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Low Country Boil
I have to say first that I'm sorry for those of you still struggling through taste and saliva issues....I do have compassion as I have been there also. But after two years post treatment, I have regained a huge amount of both and do enjoy good eats....so I was watching one of the fishing shows the other day and they were…
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Wish me luck - A GOOD THING
Taking five grandchildren to Panama City Beach for a week. Oldest is 11 youngest is 1 1/2 (his mom will be there, even I'm not that brave). Really do hope my strength stays up this week because I do want them to make good memories.
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Thank You!
Hi all: Just wanted to thank all of y'all for prayers for Donna at my church. I found out while I was out of town that she passed away Thursday morning. I also learned that it was March 17 when she was diagnosed. She didn't even make it four months. Thanks for all the prayers and continue to pray for her family, please.…
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juice while in treatment
Did anyone drink or put through PEG juices during treatment? If so what juices did not make you sick to your stomach?
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I really miss pizza
I am about 7 weeks post treatment for scc tonsil cancer. 38 rads and 3 chemo....a walk through hell. I seem to be healing good. My taste is coming back slowly but surely. I have been able to eat cheeseburgers for about a week and a half as long as I drink after each bite to swallow. However, I still cannot get pizza or…
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newly diagnostic Nasopharyngeal stage3 -Update
Hi everyone, Frist, I want to say thank all of you here for your encourgements, supports, prayers and helpful information. I want to stop by and give a update about my husband treatment at Johns Hopkins. The first chemo session started last wed feb 23 and ended Sunday. He was given both 5FU and Cisp. His body is getting a…
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Six week follow up visit today
Well my hubby is going for his six week follow up today with the rad doctor. When he went for the 4 week check up he had Thrush so he told him to come back in 2 weeks. So, here we are, I am wondering if my husband will remeber to discuss with the doc about fatigue, nasuea (he got sick this morning) and the bump on the side…
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11 rads in and it is getting tough already
#12 is today......throat is killing me....tried to eat a bowl of cereal with milk this morning softened....bad choice.....felt like push pins all the way down my throat and then got naseautated and got sick. Now my voice is gone. This is so painful, taking t3 elixer right now along side with 2 different rinses. I have read…
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"Mean" cancer made me think
I always assumed my cancer was female because it cost me a lot of money, had me tossing and turning at night and had me watching my weight very closely. At least I kept the house when we parted. Nuff said
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Allow me
Hello to all. Im a little embarrassed to admit that I have followed your posts religiously for months without saying a peep. Im contacting you all on behalf of my dad, Tony, a 64 yr old man diagnosed in february 2010 with stage 4 cancer of the tonsil with spread to lymphnodes. I am one of his 8 daughters, 25 yrs old. And i…
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Tonsil Cancer
Hi. Im new here, just found this site while looking for information. I am 36 years old, female, wife and mother of 4. I had a swollen lymph node and went in to my doctor. They ran blood tests and told me it was a virus/infection, take these antibiotics and it will get better. It didnt. I went to 2 more doctors, and got the…
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a funny one
tonight i went to the kitchen to get myself a snack (i am still 40 pounds under my starting weight). The wife looks over my shoulder and tells me that there arent any snacks because she hasn't had the time to do the grocery shopping. So she suggests a can of peaches. I think okay, i know that peaches taste okay now because…
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What happens when the post treatment PET is not clean
Buzz will be having an MRI on Tuesday to get a better picture of the metabolically active areas on his tongue and right neck. The right neck area was negative before treatment so this is a new development which has grown in size and brightness between scans. A new spot has appeared on his tongue since the last scan. What…
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kidneys and dehydration
Jim was admitted to the hospital Friday for dehydration. This morning the doctor said his kidney function numbers were up and if they did not go down by tomorrow they would call in a kidney specialist. I am scared. Has anyone been through this? He has been on intervenious fluids since and is not getting any better. Doc…
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Lymphedema Problems
I am suffering from severe lymphedema of the face, neck and I think what appears to be my tongue. I am now over four years post surgery and treatment for pharyngeal cancer. I think they removed about fourteen lymph nodes in my neck during my surgery. I was not initially bothered by lymphedema at least as not severe as it…
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nausea and feeding tube
The past couple of days my husband has been sick to his stomach. He is not vomitting, just feeling yucky. We have been using ensure and boost in his eeding tube. I am trying to get a grant from Visiting Angels so we can get some Jevity. I am looking for some recipes for the feeding tube. Not sure what to use, I am afraid I…
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How Can I Cope?
