-
Rang the bell!!!
I made it!! I can't believe it has been the hardest and most surreal 6 1/2 weeks of my life, but I finished the race and got to ring the coveted bell. Never knew how good it felt to ring a bell especially with my wife and kids by myside and a few of my prayer warrior buddies. I am so grateful to have to made it…
-
Out with the Picc, in with the port
Finally got a port after 2 years of on and off with the picc line. Yea no more weekly change of dressings and I can swim and take a normal shower and bath. Gave the doctors a bit of a scare when they put it in. I was mostly awake when they put it in but was wide awake midstream as the doctor had the wire they insert touch…
-
eating disorder. Last treatment July 2012. Teeth breaking off at gums. Throat feels like its closing
Throat cancer
-
Swallowing Issues...
I'm ten weeks out from 35 rads and 3 chemos for BOT. I've had the usual dry mouth and lack of taste issues but have just started experiencing problems swallowing. When I eat or drink I can swallow without difficulties but without anything in my mouth I am starting to experience extreme problems with just the act of…
-
19 radiations done and 11 to go: why do I feel more anxious?
Hello I am very surprised about how I feel: rather than feeling released to get closer to the end of radiation, I am getting anxious about the possible side effects; I have been extremely lucky that so far the side effects have been minimal. During my radiologyst check up, he expressed his surprise on how well I am…
-
More surgery today.... scared.... never seems to end, all this
Here we go again.....
-
Dumping syndrome
For Peg tube users just came home from hospital, iI was in for a week I was in agony all last week, my tummy looked as if I was four months pregnant...still is...I thought I had a spread of cancer but after ct scan and x rays they ruled it out but didn't know what it was until I mentioned to the dietician I get cold sweats…
-
Rang the Bell
Rang the bell, radiation is finished! AND my voice which I lost last Sunday came back today. A good omen. Thank you all for your support, humor, help and inspiration. You make this doable. Forward! :) ~Sonja
-
With sore throat comes a very croaky voice.
It has been approximately 13 weeks since treatment. I know I will still have this sore throat for a while longer. But sometimes my voice gets very very croaky and some days I can hardly talk, almost as if I have a bad cold. Is this normal ? I totally forgot to ask my drs this last week. They seem very happy with my…
-
Menu Suggestions
Hi all, I am just wondering if any of you have any menu suggestions. I am living on scrambled eggs, homemade chicken noodle soup, applesauce, mashed potatoes and mashed squash/sweet potatoes. I have been avoiding dairy, it seems tlo increase mucus. I have four of thirty radiation treatments left, no chemo, a lot of mouth…
-
New procedure to open up esophagus
With so many reports here of folks struggling with constricted or closed throats and now living with PEG for the long haul, I saw this post about a very new experimental treatment that might offer hope to restore swallowing. Click
-
Chemo and radiation..MSKCC recommendation for HPV+
hello! so my dad has recovered from his surgery where they wound up removing all lymph nodes on one side of neck and found verrrrryyy tiny primary tumor site at base of tongue. PET scan before surgery showed no other cancer (didn't detect primary tumor one pet at all). - after a few weeks he found out the cancer was HPV…
-
2 yr check up- Still NED!
Hi Everyone! I know I don't always post topics as much as I use to, but I view everyday and comment when I can. So, I try not to be a stranger....But, I wanted to share the good news!... Kreg has gone for his 2 yr check up today and he still remains NED! For those of you that are not familiar with us, he was diagnosed Aug…
-
PET results
Had another PET yesterday at Mayo, results were good!!!!! Last PET was only 7 weeks ago but always that concern. Next one not for 3 months. Seems like I get an awful lot of PET scans. Maybe because I have had two recurrances. As I was going in the bldg I noticed that I had pulled my gtube out. If it was going to happen,…
-
Should I get PEG tube?
