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Esophageal problems
Need some input please....I am dealing with radiation damage to my esophagus and am wondering f anyone who has experienced the same could let me know at what point were you ble to swallow solid food and what did you begin with. Ive had 8 EGD procedures to help with the stricter in my throat. After my second Barium swallow…
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Stanford
I head off to Stanford tomorrow. I received a letter stating that they would accept whatever my insurance would pay, I am afraid it will be $0. The hole in my jaw has gotten bigger, a crown popped off and my wisdom tooth fell out last week. There is still an opening from mouth to sinus and a small opening in the scar from…
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Flu shot?
Did anyone refuse the Flu shot? Doc seemed unhappy with me that I don't want it. I have only had the Flu once and that was years ago. Is there any benefits to would want me to change my mind? Prayers and Hugs ! Kritter
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Been a while
Hi Folks, It's been a long while since I posted or participated on the forum. I want to extend my apologies for my lack of communication. I participated quite a bit before, during and immediately after my diagnosis and treatment. I recieved a Facebook post asking about myself and Marcia. It basically inquired as to how we…
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Skiffinator...
Just a quick update..., sorta.. I'm still hanging in there full of hope... I had an abcess pop up, very slowly near one of the original drain sites... That was pretty painful.., got some antibiotics and pain meds for that, and it's on the mend. Not much new on the leky hole as of yet... I am scheduled to see my Gastro MD…
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Itching
It feels great to have more radiation sessions behind me (17) then in front of me (13)! :) It is going ok, mouth and throat sores but manageable with all the great advice from the CSN. I don't know if I missed it on the discussion boards but has anyone else experienced itching on the radiation sites? My neck and ears itch…
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Sable1 does Happy Dance
Dear All: 6 month post pet scan behind me now. Wow, what a two week scananziety attack! My Pet Scan showed no cancer. Amen! I was so mentally and physically tired that I litterally slept the whole weekend. Taken Lorazpan definitely helped me get through it, though, the rad dr. wasn't to enthused to see me so calm on a…
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Question on tongue sensitivity
Hi all On day 11 of 14 golfing in Scotland, nice to finally get away after 3 years of hell. I never lost saliva and my taste seems to be 120% of normal as flavors are amplified now though some have changed. Orange juice can burn and some red tomatoe sauces do the same. All carbonated beverages burn plus all alcohol. The…
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rads/chemo vs surgery
Now I am very worried. I finished rads/chemo 9 wk ago. I was initially given a choice of rads/chemo or surgery. Drs though did advise me against surgery saying it could affect my speech. Ive now read a post on here where surgery is the better option, picking the other, you end up with problems as a result of rad/chemo the…
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quick hello and thank you
Hi, I'm starting chemoradiation on Monday, and although I just registered on this forum, I've been lurking for a couple of weeks on and off as I do research on what I'm up against. So by way of introduction... My name is Siobhan and I was diagnosed in early September with squamous cell carcinoma in my neck via a fine…
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Day 4 of radiation: DONE. Hope to relax for the week-end
Hello all so today I took some pills to calm me down during treatment and I think it helped as I did not have any panic attack. There are few things I have experienced for the first time: is it again do to me being anxious or is it do to radiation? 1) when I finished the 10 min session, I got up and had pain through my…
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Prayers and positive MOJO for lung tap tomorrow
I had to skip 2 of my Cisplatin treatments while having to return to St. Louis as my dad passed away. Recent CT shows an increase in my of fluid in both pleural spaces. A drain will relieve my increases SOB, buyy Oncologist main concern is no cancer cells present in the fluid. I'm not too worried as I have already had 7…
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Tijuana Mexico
A close friend who is a cancer survivor underwent radiation and chemo and then traveled to Tijuana for alternative homeopathic medicine. It is an all natural approach with treatment lasting a week, he went every 3 months for the first year and then every 6 months, now he goes annually but uses the recipes (not products)…
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Denist for Dentures
Hey Gang went to see my doctor friday for a check up.He said everything looks very good.He liked how I have gained some weight back and the way everything is healing.He said the tounge flap looks very good.Even took pictures for a class he teach's at the clinic.Anyway we talking and I asked about dentures.He said lets wait…
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Skiff Update ~ 22 OCT 2014
This past Friday, I had another procedure, similar to an endoscopy.. They went in and removed a 3 - 4" stent that was put in during the original surgery in April. I guess it had moved from the original place, and has been moving around in my stomach... I felt instantly better (once back awake and kicking..) ... No more…
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biopsy from lesion hypopharynx
Hi.... Biopsy from Lesion Hypopharynx of my Father-In-Law (aged 63) has been stated to have "Multiple pieces of greyish friable tissue with all pieces embeded:. Microscopical Section Examination shows "moderately differentiated infiltrating sqamous cell carcinoma". Impression is "moderately differentiated infiltrating…
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I'm just going to ask. .no pussyfooting... it there any chance we will resume our sex life again? ?
