The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Thyroid

jackflash22
jackflash22 CSN Member Posts: 524 Member

I have read about Thyroid problems caused by radiation. What are the symptoms? I find I'm not regaining my energy, I'm tired all the time and find even walking up stairs leaves me breathless and my heart races. 

I've black out when I stood up too quickly. 

I want to regain some energy but seem to get weaker by the day. 

I sleep in the day for 3 hours at a time and can fall asleep at the drop of a hat. 

Every time I mention it to my docs they say it's radiation fatigue but surely by now I should be regaining some of my normal life. I finished rads in october. I read posts of folk going back to work and taking up with normal lives. I walk half a mile and feel I'm going to fold up. I was more energetic a couple of months out of rads, then it was downhill. Any ideas......I live on 5 -6ensure 2 cal and a litre of water a day as I can't swallow and have a PEG tube still.

Comments

  • hwt
    hwt CSN Member Posts: 2,328 Member
    energy

    Sorry to hear that you have not regained your energy. Personally, I turned the corner 6 weeks post tx. back in 2012 when I did rads and chemo. Just last week I finished 12 weeks of chemo. I was told that my magnesium was low and given a script for mag/oxide. I read up on it and low magnesium can result from chemo and cause fatigue. I was also told, if I could not eat, that I needed atleast 6 Ensure a day, it sounds like you are doing that.  May want to ask what your magnesium level was on your last lab. Just a shot in the dark but an idea. Even with low magnesium, I pretty much continued with my normal routine but did notice a bit less energy.

    Good luck in finding your resolution...be persistent with the doctor.

  • Skiffin16
    Skiffin16 CSN Member Posts: 8,307 Member
    Blood Indicators...

    The main indicators in your blood tests, which have to be looked at are your TSH and Free T-4 levels.

    Those two indicate thyroid function...

    Fatigue is one of several indicators for thyroid disease...

    But fatigue oes with the territory for us as well..., as your MD mentioned.

    John

  • Crazymom
    Crazymom CSN Member Posts: 339 Member
    Thyroid

    I am tired a lot and am 2 years out.  The doctors will check your thyroid with your blood tests.  My energy level did not return to close to normal for a year.  Now, my thyroid is not normal, but not bad enough to put me on medication.  At some point I probably will need medication, but my doctor wants to wait until it is worse.  Once you are on thyroid medication you are on for the rest of your life.   Ann