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tounge flap stich
Wondering about those that when a graph was used to form the tounge flap if it was stiched in?I have noticed that I have one and now since talking more and eating more it seems I can feel the the stich now move around.Is that normal and it will disappear like a normal one and nothing to worry about?
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Here's a curious question about eating
Hi guys have a curious question that me and my speach specialist were talking about.While she is mostly right now teaching me the new way to eat we were talking about spoons and forks.Every spoon and fork bends upward towards roof of mouth we were wondering if they make anything that bends down the other way to make it…
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Latest Update on Friend's Husband
Hi all: The lastest with Steve is rads going well. They saw reg. onc. Tuesday and Beki was a little discouraged as he didn't seem as optimistic as rad. onc. She had not mentioned a time thing until then and told me rad. onc. had said 6 mo-2yrs and reg. onc. was more on the lesser side of that timeline. However Steve cooked…
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CHECKING IN 19 MONTHS OUT
3 MONTH APPT WITH ENT TODAY, ALL CLEAR!! He said everything looks good, just need to make it 5 more months to my 2 year mark and my risk will drop way down. Taste is still coming and going. Still do not taste sweets. Saliva is so so, still taking Salagen. Thyroid levels are dropping but still in the "normal" range. But I…
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planned maintenance on CSN this morning
Planned maintenance will be done on CSN this morning between 5:00 and 8:00 Eastern Time. There may be one or more outages during this time. We apologize for the inconvenience. Greta
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Hello Mr. Ned Again
Friends, Had my eleven and half month checkup since completing treatment (MD said hell lets just call it your first year checkup) and all was clear and clean. Had CT and scope (which I just love!!!). MD very pleased with progress and healing --- will see again in four months. Will just need to have physical exam and chest…
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VIMEO Video of the mask - Skiffin can you help out here?
Has this most amazing video of the mask, and of a radiation treatment session been posted here yet? I found it very comforting to review, and it might be a helpful addition to our Superthread, if the thread accepts videos. Also, I have no idea how to link to a video but it is called "My Radiation Treatment" and is located…
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Prayer request
My husband has a small spot on the upper lobe of his right lung, very suspect on PET. In fact, little doubt that it is cancer. caught early but he has COPD since 2008 (does not require oxygen) and he has A-fib which could be an issue. Normally, they would do a biopsy and then cone shaped removal. We see a Cardiologist for…
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Long day
but GOOD NEWS!!! Mr. NED is hanging around. Of course I had been worrying because of headaches in the last month. I thought I was going to need Phrannie and her horses to come and tie a harness on me to get me down from the ceiling fan. Nothing could be seen by the doctors on the MRI, should get the written report in a few…
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One Year Post Treatment
Hi all! Today March 18, 2014, it has been one year since I completed treatment! It’s been a very long time since my last post, but I do visit daily for encouragement. It is hard to read about those just starting out on their journeys and hearing their stories, but good to see the advice and information given to them is the…
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Sanjay Gupta - Weeds 2 show Saturday
Sanjay Gupta has done a second TV special on weed. I missed the initial showing a couple days ago but it is going to be on CNN this Saturday evening. I read some quote about his "doubling down" on the value of medical MJ. Let's get some discussion going after watching the show. Don
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A wonderful day fishing.
Now that I can post again I wanted to share that Jim finally got his day out fishing. The nurse had said it was ok but only for 30 minutes. I cheated and let him stay an hour. We had to wait for the aid to bathe him so he was impatient to go. He was like a kid waiting for Christmas morning. My brother in law and a fishing…
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Not cancer related....
but this was SO exciting for me. A friend bought a team of Belgians, and invited Greg and I to ride along on a wagon ride....he even let me drive them!! My respect for the Budweiser drivers has been upped about 10 notches.....this was only two horses, I can't imagine what it must be like to control 6, 8 or 10 at one time.…
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tounge flap and eating
Hi everyone.Just wanted to get some feedback.Was with my speach specialist today and went though with her as she talked to my surgen.We went over the things that were done during my operation.She said that when they graphed in the tounge flap it was attached to bottom of mouth.I already figured I wouldn't be sticking my…
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update on my brother
First of all thank you for the prayers and warm thoughts directed my brothers way. He had the biopsy done last tues, (throat and sinus) and came back NO CANCER ! He is still going to have two pretty good sized lymph nodes removed from his neck on the 24th at the V.A. (assumming neck dissection) These will again also be…
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Salivary gland cancer-SOS
Hi! My name is Kevin and god really has decided to make cancer a part of my life I guess. Im an 18 year old boy who lives in Florida and need some help and guidance, first I'll give you guys my background. As I kid I grew up in Texas, my mom was diagnosed with colon cancer when I was 2 and she received wonderful treatment…
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Hello...new to this page.