I know it's probably been discussed alot in the past but I wanted to hear from my friends what you think. I haven't been able to eat food for 3 weeks now. I've got 14 rads left and 3 chemo. I've been drinking Ensure. Now I cannot keep it down either. I'm using anti nausea meds every 3 hours and still vomiting up the…
-
Day 4 of RapidArc radiation for low grade parotid gland mucoepidermoid carcinoma...still very anxio
Hello. I am new to the board. So happy to have found it: I feel very alone even if my family is helping a lot. I feel they do not understand what is going on with me and all the talk and chit chat they do to try to distract me, make me angry. I am so sorry for them, but I cannot help myself being the positive and outgoing…
-
testerbens
What are these links posted by testerbens? I'm not clicking on anything!!
-
I have tongue cancer. I think...
Hey there all, so I'm not sure if I should post here or not but I've been having some problems in the last month or so and have been self diagnosing with the help of the ever helpful Dr.Google. I'm sure. 110% that I have tongue cancer, really really sure. I have almost all of the symptoms I can find online and am…
-
Heartburn
having a problem today...all day....sick stomach and my ensure food rushing towards my throat like I'm going to be sick but I have a stricture in my throat and nothing passes. I've taken soluble anti acid tablets and anti sickness medicine but it isn't helping. Every time the acid and food rushes towards my throat it burns…
-
Uveitis and NPC
Hello everyone!! Just wondering if any of you have experienced recurrent Anterior Uveitis (eye inflammation) post treatment? I had a few recurrences last year and now again. The Docs don't seem to know why I'm getting it. Sometimes I think it could be related to the radiation (because everything else seems to be!! ) so was…
-
First Time I Had to use Miracle Mouthwash- A question
Through all the treatments I've been through I've never had bad mouth sores. Got some this time and got Miracle Mouthwash today. My question is, does this stuff actually heal the sores or is it just for the numbing properties? Thanks, Joe
-
Checking IN
Hi all: Haven't forgotten y'all. Never will for that matter! Request prayer requests for dear friend (Debbie) in Chatt. She is dealing with her stepdaughter diagnosed with brain tumor - inoperable, highly malignant and very aggressive. And then her cousin who lives about ten minutes from his wife Jean who has all sorts of…
-
Swollen Epiglottis, when does this heal, its been 9 weeks ???
Hi there, I was getting my throat checked with a camera down the nose almost 2 weeks ago now. Was told that everything was fine and throat was healing well but my epiglottis is still swollen. Im assuming this is what gives me the feeling of something stuck in my throat ? It has now been about 9 weeks since my treatment…
-
Update on "HAWVET"
My Dad "HAWVET" asked me, his daughter Shirley, to make sure that I sent all of you his goodbyes when he passed. He considered you friends and obviously held you in high regards. We miss him terribly right now and thank you for all of your prayers and support!!
-
Prayer request for my husband
My husband picked me up from rehab Friday and at 4am Satirday morning suffered a stoke. Thanfull I was home with him. Hospital did not give him antidote because they thought he was on blood thinner. Turns out he was not. He is in ICU and struggling. He is my love of 35 years and my world. Please include him in your prayers.
-
Mouth sores from 5fu
I'm looking for others who have had 5fu treatments I've had one treatment with the infusion removed last Saturday. The mouth sore are really severe. Not so much pain, but not able to eat, brush, and even open mouth very wide. What have others done to releave this side effect?
-
Anybody use/need Gravity Bags for PEG tube?
I have been off the feeding tube since Feb, and had it removed in March. I have a month supply of gravity bags that I do not need. The cancer center won't take them. If you could use them, private message me. I will ship to US addresses. Thanks! Lorna 2007 & 2014
-
Can Radiotherapy affect your hearing?
Bilateral, 60 gy x 36. Halfway up face and back of head.
-
Found a peanut, found a peanut
Found a peanut, found a peanut just now. Remember that childhood song. Well I have been singing that song since Tuesday. Four plus years ago they found a place on my mothers left lung and wanted to biopsy it but she refused. Fast forward to this summer. Spot is now the size of a quarter and she is spitting up blood. She…
-
Esophageal problems
Need some input please....I am dealing with radiation damage to my esophagus and am wondering f anyone who has experienced the same could let me know at what point were you ble to swallow solid food and what did you begin with. Ive had 8 EGD procedures to help with the stricter in my throat. After my second Barium swallow…