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Out of hospital
After 4 weeks in hospital I'm home. I had a blocked bowel and was dehydrated. I was vomiting internally as my throats blocked and the stomach contents had no where to go. A bag was put on my PEG tube and my stomach drained. It was left on for 10 days. A formula was made for me and I fed through through a vein. I lost 4…
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Scared
I beat Stage 3 Rectal Cancer and now after a "punch out" of a tumor on the base of my tongue I have Stage 4a HPV tongue cancer.
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Expiration date
I know that we don't have an expiration date. I plan on enjoying my days. I have another recurrance in my Maxillary Sinus, scattered, not a well defined tumor. No surgery, no more radiation. I am looking into a trial medicine or a chemo combination to keep the monster at bay. It would be wonderful if it would shrink.…
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What are the x-rays for?
my dad just finished week two of 30 radiation trearments at MSKCC. he is HPV+ SCC BOT. He said he is getting an X-ray once a week but he's not sure hat they are for. Can you detect cancer on an X-ray? What else would the weekly x-Ray be foR? Thanks for your help in advance.....
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Hi to all.
Hi to all, Been kind of quiet for a few days fighting these crazy radiation and chemo effects. I have been reading the posts and to some of you my heart is so sad for what you are dealing with and with others, I am so happy you are finally NED.Or at least finished with these horrid treatments and on the way to healing. And…
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Lack of urination
My first post - but i have read a ton of posts looking for this info.... My husband just finished treatment - 3 Cisplatin / 35 rad for stage IV, HPV positive, primary location not found (occult? - that doesn't seem like the correct word - I am a little weary) Radiation was pretty widespread because of not knowing the…
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PEG Tube
So I had surgery today to have PEG tube put in and had a question for anyone that had this done. I am having fluid come back into the tube. I have not used it yet because can eat and dring at this time but it has filled up the tube approx 12". I was just wondering has anyone else experienced this and if so is this normal?…
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Happy Thanksgiving Day...
...and on this day I went for a PET scan and it came back clean and I welcomed my new friend NED to the house. The side-effects from the rads get me down at times but the news today was most welcome. Ironically on this day of thanks I am given new hope for the future...
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Parted ways with peg tube today.
Hi, Just parted ways with my peg tube an hour ago. It feels so weird not having anything dangling in front of me hahaha. I was weighed first and then bought in to Dietician. I had unfortunately lost another 2 kgs and thought they will definitely not remove it today. But the dietician asked if I used it anymore and I…
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Dry Mouth / Throat
Three months out now from tx of 3 chemos and 35 rads and the dry mouth and throat seem to be getting worse. Have to drink water constantly and of course now have to go to the bathroom constantly. I wake up and it's not too bad but gets progressively worse as the day goes on. By late afternoon and early evening it's…
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Surgery after chemo rad
Hello all my warriors, How are you guys doing,Its been long time i was away from this foroum,as i was with my father during his surgery. Yes my father underwent surgery after Chemo and 35Radiations for T3N2Mo.The surgery underwent fine.It was Total Laryngectomy and partial pharyngectomy with Radical neck dissection.The…
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Sorry I haven't logged in..
Sorry haven't logged in for awhile. Been down in the dumps I guess. Things just get worse instead of better. Beginning to wonder if I can beat this. Has been one hill after another to climb to get this far. Had hoped I would have finished treatments by now. Did get the * power port * and got the stitches out yesterday. Doc…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…
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What IS 'Miracle Mouthwash' ?! :)
Hiyah I keep seeing 'Miracle Mouthwash'. As far as I know, we don't have it over here. But you're all saying it's really good. As you know, I'm going in on 14th November to have even more of my tongue taken away Here is what I do have prescribed, and 'in stock' in my ever bursting medication cupboard: * Xylocaine…
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stress
I have a question I would really like some feedback on. I have read and now I have met a doctor that said something I have wondered about. That is this. I have seen/heard it said that "anyone" who develops cancer has had some significant stressful event, probably in the last 18 months? Stress kills as surely as does…
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2 Days Left !!
