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New Member
I have just joined, even though I have been through surgery and treatment. I had six months of Folfox, which I tolerated fairly well, although Oxaliplatin was lowered for the 9th and 10th treatment and eliminated entirely for the last two. I am left with a very slight amount of neuropathy in my toes, which doesn't really…
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Ned
After one year I am still Ned for my colon cancer. Surgery next year for the complex cyst on my kidney. In 2009 had face cancer removed. I am forever a believer in miracles!
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Cancer detection tests
Hi, One of my friend's doctor has asked to go for early cancer detection test. We both are from scientific family hence got intersted in different diagnostic tests available. Wanted to gather information on the same through this forum on what tyoe of tests are better like CEA daignostic tests or Malignin anibody detection…
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We finally have a plan and good news!
we saw the oncologist who specializes in GI cancer today. she was very positive that if they shrink a bit they will be resectable, that was great news. It still needs to go to the tumor board but we are hopeful. The other oncologist said he would not be resectable ever. So he has a ct scan Friday for a base ct before…
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Surgery Scheduled
I wanted to post an update regarding my situation since several of us are running pretty close in this same race. On Friday I met with my surgeon. Currently, I am scheduled for a laproscopic LAR on 10 October. Dependent upon the quality of my rectal tissue and the surgeon's skill, I will not need a temporary bag. However,…
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How to Change your Avatar
I'm terrible with changing an Avatar and need to change mine. Can someone tell me how to do it from an Android phone. I've got a smart phone but I'm definitely not smart with with and need explicity instructions because I'm not able to use it very well. Any help would be great. I've got pictures of me on my phone but have…
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Any survivor of 4th stage Metastasis Colorectal Cancer in Lungs of_My husband of age 26 years
My husband got diagnosed with 3rd stage rectum cancer 1 year before and after 1 year of Radiation, Surgery and Chemotherapy we got to know 2 days back that now it is Metastasis Colorectal Cancer in Lungs, Abdomen, Prostate and Tail bones. Either it happened along with the chemotherapy or it happened within 1 month after…
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Polyposis??
Hi, New to this, and I'll keep it brief. I am a 54-year-old white male. When I was 25 years old living in Australia and I had some surgery and they found polyps in my colon. I later had a colonoscopy and over 100 hyperplastic polyps were removed all benign. I then had some more removed over the next year. My case was…
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Time for all the tests and scans again
Well it is time for all my 4 months tests again. Today starts with the blood work and CEA test then Wednesday the CT scans. As you all know the tests themselves are not difficult, it is the waiting for results that is so hard. I admit this is when my Wonder Woman crown slips a bit. It is dang scary. The usually 2 weeks of…
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hello
hi everyone it has been a while just wanted to say hi. i'm still kicking still ned, have my tests every 4 months good so far. how's trubit doing? hope ok.
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My husband is 34 with stage IV
Good morning, I truly need to here positive information as the web is negative. My husband and I have three kids 14, 8 and 4 and he was diagnosed stage IV December 2015. They were not able to remove the mass from his colon because they wanted him on chemo immediately due to the masses in his liver. He currently has a…
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How to make an IV poke more successful?
Apparently I have small veins and I'm a 'hard start'. I've had issues in the past where they've had to get a pedo nurse in or been poked several times until they get one that works. I've asked the if there's anything I can do but they don't really have any suggestions. They make me do the fists and put hot towels on my…
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Over for now!!!!
Final chemo treatment last Wednesday. CT on Monday. Results NED!!! today 3 month reprieve..... Yea!!! Thanks to all here. This board is very helpful.
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Confussed
Newly diagnosed. CEA is 2. MRI showed cancer. New PET/CT scan impression reads 1. no focal areas of abnormal uptake identified to suggest active neoplasm. The prior perirectal/presacral collection is no longer present. 2. Tiny presacral perirectal lymph nodes are likely reactive, however, neoplasm is difficult to entirely…
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Finally I have good news!
