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The most amazing group of people!!
So I have been diagnosed with hpv tonsil cancer and last week started radiation and my first chemo. I am so overwhelmed by this, but Thank God that I found this site. I am in awe of the caring and helpful ness of you all. Actually a couple of days ago I posted(in the wrong place) a bit about myself, but as Bill said I…
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Can throat & Saliva still improve after 5 months ?
Hi there, Wondering if the throat and saliva can still improve 5 months after treatment ? I wrote a post on here not long ago about my tongue condition, seems nobody has ever heard of it, didnt get a response. Unfortunately only 2 % of the population get it and I just happen to be part of that bloody 2 % ! My throat still…
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Caring and sharing
I wanted to share what my younger sister did in honor of myself, our Mama and our brother. I think she did a beautiful job.
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Rough week
This has been one of thr toughest weeks ever, on Monday told I had melanoma on my arm, still waiting for the biopsy results on this, got a call Friday morning at 1:30am from my niece telling me that my brother in England had passed away from stomach cancer then a trip on Friday morning to have my prostate biopsied again,…
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Hypopharygeal/cricopharyngeal stenosis
I've got a date at last to try to open my throat. The 12 February. They are either going through the PEG or through a small laparoscopic incision.they are doing a retrograde dilation in combination with one of the gastroenterologists. I will need if it's successful have follow up OGDs and dilations following the procedure.…
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Still very tired - 6 weeks after radiation treatment . Is it normal?
Hello I am wondering if it is normal to get tired easily 6 weeks post radiation treatment. I actually had more energy during treatment than now. Also, I need to eat every 2 hours to avoid dizziness. I did lose only 2 lbs since the beginning of treatment so it is strange to me that I need to keep eating to maintain my…
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Tounge flap
Here's question I keep wondering about and always forget to ask the doctor.For those of us that had to have part of tounge removed and replaced with a tounge flap has anyone ever asked what would happen if it wasn't done.Would it make our swallowing and speach even worse or being would we just have a smaller tounge...
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Hello Fellow Travelers
I went for a 7 month post checkup yesterday with my rad doc. My question is how often do you guys get scoped and Pet scans post treatment. They want to scope me every three months and I have refused the last two. For one thing it seems excessive and I wonder how much they are doing it so they can bill insurance. Secondly…
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Melanoma Survivor
Hello, everyone, I am new to this blog. For quite some time now, I have wanted to share my story. I cannot find a Melanoma Support Group in my area, so I was directed to this site. I have survived 3 Melanoma boughts: 2001, 2006, and 2013. The first was on my left shoulder; the second on the right cheek of my face; and the…
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Looking for people who have experianced a full laryngectomy surgery.
I had a complete laryngectomy on OCT 20 2014 and am having a hard time coping, I would like to talk to some one who has gone through this. I have many questions and concerns that a Doc with no personal experiance can help me with.
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my first 6 month follow up - NED yeah!
Fellow fighters and survivors- I "graduated" from a 3 month follow up to a six month lung scan back in July and excited to report NED! Putting up with this crap since Jan 2011 and now here I am. I know I'm not out of danger yet but it still feels great! Stay strong! Praying for my blessings and YOU!
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SNUC.... I BEAT IT!!!
Yep... Got the magic words.... CANCER FREE!!! i was diagnosed with stage 4 snuc late August 2014 and as of yesterday January 9, 2015... Cancer free!! 2 rounds of chemo( cisplatin & 5FU) 35 radiatin treatments during the same time. Miricle... I believe so!!
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Loss of bone den sity
Will hyperbarictreatments restore bone denbsity to my jaw which was damaged by radiation treatments?
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Hondo?
I searched the treads and found that you had bronchitis years ago and used Oil of Eucalyptus to help it? How long did it take before it cleared up? My husband has been coughing mucusy stuff up for about a week now. He finished a 5 day z-pac that didn't do anything, so it has to be viral......... Appointment at MDA isn't…
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Eating Issues
Hello to all... Well I thought I had things under control. But it seems the ensure, boost, instant breakfast, or anything of that nature doesn't like me now. It tastes absolutely horrid, and if I put it through my feeding tube it just seems to sit and ferment until I throw it up. Either way I try it, I get sick from it. So…
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prostedic teeth
I know I killed the word so hope it can be figured out.Anyway wondering if anyone has had them made.I go to the densit monday about having them made.From what my doctor said the guy is very good at fitting people like us with teeth.He said he makes a few adjustments along the way and will build up the bridge in order for…
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Two to go !!!!!
