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I made a Hard decision today.
I made the decision to put Jim in the Hospice facility today. the decision was very hard but after two days and nights with no sleep and another fall Saturday I had to so they could get his meds right. He was fine with it but when he found out I wouldn't be there he was not happy about that. I told him I would try to stay…
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First Gig Since Treatment!
Well.... I did it! My first public performance in a year and a half. When we drove to the mountain, the sign said that Skyland was "FULL"! That means a packed house in the lounge where I perform. The weather was beautiful albeit pretty cold at 3500ft but it was a gorgeous drive. Set up/sound check and hit the stage at 8:30…
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Worried
Has anyone heard anything from Catluver96 I feel concerned not seeing any news posts from her so long.
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I need someone with a paralyzed larnyx, and throat cancer to answer some questions?
I just came from teh docs today, good news the cancer is gone, and he said it looks permanetly gone...the bad side, he has it in his head I need to have a trach or somesort of airwave in my throat for extra oxygen, I have live wihout my trach for nearly a year, yes i get tired, and it's hard a night to sleep but i have…
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4 years today
Hi Everyone Haven't been on much lately work prevents me from having much of a personal life but hell, that's what keeps me so young looking. (I know, that would be my funny for the day) It will be four years today about 11:30AM that I finished radiation. I find it hard to believe it's been that long, but with getting up…
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Sleepy sleepy
How much sleep is normal at this point? I'm sleeping almost all day right now after 14 rads. I just can t wake up.
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radiation mask
Was fitted this week with Radiation mask. Had to be in for about 30 or 40 minutes while they did pet scan. Start radiation treatments next wed march 26th. 6.5 weeks 5 days a week. Any hints on how to cope with the being strapped in can't move freaking out feeling that comes with being in that mask. must admit Nervous. RK
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Side effects of the cetuximab
Got my first dose of cetuximb yesterday and the side effects kicked in in the early evening.Bad headachs,nausa,sweats then cold almost like the flu.Have meds that I have to pick up but wondering if the feeling this is gonna everytime.Or will my body adjust.
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Thyroid
I have read about Thyroid problems caused by radiation. What are the symptoms? I find I'm not regaining my energy, I'm tired all the time and find even walking up stairs leaves me breathless and my heart races. I've black out when I stood up too quickly. I want to regain some energy but seem to get weaker by the day. I…
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Sleep, wonderful sleep!
I had a wonderful nights sleep last night and so did Jim. I had my grandson move the spare bedroom bed into the livingroom a couple weeks ago so I could sleep next to Jim in the hospital bed. Last night I put him in that bed with me to see if I could hear him get up better. He slept through the night and only awoke long…
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Asking Again For Prayers For My Daughter, Johnnybegood - UPDATE
On Wednesday morning, Johnnybegood will be having surgery to correct her fistula. Her surgeon told her today that she will have a permanent colostomy. She is less than thrilled at this prospect, but must do it to survive. Although her lung function is compromised due to many tumors, the surgeon said it is acceptable for…
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frazzled
Hello everyone, Went w/my brother for recheck and answer question time w/his ENT. He defineately has HNSCC HPV+ with local mets (no known primary) They pretty much opened him up took samples and stapled it back up. The doctor said there was too much to surgically remove. The good news is this is very treatable, with a 95%…
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Mucous in throat
Starting to feel the effects of radiation now. Nausea is gone from chemo, now I am having trouble gagging on the mucous in my throat. This has prevented me from eating enough. I have rinsed with salt baking soda solution. 13 radiation treatments down, and 19 to go. They have also discontinued me from the cisplatin. I will…
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Some upbeat thoughts for your Saturday
I'm new posting to the board but I've been around a while. I know how important it is to break the monotony of treatment, options, advice so I'm going to share a personal story. Stop reading now if this kind of thing just bores you or you are super-serious about learning. This post is about fun my suffering brothers. I'm…
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Oncology Visit
Had my CT scan today, with onco check up tomorrow...2 years 4 months later the nerves still kick in ..the ct tech couldn't find a good vein , I have small ones that roll, so after 2 sticks in rt hand & arm, he takes me down to oncology nurse...those are some really special ladies ..she finds a decent vein in top of left…
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SCAM ALERT!
