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When?
Almost a year now since I heard those words that you have cancer been through all the treatments and all. Yet it still goes off in my head when is it going to show up and where at this time? I was just wondering if anyone else has these thoughts?
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Couple inspirational sites
Hi, Many of the board's topics are related to the physical issues resulting from oral cancer's diagnosis, treatment, and recovery. Mental and emotional topics often seem a byproduct of some physical issue. Here are a couple links to sites offering wonderful support on topics of the soul and mind. An article today prodded…
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Uncle's Condition
Just recieved news that my uncle who has been battling cancer in bones and gaul bladder and now brain was told to call in Hospice,Hate this disease,I pray that when that time comes he is out of pain and comfortable,Have watched my Dad and Sister both pass away from it,sorry had to vent.Just askin for prayers, Thanks Chris
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What is that?
Last night Jim coughrd up something that looked like tissue. It was about the size of a dime. The next cough produced blood spray but very little. Could it be lung tissue or throat tissue? Hospice nurse didn't seem to concerned but would send a nurse if I wanted. Said if he was resting she would take her time sending nurse…
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Good News from Dr.
Got good news today, all 23 nodes they removed were clean, and also all my margins. So looks like I am cancer free...at least as of today....except.. There was one part of the path that said: "Angiolymphatic Invasion is Present". In the comments it says: "An immunoperoxidase stain for D2-40 highlights carcinoma within…
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Uh Oh
So, I got scoped poked and prodded on Feb 18th and got the all clear. I had a bit of a heart scare as "scanxiety" reared it's ugly head and sent me to the ER with chest pain. After a full cardiac workup, I've been given that all clear there as well. Overall, I've been doing Ok at almost a year out of treatment. While I…
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taking ondansetron and vomiting
They have givin me ondansetron to help nasua but have taken it twice now and both times ended up vomitng...is there anything else I can take??
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Still having pain 12 weeks post treatment for base tongue cancer.
My father is still having quite a bit of pain in the back of his tongue where he was radiated. Is that common 12 weeks out. Shouldn't the pain go away by now?!
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mom with a new trach
My mom was diagnosed back in December wiyth T3 larnix cancer. She then moved in with me and my husband. She has received a g-tube which has worked great due to her not being able to swollow. I am going to pat myself on the back for this one. During all of her treatments so far she has maintained her weight. Dr are amazed…
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Is This Normal/Standard Practice?
Locally advanced tonsil cancer (Stage 4). Multiple lymph node involvement. No surgery. 7 weeks of treatment (35 rads and 7 cisplatin). Had one CT and then one PET scan a few months after treatment. Seen by oncologist every 2-3 months. Told will never receive another scan, CT or PET scan, or throat scope, unless physical…
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Terminal Restlessness UPDATE
Jim has "Terminal Restlessness" that keeps him moving, jerking, seeing people and things and restless. Anyone have experience with this. I looked it up on line. I know I shouldn't but I never heard of this before and wanted to know. The oncologist added Haldon which helped some but he still could not be still so they…
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tongue swelling
OK..we are experiencing tongue swelling...anyone have any rememdies for that? Almost thru the third week of rads... thanks Ya'll!!!
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Questions on brothers neck dissection - update
Hey everyone ! I am going to ask those of you with experience with staples after surgery what to expect for my brother. I had stitches...so a bit different. He read the surgical report to me and it sounds not so good. He won't hear about the final pathology for a few days yet. They removed 3 tumors from the left side of…
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Mucoepidermoid carcinoma Low Grade - Require Radiation?