Still having lots of facial pain and now my throat feels sore and swollen as well. I had planned on getting back in to see my ENT this week, but last Sunday, my Mother died and my world is in turmoil. I am very nervous about coping with the funeral home and the funeral itself today and tomorrow. Sometimes, the pain in my…
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7 week follow up
I went to see my rad/onc doc on 7/12 for 7 week follow up. He had not seen me for 3 weeks and the first thing he said was, "Who's this guy?" He said I looked great compared to the guy 3 weeks earlier with the burnt and peeling neck, unable to open his mouth or swallow, etc. I seemed relatively normal now in comparison. I…
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Lymphedema
I am 7 weeks post scc tonsil cancer treatment. 38 rads and 3 cisplatin. At about 5 weeks I noticed swelling/juggling under my chin. At first I freaked out thinking c was back but it seems to make sense that it is a side effect of the lymph nodes being removed. Does anyone know if I can find some online resource to show me…
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Delaying Radiation
I am wondering if anyone has delayed their radiation for a couple of months. What was your outcome? I ask because my employer has notified me that I will lose my job after 6 months as is company policy (currently in my 5th month off, completed chemo, and ready to do radiation for 6 weeks).
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I am sure I have asked this before, but I am going to ask again
How many weeks did it take before you felt better.. Like able to move around without a problem, lowering your pain dosage and eating? My husband vomited yesterday and he has been dry heaving most of the day today. It seems like he should show some signs of improvement, but in some ways he seems worse. I do not know…
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When was the last roll call? Earth to Hawvet.............come in Hawvet??
Sorry, I have not been online for a long time. But, doing very well now almost 4 yr. post treatments. So, has there been a Roll Call lately?? JKINOBAY
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Hypoglossal Nerves
Hello everyone...it's been quite awhile since I've been on the boards and I feel guilty not staying in touch after all we'd been thru know that I had some to share with everyone. My husband has been doing wonderful after a left RND two years ago and a moderate neck dissection last summer to take care of the right side of…
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I've done it before
and I can do it again. Not how I planned to spend the rest of my summer vacation. Last August I had surgery for a lump on my upper lip. Squamous cell, spindle cell varient, peri-neural invasion. Stage I, clean margins, HPV-. Had radiation (with amifostone), ended Mid October 2010. I went back to work in January. Major…
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Mentally Coping With Everything
A couple of months before I was diagnosed I had lost my 10 plus year job. I was on unemployment at the time and switched over to disability later on ( I should have done it sooner). I'm having real issues coping with everything. While I am getting better physically slowly but surely I'm finding my mental state is really…
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G-Tube feeding diet suggestions durning chemo!
Hi everyone my dad is on his second week of chemo and the doctors are very impressed with the results they are seeing. The swelling in his face has gone down a lot and as of now they think things are moving in the right direction! But we are still not out of the woods yet, he is still on a G-tube and still has a trach. We…
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G-Tube feeding diet suggestions durning chemo!
Hi everyone my dad is on his second week of chemo and the doctors are very impressed with the results they are seeing. The swelling in his face has gone down a lot and as of now they think things are moving in the right direction! But we are still not out of the woods yet, he is still on a G-tube and still has a trach. We…
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Water and swallowing
Anyone who has had a partial larengectomy knows that liquids and water are the most challenging to swallow without having it go into the lungs. Wifey has tried water thickner powder, which she says is like swallowing bad tasing slime. ANY IDEAS as to ways to get water/liquid intakes by mouth to ensure hydration. I know…
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recurrence
A few weeks ago I posted that they thought my husband's cancer had metastasized to the bone. Well the biopsy showed that it was true. Sooo...we are now in our 2nd battle and trying to regain hope and strength. He will be on standard chemo for the mestastisis and hopefully we can kick this canceer's **** a second time. Wish…
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Kinda Worried
Hi, My dad is a little over a year out of treatment and he told me yesterday his has a place on his tongue. When he showed me it appears to be a cut with a small red looking bump. My dad has no teeth and has been eating Ritz crackers and using that side of his tongue to break them up. He also eats at least on large tomato…