-
Surgery after chemo rad
Hello all my warriors, How are you guys doing,Its been long time i was away from this foroum,as i was with my father during his surgery. Yes my father underwent surgery after Chemo and 35Radiations for T3N2Mo.The surgery underwent fine.It was Total Laryngectomy and partial pharyngectomy with Radical neck dissection.The…
-
Sorry I haven't logged in..
Sorry haven't logged in for awhile. Been down in the dumps I guess. Things just get worse instead of better. Beginning to wonder if I can beat this. Has been one hill after another to climb to get this far. Had hoped I would have finished treatments by now. Did get the * power port * and got the stitches out yesterday. Doc…
-
Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…
-
What IS 'Miracle Mouthwash' ?! :)
Hiyah I keep seeing 'Miracle Mouthwash'. As far as I know, we don't have it over here. But you're all saying it's really good. As you know, I'm going in on 14th November to have even more of my tongue taken away Here is what I do have prescribed, and 'in stock' in my ever bursting medication cupboard: * Xylocaine…
-
stress
I have a question I would really like some feedback on. I have read and now I have met a doctor that said something I have wondered about. That is this. I have seen/heard it said that "anyone" who develops cancer has had some significant stressful event, probably in the last 18 months? Stress kills as surely as does…
-
2 Days Left !!
I only have 2 days left. One more Cisplatan and radiation tomorrow and then one last rad on Friday. Last week I was hospitalized for 2 days from dehydration and at the end of my rope. Mainly I have thrush, peeling neck skin (lizardish). I am without a feeding tube and have survived on Ensure. This last 7 weeks have been…
-
Surthriver Giving Thanks
It is close to Thanksgiving, and I have a lot (a lot, have you ever really thought about that term, I mean really, a lot, what is that....; what is a "lot" anyway?)to be thankful for. First and foremost, I am just happy to be here, and then, I am a surthriver, having been here 14 and change years past my final…
-
Still in hospital
still in hospital 3rd week. I've had endless tests, 4 ct scans, 5 X-rays, the diagnose has been so far dumping syndrome, now ruled out, now they say it's a blockage in the bowel. They've taken that seriously as I'm a PEG feeder and a completely blocked throat. I've had a bag attached to my feeding tube so nothing goes…
-
Passed the 2 year mark- Tonsil Cancer
Hi All, Having passed the 2 year mark was a great relief!!! The best part if this whole experience is that I had my one salivary gland moved to below the center of my chin before the therapy. ....although I can only produce saliva on one side of my mouth.....the surgery was a blessing. Has any one else had the salivary…
-
Cancer and business
I was looking in on an online debate today about cancer and it's business wing. Cancer is a$200 billion a year business. 5 of the participants in the online debate believe there are probably viable cures out there that will never see the light of day because treatment is a fnancial boondoggle. One participant said that…
-
What? I can't hear you.
Hey, I'm curious what you all are doing about hearing loss. I have lost probably 40% of my hearing and am so tired of catching half the conversation, but not as tired as I am of asking people to repeat themselves. Has anyone gotten hearing aids and was it a good idea? S
-
Brilliant presentation on being a survivor
This TED talk is a very insightful presentation about how to view and live as a cancer survivor. Can't be missed. TED TALK
-
Heart is breaking for my 29 yr old pregnant daughter with new diagnosis of stage 4 (?) TSCC.
Hi there. My sweet daughter was diagnosed last week with tongue squamous cell carcinoma. She is 29 and otherwise healthy, HPV-, with no history of smoking or drinking... Apparently this is becoming more common in this demographic. She is married with three little girls, 4,2,and 1, and she's three months pregnant. I am…
-
Ready, set and go!
