Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Rang the bell!!!
I made it!! I can't believe it has been the hardest and most surreal 6 1/2 weeks of my life, but I finished the race and got to ring the coveted bell. Never knew how good it felt to ring a bell especi…
19 views
10 comments
0 point
Started by Bulldogger1
Most recent by debbiejeanne
Nov 18, 2014
Head and Neck Cancer
Out with the Picc, in with the port
Finally got a port after 2 years of on and off with the picc line. Yea no more weekly change of dressings and I can swim and take a normal shower and bath. Gave the doctors a bit of a scare when they …
25 views
4 comments
0 point
Started by Jeff2159
Most recent by debbiejeanne
Nov 18, 2014
Head and Neck Cancer
eating disorder. Last treatment July 2012. Teeth breaking off at gums. Throat feels like its closing
Throat cancer
13 views
3 comments
0 point
Started by Miracle1953
Most recent by debbiejeanne
Nov 18, 2014
Head and Neck Cancer
Swallowing Issues...
I'm ten weeks out from 35 rads and 3 chemos for BOT. I've had the usual dry mouth and lack of taste issues but have just started experiencing problems swallowing. When I eat or drink I can swallow wit…
1 views
3 comments
0 point
Started by JC F
Most recent by debbiejeanne
Nov 18, 2014
Head and Neck Cancer
19 radiations done and 11 to go: why do I feel more anxious?
Hello I am very surprised about how I feel: rather than feeling released to get closer to the end of radiation, I am getting anxious about the possible side effects; I have been extremely lucky that s…
8 views
5 comments
0 point
Started by Moki
Most recent by debbiejeanne
Nov 18, 2014
Head and Neck Cancer
More surgery today.... scared.... never seems to end, all this
Here we go again.....
25 views
14 comments
0 point
Started by Anonymous7/6/2023
Most recent by debbiejeanne
Nov 18, 2014
Head and Neck Cancer
Dumping syndrome
For Peg tube users just came home from hospital, iI was in for a week I was in agony all last week, my tummy looked as if I was four months pregnant...still is...I thought I had a spread of cancer but…
3 views
9 comments
0 point
Started by jackflash22
Most recent by debbiejeanne
Nov 18, 2014
Head and Neck Cancer
Rang the Bell
Rang the bell, radiation is finished! AND my voice which I lost last Sunday came back today. A good omen. Thank you all for your support, humor, help and inspiration. You make this doable. Forward! :)…
2 views
7 comments
0 point
Started by Sonja.K
Most recent by debbiejeanne
Nov 18, 2014
Head and Neck Cancer
With sore throat comes a very croaky voice.
It has been approximately 13 weeks since treatment. I know I will still have this sore throat for a while longer. But sometimes my voice gets very very croaky and some days I can hardly talk, almost a…
3 views
5 comments
0 point
Started by Robyn64
Most recent by D Lewis
Nov 16, 2014
Head and Neck Cancer
Menu Suggestions
Hi all, I am just wondering if any of you have any menu suggestions. I am living on scrambled eggs, homemade chicken noodle soup, applesauce, mashed potatoes and mashed squash/sweet potatoes. I have b…
3 views
9 comments
0 point
Started by Sonja.K
Most recent by PJ47
Nov 14, 2014
Head and Neck Cancer
New procedure to open up esophagus
With so many reports here of folks struggling with constricted or closed throats and now living with PEG for the long haul, I saw this post about a very new experimental treatment that might offer hop…
54 views
12 comments
0 point
Started by donfoo
Most recent by luv4lacrosse
Nov 13, 2014
Head and Neck Cancer
Chemo and radiation..MSKCC recommendation for HPV+
hello! so my dad has recovered from his surgery where they wound up removing all lymph nodes on one side of neck and found verrrrryyy tiny primary tumor site at base of tongue. PET scan before surgery…
11 views
5 comments
0 point
Started by Katie10485
Most recent by CivilMatt
Nov 11, 2014
Head and Neck Cancer
2 yr check up- Still NED!
Hi Everyone! I know I don't always post topics as much as I use to, but I view everyday and comment when I can. So, I try not to be a stranger....But, I wanted to share the good news!... Kreg has gone…
5 views
17 comments
0 point
Started by cureitall66
Most recent by cureitall66
Nov 10, 2014
Head and Neck Cancer
PET results
Had another PET yesterday at Mayo, results were good!!!!! Last PET was only 7 weeks ago but always that concern. Next one not for 3 months. Seems like I get an awful lot of PET scans. Maybe because I …
12 views
13 comments
0 point
Started by hwt
Most recent by cureitall66
Nov 10, 2014
Head and Neck Cancer
Should I get PEG tube?
I know it's probably been discussed alot in the past but I wanted to hear from my friends what you think. I haven't been able to eat food for 3 weeks now. I've got 14 rads left and 3 chemo. I've been …
131 views
29 comments
0 point
Started by Shell_7801
Most recent by donfoo
Nov 10, 2014
Head and Neck Cancer
Day 4 of RapidArc radiation for low grade parotid gland mucoepidermoid carcinoma...still very anxio
Hello. I am new to the board. So happy to have found it: I feel very alone even if my family is helping a lot. I feel they do not understand what is going on with me and all the talk and chit chat the…
84 views
27 comments
0 point
Started by Moki
Most recent by tjheron
Nov 10, 2014
Head and Neck Cancer
testerbens
What are these links posted by testerbens? I'm not clicking on anything!!
5 views
1 comments
0 point
Started by TracyLynn72
Most recent by KTeacher
Nov 9, 2014
Head and Neck Cancer
I have tongue cancer. I think...
Hey there all, so I'm not sure if I should post here or not but I've been having some problems in the last month or so and have been self diagnosing with the help of the ever helpful Dr.Google. I'm s…
3934 views
43 comments
0 point
Started by Aimee92
Most recent by wmc
Nov 8, 2014
Head and Neck Cancer
Heartburn
having a problem today...all day....sick stomach and my ensure food rushing towards my throat like I'm going to be sick but I have a stricture in my throat and nothing passes. I've taken soluble anti …
56 views
7 comments
0 point
Started by jackflash22
Most recent by josh r.
Nov 7, 2014
Head and Neck Cancer
Uveitis and NPC
Hello everyone!! Just wondering if any of you have experienced recurrent Anterior Uveitis (eye inflammation) post treatment? I had a few recurrences last year and now again. The Docs don't seem to kno…
3 views
6 comments
0 point
Started by paula002
Most recent by paula002
Nov 6, 2014
Head and Neck Cancer
First Time I Had to use Miracle Mouthwash- A question
Through all the treatments I've been through I've never had bad mouth sores. Got some this time and got Miracle Mouthwash today. My question is, does this stuff actually heal the sores or is it just f…
20 views
11 comments
0 point
Started by jcortney
Most recent by fishmanpa
Nov 5, 2014
Head and Neck Cancer
Checking IN
Hi all: Haven't forgotten y'all. Never will for that matter! Request prayer requests for dear friend (Debbie) in Chatt. She is dealing with her stepdaughter diagnosed with brain tumor - inoperable, hi…
4 views
3 comments
0 point
Started by Jan Trinks
Most recent by jim and i
Nov 3, 2014
Head and Neck Cancer
Swollen Epiglottis, when does this heal, its been 9 weeks ???
Hi there, I was getting my throat checked with a camera down the nose almost 2 weeks ago now. Was told that everything was fine and throat was healing well but my epiglottis is still swollen. Im assum…
57 views
9 comments
0 point
Started by Robyn64
Most recent by Gabba3t
Nov 3, 2014
Head and Neck Cancer
Update on "HAWVET"
My Dad "HAWVET" asked me, his daughter Shirley, to make sure that I sent all of you his goodbyes when he passed. He considered you friends and obviously held you in high regards. We miss him terribly …
177 views
30 comments
0 point
Started by HAWVET
Most recent by Noellesmom
Nov 2, 2014
Head and Neck Cancer
Prayer request for my husband
My husband picked me up from rehab Friday and at 4am Satirday morning suffered a stoke. Thanfull I was home with him. Hospital did not give him antidote because they thought he was on blood thinner. T…
3 views
19 comments
0 point
Started by hwt
Most recent by Noellesmom
Nov 2, 2014
Head and Neck Cancer
Mouth sores from 5fu
I'm looking for others who have had 5fu treatments I've had one treatment with the infusion removed last Saturday. The mouth sore are really severe. Not so much pain, but not able to eat, brush, and e…
128 views
8 comments
0 point
Started by Packer fan
Most recent by ptom
Nov 2, 2014
Head and Neck Cancer
Anybody use/need Gravity Bags for PEG tube?
I have been off the feeding tube since Feb, and had it removed in March. I have a month supply of gravity bags that I do not need. The cancer center won't take them. If you could use them, private mes…
2 views
0 point
Started by lornal
Nov 1, 2014
Head and Neck Cancer
Can Radiotherapy affect your hearing?
Bilateral, 60 gy x 36. Halfway up face and back of head.
26 views
9 comments
0 point
Started by Anonymous7/6/2023
Most recent by Duggie88
Nov 1, 2014
Head and Neck Cancer
Found a peanut, found a peanut
Found a peanut, found a peanut just now. Remember that childhood song. Well I have been singing that song since Tuesday. Four plus years ago they found a place on my mothers left lung and wanted to bi…
5 views
12 comments
0 point
Started by jim and i
Most recent by Hondo
Oct 31, 2014
Head and Neck Cancer
Esophageal problems
Need some input please....I am dealing with radiation damage to my esophagus and am wondering f anyone who has experienced the same could let me know at what point were you ble to swallow solid food a…
21 views
4 comments
0 point
Started by CrimsonRacing
Most recent by thennies61
Oct 31, 2014
Head and Neck Cancer

