Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Still very weak 2 weeks after neo radiation & chemo
Greetings. I have been reading all of your experiences and so appreciate everyone here. I am scheduled for surgery Oct. 3 and am having difficulty gaining any strength in the meantime. I have been lying on my couch since I started radiation in mid July, completed 2 weeks ago. Standing up for even 5 minutes seems…
Had anyone lose their hair on their first folfox treatment???
Omg people so here is an update on my treatment, im doing so much good emotionally I had my first treatment 2 weeks ago everything was fine the first day second day Igor very sick a lot of nauseaaaa I couldnt eat everything tasted horrible so I had to go to the hospital was there for like 4 days after I got out of the…
Why?
Everyone: On 14 August I completed my neoadjuvant chemo/radiation. On 18 August I had a CT scan. Yesterday I met with my medical oncologist to discuss the results and the future. The CT indicates NED however the plan is for me to meet with a surgeon this Friday to discuss resection surgery. That will be followed by 6…
Question for those who underwent abdominoperineal resection (APR) with permanent colostomy
After just over two years of keeping the beast at bay via chemo (FOLFOX plus Avastin), chemo-radiation, more chemo (irinotecan + Erbitux), an ablation of liver mets and still more chemo (irinotecan + Erbitux) the surgeon now thinks we should go ahead with abdominoperineal resection (APR) surgery. He is concerned if we put…
Colon Cancer and Positive for Lupus?
Anybody else have this? I've been positive for lupus for about 8 years that I know of, probably before that but I hadn't been diagnosed. I've never had any symptoms beyond the finger pain that I first went to see the doctor about. But now that I've had this skin situation with first the huge hives/welts and then the…
Panitumumab/ Vectibix Information
I have more information about this chemo that I'm on and I think it's interesting and helpful so I'd like to pass on what I've learned. When I first tried it in February I had a severe toxic reaction and couldn't continue after only one treatment. We then tried the oral chemo which I've forgotten the name of, sorry, and it…
CEA and inflammation
I'm not a colon cancer patient--I'm a breast cancer patient. Diagnosed in 2007, local recurrence in 2015. The reason I'm here is to ask about benign reasons for abnormal CEA. I know that inflammation from smoking and IBS and that sort of thing can cause abnormal readings. But what about post-operative inflammation? My new…
Choosing Hope - Stage 4 - what next?
Hi Folks, First post here having just been told by the medical world that they have run out of ideas for my wife (age 45). A quick history. Stage 3 colon in 2013. Op and 6 months chemo to catch the rogue. All good. 4 years later it has shown up as "stage 4" in the liver (2.5cm tumour) and in two lymph nodes (which only…
Pain after radiation therapy/ personal advice request
Hello. My mother, age 59, was diagnosed with colorectal cancer about two months ago. She originally had a lot of pain in that area, so they gave her a colostomy. Every since then, her pain had stopped. We were also thankfully informed that the cancer had yet to spread. She started a 5 and a half week radiation therapy…
Anyone have Meniere's Disease as well? Any correlation?
Yesterday I was dx'd with Meniere's Disease (after seeing 3 different ENTs; the first 2 wouldn't hear what I had to say, and only heard what they wanted to hear.) I've had episodes of true vertigo (spinning dizziness, not just unsteadiness) over many years. Now my ear feels full, is painful (not infected) and I have…
5 years 9 months ago
On Nov 9th 2011 my husband was diagnosed with stage 4 colon cancer including 2 mets to liver and 1 to peritoneum. He underwent surgery and got an ileostomy for 8 months. Luckily his surgeon got all the cancer. After 6 months of chemo (8 cycles of Xeloda including 6 with Oxaliplatin) the ileostomy was removed in June 2012.…
Looking for input regarding second surgery
I am a 49 year old female who was diagnosed with stage 3c colon cancer in January of this year. I had NO symptoms. It all started when I had to go to the emergency room with severe abdominal pain which the ER thought was an appendicitis. When the surgeon went in he found a tumor in my cecum right by the appendix. The…
Low CEA
After reading various posts and seeing scores all over the place when I finally got mine I was surprised. It was 1.3. From what I've read that's within the range of a person without cancer. The last couple blood works that came back do show some elevation in white cell activity over the initial readings which is expected…
How do you handle advice with bad news attached?
Everyone seems to have to add their two cents to everything you tell them, and of course they all have someone who had someone etc. then they hit you with the but he died or didn't work. It's so disheartening and scares the hell out of me. When I told a friend we were hoping to start Xeloda she said well I hope it works…
Impact on Family