Hello all, I hope each of you had a safe and happy holiday season. I am down to 2 days of radiation to go !....It's a good thing as I have always wanted a deep dark tan..well not on my bucket list anymore!...My neck and shoulder area so reddish/brown, if not for the pimples and the long sores running in my laugh lines ( I…
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Teeth trays
Happy new year all- have a question for the veterans of the room. How often do you use your trays for your teeth. I have not used them since the end of my treatment two years ago. I finally made it to the dentist last week and had a few cavities. The dentist told me the cavities came from the root up and asked if I was…
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radiation burn on tongue after treatment
My husband is off the peg tube after 3 weeks Now he's developed a radiation burn on the side of his tongue and eating and drnking is very painful. Anythoughts on topical relief for a burn? Cancer sore medications just aggravate it
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So Far..., So Good...
So far, so good.... I even got to take the boat out New Years Day with my beautiful wife and catch a few Crappie..., but they were released to grow bigger... Best, John
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Luck of the Draw?
I was treated at Johns Hopkins. They are one of, if not the top hospital in the country for treating cancer. My team consists of some of the best and brightest in their fields. When I see a study coming out of JH, I take notice. This was a VERY interesting study and conclusion and worth reading. Having been a member on the…
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No longer lurking
Hi everyone, Happy New Year! Thanks to all of you who've posted about your journeys. I've gotten a lot of encouragement and ideas over the last couple of weeks here. My husband just started treatment for tonsil cancer yesterday. So I figured it's time to stop lurking and just introduce myself! We have a lot to learn!…
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checking in
Hello everyone ! I've been a bit remiss in posting the past few months. But I have been reading posts and sending out silent prayers for all. My brother is 6 mo's out of tx's for the SCC HPV + dx. His recent PET showed no new evidence of disease ! So bringing in the New Year has brought much relief and hope for a great…
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Dad starts off the new year ringing the bell!
Dad finished radiation treatment yesterday at MSKCC and got to ring the bell! I'm so happy to know this phase is over for him and he can now move forward in recovery. He did 30 radiation treatments (SCC BOT HPV+ with lymph node involvement, clear margins after modified radical neck dissection and tongue surgery, tonsils…
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Goodbye 2014
Goodbye 2014 - Glad to see you gone! Wishing all a happy and healthy New Year! Lorna 2007 & 2014
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Merry Christmas; Happy New Year, etc. etc.!
Hi all: Hope everyone had a great holiday season. I've been subbing a lot and fixing to start a long term sub on Monday for a kindergarten teacher on maternity leave till March 9 and another kindergarten teacher who will be out on maternity beginning in April thru rest of school year. I am truly blessed! I spent Christmas…
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Treatment a 3rd Time
I am a 44 year old father of four and I've been through head and neck cancer twice and Hodgkin's lymphoma once, so like all of you been through multiple radiation and chemo treatments. I've given up my normal voice for a strange one due to treatment, given up most of what I used to eat and I've given up my handsome young…
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PET scan results!
Thank you all for your encouragement. I had my followup scan yesterday. Phrannie, I tried not to think about it too much.☺ The doctor's words were " complete response to treatment"! The cancer is gone! I know it could come back, but for now, I will praise God for this happy day!
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No trial
I do not qualify for the trial at Stanford. I will be getting Taxol locally. I will see my local ENT, who is very good about staying in contact with Stanford. I will go back to Stanford in 2 months to be evaluated to see if this is helping keep the beast at bay.
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Prayers Requested
I am asking for prayers for my husband, Jim. Yesterday he went in for his three month scan of his chest. Last year his scans showed a 6-7 mm spot on his lungs and another smaller spot. We have taken a wait and see approach, as we realize this could be anything and because it was too small to biopsy. Well, the 6-7mm spot…