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Please help! Much appreciated.
I completed my Chemo/Radiation in Nov. Here it is February, I am still in a lot of pain. I am using MuGard and Magic Mouthwash (4 times a day). I also rinse my mouth out with baking soda and salt solution 3-4 times a day. I take Tylenol for pain. Yesterday, I started to take Gabapentin (300mg). I had a PET scan 3 weeks…
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So tired
Hi. I first wanted to say: sorry, guys. I know I was quite active, during the first weeks of my radiations. Then I disappeared for a while, more or less. I feel a bit guilty, because I received a lot of support and good advice, and it feels a bit like freeloading, at this point. It's just that, during these last weeks, I…
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Bilateral Neck Radiation for Tonsil Cancer
Hi All, My first time posting here, this has been a great site to learn from and very helpful. I'm 2 months past bilateral neck radiation (50 gry/25 fractions) as adjuvant therapy post TLM surgery to remove left tonsil. I had a 2.3 cm primary on left tonsil and 2 positive lymph nodes out of 40 +removed from left neck…
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Cancer treatment what should i expect
new to this board and treatment for cancer in my neck and back of my tongue.The doctor at the VA(which iam very please with) said i need a feeding tube and a med port put in and i need to have all my teeths pull.Iam looking at to 6 to 8 weeks of chemo and radiation all this scare the hell out of me and dont have any idea…
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Base of tongue cancer non hpv
My husband finally got his official diagnosis today.Advanced base of tongue cancer that is also in lymph nodes which we knew.We were praying it was hpv strain but it's not.dr said he has 50/50 chance with high dose radiation 5 times a week sometimes twice a day and also chemo during radiation.Has not spread to other parts…
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Dr. Amit Agrawal The James
Hello My partner has been diagnosed with HPV neck cancer and is scheduled with Dr. Amit Agrawal at The James next week. Just wondering if anyone on here is a patient of his and could share your treatment experience with him. Thank you.
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Proteisn Drink
Does anyone have any idea how i can make protein drinks taste better,what can i mix with them.I try G-ade it was ok.I like to hear other input on the subject
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Yummy way to get flaxseed oil and ground flaxseed
The recipe I saw on the Budwig page called for 1tablespoon of ground flaxseed to be sprinkled on about half a cup cottage cheese blended with a teaspoon of honey and a tablespoon of flaxseed oil. This could be served on a bowl of fruit. The ground flaxseed was irritating to my mouth and chewing is such a drag right now. I…
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Advice/knowledge from those who have been there
I am 6.5 weeks out from finishing 30 radiation treatments and 5 Cisplatain Chemo treatments for recurrent Vocal Cord cancer. While I am making progress I have some questions for those that have been down this road. So first the positive items! My taste came back about 5 weeks in. Most everything tastes normal The constant…
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esthesioneuroblastoma
Hi everyone, i just try to talk to some people who have/had a same type of cancer
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Esthesioneuroblastoma Diagnosis
My name is Jeff and I was just diagnosed with Olfactory Neuroblastoma. I am very thankful that I found this board and can find out more about this cancer. The one thing I do know is that it is rare...very rare. I am in central NC and it seems there is a very limited niumber of physicians that can help. To add to my…
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Throat Cancer reoccurance- Laryngectomy in my future
Hello all, I had vocal chord cancer diagnosis in the fall of 2018. 8 weeks of radiation cleared it up completely and was doing well until this past spring. I noticed my voice deteriorating. With Covid I wasn't able to get scoped until June, but it looked fine. CT in August was fine. Voice continued to go downhill. I went…
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What should I try to eat?
