for it, and my doc gave me a prescription but warned me it would be very expensive and there would be other products that would work as well or better. Some folks here noted that it didn't help them all that much, so I never filled the very expensive prescription. Baking soda and salt dissolved in warm water and swished frequently - kept me comfortable.

Deb

mxmom293

D Lewis said:

I did not use it.
I asked for it, and my doc gave me a prescription but warned me it would be very expensive and there would be other products that would work as well or better. Some folks here noted that it didn't help them all that much, so I never filled the very expensive prescription. Baking soda and salt dissolved in warm water and swished frequently - kept me comfortable.

Deb

i used and still am using it
it is very expensive and since i am going through all of this with no insurance at all my doctor call the company and they gave me 2 months free...i alternate between baking soda and salt water and the caphasol...the company said they would give more but had to do another application and if needed i will just do so... It has helped with sores but not so much with the mucous..

Goalie

mxmom293 said:

i used and still am using it
it is very expensive and since i am going through all of this with no insurance at all my doctor call the company and they gave me 2 months free...i alternate between baking soda and salt water and the caphasol...the company said they would give more but had to do another application and if needed i will just do so... It has helped with sores but not so much with the mucous..

Still on it
but heading toward the end. I started when I was still "tanning" and have kept at it since though not necessarily as many times a day as before. I have got a couple of weeks left in this case and am thinking of stopping with this. My rad onc asked if I was still on it a couple of weeks ago and when I said yes he said that this was good. But that may be because I was in the very last stages of mouth sores and he thought it was still doing some good. I'm going to stop soon because my mouth is finally 99.9% healed. (It still hurts if I try to drink gin or red wine though.)

I actually believe that it did me good but one can never completely isolate the effects of any one treatment given all else we were doing to me. And I cannot say that it would have been any more effective than the salt water or glutamine rinses, etc.

It was not expensive as it was prescribed and the cost to me was only $30 a case but this has now doubled because the "special" is over. But even so this would only work out to pennies per dose. However, if it had cost hundreds we would definitely have gone for the home remedies.

I am not six months out from end of treatment and, if I hadn't had the subsequent neck dissection and a bit of internal damage then, would probably have been able to stop earlier. In some ways that set me back months but still, I am glad I did it as it was good to clean it all out. I hope you get to the point where you are seeing all of this in the rear view mirror.

Doug

Diana Rohletter

jeepman said:

Preparing for what will work for me
Rush,

Thanks for the post. I am just stockpiling whatever I can get my hands on. I get the feeling that I will have plenty of opportunity to figure out what's going to work for me.

Prayers for your continued cancer free life,

Mike

caphosol
I am also trying to find out how it worked for others, my Dad is in week 3 of radation and chemo, and hates the dry mouth. And his insurance doesn't cover it, so want to know how it does before we pay the $800.00.