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Medicare....AKA Headache time!!
Spent two hours this morning in a seminar about Medicare.....then another hour this afternoon with an advisor from my old insurance hashing it over again....Trying to figure out what to do for my only free enrollment is killing me (like I cannot be denied no matter what my health has been).....I'd be just as uncomfortable…
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Spinal Cancer from Unknown Source Spread to Neck and Brain
My mother is 62 and her cancer diagnosis was made in January of this year (5 months ago). She was diagnosed with leukemia as well as metastatic cancer from an unknown source. The mets settled in her spine so she has diffuse small tumors up and down her spine and now spread to her neck area and base of the brain. She has…
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Dry Mouth
I'm just about 3 1/2 years out of treatment from stage 4a SCC of the right tonsil, while it took some time I'd say my saliva is back to about 95% , I still drink lots of water every day, but there are still some nights that my mouth seems dry ...I mentioned this to my dentist one day and she gave me a sample of OraCoat…
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Am just wondering
Hi gang All is well just about a year now post treatment back to work hate the 24/7 nite shift as my body goes up and down never liked it before all this happen.Am able to swallow and evn gum most of the comfort food I eat and have gained back 25 of the 55 pounds I lost.Last went in and they took about an inch of bone from…
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Newly diagnosed Cystic Adenoid carcinoma
Hi All, My husband is recently diagnosed with cystic adenoid carcinoma believed to start from the salivary gland on left side. He's stage 4, spread to 1 lymph node, undetermine mets (T4N1Mx). He was told that surgery is not an option due to the extensive spread of the tumor. He will start proton therapy at Procure in NJ…
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tongue cancer
Have tongue cancer, going for pet scan. What a deal life throws a curve sometimes. Trying to hang on pretty weary. Much love and courage to all who travel this road.
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anyone heard from jcortney?
I don't think he posted in awhile....Hope you are ok my friend.
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Proton Therapy
Just got back here after a few week absence. My 10 year old son has completed 10 proton radiation sessions so far. Wondering if anybody on here can tell me how bad the side effect may be? I've read all the literature from the proton Center, but wanted to come to my own experts :-) So far we have seen no side effects.…
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Nasopharyngeal cancer (after radiation)
Hello, My father did radiation for Stage 1 nasopharyngeal cancer when he was 55 (2004). Ever since then he has been having back and neck spasms (severe) to the point where he cant sleep at night. His tongue has been deteriorate as well. Shrinking further back into the mouth and severe numbness where eating/drinking is a…
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Post transplant patients
Has anyone here had a solid organ transplant? My husband got new lungs a little over four years ago. I have seen some very old posts from transplant patients, but none within a year old. My husband has metastatic squamous cell cancer. He had the huge tumor removed from his face and was radiated. He can't get chemo due to…
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popping in
I wanted to thank everyone for the good thoughts while in hospital. Still here, probably will be throughout next week. Wanted to clarify, I am not quite done fighting. Yes it seems the beast has decided to want to rear it's ugly head again. Well o.k., I am now going to confirm it by biopsy? Depending on the line of defense…
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Just Wanted to Thank You
I only made a few post but gained much from reading others. Dr. said I was cancer free yesterday now the road to get my fourty pounds and muscle back. Good luck and God Bless to you all.
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severe trismus/fibrosis after radiation treatment
My dear sister had radation following a 10 hour surgery for a rare from of head and neck cancer 14 years ago. Had one reoccurrence with more radiation two years ago. She struggles to eat and is terrified of having to get a feeding tube. Any advice for us?
