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Checking in
Just checking in- I have been lurking in the shadows popping in and out just reading posts and just wanted to say hi to everyone. I am coming up on 15 months post treatment and have learned to live with the side effects. I am back to my normal weight. Back in the rat race fully. Biggest side effects remain dry mouth…
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NED! First 3 month post check-up
Well, we had good news today - PET results - wonderful with no hot spots. My husband still has some lumpy lymph nodes but they continue to shrink. For the newbies on this site - it is seven months since he was diagnosed with HPV tonsil cancer and 3 lymph node invovlement. Three cisplatin treatments and seven weeks of…
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speach specialist
Went and seen my speach specialist today and she took x-rays and gave me the ok to start eating soft foods and liquids.Was nice just to swish water arounf my mouth again.We will start next week before the rads so she can teach me the exercises and massaging of throat and tounge to get everything strong again she said she…
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results of ct scan of lungs and neck
just got results of cat scan. lungs look fine. there is a node in the neck that the doctor wants to f/u on so instead of seeing me in June, i have to have another scan in May, then see him right after. darn, that means another IV and blood draw. damn. the doc said he's not too worried about the node but wants to be safe,…
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Treatment plan
Ok, I went to see the oncologists on Friday. Going to have combo chemo and rads. 6 weeks of rads with cisplatin at day 1,22, and 43. I went to the dentist yesterday to get cleared by them. All was good there-thank goodness. Have to go in this week for them to fit me for a mask and also going in for a peg tube-just in case.…
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Update March 4
I haven't been on for awhile and wanted to update all of you on how I was doing - first physically I feel fortunate - I finished my treatments on Jan 17th this year - 7 chemos and 35 rad treatments for tonsil cancer - the last week was the hardest - just a few days shy of the last rad treatment I stopped drinking Ensure…
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NPC second round
My MRI shows that NPC is back after 2 years from treatment. I have an appoint for PET on next Tuesday. Any suggestions, comments and thought for the recurrence. Regards, Neo
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Mojo needed for my Brother
Hello everyone ! My older Brother recently had a FNB of a couple of lymph nodes in his neck. Came back (no cancer cells detected). Which was fabulous ! But these have been swollen for a long time. He doctors through the V.A. here in St. Cloud. He's had an MRI of the brain, as there was blood seen on a previous CT. That all…
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Lung scan
Saw the prostate oncologist today at Penn State Hershey Cancer Institute. Things have not changed much, I have something called persistent prostatitis and am on anti biotics for it but he explained that it is probably always inflamed and will need to ease the inflamation with another prostate drug. So itlooks like I will…
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Calcium, Who Knew?
When I was in the hospital for my laryngetcomy, they couldn't release me until my calcium levels stabilized. Okay - no problem. When I went home, I took the supplements. After 5 weeks, I followed through with my primary care to get them tested, but never heard back from him. Hmmm. Anyway - started throwing up 4-5 times a…
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Video swallow
I went for a video swallow test today. the blue dye water stopped in my lower throat. they say probably my sphincter muscle isn,t opening to let the food down. I have now to wait till the tests are sent to my onc team. I was told it's too close to rads for any invasive treatment so don't know what will happen. I,m…
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Never thought I'd be here again
So once again we get some frantic news from our Radiologist. Sorry my terms are a bit fuzzy after 3 years. Said she saw something but won't say what it was. Consulted with another doctor and they recommended a pet scan and some other scan again. Needless to say the winds have been knocked out of our sails. She went to see…
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First PET scan since final Radiation in Oct NED!
May 31 2013 i found out i had Squamis cell carsanoma (spelling) and started 9 months of almost hell. I had my last radiation on Oct 29th, first PET Scan end of Jan and It was clear also. I had 3 rounds of Chemo, a blood clot in lower lung, 4 trips a week each spent in hospital for one thing or another. 37 daily mon to…
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2 year anniversary
today is my 2 yr anniversary for laryngectomy surgery to get rid of recurrence. just 3 little more years to go before i can use the word CURED!!! yay me. congrats to those who have already reached that mark and those like me, hang it there, it will be here for us before we know it. yiiiippppppeeee for all of us!! God bless…
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Soreness around PEG tube stoma
After 5 months of pain free PEG stoma I have just developed a shiny deep pink lump to one side of the hole! it's only small but goes half way round the hole? it stings when I move and also leaks slightly! should I be concerned, I put some cream on for sores should I wait and see if it clears or see my GP. I hate goingto…
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Catluver
Has anyone heard from Vicki since her surgery? I know that some people have connected by Facebook. Hopefully no news is good news. I know I am off of the grid when I am on strong meds.