I miss being intimate and I feel so guilty for missing it. We can't talk about it certainly not easily. ..l hate to complain a in and I shouldn't. . But I do miss our lives. .mind you it had diminished for over year before. . Even a few years it has decreased. .dunno b it makes akes me guilty sellfish..
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Update
I had surgery 09/19 a pectoral flap. Titanium was removed and fibula placed in 2012 saved. Follow up showed fistula still present. Suggested g tube and nothing by mouth and hyperbsrics. felt it would heal but months not weeks. came back to STL to get tube. Unable to tolerate jevoty. Hospitalized again. Doing ok now on…
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choices -- scc bot hpv+
I was diagnosed with Stage 3 (T1, N1, M0) scc on base of the tongue HPV 16 +. I am hearing from the doctors there are two choices. 1: Seven weeks of radiation (no chemo), or 2: robotic surgery of the tumor along with removal of all nodes on one side of the neck (if any of the small nodes are found to have cancer though,…
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Scared to death- 1st after treatment pet
my scan half way through showed uptake (new) in breast and lungs. long story short, but I have pTsd and right now I'm freaking not just about new cancer, old cancer cured, the hour drive there, the claustrophobia of the machine., having a panic attack there, you name it, I'm scared! I want to just cry
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Eagle Project to help Head & Neck Cancer Patients Finished, Comfort Tips For Head & Neck Cancer Pat
I am doing the final part of my Eagle Project. I habe finished the survey and created this list of foods and care items that other Head and Neck Cancer patients have found helpful in your treatment. I had promised to post the information collected, so here it is. Comfort Tips For Head & Neck Cancer Patients Food, Nutrition…
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My attendence
My attendence in our unique room has been poor lately thanks to my demanding job. Recently, nobody wanted my job which means no one ran against me or anyone else on my team so I am back in office for another 3 years. I was just up in Bostom Mass. in Trutee classes most of last week and I should have asked who was close by…
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Re-posting this ..from ERTHWLKR
Re-posting this for ERTHWLKR hoping he can get some replies as it was buried in my thread about Flu shots.. High potency flu shot and laryngectomyNew Hi Patrick and all: I'm trying to find some backup for the statement that laryngectomy patients should get the high potency flu shot. Is this due to a higher susceptibility…
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Head and neck and sex
this may be of interest........htt://www.carepages.com/cancer/head-neck-cancer-and-sex.html
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NPC - post treatment clogged ears
Does anyone still get clogged ears now and than even after treatment for NPC? Please share cause I am having it now on one side and very worried. Any suggestions to clear the ear?
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Just thought I would share this...Blowing up a balloon
No blowing up a balloon is not a big deal to most people. To me it is a very big deal, I am a laryngectomee, a neck breather and have no vocal cords and can't breathe through my nose or hold my breath. I do have a TEP which is a prosthsis in my neck [just under 6mm] that lets me divert air to my throat so I can talk.…
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Cisplatin 3X or Weekly
Hello everyone, i am am really happy to have found this board, my level of anxiety has dropped a bit! I was diagnosed with Stage 4 HPV+ first week of September with lymph node extensions. I had robotic surgery on September 15 to take the base of tongue tumor out and dual neck surgeries to remove impacted lymph nodes. The…
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Dental Implants
Just wanted to share happy news! My husband is on his way as I type this to have his new teeth put into place on his dental implant posts. He is beyond excited. He was diagnosed in December 2012, so this has been a long time coming. I feel like we have rounded a corner against this hideous disease. I pray for you all daily…
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Great wife, mum and family
From day one my wife, mum, dad, sisters and my dear brother in law had been there for me and i am so grateful to have such loving and caring family. they are the greatest people in my life.
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Need to go for surgery to remove growth under tongue
Been having various symptoms lately after my past 6 months post treatment for NPC, like buttocks pain on one side of my leg right down to my knees, one of my ear is now clogged up again, which the doc said it’s just side effects and finally, there is a 1.5cm growth under my tongue. Seen my ENT doc today and he was…