-
Stage 3 Tonsil Cancer- 16 Months Post Treatment-How are you??
Hi Friends, I am 16 months out from treatment (35 radiation and 3 chemo). I am wondering if there is anyone else here around the same time after treatment and if so, how are you doing? What after treatment effects are you dealing with? How are your taste buds and saliva glands? How are you doing with eating and swallowing?…
-
Skiffin (John) Update **Doing Good at 10:30 pm Central**
Just heard from Shelley that everything with John's surgery is going as expected so far. Will get another update in about 2 hours. Continued prayers much appreciated. Ingrid *****POST SURGERY UPDAT,E**** Surgery was a success and they confirmed the mass was benign. John moving to ICU, Shelley waiting until she can see him.…
-
flooding you with positive thoughts and lots of prayers, John
john, just want you and shelley to know we are all thinking of you and praying for all to go well. we will contiue praying until you are back to being john 100% again. i hope shelley will be able to give us updates on your progress now and then. will be patiently awaiting posts from you. God bless you and bring you thru…
-
Prayers Needed~ 04MAR2014 UPDATE
OK..., here's the deal... Several of you have seen the prayer requests and such on FaceBook... A few months ago a scan picked up a cyst on my pancreas, it was biopsied (EUS) and determined pre-cancer. I had a follow-upCT scan a few months later (a few weeks ago), that shows it getting a little larger. I had another EUS…
-
Managing side effects 4+ years out
I am new and never knew this board existed. I tried calling other networks years ago trying to locate someone with a like experience to talk to. I guess I just didn't try hard enough. As my subject says I have been cancer free for over 4 years now. I had a very small squamous cell carcinoma on my right cheek near my nose…
-
Single Digits!
My hunny if finally in single digits! we have 9 more to go..tomorrow is his cat scan and then he gets two more treatments and then the final 7 "boost"..please keep him in your prayers that his stays as good as he is right now! He is doing so very well! Thanks yall!!!
-
NED
On Monday I had my 12 week PET/CT, yesterday the H&N doc showed me the results and told me its clean! It is still sinking in - Tonsil with 2 nodes stage IV advanced diagnosed 6 months ago - and now gone - I see the rad/onc in 3 months for a look see, the onc in May for his look and the H&N guy in another 6 months - they…
-
NOMANCAMPAIGN.ORG
Friends, you may be aware of this web site. A charity to raise awareness and destigmatize hpv related cancers. Also to push policy to extend vaccination to boys. Interesting reading. G.
-
It's been a long time
Hello Everyone. I've been missing, but not by choice. For some reason I got blocked a while back. I have no idea why. I haven't been involved in anything controversial to my knowledge. Anyway, it took until this afternoon to get me up and running again. I have missed being able to chime in many times with words of…
-
Some Will, Some Won't.
Hi guy's. Its been a very long time since I posted anything on the board. Some of you will remember me, some won't. But I felt that Today I had to as today is my 2 year anniversary from finishing treatment. I have visited the board quite often but never posted. I see a lot of the old guard are still here and I see lots of…
-
Gingival Recession and resection!
Hello, Like many I haven't been active on the boards much since my fraternity initiation back in 2010. I do lurk every now and then; however like most of us I had a tough go with it emotionally moving on after treatment and my counselor and I came to the conclusion that maybe it would be best to take a break from the…
-
Hello!
Hi my Warrior Family, I am asking for prayers. I don't know what is going on, as I had a stomach flu last week and lost the 8 lbs I proudly and worked so hard to gain. I went to the ER on Saturday for IV fluids as I was so dehydrated, but still feel off. I live alone, so this is a concern. I have no one in my area for…
-
Difficulties in Mouth Opening- TMJ/Jaws Stiffness.
Dear All, Its nice to see good and positive responses from each one of you on my earlier post. Thanks for that. To give a quick background, my wife is diagonised with MEC @ right Hard palalte and under gone a surgery of removal of it from the palate. She had a flap which is taken from her arm to close the hole @ the tumor…
-
Checking on all of you
Hi, well as for me .. the fight continues.. today was 11 of 38 radiation treatments.. so far hanging tough.. face is still sore from surgery but with nerves and muscle damage I think this is the new normal. I hope the fight for all of you is going well. Even though we may have never met I pray and think positive thoughts…
-
Hey Guys Stage IVB Throat Cancer still around
Hey everyone been forever since I got on here and took a while to get logged in lol BUT... wanted to share that I am still around heading for the 5 year Cancerversary and what I have been up to :) Especially for Newly diagnosed <3 I still stay busy volunteering at our local community center and I have written a book which…
-
Super thread
Hi..Have been trying for awhile now to look at the super thread and keep getting a error has happened please try again.Has this happen to anyone else??
