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Life after Cancer treatment
Hi everyone. I appreciate all the welcome notes from members. I haven't been on in a while because I got aspiration pneumonia again. If it happens again I get a J tube and won't be able to eat. I'm doing all sorts of throat exercises, thickening my liquids (yuk), and tucking my chin when swallowing. My swallowing…
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Erbitux rash
I had my first loading dose of Erbitux last tuesday, by saturday morning I was covered including my scalp in the acne type rash. So much on my face seems like I can't even move it. My regimend is going to be 35 radiation treatments with concurrent Erbitux. Personaly, to me, Erbitux is cutaneous toxic. Almost not worth it.…
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Base of tongue Cancer
Hi I was found to have base of tongue cancer last December 2002 and in neck glands had 37 Radiation and 5 cemo treatements last on Feb 5th 2003 have peg tube tube fitted as in end could not eat or drink was very hard have been told Tumer gone am still going to hospitat each month getting MRI in one week 22nd July I still…
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Full recovery and beyond?
hello everyone. I was wondering if anyone here or know of anyone who has fully recovered and healed from cancer after treatment? Able to return to same or better physical health compared to pre-cancer. Or any articles or studies out there that you can share. We all need a little inspiration to know that we can achieve more…
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Nausea side effect
My husband got his first round of cisplatin yesterday. He's nauseated and fatigue.. didn't feel like eating today.. how long is this fatigue and nausea usually last ? Do you have tricks on food intake? Thanks Kathy
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New with the DX. Cisplatin VS Erbitux
I was missdiagnosed back in November with Chronic tonsillitis. Asked the Dr at the time could this be cancer? The response was a confident no. I ran with that. No followup. About a month ago I felt a new lump on my neck. Quickly went to ENT. BX Right tonsilar squamous cell cancer with lymph node cystic mets. I am told it…
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nasopharyngeal cancer treatment complications
Hi, My dad had developed and been treated for nasopharyngeal cancer in 1994 which resurfaced in 1997 and has been successfully treated with chemotherapy and radiation therapy. From the treatments that he had received he developed some tissue scarring in the nose which he has to clean everyday. It seems to be a mixture of…
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Post treatment pain
Hello everyone, I was diagnosed with cancer on my tonsil last December and I finished my treatment nearly 3 months ago (33 radiation and 3 Cisplatin chemo). I was doing just fine until I saw my ENT last week who thought my pains in the tongue, jaw and ear were a bit "worrisome". Needless to say that it was the only thing I…
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Mom's treatment
My mom who is extremely claustrophobic made it through the making of the mask, measurements and the first treatment with two valium each time. She will try one valium tomorrow. Thanks all you prayer warriors, your prayers worked. Debbie
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Tongue cancer with neck dissection but no other treatment
I was wondering if anyone else out there had just a partial glossectomy (about 1/4 of my tongue) and a selective neck dissection. I had a bump removed from my tongue in March, which in spite of biopsies to the contrary, turned out to be cancerous. Then I had to find a pain medication that worked (most narcotics do not work…
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Medicare....AKA Headache time!!
Spent two hours this morning in a seminar about Medicare.....then another hour this afternoon with an advisor from my old insurance hashing it over again....Trying to figure out what to do for my only free enrollment is killing me (like I cannot be denied no matter what my health has been).....I'd be just as uncomfortable…
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Spinal Cancer from Unknown Source Spread to Neck and Brain
My mother is 62 and her cancer diagnosis was made in January of this year (5 months ago). She was diagnosed with leukemia as well as metastatic cancer from an unknown source. The mets settled in her spine so she has diffuse small tumors up and down her spine and now spread to her neck area and base of the brain. She has…
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Dry Mouth
I'm just about 3 1/2 years out of treatment from stage 4a SCC of the right tonsil, while it took some time I'd say my saliva is back to about 95% , I still drink lots of water every day, but there are still some nights that my mouth seems dry ...I mentioned this to my dentist one day and she gave me a sample of OraCoat…
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Am just wondering
Hi gang All is well just about a year now post treatment back to work hate the 24/7 nite shift as my body goes up and down never liked it before all this happen.Am able to swallow and evn gum most of the comfort food I eat and have gained back 25 of the 55 pounds I lost.Last went in and they took about an inch of bone from…
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Newly diagnosed Cystic Adenoid carcinoma
Hi All, My husband is recently diagnosed with cystic adenoid carcinoma believed to start from the salivary gland on left side. He's stage 4, spread to 1 lymph node, undetermine mets (T4N1Mx). He was told that surgery is not an option due to the extensive spread of the tumor. He will start proton therapy at Procure in NJ…
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tongue cancer
Have tongue cancer, going for pet scan. What a deal life throws a curve sometimes. Trying to hang on pretty weary. Much love and courage to all who travel this road.