I was starting to wonder if I ever would have good news and I finally got some today. I've been so down in the dumps and feeling so pesssimistic that I haven't been on here much because I don't like being negative and I was struggling with trying to post anything positive. I had my onc appointment today before chemo…
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Our dear friend, John, has passed
I am so, so heartbroken. Our friend John (John23) passed away on March 20th. His life touched ours, and he shared so much good information and advice. He truly fought the good fight. Thank you, Simone, from the CSN support team, for sharing this information. It is good to know that we can read his profile and all of the…
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my friend with colorectal cancer
My friend was diagnosed stage IV colorectal cancer on July 19th and given just months to live. His SSDI was approved two days ago and he seems to be coping well with twice weekly visits from hospice and has already received his end days morphine package. I was diagnosed 27 months ago with stage IV supraglottal cancer and…
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Looking for recommendations or genuine feedback
Hi I'm looking to get any genuine feedback / recommendations on alternative therapy centres in the US or Mexico please. My cousin (aged 37) was diagnosed last year with Stage 4 Colorectal Cancer. Unfortunately she also has Liver Mets and only yesterday we discovered that this seems to have spread to the lymph nodes in her…
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tratement decision
Diagnosed with colrecatl cancer with one small lung metastacy . We live in a smalll town. The doctor here has recommended daily pill form of chemo with iv infusion every 2 weeks then radiation to colon daily for 5 weeks then surgery resection and lower right lobe lung removal. the second opinion at UCSF with Dr. Atraya is…
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Tumor markers (CEA and CEA 19-9) have gone too far. What to do?
My mother received 4 cycles of Avastin + Xeloda. After the second cycle, before the start of the third cycle, CEA was 528, CEA19-9 was over 2016. The last, fourth cycle was received on July 27, 2017, and we stopped there. Today, the mother did a laboratory analaise, tumor markers increased. CEA - 1112 CEA 19-9 same, more…
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Concerns with family history
Hello :) I'm new and have been doing research just about everywhere at this point to help find what is going. My hus band became pretty sick before leaving for military training so my focus had been on him. He ironically had polyps removed and at only 27 I didn't think that was evendors possible! I learned a lot that…
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Anyone have anal fissure?
Hi all - Has anyone had a fissure develop. I am having extremely painful bm's - using Anusol, but very painful to use suppositories. Have ointment as well. My chemo cocktail causes me to go from constipation to diarrhea, and I think this is what caused such irritation and I believe I have a tear. Going on a month now - not…
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Still very weak 2 weeks after neo radiation & chemo
Greetings. I have been reading all of your experiences and so appreciate everyone here. I am scheduled for surgery Oct. 3 and am having difficulty gaining any strength in the meantime. I have been lying on my couch since I started radiation in mid July, completed 2 weeks ago. Standing up for even 5 minutes seems…
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Had anyone lose their hair on their first folfox treatment???
Omg people so here is an update on my treatment, im doing so much good emotionally I had my first treatment 2 weeks ago everything was fine the first day second day Igor very sick a lot of nauseaaaa I couldnt eat everything tasted horrible so I had to go to the hospital was there for like 4 days after I got out of the…
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Why?
Everyone: On 14 August I completed my neoadjuvant chemo/radiation. On 18 August I had a CT scan. Yesterday I met with my medical oncologist to discuss the results and the future. The CT indicates NED however the plan is for me to meet with a surgeon this Friday to discuss resection surgery. That will be followed by 6…
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Question for those who underwent abdominoperineal resection (APR) with permanent colostomy
After just over two years of keeping the beast at bay via chemo (FOLFOX plus Avastin), chemo-radiation, more chemo (irinotecan + Erbitux), an ablation of liver mets and still more chemo (irinotecan + Erbitux) the surgeon now thinks we should go ahead with abdominoperineal resection (APR) surgery. He is concerned if we put…
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Colon Cancer and Positive for Lupus?
Anybody else have this? I've been positive for lupus for about 8 years that I know of, probably before that but I hadn't been diagnosed. I've never had any symptoms beyond the finger pain that I first went to see the doctor about. But now that I've had this skin situation with first the huge hives/welts and then the…
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Panitumumab/ Vectibix Information
I have more information about this chemo that I'm on and I think it's interesting and helpful so I'd like to pass on what I've learned. When I first tried it in February I had a severe toxic reaction and couldn't continue after only one treatment. We then tried the oral chemo which I've forgotten the name of, sorry, and it…
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CEA and inflammation
I'm not a colon cancer patient--I'm a breast cancer patient. Diagnosed in 2007, local recurrence in 2015. The reason I'm here is to ask about benign reasons for abnormal CEA. I know that inflammation from smoking and IBS and that sort of thing can cause abnormal readings. But what about post-operative inflammation? My new…
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Choosing Hope - Stage 4 - what next?
Hi Folks, First post here having just been told by the medical world that they have run out of ideas for my wife (age 45). A quick history. Stage 3 colon in 2013. Op and 6 months chemo to catch the rogue. All good. 4 years later it has shown up as "stage 4" in the liver (2.5cm tumour) and in two lymph nodes (which only…