I am officially 16 days post radiation treatment and today is the first time I could chew and swallow regular food. I have to keep it to one side of my mouth as I still have a lingering sore along the right side of my tongue that really hurts when anything gets in it other than a shake running past (even plain water hurts…
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Possible failed root canal / tooth extraction help needed
Hi all, I will be 7 years post treatment later this year. About 5 years ago, I had a root canal in a back molar. I'm experiencing some bleeding and am worried it may be failing. I have been to the dentist yet but plan to go. I'm very scared and worried about this. I wonder if anyone has experienced anything similar. I'm…
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Week 5 of 7
Week 5 of 7... In the middle of week 5, definitely experencing increased symptoms and the need of pain meds. swallowing has become more difficult, and i have a mouth sore that is painful when eating or drinking. The combo of the 2 are making things uncomfortable. Night time is the worse , due To increased dry mouth. Today…
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Late radiation effects, specially fibrosis
Hello again. I would really like to talk about late radiation effects. I tried to inform myself online as good as I could, searched the forum, asked my doctor (who mainly brushed it off by saying I shouldn't read too much) and I still can't decide what to think. I'm getting 60 Gy radiation to the tumour zone between my…
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VA Won't Pay f
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What I am doing
Howdy fellow H&N members, This is CivilMatt with a brief update on my corner of the H&N forum. I am currently working over the ROLL CALL 2021 (per a request from the CSN staff) to bring the format of the RC into compliance with the rules we all use to post information on the H&N forum. The current RC is over 80 pages and…
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update from CM
Howdy fellow H&N members, This is CivilMatt with a brief update on my corner of the H&N forum. I am currently working over the ROLL CALL 2021 (per a request from the CSN staff) to bring the format of the RC into compliance with the rules we all use to post information on the H&N forum. The current RC is over 80 pages and…
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Lhermitte's Symptom or Sign
Hi All, We have discovered a common symptom among a few of us here (D'Ware Jim, Skiffin John & I) called 'Lhermitte's Symptom'. Please read below to see if you think you get this sensation and can anyone who has, please post a brief note re: when it started, where you get it and if you have had any medical opinion etc.…
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tube feed formulas
Hello. I have been diagnosed with cancer in my neck. I haven't started treatments yet, probably 1 more week. Chemo and Radiation. I will be needing to use a PEG tube. I am interested in finding out if any one else is/has made their own food mixture. I am going to be mixing my own food and looking to get some input. Thanks.
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Anyone else permanently lose taste?
I had a rare type of sinus cancer back in '17 (all cleared up now) and because of the kind i had and where my tumors were at i had to have my olfactory nerve removed, which is the nerve that gives you the ability to smell. Was bad enough losing that but i soon found out too that i would lose my ability to taste because of…
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Gift Idea for spouse ?
I am fighting my way through recovery and feel like I am tending positive now (I still have a ways to go Understandably), but my wife has been a dream. She has taken care of our home, 3 kids (running them to activities and keeing them out of Dad's hair when I'm irritable) and I'd like to do something for her. Have any of…
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Starting week 4 of 7 chemo and radiation treatments update
Finished week 3... I've been tolerating things well. I started this out in great shape , started swallowing exercises 2 week prior to treatments as well as getting acupuncture twice a week since treatments started. I've try to get some fitness in with some weight training as well. I do have the metal taste and a sore…
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L-Glutamine during radiation treatment?
Anyone use glutamine during treatments? Did it help any? RodgerM.
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how long before get taste back
I am just starting to be able to eat soft stuff not much flavor in any foods was wondering how long before getting some taste back thanks and Happy New Year
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Spindle Cell Neoplasm?
The preliminary biopsy results of the core biopsy done last week popped up on my portal as "Spindle cell neoplasm" and that it was being sent to a dermopathologist for a consult and results would be updated. I'm guessing I'll hear from doctor in the coming days. Everything I read is just confusing because it doesn't seem…
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Delays in CT scan wait time
Hi everyone, Hope all is well. So my dad had his routine (annual) CT scans for chest and head/neck last Friday. His appointment was on Monday to go over the results. But something weird happened. The results for the chest scans were there, but the neck CT hasn't arrived yet. The oncologist said the head/neck CT is reviewed…
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Swallowing and gagging years after radiation?
Has anyone experienced subtle swallowing diffculties... or more like chocking on food/gagging while eating years after finishing treatment? It especially happens when I talk or laugh while chewing. I finished high dose radiation and chemo for head and neck 3 years ago. I had different types of swallowing problems…
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Lymphedema and Trach
Hi there, I am wondering if anyone has experienced lymphedema in your neck and face after having a trach placed? My dad had one placed about 1 week ago and has constant humidity running through and a few days ago began noticing facial and neck swelling (mostly after falling asleep). CT scan came back clear to rule out any…