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A message from Lizard (Grace)
Grace has aksed if I would pass on a message of thanks to all of you, for your thoughts, good wishes and prayers. She is still in the hospital, of course, and doesn't have the password to get into her CSN account. She has read your sweet messages, and is so grateful. Tru
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Does stress cause vomiting?
I'm curious if I'm the only one in this boat. Even now, if I get stressed enough I can end up singing to the porcelain god. It wasn't like that before this started. If anything, if I got stressed I'd end up eating more but never got sick like this. If this is common, is it permenant or does it pass with time?
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Xeloda High Deductible
I was just prescribed Xeloda and my pharmacy is saying that I have to $400.00 deductible. Is this possible that for a cancer medication I have to pay such a high deductible??? Does anyone have to pay this much? What are we supposed to do? Dont take it and die??
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News
I am a new member who is one year out of treatment. I just found out today that I have developed CML, which is a chronic form of leukemia. It is apparently easy to manage and treat but it just kind of discourages me because I thought once I took care of the colon cancer, I would be NED. I will be posting in the Leukemia…
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Side effects or something else
* Hi everyone. My mom has stage 4 colon cancer with mets to liver and possible omental involvement. She had her second cycle of folfiri and erbitux. She's in severe pain. Abdominal pain and also generalized body aches and bone pains. Shes very lethargic. And says her heart is sinking. Anyone else experience this?
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Questions
i can't seem to find any direct answers to this, so I was hoping someone here could. Husband had his first treatment Thursday, disconnect around 4 Saturday, followed by neulasta shot. He got Folfox with Irinotecan and avastin so I know first treatment is probably the easiest but when are side effects the worst? I thought…
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NEED FEEDBACK ON THIS LONELY ROAD
My DH took his 6th Chemo today. half way to twelve.......twice a month home with 26hour 5fu at home. Our routine is go to prompt care in the back to get need back in port sometimes bloodwork. Then talk Onocologist . He starts out with how are you an seens to hit on the negitives more than uplifting...which I AM AWEAROF THE…
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BRHMichigan
I'm assuming you had your surgery already, so if you are able to respond to this message when you get a chance to let us know how you are doing it would be wonderful. I'm praying and hopeful that the surgery went well and you will have a speedy recovery. It's going to be difficult at first to get used the the new normal,…
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Chemo meds
Are Avastin, 5fu, Oxaliplatin and Leucovorin first line treatments of stage IV colon cancer with liver mets? I believe the onocologist said every two wks for 12 rounds. Cant get my husband to go for diet/or other helps........What are your experiences with these Chemo meds.........
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PET scan / Cancer spread to other parts of the body?
Anyone's oncologist refuse to order the PET scan? Stage 3 rectal caner in 2015...clear CT scans since then. Now elevated CEA levels..I want a PET scan and oncologist says they are of no value. She explained that if the type of cancer I have was to spread, it would spread in the chest, pelvis, abdomen area...has anyone had…
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NED
Well, after three more months of Folfox with Cyramza, I had a PET scan yesterday and the great news is that I am NED.....again. We begin targeted Cyramza as a maintenance chemo tomorrow for at least one year with the hopes that it will kill any potential microscopic cells that may remain. Wahoo, any good news is always…
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Aches & Pains
This time around the Xeloda seems to be hitting me with a side effect. Muscle and joint pains. I feel like a little old lady getting up, taking my shuffling steps and eventually standing upright. Once I get moving it's okay, with the exception of shoulder pain which remains a constant. As I sit here tonight, my thighs,…
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Erbitux RASH!!!
I have begun the first of two 3-month chemo plans that include weekly infusions of Erbitux. Like before, I get a terrible looking and very uncomfortable rash on my face. I want to stop this drug, however I am told it works well with my other chemo drugs (5FU; Folfiri) Any experience with this drug, the rash and most…
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Stage VI Mets to bronchi middle of chest.
Hi new here. Stage VI with Mets to my bronchial tube. Great big middle one. Thank God for all you people here.
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prochlorperazine For nausea?
seems a bit harsh to me to prescribe this which is more of anti physcotic than anything else. I was wondering what everyone else was given for nausea? and when do you start taking it? My husband's first chemo is Thursday and while he is not worried I am a wreck with worry. Also, I keep reading days3-4 are the hardest for…
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Hiccups
poor hubby has the worst case of hiccups, thankfully from old posts I searched on here I know it's a side effect. Just waiting for them to call back with what they are going to do. He is On Folfiri chemo with avastin. They pumped him full of zofran so who knows which thing is doing it, he is taking in stride. It's making…
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Xeloda (maintenace pills)
My husband is done with chemo and now he will be put on Xeloda. These are maintenance pills. Can anyone tell me their experience with Xeloda? Do the also keep killing the tumor?
