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Tonsil Cancer 2 Year Check Up....NED
Just wanted to give some encouraging news to those currently fighting tonsil cancer. I just had my 2 year post treatment checkup (scope of throat and CT scan). NED!! It's hard to believe that it has been 2 years since I was in treatments. I was just finishing up right before Christmans 2 years ago. It was really hard, at…
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Ned 3 year CT Scan
Good news....A few wees back I had my 2.5 year CT Skan and it was NED. In addition, the doctor at MD Anderson moved me from the "Cancer Patient" group to the "Cancer Survivor Group" IT was a fabulous today and today is my 56th birthday...hoping for many more. You guys really have helped me get throught the tought times.…
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Rang the bell!!!!!!!
After a week of break due to an extended Thanksgiving vacation and few days to recover from swelling of the alloderm they put in during surgery, I finally rang the bell today! It has been a very challenging journey, especially emotionally, but I learned a lot about myself and also it gave me a new perspective about family…
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Think I'm sorted
after a long month with weeks in hospital I think I'm finally sorted. I was taken into hospital after my stomach ballooned out and I was in agony with trapped gas. My bowel blocked and I have a complete stricture in the throat and couldn't pass the gas. I started to vomit but that couldn't get out and for days stayed…
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Update.. Bad Trip
Talked with ONC Doc yesterday, he was speechless when he first walked into the room, and sat and looked at me for a few minutes. Said I am not the only most complicated case he has dealt with, but also the erbitux rash, one of the worst he has seen. He was grumpy about my weight, but I told him my * jeans* were happy, and…
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Radiation starts tomorrow
Hi, I am new here. I have a high grade MEC of submandibular gland, but stage 1 with extensive perineural invasion. My radiation treatment starts tomorrow. * Does anyone have experience with neutron radiation? * Also, my medical oncologist is currently not recommending chemotherapy even though this is high grade. Apparently…
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New with questions
Hi, In Sept my husband was diagnosed with nasopharyngeal squamous cell carcinoma. After induction chemo with cisplatin, FU5 and taxotere (3 rounds), yesterday he started radition (he will have 38 sessions). I am so thankful for the discussion boards. I have read many posts and gotten lots of good ideas. Though, I have two…
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Holidays
Merry Christmas and Happy New Year to all. Update: Yesterday, Dec 24, I ended up in ER, dehydrated. They gave me a full bag of fluids and a lot of liquid potassium in my PEG tube. Later in the day it did help stop the numbness I was feeling, the vomiting, diarrhea, can't say I miss the diarrhea, vomiting, but do miss the…
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Happy Holidays
I just want to say thank you all for being a part of CSN and staying to help the many other who are new to this site get through there treatment and become survivors. I also want to just take a few minutes and pray for all who are still running the race headed to the finish line of there treatment. Keep going don’t give…
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Just checking in
Haven't posted in awhile but you all are always on my mind. My time has been consumed with my husband following his stroke late October. He was hospitalized a week then went to acute rehab then to skilled nursing for less intense rehab, then he took a fall requiring stiches in his leg and another week in the hospital where…
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Pneumonia a 3rd time
For some reason I can seam to kick this Pneumonia problem about two weeks ago I got rid of it and it is back again. I remember Denny always having this same problem every few months and always having to go back to the hospital. I am glad that the doctor can treat it with just injections of antibiotic and not having to keep…
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Skiffin16 - On The Mend...
Well, so far so good.... It's been two weeks since I was released from the hospital and so far so good... Eating is slowly coming back, but down a total of 97# since this all started in April 22... Just wanted to give a quick update, and wish everyone here a Happy upcoming New Year... John
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Dead Tongue- Speech Therapy?
Has anyone had success with speech therapy for a "dead tongue"... (neck dissection/radiation)... This has progressed over the past few years where speech is greatly impacted.. any success? ideas?
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Merry Christmas...
