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Oncologist initial visit for Colon Cancer Stage III
Hi, I was diagnosed with colon cancer on the 22nd of September after my resection. During my normal colonoscopy my doctor said, the carpet polyp is back and larger. He took a biopsy that came back negative. He had already sent me to a surgeon for the resection when it came back negative. I was in disbelief that I was told…
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Ileostomy friendly diet?
Everyone: I have just completed my sixth day at home after my resection surgery (LAR). I brought home an ileostomy and according to the plan it will be with me until I complete mop-up chemo in late February. There have been three areas of concern for me regarding the ileostomy and I improve in each area daily, but one is…
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How frequently should I have a colonoscopy after diagnosed with Stage 2B colon cancer
My husband who was 44 at the time was diagnosed Feb. 2016 with stage 2 B colon cancer. When he had original colonoscopy due to the size of the tumor they were not able to get the scope in to do a full colonoscopy. After his surgery and removal of the tumor in February he had another colonoscopy in May 2016. He was…
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Cut off distance from verge for bag
Ok, this is the one thing that has me petrified. I'm sure not just me. A lot of people probably wonder the same thing yet I haven't seen the question put out there. As if cancer isn't bad enough but to anyone who doesn't end up with a permanent bag. The distance of the tumour to the anus is probably the most decisive…
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Questions on personal items in the hospital
Looks like I can post new topics now (hooray!). I received a package from the hospital yesterday and it indicated that I shouldn't have any valuables on me and they discouraged things like phones, cash, checkbooks, etc. How did others handle this? I would like to be able to communicate with others when I'm back in the room…
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Spastic Rectum
Yesterday afternoon I began to have a new pain deep in my rectum. It feels like a cramp and will cycle from discomfort to comfort. Repositioning and sitting on a heating pad provide little relief. My sleep last night was very much affected by the discomfort. Anyone else experienced this? If so, what did you do to make it…
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Round 2 tomorrow
after the problems last week I am so nervous for this round. He has to see the Dr today she will be away tomorrow. In the hospital she told him it was just a reaction to the chemo but today she said she thinks he did have pancreatitis. Honestly, it's so frustrating to keep getting different answers. So she decided to take…
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Brain Mets
Brain Mets from colon cancer ? My mother had a CT scan one month ago and it did not show any Mets other than a few sets of abdominal lymph nodes . Fast forward .. On Tuesday we started having balance issues . She is now an Hospice patient. Her liver is giving out . We have non-alcoholic cirrhosis. It just came on out of…
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Looks like no Avastin today either
so since they took the Irinotecan out, and now the Avastin due to high blood pressure all he is getting is Folfox. I am so worried this will never shrink those two metastasis in his liver down enough for surgery in two more treatments. He does not pay attention and did not listen when she told him she wanted him on bp…
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Guilt, Happiness, and Confusion
Everyone: I spoke with my surgeon yesterday morning (he returned my phone call) and asked him about the surgical pathological report. In a condescending tone he said that he thought that he had shared that with me in the hospital. I bit my tongue and did not respond in kind. This is why I had an aversion to this guy.…
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Ozone Therapy
I wonder anybody had Ozone therapy for advanced colon cancer. I appreciate for any feedback I will also do some research about it. I never had Ozone therapy but came out on the internet.
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New to Board stage 4 Colon Cancer
Hello, I wanted to introduce myself as I am new to the board. I am 42 and this year was diagnosed with stage 4 colon cancer with met to the liver. I found out by going to the ER for adbominal pain and they found a spot on my liver during ct scan. I found out I had cancer and I was in absolute shock. I had no symptoms, felt…
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Any one familiar with Lonsurf?
I last posted my rant about doctors that won't talk to you on Feb 3. I have gotten my second opinion, more genetic test results and retesting and more information frm my doctor than the first 20 visits. I also found out he had sent two different samples to two different labs for KRAS testing - and got two different…
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Jim (airborne72) and Grace (lizard44)
I think you both have surgeries tomorrow, I wanted to wish you both well and let you know I will be thinking about you both. Here is to a successful, uneventful surgery, with a quick recovery for you both!
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How do you deal with the pressure from the mass in the rectum?