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Folfiri and crappy feeling stomach
Would anyone who had folfiri chemo please comment on how they felt afterwards. The day of chemo, I feel very "off" - possibly the 4 steroid pills (told to control nausea and get no sleep that first night) and the anti-nausea pills - and then the avastin and the chemo cocktail. My eyes are very affected (think it is the…
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CEA level - false positive?
Has anyone ever been told that their CEA level was a false positive? i'm so nervous as my last CEA was much higher than my original diagnosis. I've been cancer free since Sept. 2016. I had a blood test in August which showed the high CEA, followed by a clear CT scan of the chest, abdomen, pelvis area. My oncologoist…
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Stage IV Colon Cancer Remission Stories, Please?
Hello, I had posted in the anal cancer forum, and they suggested I come here as well: My dad was diagnosed with Stage IV Colon Cancer in June. He was complaining of indigestion and pain in his stomach till we dragged him to the ER. After a CAT Scan, they saw a mass in his colon (the tie between the small and large…
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results of ct scans post treatment
Hi all, My husband just had his last folfox "mop up" chemo for his rectal cancer on Sept 15th. He had chest and abdomen ct scans done 1 1/2 weeks later. Everything looked good except for a very small spot on his liver that the doctor does not think is anything, maybe even a shadow. It is too small to biopsy so he will have…
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Ten years after
It's the tenth anniversity of my diagnosis, on Monday, also my sweet wife"s birthday. Sep. puts so many things on my mind, our anniversary[Sep. 1], 3 years from Labor Day surgery[Sep. 6]. Mixed feelings everywhere, I feel like I have a shot at life beyond constant cancer tests and treatments. Three surgeries, two to get it…
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Curious about scan timing
after your chemo is finished how soon do they usually schedule you for a scan? I'm 4 wk post my mop up chemo, have an appointment with my oncologist in a couple of days, and I'm curious how often every ones getting scanned. Thanks
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Metasticized to liver, need encouragement please
My husband, mother-in-law, and Imet with my surgeon so he cpuld take a quick look at progress and discuss prep for my Oct. 3rd surgery to remove my large rectal tumor. He shared the results of the CT scan which revealed a small tumor on my liver and another near the perinium (sp?). After 28 radiation treatments and Xeloda…
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md Anderson tips
since my last post, DH has started chemo and is on his 2nd cycle. He is having some side effects, but for the most part he is doing well. He had the baseball size tumor removed in July a month later a liver ablation. Our oncologist is great and encouraged a 2nd opinion which we are in the process of setting up. Since chemo…
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Colorectal cancer that has spread to para aortic lymph nodes
My dad,77,was diagnosed w/colorectal cancer in 6/13.He did oral chemo & radiation asap,surgery 12/13, IV chemo ended 6/14.He just had a Petscan. Results show a new moderately hypermetabolic left para-aortic lymph node w/ an SUV max of 5.1,about 1 cm.Report says this is highly suspicious.My dad's oncologist was puzzled…
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Half way scan anxiety
Hi Everyone, im new to this and this is my first post. I've read many post which have given me hope and motivation. My mother (aged79) was diagnosed with bowel cancer, she has had major surgery and 6 round of folfox. It's been difficult but overall her FBC's have been good. We are now faced with the upcoming scan and are…
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Instead of Cancer...
I wanted to present this to the forum and see what others might offer. So much of what we read on this forum is negative, yet real. Cancer sucks and I do not deny that. But what I want to know is what others do to divert their focus from cancer; to instead direct their activities to something unrelated to pain, medication,…
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Small Bowel Cancer
Hi there, I just wanted to introduce myself and maybe get some infor and advice and information from all of you. I haven't officially been diagnosed with cancer yet, so I don't know a specific type or staging. But from all the tests so far, it looks like things are going that way. The cancer is actually small bowel, but I…
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Dead Tumor
I spoke to the surgeon the other day and saw my x-rays. The tumor is still there which isn't a surprise considering I'm still constipated. He said it's most likely non-viable. The PET scan is due in a couple weeks and I just finished chemo/radiation a couple weeks back. Has anynone else completed the 28 session regiment…