Well... I went back in for surgery 12/11, I seriously under estimated it though. A lot more pain than anticipated.., grateful for Dilaudid.. I ended up being in for five days, that was after cleaning out twice..., thanks to my insurance...uggg. Then NPO and TPN for three of those (no food or water by mouth)..., so all in,…
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New With Questions
Hi Eveyone, My husband was just diagnosed with SCC. He first noticed a lump on the side of his neck. They did a biopsy and it came back with SCC. He then had a PET scan which the doc said didn't really show much. He had a quadroscopy and was told that they didn't see anything visually except very small irregularities to…
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Pain and tenderness
i had state 3 squamous cell base of tongue that metastasized to a lymph node. Treatment was 40 rounds of rads which ended at end of August. Pet scan in October and Ned. I never had pain in the lymph node area until 4 days ago, neck feels very tender in that spot, I can't stop feeling around and am making myself nuts! I'm…
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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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Just a Merry Christmas to all;
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A healthy, happy Christmas
Sending you all love x
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Skiffin16 - Update December 2014
Just an update as Tim, and a few inquired... First and foremost, Merry Christmas upcoming... You are family... I haven't been posting much as I'm still trying to recover from the Whipple in April... It's been a battle, but overall I'm pretty good... I've lost a total of 77#, but finally stabled out..., and I'm not…
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Nerve damage post radiation / chemo
I finished radiation & chemo early September For tongue cancer. since finishing treatment, I've developed what my doctor believes is nerve damage to my tongue. It's on the opposite side that was treated. I have pain along the side of my tongue in different areas. My doctor has referred me to a pain management specialist.…
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Teeth
Hi guys, Just wondering about teeth.It will bw kinda far off but still thinking about.When the time comes and I go for dentures will my insurance cover it since they were removed during surgery?I do have dental but not sure just how much it will cover.
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Dawn
Anyone know how Dawn (Sweetblood) is doing?
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Decision Time
Well, I thought I'd start a new thread as the other one was getting kind of long. I am now at the point of making my treatment decision. I have met (multiple times) with ENTs and once with Radiation Oncologist about my specific situation. They took my case to their cancer board and both doctors agree that I have two paths…
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Sore Throat Advice Needed
Have any of you dealt with a constant sore throat for 12 weeks after radiation? When did it finally go away? It's so bad Hydrocodone doesn't help and neither have any of my onc's suggestions. It hurts to eat and talk. Thanks!
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Checking in and Merry Christmas UPDATE
Haven't been on the board since the beginning of the month. Back then I noticed how few post there were compared to last year at this time. I guess as treatment finishes and NEDs are given people tend to focus elsewhere. I am happy for that but hope they check in at least once a year to give those just starting the fight…
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Dentures
Hi everyone..went to see my surgen for my bi monthly check up.He said everything is healing nicely and the swelling with the tounge flap is just about gone.Can feel hot and cold which he said was a good sign.But still don't have much feeling along sides of face.It's more of a numb feeling now instead of nothing.He told me…
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Tongue pain post radiation / chemo Help?
I finished radiation and chemo treatment September 5, 2014, left side tongue cancer. Mouth sores have healed and am doing well on that aspect. Both post scans have been clear. My issue is I now have tongue pain on the right side of my tongue. The ENT has checked me several times. No cancer or sores on the tongue, just…
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Bad trip !
I should get on more and keep better track of all you sweet people on here and I hope things will get better for all of us in our own time. I do think of each of you even though I may not be online. What a trip, and I don't mean in a good way. This last two weeks has totally been a nightmare. My face is swollen, burnt,…
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Has anybody ever heard of Geographic Tongue ?
Not long after my treatment finished on 8th August , I had a really bad case of Mucositis. It eventually became Thrush, with white spots on the back of my tongue. Was given Caphosol for free to try as its not on the market here yet, so thought this would clear, nope. During the last few months , was also given Nilstat.…