My husband was diagnosed last month with stage 3 tonsil cancer. Metastisized squamous cell carcinoma. After all the appointments with all of the oncologists, he starts on the 19th with chemotherapy and radiation. 35 days of radiation and 7 cisplatin treaments. Although the surgical biopsy isn't back yet they are sure it is…
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Anyone have weird night sweats?
Ruben has recently experienced being chilled to the bone in the middle of the night. He wakes up shivering and can't seem to get warm, all the while, he's sweating. He had one bout of this about two weeks ago, then for the last two nights in a row. Last night's bout lasted longer than the night before. The obvious thing is…
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Swelling, Infection and Body Itching
My father had his 5th surgery for oral squamous cell carcinoma of the mouth , gingiva and lip. He also had a segmental mandibulectomy and his right lower jaw was reconstructed with a bone from his leg. He is 58 and has high sugar. After his surgery, he had an infection marked by pus, swelling and redness in his leg and…
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CSN ~ Back Up & Running....
Looks like CSN had alittle malfunction for a day.... Not sure of all of the specifics, but we are back and running... I PM'd Greta late last nite, eraly this morning to let her know something was up... As Jan sent me a SN email to let me know she couldn't start a post. It looks like nobody good... Anyways, Greta got right…
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Update on Friend's Husband
Hi all: Back up and running so we can post now. My friend's husband who just found out about mets to brain begin radiation tx today. The meds the pcp physician gave him have already started reversing the symptoms he was having so he is now feeling better. They see reg. onc. tomorrow. But they did spend the night in their…
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Updating my profile page
Aloha to all. This 78 year old survivor (age that is) and soon to be 79 decided to bring about his smiley face and story to my CSN family. I probably can lay claim to be the oldest in this H&N section. I would like to extend my mahalo (thank you) to all you folks who have shared their experiences. I've learned a lot and…
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PET Scan - Report in short
In short: IMPRESSION: 1 Findings most suggestive of primary left tongue base tumor with metastatic left cervical lymphadenopathy. 2. No distant FDG avid disease. From my Dr.: I do have good news in that it doesn't appear the cancer is outside of the lymph nodes based on the PET scan. No other areas in the body affected.…
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Dry Cough
Since the month long prednisone is almost complete, hubby has been getting hoarse and having a dry cough. The swelling has been coming back somewhat slowly also. Going to start the massage to see if that helps. Anyone have dry cough and hoarsness? Cindy
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Pet Scan Results-Less than stellar
Well, the PET is done and every time I read the report it just seems uglier. Here are some quotes: Evaluation of the chest demonstrates multiple new hypermetabolic foci that are worrisome for malignancy. All of these finding could potentially be inflammatory/infectious; however unless there is a clear cut history of such a…
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Prayer Request
Hi all: Hope all is well with everybody and all survived the cold weather and snow. I was in Gatlinburg with the snow with two friends for the week. It was gorgeous. Okay need your prayers again. Remember me telling about my best friend's husband with lung cancer and their house burned last March and she lost her Dad in…
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Help with mild thrush...
I could of posted this earlier, but now that it's worked 3 times for me, I'm going to share it. This probably wouldn't work for a massive case of Thrush, tho it could bring relief until someone can get to the Dr. for meds. Since December I've had Thrush 4 times...in January I took Diflucon.....but when it came back the end…
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Feels like a miracle - update
It is a glorious day weather wise in the Sunshine state but also in our house. Jim is back to his old self again, old meaning 6 weeks ago. He has gained some strength and he looks good. Planning a trip for some fishing from the bank tomorrow. The nurse is coming at 1:30 today and I am going to have him try getting up while…
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Adenoid Cystic Carcinoma
It it is hard to believe that it has been 3 years since I finished my rads, and so far am cancer free. I thank the Lord for his goodness. My energy has returned mostly. My tastebuds are 90%, things tend to not be as flavorful, and I don't eat many crackers, chips, since they are so dry - sort of like eating sawdust. And I…
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lymphnode is nothing!
i saw my surgeon today for the lymphnode. he did an ultrasound and said it is absolutely NOTHING to worry about. i also asked who i should see for f/u and he said i only need to see him. he also had me cancel the ct that was scheduled for May by the other doctor. i really let my mind run away w/me over this and have…