-
Too many appointments???
Finished tx in August , clean pet scans, no complications, saw my dr on dec 2, now they are calling saying I have a follow up tomorrow??? I asked why, she just said its in the chart, no blood work, nothing new. I read according to american cancer society every 3-4 months is norm, not every 10 days! Do I want to go? No, i…
-
Skiffin & ShellBell - Anniversary
My hunny and I on vacation last week up in Boston area... We've been together nearly 24 and married 14..., just love the woman, can't say it any other way... Thoughts and prayers John
-
NED
I am so happy to see the reports of NED these past few days. I want to add my hubby’s NED report of his 1-year PET this past week (epiglottis with 2 lymph nodes; 38 rads and 8 cisplatin; no surgery). We had the scanxiety, as he has been having a bit of difficulty swallowing and choking, which were part of his original…
-
Hello fellow warriors
Just a quick visit to say HI. Today is 5 years since I was told I had throat cancer, something I wasn't very thankfull for a few days later on Thanksgiving but I didn't have a choice. This coming Thanksgiivng I will be thankfull for still being here and able to watch the Eagles kick the Cowboys azz on my favorite holiday.…
-
Shall I do a Happy Dance now ???
Hi there , Just had to write this... I had my pet scan yesterday and was not getting results till next tuesday. Today I had an MRI. I asked my radiation dr after the mi if he could give me an update on my progress through the mri's. He was all smiles and said " You have responded very well to treatment". Took me into his…
-
Effects of Radiation Long Term
I'm a nine year survivor of tonsil cancer and have a new problem as a result of radiation treatment. I had a cold back in the spring and had to have a tube placed in my right ear. It was full of fluid and would not re-absorb. The past two weeks I have had a sore throat and once agained noticed my right ear feeling stopped…
-
Had my one year [13 months] checkup with my Onc Doctor/surgen
Had my one year [13 months] checkup with my Onc Doctor/surgen. Went very well and don't have to go back for six months now. Started my day and got up to get ready at 7:30 am. Got the car pack and started the 215 mile drive at 9:45am. Had a quick bite on the road and got there by 2:45 for my 3:00pm appointment. Called back…
-
Me an' NED at 6
I got the best Thanksgiving present I could hope for with a NED PET result last week. It was almost exactly 6 years ago that the ENT used the C-word for the first time, and it's been a long hard battle for me and my wife ever since. Truly, I would not be alive if it wasn't for her, some amazing doctors and nurses, and so…
-
2 year scan check in
i hope all the boys and girls who helped me get through the worst experience of my life are doing well and enjoy this thanksgiving holiday today. Those of you in the midst of your battle keep up the fight. I just wanted to say I went for my 2 year scan last week with much anxiety and the results were good- the letters we…
-
Prayers needed
I found out two days ago my Mama cancer is back. She had half of a lung removed along with lymph nodes in 2011. Now she has lmph nodes from the removal area up into her neck, or how ever you say it. She is 76 Years old, and I wish I could be with her again, but I have to worry about me this time. Oh and she has asked for…
-
Skiffin 16
I have been gone for a few weeks with pneumonic so I might have missed something’s. I don’t see John posting anything in a good while, anyone hear from him lately. Tim Hondo
-
Tonsil Cancer Diagnosis
Hi everyone. I just found out on Monday this week that I have tonsil cancer (left tonsil)...bummer. I went to see an ENT last week (Wed) due to my left tonsil being huge for the past several months. He took a biopsy that day and I found out this week that it is cancer. I had a head and chest CT scan yesterday and my doctor…
-
A friend and coworker
just found out that she has Stage IV cancer in her stomach area with spots on her lung and brain. Her doctors are optomistic and want to hit it hard and get treatment going. She is debating it because she has "always heard" that any Stage IV means no hope. I have told her otherwise. She also doesn't want to lose her hair.…
-
Salagen (for dry mouth)...
When I saw my ENT last week and complained about the dry-mouth he prescribed 'Salagen' which is used specifically to stimulate saliva secretion in patients that have undergone rads for head and neck cancers among other afflictions. I'm picking it up this week. Has anyone here ever used this medication or knows of someone…
-
Need help
Cant figure out where my discussions our going when after I read them. Envelope turns grey and can't get them back.
