Some upbeat thoughts for your Saturday

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I'm new posting to the board but I've been around a while. I know how important it is to break the monotony of treatment, options, advice so I'm going to share a personal story. Stop reading now if this kind of thing just bores you or you are super-serious about learning. This post is about fun my suffering brothers.

I'm an idiot. Let's just get that out of the way. I love oddly funny things and I really delight in catching people off-guard. When I started showing the signs of treatment I tired quickly of the furtive glances people would take. "Yeah person I've never met, I know it looks like God put a zipper up the side of my neck, thank you for pointing out how it's impossible to miss." [smile Kelly, remember to smile. You look creepy if you don't!]

How to deal with this?....I've got it! Camouflage! Give them something else to look at. Brilliant!

OK, so I go to a friend of mine who runs a print shop and have a shirt made: "I love NED!" in a bright red heart. Impossible to miss, I wonder will anyone get the joke or will no one even care (I do live on the west coast, it's VERY liberal here).

I was totally, completely, blissfully unprepared for what would happen the first time I wore it. No one said anything for the first few minutes of my maiden voyage in Wal-Mart and I thought "Well this was a fail." Then right beside the apples it happened. The first of SO many times this EXACT thing has happened to me when I wear NED...

From my left a woman breaks away from her husband and walks straight towards me. We make eye contact and she smiles hugely then gives me a "I missed you SO much!" hug that nearly takes my breath. She'd seen my scar but made no mention, her only words to me were "I love NED too."

To be honest it got kinda awkward right then. The husband wasn't really in on what was going on and was trying to figure out who was tugging on his gal. I smiled at her and said "Good luck" and we parted ways.

Like I said, first of SO many stories that damn shirt has made. NED has taken a life of his own around my house. We went to the mall in Eugene and my wife said "NED can't go! I won't get any shopping done!" like he's now a member of the family. NED is my buddy in this journey and I probably will ask to be buried in that shirt when the time comes.

Anyway guys the point is you have to find your peace with this ugly blight on the human condition. NED was just some dumb thing I did but it blossomed into this incredible window into the human condition where other sufferers use NED to share a moment with someone who they see has punched the membership card like them.

Go make your own NED. I promise you won't regret it.

Comments

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
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    kelly, that was an awesome

    kelly, that was an awesome story.  it warms the heart.  we need to hear the lighter side of things, it makes life better.  thank you so much for sharing that, i for one loved it.

    dj

  • phrannie51
    phrannie51 Member Posts: 4,716
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    I LOVE IT!!!

    Now I want a tee shirt too.....I really do!!!  So many folks out here that know what another has been through because either they or someone they love went through the almost same thing. 

    The day I finished rads, as a surprise, my family all gathered at the radiation place and put a big poster in the back window of the care that said "JUST FINISHED RADIATION"....and hung Ensure cans from the bumper.  It was cute and funny, but I got emotional on the ride home....SO many people honked and gave me thumbs up driving through town....they knew and appreciated my last day.

    p

  • Guzzle
    Guzzle Member Posts: 710
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    I LOVE IT!!!

    Now I want a tee shirt too.....I really do!!!  So many folks out here that know what another has been through because either they or someone they love went through the almost same thing. 

    The day I finished rads, as a surprise, my family all gathered at the radiation place and put a big poster in the back window of the care that said "JUST FINISHED RADIATION"....and hung Ensure cans from the bumper.  It was cute and funny, but I got emotional on the ride home....SO many people honked and gave me thumbs up driving through town....they knew and appreciated my last day.

    p

    Having a laugh....

    ... Is a simple thing that keeps us going. Brillant story. More!

  • MarineE5
    MarineE5 Member Posts: 1,032 Member
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    Kelly

    A sense of humor goes a long way in this. You fit right into John's ab-normal club........Cool

    My Best to You and Everyone Here

  • KTeacher
    KTeacher Member Posts: 1,103
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    Welcome

    You are more than welcome here, you fit right in.  Love the story, love the shirt.  Hope you don't mind if we steal the idea.  I have a wonky smile due to surgeries and have also lost an eye to this horrible disease.  I have found humor and being upbeat helps in new situations or out in public.  I call myself Pirate Grandma!  I have switched my pirate patch and just painted my lense on my glasses.

    Laughter is good medicine.

  • Kelly_Scott
    Kelly_Scott Member Posts: 6
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    KTeacher said:

    Welcome

    You are more than welcome here, you fit right in.  Love the story, love the shirt.  Hope you don't mind if we steal the idea.  I have a wonky smile due to surgeries and have also lost an eye to this horrible disease.  I have found humor and being upbeat helps in new situations or out in public.  I call myself Pirate Grandma!  I have switched my pirate patch and just painted my lense on my glasses.

    Laughter is good medicine.

    You are welcome to use any of

    You are welcome to use any of my ideas any way you like. I have another shirt too that says this over top of a rugged cross:

    CANCER forced me to my knees.

    It didn't stand a chance after that.

    I've seen other people use that after I posted it to facebook. I think I'll go put that one on today :)

    Happy Sunday you guys. I hope the sun shines on you today.

  • jim and i
    jim and i Member Posts: 1,788 Member
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    You are welcome to use any of

    You are welcome to use any of my ideas any way you like. I have another shirt too that says this over top of a rugged cross:

    CANCER forced me to my knees.

    It didn't stand a chance after that.

    I've seen other people use that after I posted it to facebook. I think I'll go put that one on today :)

    Happy Sunday you guys. I hope the sun shines on you today.

    Thanks for sharing. My

    Thanks for sharing. My husband, Jim has never and will never see NED but we both still like to laugh and hear stories of others NED so we can celebrate God's grace.

    Blessings to you my friend,

    Debbie

  • Guzzle
    Guzzle Member Posts: 710
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    jim and i said:

    Thanks for sharing. My

    Thanks for sharing. My husband, Jim has never and will never see NED but we both still like to laugh and hear stories of others NED so we can celebrate God's grace.

    Blessings to you my friend,

    Debbie

    NED

    In Glasgow Scotland a NED is an undesirable person possibly derived from the phrase "ner ' do well" or a person who will never do well. You have given me a positive NED! When I get through therapy I am going to visit friends in Glasgow and have a beer. With a copy of your t shirt on mate!