Started Chemo and radiation on Monday the 10th of November. A 180 minute session of chemo and then radiation for 15 minutes. ( Of course some of the radiation time is getting me in the mask.) Will have 33 radiation treatments and I believe 8 total chemo. So far, so good, only a headache, and dry mouth. Was nice having the…
-
"Scanxiety"
Hi Folks, Tomorrow is yet another scope poke and prod. 19 months out and just about two years since my diagnosis. I'll be on the road at 6am and off to Baltimore. I don't anticipate anything negative as I feel pretty much the same as I have the last 6 months to a year but there's that nagging "scanxiety" digging away at…
-
Taste
Hey everyone, I'm writing because my dad still is having problems tasting foods and finding something that he can tolerate. It has been a year and about 3 months since he finished treatment. I hate this for him and everyone going through it :( We don't take it personal of course, but I just wish there was something that…
-
3 year check up
NED
-
Anticancer
I bought this book yesterday called Anti Cancer by: David Servan-Screiber. I couldn't put it down. I don't believe everything I read but he does make some good points. I think it is worth getting a copy for yourself. Donna
-
SNUC.... Half way through treatment
I'm being treated at the UC Barrett Center. Have not been able to find anyone else with SNUC. I feel positive with my traetment plan, but it would be nice to find some one who has survived this cancer to talk to.
-
Last week of treatment
I am down to my last 3 days of radiation and 1 have more round of chemo (erbitux) on Wednesday and I get ring the bell which half way through I did not know if I was going to make it. Thankfully, I am here, although very beat up, and ready to get on with the healing side of this journey. My mouth is raw and filled with…
-
Radiation question
Hi just about to start radiotherapy 6 weeks 50 grays any idea what the worst sideffects will be had an adenoid cystic cancer in the paritod gland. This seems a smaller dose will it change the sideffects harshness. Thanks
-
checkup results clean :)
the "after 2 months" MRI came clean and beautiful:) i have some fluid in my frontal sinuses due to surgery but they said its fine nothing serious. and they found a smallllll cyst on my liver ! Like a 0.7 cm something on my liver. MRI came 90% clean (not cancer) but will be seeing the Dr. Next week to discuss this issue in…
-
Will the suffering end?!
Hello all. I'm sry its been a while since I last posted. But I was busy trying to get better from rads. But unfortunately 2 weeks ago I got a viral infection. Had fever and nausea. Spent 5 days in the hospital, came home 2 days ago. The funny thing allll tests came clean and good. But the nausea is killliiiinnng me :( ((…
-
MIA - Folks who have not checked back in (ROLL CALL)
The following were enrolled and have not reported back. There are 46 who did not return in 2013 and there are a total of 125 on this list. Adamson 091654, state unk, enrolled January 24, 2011. DX’d HPV-16 neck cancer in January 2011. Tumor removed 01/03/2011. Agatha, Toronto, Canada, enrolled January 4, 2011. DX stage IV…
-
so very sore throat :-(
Hi there, I know I'm in early stages of recovery, it's been 5 weeks since treatment. But could somebody please tell me , how long before there is any sign of the throat healing ? Especially at night, seems to hurt more. Feels like I have something stuck in base of throat and I gag an awful lot especially after brushing…
-
results of ct scan.
well guys i didnot get a NED, i got a its stable. not growing, not shrinking much. so i am still takeing chemo. doctor thinks it will shrink some more if i keep on this erbitux. i am a little bit let down but thankful its not growing. this is just a update on me.
-
You're always on my mind
Three years and twelve days ago, I was where many of you are today...scared, confused and waiting to go into the operating room at The James in Columbus,Ohio. I had been diagnosed in September with a mass ( cancerous ) on my epiglottis and my team, along with myself and family, had chosen to have it removed. I knew there…
-
Can I do it!
With this hole in my gum getting bigger and my wisdom tooth falling out on it's own. . .I've been wondering if I had it in me to do this again. Well, I don't have to guess anymore. I had am MRI and some biopsies last week. Yesterday there were no answers. Today the last biopsy came back, more scc. PET Scan next week and…
-
Thyroid cancer?
Anyone out there dealing with thyroid cancer at the moment? I know there is a board for it but no one seems to be active.
-
Post Treatment Scan
Hubby's post treatment CT scan showed his cancerous node shrunk by 1/2 and they believe what's left of it is dead tumor. Originally they had said he had tumor wrapped around and invading his trachea, in his thyroid, and in various nodes. The doctor didn't see any of that on this CT... It really just addressed one para…