The mass makes it hard to do BMs and it's getting increasingly harder to pass gas or even water from laxatives. There is some pressure on the urinary tract as well. I have four days until treatment starts and I often feel like I'm not going to make it to treatment - and then I really want the treatment to shrink the tumor…
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One treatment and my husband is in the ER
he is having severe stomach pains, he was trying to pass it off as just gas but it became very obvious he was in horrible pain. He wasn't throwing up, did not have a fever, and was able to go to the bathroom, so I have no clue. He is almost a week out from the first infusion day. Honestly all the meds list side effects…
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Stage 4 Colon Cancer - Tumor removed?
Has anyone have Stage 4 Colon Cancer and had their main tumor removed prior or after chemo? Our oncologist keeps on saying no on the surgery without really explaining the reason. So not sure if it's really medically no good or if it has to deal with hospital "politics/insurance/statistics"?
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How is it when taking your port out?
This coming Tuesday will be my last infusion on folfox 5fu. Then they'll take the pump out on Thursday. I had a blood test last Friday, and so I had a chance to talk to My onc. My onc told me I will have the schedule lined up...first is my port, I will finally get rid of it in 3 weeks after my last infusion!! I asked her…
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Lonsurf Treatment Success???
My husband was just offered the opportunity to try Lonsurf as a final treatment options. He was diagnosed with Stage IV Colon Cancer in October of 2012, and has been been on several chemo drugs previously. After six months of Stivarga, CT Scans reveal that cancer is still continuing to spread. It's very heart breaking, as…
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Hot chemo
has anyone had hot chemo treatment.Any input would be appriatted.
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A message from Lizard (Grace)
Grace has aksed if I would pass on a message of thanks to all of you, for your thoughts, good wishes and prayers. She is still in the hospital, of course, and doesn't have the password to get into her CSN account. She has read your sweet messages, and is so grateful. Tru
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Does stress cause vomiting?
I'm curious if I'm the only one in this boat. Even now, if I get stressed enough I can end up singing to the porcelain god. It wasn't like that before this started. If anything, if I got stressed I'd end up eating more but never got sick like this. If this is common, is it permenant or does it pass with time?
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Xeloda High Deductible
I was just prescribed Xeloda and my pharmacy is saying that I have to $400.00 deductible. Is this possible that for a cancer medication I have to pay such a high deductible??? Does anyone have to pay this much? What are we supposed to do? Dont take it and die??
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News
I am a new member who is one year out of treatment. I just found out today that I have developed CML, which is a chronic form of leukemia. It is apparently easy to manage and treat but it just kind of discourages me because I thought once I took care of the colon cancer, I would be NED. I will be posting in the Leukemia…
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Side effects or something else
* Hi everyone. My mom has stage 4 colon cancer with mets to liver and possible omental involvement. She had her second cycle of folfiri and erbitux. She's in severe pain. Abdominal pain and also generalized body aches and bone pains. Shes very lethargic. And says her heart is sinking. Anyone else experience this?
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Questions
i can't seem to find any direct answers to this, so I was hoping someone here could. Husband had his first treatment Thursday, disconnect around 4 Saturday, followed by neulasta shot. He got Folfox with Irinotecan and avastin so I know first treatment is probably the easiest but when are side effects the worst? I thought…
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NEED FEEDBACK ON THIS LONELY ROAD
My DH took his 6th Chemo today. half way to twelve.......twice a month home with 26hour 5fu at home. Our routine is go to prompt care in the back to get need back in port sometimes bloodwork. Then talk Onocologist . He starts out with how are you an seens to hit on the negitives more than uplifting...which I AM AWEAROF THE…
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BRHMichigan
I'm assuming you had your surgery already, so if you are able to respond to this message when you get a chance to let us know how you are doing it would be wonderful. I'm praying and hopeful that the surgery went well and you will have a speedy recovery. It's going to be difficult at first to get used the the new normal,…
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Chemo meds
Are Avastin, 5fu, Oxaliplatin and Leucovorin first line treatments of stage IV colon cancer with liver mets? I believe the onocologist said every two wks for 12 rounds. Cant get my husband to go for diet/or other helps........What are your experiences with these Chemo meds.........
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PET scan / Cancer spread to other parts of the body?
Anyone's oncologist refuse to order the PET scan? Stage 3 rectal caner in 2015...clear CT scans since then. Now elevated CEA levels..I want a PET scan and oncologist says they are of no value. She explained that if the type of cancer I have was to spread, it would spread in the chest, pelvis, abdomen area...has anyone had…