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anyone heard from jcortney?
I don't think he posted in awhile....Hope you are ok my friend.
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Proton Therapy
Just got back here after a few week absence. My 10 year old son has completed 10 proton radiation sessions so far. Wondering if anybody on here can tell me how bad the side effect may be? I've read all the literature from the proton Center, but wanted to come to my own experts :-) So far we have seen no side effects.…
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Nasopharyngeal cancer (after radiation)
Hello, My father did radiation for Stage 1 nasopharyngeal cancer when he was 55 (2004). Ever since then he has been having back and neck spasms (severe) to the point where he cant sleep at night. His tongue has been deteriorate as well. Shrinking further back into the mouth and severe numbness where eating/drinking is a…
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Post transplant patients
Has anyone here had a solid organ transplant? My husband got new lungs a little over four years ago. I have seen some very old posts from transplant patients, but none within a year old. My husband has metastatic squamous cell cancer. He had the huge tumor removed from his face and was radiated. He can't get chemo due to…
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popping in
I wanted to thank everyone for the good thoughts while in hospital. Still here, probably will be throughout next week. Wanted to clarify, I am not quite done fighting. Yes it seems the beast has decided to want to rear it's ugly head again. Well o.k., I am now going to confirm it by biopsy? Depending on the line of defense…
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Just Wanted to Thank You
I only made a few post but gained much from reading others. Dr. said I was cancer free yesterday now the road to get my fourty pounds and muscle back. Good luck and God Bless to you all.
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severe trismus/fibrosis after radiation treatment
My dear sister had radation following a 10 hour surgery for a rare from of head and neck cancer 14 years ago. Had one reoccurrence with more radiation two years ago. She struggles to eat and is terrified of having to get a feeding tube. Any advice for us?
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Toncil Cancer....2 1/2 Years After Treatments
Hi Everyone, I don't post much but I am here reading all of your posts often. I remember when I was in my treatments, I loved to hear the good news stories. I am sharing my update in hopes of offering encouragement to those who are in treatments now. I had my 2 1/2 year check up last week. Doctor did the normal scope of my…
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Memorial Day 2015
Hello Gang, I'm sorry I don't get back here to visit my old friends as often as I should. It's Memorial Day. For me that means the traditional start of summer, a day of remembrance of those I hold dear and a day of reflection. Speaking of reflection, about five years ago I was in a hospital bed recovering from an…
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Got my MRI results
I just got the MRI results. There is a problem with the left maxillary sinus. A vertical septation is seen in the anterior aspect of the left maxillary sinus. All other parts including nasopharynx, oropharynx, parapharyngeal and paranasal sinuses are normal. I will see my ENT doctor Thursday. I have questions: 1) My…
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SQUAMOUS CELL NECK CANCER
can anyone help me know my possible outcome.... my dr just said we will treat this... i am 58 years old, female, a transplant paient (so a reduced immune system) i had a 2 inch squamous cell tumor (that grew in just 30 days) taken out of my neck, it was stage 4 cancer, including cancer in my lymph nodes on that side of my…
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New member and diagnosed with tonsil cancer with one lymph node mets
Hi, I am new this discussion board. I was wondering if anyone out there has had HPV squamous cell carcinoma of the tonsil and one mets to the lymph node. If so what treatment did you do adn how was the outcome? I have been told that surgery and radiation had similar outcomes as radiation and chemo. I have decisions to make…
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NED sweet NED
Hi all, today we got to hear the 3 magical words for the first time! And the doc congratulated Dima on graduating from this. Next step, to get the port out. We are so happy and thankful. I wanted to share the good news with the group. You were/are a part of our support system. We are thankful for the prayers, support,…
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Celebrating 2 yrs 6 months NED!
Just a quick upate to let everyone know we are still around and enjoying life! Kreg has celebrated 2 yrs and 6 months! Had his check up Thursday and NED was the word we got! For anyone fighting the battle.....there is light at the end of the tunnel. Hang in there, it gets better! God Bless you all, ~Cris