Everyone: My question tonight to the list is this...how do you manage the impact of colorectal cancer on your family? That's a broad question, but some of the sub elements include such items as how do you maintain a positive, physical presence? How do you tactfully decline to participate in activities? How do you try to…
27yo Unsure About Stage
Hi. I went in recently for a colonoscopy and got a wishy washy report back from the doctor regarding one of the polyps they removed. What he told me is that one polyp was cancerous, but the removal was complete...but one in my rectum was concerning and he referred me to a surgeon to "check for leftover cells." He also said…
I Am Scared
Hello all. First of all, if you were diagnosed with Colon Caner, I'd like to extend my best wishes to you in hopes that you will get better, no matter what the doctors say. I wish this for your dearest friends and family. I also want to put a disclaimer that I have not been diagnosed with Cancer but I'm scared I may have…
48y stage IV colon
Hi everyone. My husband went to the hospital this Saturday with abdominal pain and after a cat scan they found a mass on his colon, liver and spots on his lungs. they did a biopsy to his liver and we are waiting to get the test results and find out what type of cancer he has. They know it started in the colon and do not…
Possibly Sigmoid Cancer
The "gift" that keeps on giving
Hello All, I havent been on in years. It got too hard, so many friends losing the battle. Glad to see names from when I joined in 2011. I have had more surgeries, my cancer seems to want to come and go at will. origninally had colon resect. 5 years later liver resect, a year later liver resect. then 5 years it showed in…
Seeking advice: continuing with chemo or seizing the opportunity of surgery?
Hello all. My father was diagnosed with stage 4 rectal cancer in mid-July. Conoloscopy found the mass in his rectum (5.6 cm in length), and then PET-CT scan confirmed metastases in his liver (up to 9 cm), lungs (0.2-0.6 cm), and lymph nodes. CEA was 346 and CA 19-9 was 238 as of July 21. So, it was very serious and his…
Hey John23
I know you mentioned you were having issues crop up and I have not seen you post in a bit, just letting you know you are in my thoughts.
Bloody nose
Is it one of the reactions from folfox to experience nose bleed? Is there of you had this experience while on folfox? I had it and having headache too. So scared now. The bleeding isn't constantly but off & on. On headache, I took Tylenol 500mg. It helps the headache go away for a few hours or so. I still have 4 infusions…
NED
Hello All, I know I haven't posted here in a while but I wanted you to know I'm now 3 years NED from my Stage 4 diagnosis. Last scan was all clear! There is hope, there is always hope and that hope is slowly growing. Good luck and best wishes to all of us. Easyflip/Richard
Anal squamous cell - why no research?
I am told this cancer of mine is rare so there is no standard of care to treat it d/t no research on it. I am interrested in just how many of us are out there. Couldn't we start and movement, like breast cancer patients did, to get the research going? I believe there are allot of us but we are suffering silently. I'd like…
Hi Guys!
It was a year in July that my brother died from this dreaded disease. I chose the name Uncle Buddy because that's what my kids called my brother, Hughie. He was only 52 when he passed away. I was blessed to have him i my life. It has been hard for me to come back here, but I've missed so many of you. You were all a great…
Chow down. Weight loss correlated to lower survival rates.
Once again, from the "for what it's worth" department, a new study indicates weight loss (even for the overweight) is correlated with lower survival rates. https://www.ncbi.nlm.nih.gov/pubmed/28841225 At the 5-year postdiagnostic survey, 2049 participants reported higher (53%; median plus 5 kg), unchanged (12%), or lower…
Oncologist question Specialist or no specialist?
we switched to a new oncologist in May, he is general medical oncologist. Today I got a call from the hospital the dr who did his ERCP referered us to an oncologist at Yale who specializes in gastrointestinal cancers. I don't know if he didn't know we had one already or if he thought she might be better for us. You can't…
New Study: Glycemic index of foods and initial occurrence of colon cancer.
For what it's worth. I was not going to post this, but after thinking about it a bit, there might be people who are interested, so here it is (if you are not interested in this, please just pass this post by). In fact, it can be a guide for the best possible diet to avoid recurrence. The science has very much shifted in…
43 Yr Old Wife Diagosed with Rectal Cancer Last Week
After having some rectal bleeding on and off for a few years, my wife got a colonoscopy on Aug 7th. Doc came out and told me she did not have hemorroids (as she thought) but instead a very large polyp. He explained that it would be removed tomorrow morning by EMR since the doctor experienced in that procedure would need to…

Colorectal Cancer

Discussion List

Discussion Boards