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Insurance crap....
It's beginning to look like I've been thrust into what may be common nowadays. I had my scan in January under the new insurance....remember I had to cancel my appointment, and make a new one in a different town, because the local imaging center wasn't in my network....ok...did that. Also it was pre-authorized by the Drs.'…
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just checking
Just checking in. Waiting in hospital now for brain surgery. Thought it would be very early this morning. Then told 5:30pm today. Now moved up to 3:30pm. Good. Sooner better. Procedure to drain and remove part of fliud filled cyst behind L ear, not deep, not close to brain. About 1 hour surgery. Should provide much needed…
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Chemo Rads or Just Radiation
God Bless you all for sharing! :) I am a 49 yr old Non smoker in excellent shape with a wife and two wonderful children. Then 2 yrs ago I was found to have HNSCC HPV pos They did a modified neck disection and transoral surgery to remove the primary from the base of my tongue. Surgeons thought they'd caught it early enough…
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Offloading thoughts
In my "about me" I wrote that my Dad was diagnosed with pancreatic cancer one week prior to my being diagnosed with squamous cell carcinoma. Dad did very well, was on hospice the whole time. I made it through surgery, he was doing well, still at home. When I began radiation and the effects started to hit, I could see him…
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experimentale drug
Hi Went today to the doctors to get my game plan for ratiation treatment.I go back Monday to be fitted for my hockey mask and a week later will start them.5 days a week for 6-7 weeks at 10min per session.I won't need chemo but was asked if I wanted to try thier experimental drug.Will take first dose a week before rads…
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a new doctor, MO
i've been a member here for about 2 years. i recall many posts from you guys speaking of your 3 or 4 month check ups with your ent, mo or ro and I had no idea what the mo and ro meant, i just knew i didn't have one of them. you also spoke of being poked, prodded and scoped by the ent at every 3 month check up. again, i…
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birthday present
hello to all on february 24, 2014 i received the best birthday gift..my dad's 2 year petscan was all good with even an improvment in the inflamation in his esophagus! we ended chemo n rad in 10-11..we have had a petscan in 2012 and this one would have been 2013 (we were 2 months behind) i am so happy to get to the two year…
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Dads first pet scan 8 weeks after treatment with hot spots....
My dad had his first pet scan this week 8 weeks post treatment... We met with oncologist at mayo and he said still a spot in the side of the last tumor, a new small one on the other side of the tongue and a new one in the left lung...... What?! How can this be? He just went through horrible brutal treatment and now there…
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New to the forum
Hello, I'm new to the forum and have been reading all the threads. I was just diagnosed with squamous cell cancer in my neck. The primary cannot be found, but I have had 9 lymph nodes removed on the right side of my neck with 2 of them cancerous. Right now I'm starting to go stir crazy waiting to see the oncologists on…
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Fluid in pleural space and PE's
Has anyone developed PE's or fluid in lung or pleural space as a result of long term chemo? I developed 3 PE's around the first of the year, and dissolved by taking Xarelto. Over the last 3 weeks I had 1500 ML drained, and had a Pleur X drain inserted last Thursday. 2000 ML was drained then, followed by 500 ML on Saturday…
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NPC post treatment rhinoscopy
ENT put a camera up my nose to check the tumor. He said it is cleared...nothing out of the ordinary. The tumor is gone!!! Part two will be the PET scan to confirm the objective finding. PM
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green mucous for 1 month
Hi everyone. I need help and advice. Ever since I got the cold/flu a month ago, my nose has been producing greenish thick discharge. It clogs up my nose sometimes. I have to constantly blow it out and it came back in an hour. I've been using the NeilMed and it clears the nose but came back in an hour. I've been out of…
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During radition
Hi has anyone taken vitimins during there radition? Have heard some do help with everything....
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Paendoscopy and dilation
My throat dilation didn't work but they will try again. The good news is it's not throat cancer I did have it on my mind as a friend of mine had cancer that blocked her throat. The surgeon said it is blocked with scar tissue. better luck next time and back to the ensures and PEG tube.