Dear All, My wife is diagonised with mucoepidermoid carcinoma @ Hard palate last Nov 2013. She had undergone surgery and the pathology report has come as LOW GRADE. Post operation report comes as the tumor was removed with all the margins clear. Our Oncologist now giving us two option for further treatment, 1. Let to…
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magnesium deficiency from Erbitux
With only one more tx to go, they have decided that I have a magnesium deficiency from the Erbitux. They put me on a perscription and I was thinking a week or so but it had 60 pills and several refills. Did anyone else experience this? If so, how long were you on meds? Why can't I just eat some (creamed) spinach or…
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3rd week of radiation and chemo combo
well..my hunny is on his third week of radiation and so far so good...starting to have trouble swallowing but as long as he keeps ice and water going in all day...its doable right now..hope it continues to be manageable...thank you all for your help and tips...Lysine has helped keep his acid level down..and glutamine has…
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Update on Susan
Many of you have helped my friend Susan, by sending scarves,hats to help her on her journey with breast cancer. Today, I'm so thrilled to tell you..no more chemo, she is suffering with neruopathy in her hands and feet, and the Drs decided not to go on with chemo. Next week she goes to talk about radiation, there may be a…
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Branchial Cystt or SCC
Hello. I am new to this but have messaged some great people who have really been helpful. I am 47 and from Liverpool UK. I have a submandibular neck lump. It is either SCC or a branchial cyst.It is being removed Monday and will have a biopsy whilst in out. If it is cancer I will wake up with a neck dissection. I have two…
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Newbie of tongue cancer
I was diagnosed with T2 tongue cancer right before Christmas. For the first month all the doctors I saw were saying radiation and possible chemo, which the next Dr I saw said I didn't need. Then after a series of events, mainly me getting the flu and having to postpone all the appts I had made. I had to see yet another new…
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Mandibular resecting
I was treated for MEC BOT early in 2009 and have been declared NED on every scan since fall 2009. That's the good (hell, wonderful!) news. The bad news is that I've more than my share of side effects over the years. The most serious of them is ORN, which has progressed to me needing my left jaw bone replaced with a bone…
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The journey is moving on
The hospice nurse came yesterday as Jim got more and more restless and started twitching a lot. Jim's oncologist and nurse happened to be on call. Added Haldoron, not sure of spelling, which took until this morning around 11 am to help so I was up most of night. Finally fell asleep some where after 4 am untill 8:30 am. He…
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Bilateral Vocal Cord Paralysis
Both my vocal cords are stuck closed. Pretty frustrated. I got through my rad/chem in Aug 2013, good Petscan in November. I had cancer of the larynx. First my ENT wouldn't take out my trache because of swelling. That went down but still had a restricted airway. He sent me to Vanderbilt (5hr drive) to see if they would…
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2 years out since last recurrance and NED!!!
Just wanted to share this with everyone. My mom went through total of 2 recurrances with total of 4 surgeries plus 6 biopsies combined and radiation since Nov of 2010. If you read her profile you will see that beast kept hanging on for quite sometime. Whenever I researched the prognosis after recurrance it made me so…
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Un-Remarkable...
And I kind of thought of myself as pretty remarkable... I started this journey as many of you... January 5th, 2009... diagnosed STGIII SCC Tonsils HPV+. Sixteen weeks of four types of chemo, seven concurrent with 35 daily rads sessions, bolted to a table and receiving daily injections of Amifosrine in my stomach each…
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need more prayer
Please pray for Jim to be peaceful and relax. Very unsettled this morning. He can't seem to relax. Gave him small dose of Ativan. Afraid to give him more because the last time I gave him full dose he went in opposite direction and was very agitated. Please pray for his peace and that he can relax. Debbie
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Update...
Hi everyone! Sorry for being absent for so long. I felt I needed some time away from the site as I was fighting through some of my recovery issues. I lost 60 lbs total and now I have gained 5 lbs back in the last two weeks. Wednesday I got the results from my first PET scan and I was given the all clear - phew! I wish all…
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Adenoid Cystic Carcinoma
Just started my journey of survival. Head is spinning, so many things being said, and what do you mean I am the topic. Feeling lost and uncertain.
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Got to meet Lorna
Happy to say that I got to meet Lorna yesterday. She had an appt. with the ONC where I was getting my chemo. Such a pleasure to meet. I didn't recognize her without her motorcycle helmet :-)
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Been missing for a while
I've been away from the boards for awhile - not with any health issue - but working on our move We moved to Florida!!! Out of the bitter cold and snow of upstate NY to the sun and warmth of central Florida! We're still settling in, so much to unpack and put away plus waiting for the various utilities to connect. We finally…
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Bummer
We have been trying to go fishing together all week, Just us two and Tebow of course, but the weather wouldn't cooperate. Today is perfect for fishing. Jim was excited this morning but we had to wait until 12:30 because Tebow had an appointment then. Was getting things ready when my mother called about coming to sit with…