-
Hospice Facility again
Well it is Wednesday evening 11 PM and I am spending the night with Jim at the hospice facility. This morning, Jim took a nose dive and started to decline fast. His anxiety and pain was not being controled even with the increase in meds. Jim said this morning that he wasn't going to make it back from this one. Yesterday he…
-
Chef Daddy Mike
The last time I talk to Mike he was not doing well, it’s been two week now and I have not heard back from him. I tried to call but no one answers the phone I am worried about him because he keeps going downhill. Please continue to Pray for Mike, you all who know him know the hell he has been put through in this life. As…
-
New NPC
I was diagnosed with npc stage 3 (T1N2M0) in Dec 2013. I just completed radio/chemo about 2.5 months ago. I would very appreciate if you all could give me your opinions/suggestions on following matters. - I lost about 9 kg of my weight and feel very hard to gain my weight again. I only take vege, bean, fish, egg and milk…
-
Sore Mouth
I had 10 chemo and 35 radiation treatments for oral cancer to tongue. My last treatmeant was on Jan 30. My mouth/tongue is still so sore I can barely eat a few bites of soft food. Is there any suggestions on what to do to help this. I have been using magic mouthwsh and salt and baking soda water.
-
moved appointment day
Well my husbands three year follow up has been moved to May 8th. AND guess what, Saturday and Sunay he was complaining of a really bad sore throat. He said it hurt like it did 2 years ago and it hurts on both sides. I am going to watch it for a few more days, if the pain continues to persist I am going to ask that they…
-
I abosolutely hate this disease
Jim was doing so well at the Hospice fascility. Since he has been home he has been very restless, angry and agitated. He keeps wanting to die. Last night I called Hospice because I didn't know what to do with him. I finally got him to sleep at 2 am with the recommended med combo of the on call nurse, The Hospice Councelor…
-
Had laser excision today
Hey all, So I had laser excision on the white patch on the right side of my tongue today. All went well, but they actually excised far more of my tongue than I was expecting. I thought it would just be the white spot, but actually they did virtually the whole of the right side of my tongue again. Obviously with so much of…
-
swelling during radiation?
Is it normal for your neck to swell up where they are treating you during radiation? he has a mass in his lymph gland but it had went down after chemo and now during radiation ..it is swelled up again..is that just swelling from the rads? did anyone else have this? scares the crap outta me...
-
ENT
Saw my ENT this afternoon , scoped throat all is well. He asked about the gardasil injections I had, and yes I way exceed the age of gals & guys who should get them, he said since I was never a smoker and no evidence of HPV , that my stage 4A rt tonsil cancer may have been caused by something viral , he's glad my…
-
Help for Dry Mouth at Night
My husband still has a pretty dry mouth at night - he hooked up a Camelback Hydration bag to the bed frame and now he doesn't need to get up to get a sip of water. Try it! Hope everyone is well and enjoying SPRING. Cynthia
-
Juicer
My wealthy lawyer kid brother has kindly gifted me a juicer which is his latest health kick. He has read that therapy can be rough and wants me to get enough nutrition. He also tells me these devices are huge in the US of A. Any knowledge from my good virtual friends? Any good vegetable recipes as fruits tend to be high…
-
What is standard protocol for post NPC treatment
I've been out of treatment for 4 months with PET scan negative and all normal. What is the standard protocol here on? PET scan every 6 months for a number of year? The doctor ordered for chest x-ray which I don't want due to radiation exposure. There is no indication for the order to begin with. Could this just be standard…
-
Things moving quicker than originally planned
Good morning all. I received a call Friday from my Onco Nurse, she said he and pulmonary doc discussed my CT and the issue with my pleural efflusion not improving since the 8 weeks I habe been off Taxotere. Their consensus is I have a Para Mallignant Efflusion, since none of my lung fluid has ever showed the presence of…
-
Jim coming home. UPDATE
They are releasing Jim on Sunday. He is so thrilled to be coming home. Pkease pray I can care for him, ie: help to turn him and get up to use bedside commode. Debbie