All, just had a personal message in inbox from a Mrs. Sarah Duke wanted me to help liberate over 8 million dollars inheritance to cancer charities. Be aware. What sort of scum would infiltrate a site like this and what sort of idiots do they take us for! Claims to be a Mrs.Sarah Davies from Cape Verde. Beggars belief that…
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Steve Update (Best Friend's Hubby)
Hi all: Got back Monday from Chatt. visiting Beki and Steve in their NEW HOUSE! It's sooooooooooooooo beautiful! Steve finished his rad. last Friday. Goes end of month for follow up scan. Looks great and feeling good. Cooked breakfast for us all three mornings! We partied all weekend. Our version of partying was fish fry…
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Updates
Hey all, Not sure if anybody remembers me, but I was around the forum a bit last year. Thought I'd post an update and let you all know how I'm progressing. First off, the last time I was here November I was having a "mini-crisis" that was NOT head and neck related, but I was being investigated for possible Sarcoma on my…
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Getting over whelmed.
5 am is getting to be the witching hour. It seems that is when Jim gets out of bed and falls or has to have a BM. Add to that his mind is going more and more each day and I am operating on 4-5 hours of sleep. The hospice councilor suggested I put Jim in their facility for a few days to get some rest but I don't think I…
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Biotene product changes? Anyone have advice?
Hi All: After using Biotene's toothpaste, mouth spray, and (especially) the oral gel for over a year now, I just had a heck of a time finding any products left on the shelf in drugstores...amazon sellers' prices (especially for shipping) have gone way up. When I checked out online what might be happening, another cancer…
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Doctor visit
I am going for a check up next week. This will be a second year visit. Last year went fine. For the past month or two I have had a sore/bump on my tongue. All the operations (3) have been on the right side of my tongue. The new thing is on the left side toward the back. I hope it is nothing, but I have lost count of how…
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First chemo
Hi, just checking in after my first chemo. cisplatin really sucks! It knocked me down for 5 days straight, three of them in the hospital. I tried everything to stay hydrated and could not keep anyhting down at all. Meds did not help, but now feel much better. Radiation is not nearly as bad, eight txs done so far. I lost 16…
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Fluoride Trays left in too long
Accidentally left the fluoride trays in for 45 minutes tonight, also I boiled them to clean them, shrunk a little but they still fit well over my teeth, I am more concerned that I left them in one time for 45 minutes instead of just 10 minutes, anyone have any experience with this, I am wondering about the toxic affects of…
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scan results
No new recurrences, prayers answered. Tumor around carotid shrunk about 1 cm. Knewv chemo would not eliminate. Since there is no new recurence, the chemo is done and I can go back to Mayo to get SBRT on the tumor. Tenatively, a planning session at Mayo next Tuesday w/MRI and then back the following week for 5 days of…
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Great day today somewhat
Well today has been a pretty good day. Jim was alert most of the morning and evening. His mind however is failing. He did not know my sister, Donna yesterday and he did not know my sister, who is staying with us for a few weeks, this morning. He kept seeing a dog on the front porch and a man in the house. He got emotional…
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3 and 1/2 years only
Another batch of good news. I am behind Duggie by about 6 months, the latest PET/CT scan back full of excellent results. The trials and tribulations of chemo/rads seems a distant memory now. I still have a slight bit of dry mouth to contend with and I've recently joined the thyroid club, but it's all good. As Duggie said,…
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throat too swollen to fit in mask
well..my hunny couldnt have his treatment today as his throat was too swollen and the mask wouldnt fit...poor guy...the phlem is so bad he feels like he is drowning..we are only in our 4th week..im glad they are giving him a break for a few days and some new meds..hopefully he will feel better in a few days..thanks for…
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When?
Almost a year now since I heard those words that you have cancer been through all the treatments and all. Yet it still goes off in my head when is it going to show up and where at this time? I was just wondering if anyone else has these thoughts?
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Couple inspirational sites
Hi, Many of the board's topics are related to the physical issues resulting from oral cancer's diagnosis, treatment, and recovery. Mental and emotional topics often seem a byproduct of some physical issue. Here are a couple links to sites offering wonderful support on topics of the soul and mind. An article today prodded…
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Uncle's Condition
Just recieved news that my uncle who has been battling cancer in bones and gaul bladder and now brain was told to call in Hospice,Hate this disease,I pray that when that time comes he is out of pain and comfortable,Have watched my Dad and Sister both pass away from it,sorry had to vent.Just askin for prayers, Thanks Chris