Head and Neck Cancer

Head and Neck Cancer

Rang the bell!!!

Out with the Picc, in with the port

eating disorder. Last treatment July 2012. Teeth breaking off at gums. Throat feels like its closing

Swallowing Issues...

19 radiations done and 11 to go: why do I feel more anxious?

More surgery today.... scared.... never seems to end, all this

Dumping syndrome

Rang the Bell

With sore throat comes a very croaky voice.

Menu Suggestions

New procedure to open up esophagus

Chemo and radiation..MSKCC recommendation for HPV+

2 yr check up- Still NED!

PET results

Should I get PEG tube?

Day 4 of RapidArc radiation for low grade parotid gland mucoepidermoid carcinoma...still very anxio

testerbens

I have tongue cancer. I think...

Heartburn

Uveitis and NPC

First Time I Had to use Miracle Mouthwash- A question

Checking IN

Swollen Epiglottis, when does this heal, its been 9 weeks ???

Update on "HAWVET"

Prayer request for my husband

Mouth sores from 5fu

Anybody use/need Gravity Bags for PEG tube?

Can Radiotherapy affect your hearing?

Found a peanut, found a peanut

Esophageal problems

Welcome!

Quick Links

Discussion Boards

Head and Neck Cancer

Head and Neck Cancer

Discussion List

Welcome!

Quick Links

Discussion Boards