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Toncil Cancer....2 1/2 Years After Treatments
Hi Everyone, I don't post much but I am here reading all of your posts often. I remember when I was in my treatments, I loved to hear the good news stories. I am sharing my update in hopes of offering encouragement to those who are in treatments now. I had my 2 1/2 year check up last week. Doctor did the normal scope of my…
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Memorial Day 2015
Hello Gang, I'm sorry I don't get back here to visit my old friends as often as I should. It's Memorial Day. For me that means the traditional start of summer, a day of remembrance of those I hold dear and a day of reflection. Speaking of reflection, about five years ago I was in a hospital bed recovering from an…
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Got my MRI results
I just got the MRI results. There is a problem with the left maxillary sinus. A vertical septation is seen in the anterior aspect of the left maxillary sinus. All other parts including nasopharynx, oropharynx, parapharyngeal and paranasal sinuses are normal. I will see my ENT doctor Thursday. I have questions: 1) My…
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SQUAMOUS CELL NECK CANCER
can anyone help me know my possible outcome.... my dr just said we will treat this... i am 58 years old, female, a transplant paient (so a reduced immune system) i had a 2 inch squamous cell tumor (that grew in just 30 days) taken out of my neck, it was stage 4 cancer, including cancer in my lymph nodes on that side of my…
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New member and diagnosed with tonsil cancer with one lymph node mets
Hi, I am new this discussion board. I was wondering if anyone out there has had HPV squamous cell carcinoma of the tonsil and one mets to the lymph node. If so what treatment did you do adn how was the outcome? I have been told that surgery and radiation had similar outcomes as radiation and chemo. I have decisions to make…
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NED sweet NED
Hi all, today we got to hear the 3 magical words for the first time! And the doc congratulated Dima on graduating from this. Next step, to get the port out. We are so happy and thankful. I wanted to share the good news with the group. You were/are a part of our support system. We are thankful for the prayers, support,…
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Celebrating 2 yrs 6 months NED!
Just a quick upate to let everyone know we are still around and enjoying life! Kreg has celebrated 2 yrs and 6 months! Had his check up Thursday and NED was the word we got! For anyone fighting the battle.....there is light at the end of the tunnel. Hang in there, it gets better! God Bless you all, ~Cris
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Katie
I do believe Katie is in the hospital with pneumonia, there is a posting in my facebook timeline. Hope I am wrong
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dentist in Oregon
Hello I had tongue cancer and it spread to my lymphnodes when I was 21 years old. I'm 36 now and having constant dental issues because of the radiation. I just moved to Corvallis, OR and I'm looking for a Dentist who has experience with this issue. I'm willing to travel if there is an experienced dentist available. Any…
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Meegs...Rest in peace
Dear friends, I am so sorry to tell you that our friend Meegs passed away on 14/5/2015 at the age of 29. Her fight started with esthesioneurblastoma but then the reoccurrence reached her brain and then spinal cord. I glad that I met her here and chatted with her over the past year, she was such an inspiration and supported…
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Neuroendoctrine tumour
I seem to have hit the jackpot in cancers. My third cancer is very rare and hard to detect called neuroendoctrine tumour. I was diagnosed this month. My three cancers were unrelated. If I can get a hat trick in cancers why can't I win the lottery I would think the odds are the same. The tumour/tumours are in my small bowel…
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Being released
Got cellulitis again last Sunday and was admitted Tuesday. Been on IV antibiotics, got c diff so then more antibiotics. Difference of opinion between infectious disease doc and my ENT on long term antibiotics. ENT concerned for necrosis on right jaw so wants to be in prevention mode. Other Doc says no issues with…
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For Mother's Day(Not Cancer Related)
For all of you who remember me and those that don't know me, I hope eveyone had a pleasant Mother's Day. As you know, I lost my husband Ron two years ago followed by my daughter Debbie just ten months ago. It was a rather sad day for me as all holidays are for some of us. For the first time in nearly 50 years, I did not…
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Surgery to Repair Soft Palate
Hi everyone! I am 8 years cancer free after being diagnosed with NPC in 2006!! My soft palate was heavily scarred because of my radiation treatments and I have had problems with hypernasality, food and drinks going into my nasal cavity, and then subsequently aspirating that food into my lungs when I breathe sometimes. I…
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Cardboard
Hi. Here is a me, me, me message that leads to a question. I have base of the tongue cancer and I just finished my 3rd week with a combination of chemo and radiation. The treatment has killed almost all taste buds and many salivary glands. The total lack of taste has given me negative incentive to eat and I’m losing way…
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Elaineh
Just wanted to help out Elaineh, she's new here.... So I'm helping her get started with her introduction and her first post about herself here on the forum.. John
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Laryngitis and bronchitis after treatment for SCCa hypopharynx
Hi everyone. I was treated last year for piriform sinus Cancer with chemo then chemo radiation. I had an excellent response and am NED 15 months later. I did well during treatment, was able to eat the whole time and didn't lose an ounce of weight. I lost my voice for about a week. Then on completion of treatment late June…