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Pneumonia a 3rd time
For some reason I can seam to kick this Pneumonia problem about two weeks ago I got rid of it and it is back again. I remember Denny always having this same problem every few months and always having to go back to the hospital. I am glad that the doctor can treat it with just injections of antibiotic and not having to keep…
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Skiffin16 - On The Mend...
Well, so far so good.... It's been two weeks since I was released from the hospital and so far so good... Eating is slowly coming back, but down a total of 97# since this all started in April 22... Just wanted to give a quick update, and wish everyone here a Happy upcoming New Year... John
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Dead Tongue- Speech Therapy?
Has anyone had success with speech therapy for a "dead tongue"... (neck dissection/radiation)... This has progressed over the past few years where speech is greatly impacted.. any success? ideas?
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Merry Christmas...
Well... I went back in for surgery 12/11, I seriously under estimated it though. A lot more pain than anticipated.., grateful for Dilaudid.. I ended up being in for five days, that was after cleaning out twice..., thanks to my insurance...uggg. Then NPO and TPN for three of those (no food or water by mouth)..., so all in,…
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New With Questions
Hi Eveyone, My husband was just diagnosed with SCC. He first noticed a lump on the side of his neck. They did a biopsy and it came back with SCC. He then had a PET scan which the doc said didn't really show much. He had a quadroscopy and was told that they didn't see anything visually except very small irregularities to…
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Pain and tenderness
i had state 3 squamous cell base of tongue that metastasized to a lymph node. Treatment was 40 rounds of rads which ended at end of August. Pet scan in October and Ned. I never had pain in the lymph node area until 4 days ago, neck feels very tender in that spot, I can't stop feeling around and am making myself nuts! I'm…
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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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Just a Merry Christmas to all;
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A healthy, happy Christmas
Sending you all love x
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Skiffin16 - Update December 2014
Just an update as Tim, and a few inquired... First and foremost, Merry Christmas upcoming... You are family... I haven't been posting much as I'm still trying to recover from the Whipple in April... It's been a battle, but overall I'm pretty good... I've lost a total of 77#, but finally stabled out..., and I'm not…
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Nerve damage post radiation / chemo
I finished radiation & chemo early September For tongue cancer. since finishing treatment, I've developed what my doctor believes is nerve damage to my tongue. It's on the opposite side that was treated. I have pain along the side of my tongue in different areas. My doctor has referred me to a pain management specialist.…
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Teeth
Hi guys, Just wondering about teeth.It will bw kinda far off but still thinking about.When the time comes and I go for dentures will my insurance cover it since they were removed during surgery?I do have dental but not sure just how much it will cover.
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Dawn
Anyone know how Dawn (Sweetblood) is doing?
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Decision Time
Well, I thought I'd start a new thread as the other one was getting kind of long. I am now at the point of making my treatment decision. I have met (multiple times) with ENTs and once with Radiation Oncologist about my specific situation. They took my case to their cancer board and both doctors agree that I have two paths…
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Sore Throat Advice Needed
Have any of you dealt with a constant sore throat for 12 weeks after radiation? When did it finally go away? It's so bad Hydrocodone doesn't help and neither have any of my onc's suggestions. It hurts to eat and talk. Thanks!
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Checking in and Merry Christmas UPDATE
Haven't been on the board since the beginning of the month. Back then I noticed how few post there were compared to last year at this time. I guess as treatment finishes and NEDs are given people tend to focus elsewhere. I am happy for that but hope they check in at least once a year to give those just starting the fight…
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Dentures
Hi everyone..went to see my surgen for my bi monthly check up.He said everything is healing nicely and the swelling with the tounge flap is just about gone.Can feel hot and cold which he said was a good sign.But still don't have much feeling along sides of face.It's more of a numb feeling now instead of nothing.He told me…
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Tongue pain post radiation / chemo Help?
I finished radiation and chemo treatment September 5, 2014, left side tongue cancer. Mouth sores have healed and am doing well on that aspect. Both post scans have been clear. My issue is I now have tongue pain on the right side of my tongue. The ENT has checked me several times. No cancer or sores on the tongue, just…
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Bad trip !
I should get on more and keep better track of all you sweet people on here and I hope things will get better for all of us in our own time. I do think of each of you even though I may not be online. What a trip, and I don't mean in a good way. This last two weeks has totally been a nightmare. My face is swollen, burnt,…
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Has anybody ever heard of Geographic Tongue ?
Not long after my treatment finished on 8th August , I had a really bad case of Mucositis. It eventually became Thrush, with white spots on the back of my tongue. Was given Caphosol for free to try as its not on the market here yet, so thought this would clear, nope. During the last few months , was also given Nilstat.…
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lots of questions :(
Chin and jaw swelling?last treatment was August 28, this past 10 days I suddenly have Chipmunk lower cheeks and a double chin. I'm 41 years old and very thin. I've heard of lymphatic massage But not from my oncology team. how often do you go for follow up appointments? Unfortunately I have a stomach condition -…
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Bloodwork
Hi all! Maybe a question for the senior warriors. I am happy to say I am 5 years out and it seems my bloodwork is a bit strange. I had a full panel from A-Z done, and although I have no pain, it is showing I have rheumatoid arthritis. Also the first screening shows I a positive for Lyme disease, although I live in NYC! I…
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Mouth Opening Shrinkage
Has anyone had their oral opening shrink? It is called microstomia and I have it! My mouth has shrunken to the point that I cannot get my upper denture in without tearing the side of my mouth and that is not fun! I started after sometime during my radiation (30 rads in 6 weeks for tongue cancer). About a month after I had…
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FDA expands approved use of Cyramza to treat aggressive non-small cell lung cancer
Came across this on the FDA.gov website and thought I would pass it along. Approval was expanded on 12/12/2014. http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm426720.htm ~C
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Has anyone had experience with luekaplakia post-treatment?
Just returned from a regular checkup where I showed my oncologist some disturbing white patches underneath my tongue. He said that it is likely to be luekaplakia, and that I should wait and see if it goes away, and, if not, I will need to see the cancer surgeon to get it removed, as it is potentially pre-cancerous. It is…
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Newly Diagnosed Adcc
Hello everyone! Unfortunately I'm new to the forum and can't say I'm glad but here I am;) I felt a tender spot vicinity my submandibular several months ago and had an MRI done to see what was going on. The MRI showed a small 'almond sized' tumor in my left side submandibular. A biopsy was done and the results came back as…
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Something new
Had an appointment at the dermatologist today, wa\nted him to look at a couple of things on my neck. They were nothing, something called keratosis, however I have had a dark spot on my arm for a few years now and he wanted to take a closer look. He used a magnifying glass and a small tool to prick it. He then said that it…
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Hello old friends
Hi guys and gals. Thank you all for your prayers and I want to especially thank my dear friend Hondo. This man has basically kept me alive so many times with his never-ending words of encouragement and prayers when I didn't really feel like I had any reasons left to keep going. God definately has a sense of humor as I now…
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Pet Scan Results
We are so excited !!!! we just talked to the Dr..... Fridays Pet Scan was Clear!!!!!!!!!!thank you God!
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Problems with the Mouth??
I know this is a common topic, but I would like ask about some mouth problems I am having at the 6 mo post treatment (Surgery&Rads). My tongue and insides of my cheeks are so swollen, that I have indentations in my tongue where it lays in my bottom teeth formation. I have several bumps on my cheeks, almost like where my…