-
Mucositis
Am new here have been treated for tonsil cancer. Am 6 weeks out from radiation having trouble with mucositis and swelling. Is there any possible recovery time for this as having trouble getting nutriction in. Was given meds from ENT but has not subsided. Also have radiation burns on inside of mouth. any idea on the length…
-
Very confused by a post written by Gypsy1959
Hi there, Wasnt going to write , but its really getting to me. Am really confused by a recent post called " scared" by Gypsy1959. I am pretty sure I did not say anything wrong and if I did , I am sorry. But I really honestly cannot see it ?? I am sooo confused and actually a little upset. Tried contacting Gypsy1959 but…
-
Swallow issues
After nearly 12 yrs of cancer free, finally the side effect has caught up with me. I am having major difficulty eating, have a permanent feeding tube since last year and affecting my speech. Doctors believed due to scar tissues from radiation and neck dissection. Have seen many speech and swallow therapists and nothing…
-
To Worry or Not - NOT (PET SCAN CAME BACK CLEAR!!)
Had my PET scan this morning. Had it at the hospital where I hard my laryngectomy in January. Anyway, just like every one else, I want my results NOW. But, of course, the doctor is not working today. The radialogist came to talk to me afterwards - first time that happened - should I worry or not? He asked if I had any…
-
My Old friend Pneumonia
Had another fight with a little Pneumonia for the last 3 or 4 weeks, did not know what was going one. I would feel good during day and sick at night, running high fever and then freezing. I had to go out of town on a 3 day job but had to come back home because I was feeling so bad. Caretaker Wife made me go see the family…
-
Out of hospital
After 4 weeks in hospital I'm home. I had a blocked bowel and was dehydrated. I was vomiting internally as my throats blocked and the stomach contents had no where to go. A bag was put on my PEG tube and my stomach drained. It was left on for 10 days. A formula was made for me and I fed through through a vein. I lost 4…
-
Scared
I beat Stage 3 Rectal Cancer and now after a "punch out" of a tumor on the base of my tongue I have Stage 4a HPV tongue cancer.
-
Expiration date
I know that we don't have an expiration date. I plan on enjoying my days. I have another recurrance in my Maxillary Sinus, scattered, not a well defined tumor. No surgery, no more radiation. I am looking into a trial medicine or a chemo combination to keep the monster at bay. It would be wonderful if it would shrink.…
-
What are the x-rays for?
my dad just finished week two of 30 radiation trearments at MSKCC. he is HPV+ SCC BOT. He said he is getting an X-ray once a week but he's not sure hat they are for. Can you detect cancer on an X-ray? What else would the weekly x-Ray be foR? Thanks for your help in advance.....
-
Hi to all.
Hi to all, Been kind of quiet for a few days fighting these crazy radiation and chemo effects. I have been reading the posts and to some of you my heart is so sad for what you are dealing with and with others, I am so happy you are finally NED.Or at least finished with these horrid treatments and on the way to healing. And…
-
Lack of urination
My first post - but i have read a ton of posts looking for this info.... My husband just finished treatment - 3 Cisplatin / 35 rad for stage IV, HPV positive, primary location not found (occult? - that doesn't seem like the correct word - I am a little weary) Radiation was pretty widespread because of not knowing the…
-
PEG Tube
So I had surgery today to have PEG tube put in and had a question for anyone that had this done. I am having fluid come back into the tube. I have not used it yet because can eat and dring at this time but it has filled up the tube approx 12". I was just wondering has anyone else experienced this and if so is this normal?…
-
Happy Thanksgiving Day...
...and on this day I went for a PET scan and it came back clean and I welcomed my new friend NED to the house. The side-effects from the rads get me down at times but the news today was most welcome. Ironically on this day of thanks I am given new hope for the future...
-
Parted ways with peg tube today.
Hi, Just parted ways with my peg tube an hour ago. It feels so weird not having anything dangling in front of me hahaha. I was weighed first and then bought in to Dietician. I had unfortunately lost another 2 kgs and thought they will definitely not remove it today. But the dietician asked if I used it anymore and I…
-
Dry Mouth / Throat
Three months out now from tx of 3 chemos and 35 rads and the dry mouth and throat seem to be getting worse. Have to drink water constantly and of course now have to go to the bathroom constantly. I wake up and it's not too bad but gets progressively worse as the day goes on. By late afternoon and early evening it's…