I only have 2 days left. One more Cisplatan and radiation tomorrow and then one last rad on Friday. Last week I was hospitalized for 2 days from dehydration and at the end of my rope. Mainly I have thrush, peeling neck skin (lizardish). I am without a feeding tube and have survived on Ensure. This last 7 weeks have been…
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Surthriver Giving Thanks
It is close to Thanksgiving, and I have a lot (a lot, have you ever really thought about that term, I mean really, a lot, what is that....; what is a "lot" anyway?)to be thankful for. First and foremost, I am just happy to be here, and then, I am a surthriver, having been here 14 and change years past my final…
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Still in hospital
still in hospital 3rd week. I've had endless tests, 4 ct scans, 5 X-rays, the diagnose has been so far dumping syndrome, now ruled out, now they say it's a blockage in the bowel. They've taken that seriously as I'm a PEG feeder and a completely blocked throat. I've had a bag attached to my feeding tube so nothing goes…
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Passed the 2 year mark- Tonsil Cancer
Hi All, Having passed the 2 year mark was a great relief!!! The best part if this whole experience is that I had my one salivary gland moved to below the center of my chin before the therapy. ....although I can only produce saliva on one side of my mouth.....the surgery was a blessing. Has any one else had the salivary…
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Cancer and business
I was looking in on an online debate today about cancer and it's business wing. Cancer is a$200 billion a year business. 5 of the participants in the online debate believe there are probably viable cures out there that will never see the light of day because treatment is a fnancial boondoggle. One participant said that…
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What? I can't hear you.
Hey, I'm curious what you all are doing about hearing loss. I have lost probably 40% of my hearing and am so tired of catching half the conversation, but not as tired as I am of asking people to repeat themselves. Has anyone gotten hearing aids and was it a good idea? S
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Brilliant presentation on being a survivor
This TED talk is a very insightful presentation about how to view and live as a cancer survivor. Can't be missed. TED TALK
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Heart is breaking for my 29 yr old pregnant daughter with new diagnosis of stage 4 (?) TSCC.
Hi there. My sweet daughter was diagnosed last week with tongue squamous cell carcinoma. She is 29 and otherwise healthy, HPV-, with no history of smoking or drinking... Apparently this is becoming more common in this demographic. She is married with three little girls, 4,2,and 1, and she's three months pregnant. I am…
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Ready, set and go!
Started Chemo and radiation on Monday the 10th of November. A 180 minute session of chemo and then radiation for 15 minutes. ( Of course some of the radiation time is getting me in the mask.) Will have 33 radiation treatments and I believe 8 total chemo. So far, so good, only a headache, and dry mouth. Was nice having the…
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"Scanxiety"
Hi Folks, Tomorrow is yet another scope poke and prod. 19 months out and just about two years since my diagnosis. I'll be on the road at 6am and off to Baltimore. I don't anticipate anything negative as I feel pretty much the same as I have the last 6 months to a year but there's that nagging "scanxiety" digging away at…
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Taste
Hey everyone, I'm writing because my dad still is having problems tasting foods and finding something that he can tolerate. It has been a year and about 3 months since he finished treatment. I hate this for him and everyone going through it :( We don't take it personal of course, but I just wish there was something that…
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3 year check up
NED
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Anticancer
I bought this book yesterday called Anti Cancer by: David Servan-Screiber. I couldn't put it down. I don't believe everything I read but he does make some good points. I think it is worth getting a copy for yourself. Donna
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SNUC.... Half way through treatment
I'm being treated at the UC Barrett Center. Have not been able to find anyone else with SNUC. I feel positive with my traetment plan, but it would be nice to find some one who has survived this cancer to talk to.
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Last week of treatment
I am down to my last 3 days of radiation and 1 have more round of chemo (erbitux) on Wednesday and I get ring the bell which half way through I did not know if I was going to make it. Thankfully, I am here, although very beat up, and ready to get on with the healing side of this journey. My mouth is raw and filled with…