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Blood with an Illeostomy
I saw my surgeon today and he told me that rectal bleeding when we have an illeosotomy is not unusual. It's from the colon being irritated because of not being used and is nothing to worry about and is normal. He'd told me that in the past but I've never had it like I have a couple of times since I last saw him. Enough…
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Side effects
Dear husband Dale goes for third Chemo 28th.....The side effects have been minimal so far but some of them I haven't read/heard about hand shakes and we were sitting for my medical test 3hrs no less and he got nervous panicky? He ate and then said it went away. Some neuropathy hands but goes away. He also has jaw…
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Colostomy reconnect
If they can reconnect your colon at some point. What is the in general criteria when undergoing chemo for stage 4 cc. Our surgeon said 2months to two yrs because of different sizes of colon ends after tumor removal also said infection dangers at that time because of one end being smaller other larger.
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reconnecting colostomy
I Know it's down the road if possible but how long do they wait to reconnect your colon with ongoing treatment for stage4 colon cancer? What is the criteria?
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Side effects
Dear husband Dale goes for third Chemo 28th.....The side effects have been minimal so far but some of them I haven't read/heard about hand shakes and we were sitting for my medical test 3hrs no less and he got nervous panicky? He ate and then said it went away. Some neuropathy hands but goes away. He also has jaw…
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Please Stop Posting To Threads That Have Not Been Posted To In Years
Look at the dates of the last posts in threads. We get threads where people have not posted, literally, in over a decade. When the last post in a thread is 4 to 5 years ago there is a good chance people who posted are no longer with us. Not to mention the fact that there are changes that are happening in many aspects with…
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NED
A trip to my Oncologist Dr. Singh and Radiation Oncologist, Dr Kos, yesterday. I am now Three years four months NED. WOO HOO! TRU
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Anyone doing Avastin only for Maint? How is it working out for you.
xeloda and avastin has beat the beast back for about a year. I'm going to drop xeloda and just do the avastin every three weeks? anyone have any success with this? I am 7 1/2 years out. Stage IVB. Currently NED. Thanks for your thoughts. sue
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Stopping Folfox after 8?
i am trying to decide whether to stop follow chemo after 8 rounds, rather than completing 12. So hard to make a decision based only on broad statistics. My blood doesn't show cancer markers, and no scan can show evidence of microscopic cancer cells that may or may not exist. Neuropathy is my main concern, plus fatigue and…
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How much protein supplement do you take?
I was just trying to research this but the information is confusing and I'm terrible at researching things on line so I'm hoping some of you have ideas. I bought some protein powder and am trying to supplement my food intake with it. My understanding is that if I don't need it it's not a problem but if I do it would be…
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Feeling a bit down
I was so determined to beat this beast. But, as almost always, its not always a smooth ride. Last week, I was due for a CT scan. My last CT scan was before I had the emergency operation for my colon cancer. Back then, my onco spotted a spot on my right lung. We conducted a biopsy and it yielded negative. Fast forward to…
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Greetings From Laz!
Hi Everyone, There isn't one day that I don't check the board even though I don't post that much. Just wanted to greet everybody and give support to those who are still dealing with our common illness. Despite some frustration with my permanent colostomy and dietary restrictions I've been doing great. Very successful at…
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Maintenance pills after chemo
My husband will be done with chemo soon. The doctor said after that is maintenance with pills. Does everyone takes the same pills? if yes which medication is it? (he forgot to ask the doctor). Can anyone tell me their experience with pills after 5fu and avasting?
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Mexico clinics
I know this topic was widely discussed many years ago, but wondering if recently anyone has considered going to a clinic in Mexico for alternative treatment? While the rationale side of me says there isn't strong evidence to support it, the emotional side still has to consider it. Being faced with potentially taken off…
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Cancer journey? Cancer battle? What is it?
I keep hearing about how some people are offended by the term 'cancer journey'. It doesn't offend me but if it offends others then I don't want to use it. But what do we call it then? Battle feels like it's fight every day. It's certainly a struggle, I never feel really good, ever, I don't even remember what it's like.…
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Increased sense of smell on chemo?
So I'm on Vectibix and I've noticed that my sense of smell is ridiculous. I can smell things other people barely can smell or can't smell at all. With the neausea it's pretty unpleasant. Has anyone else experienced this? It seems to me that I had it on one of the previous chemos, too, but I'm not positive. Jan
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Middle of the road
Well, I am at the middle of the road with my FOLFOX 5FU treatment. Went yesterday for the port hook up and now I'm home with a pump until Friday afternoon. I was hoping that those of you in front of me can share your thoughts about the side effects. I am now starting to feel a bit of neuropathy in my fingers, along with…
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Science and angels
Last night I posted a study I found interesting under the title, “New study on meat intake and colorectal cancer.” https://csn.cancer.org/node/311421 Not that I need to explain my rationale, but I found it interesting for two reasons. First, oncologists generally tell you to run away from beef, but at least for women, this…
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Port Removal
I saw my oncologist last month and although white and red cell counts are low, he casually mentioned that it's been over a year since my surgery and the start of my original chemo and that I could get my port removed any time. I'm scheduled for next week. I can hardly believe it. This time last year I was feeling pretty…
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31 year old with stage 4 colon cancer
I want to make the story short, I went to the hospital on July 10th 2017 because I had a little cramp on the left side of my lower abdomen and after CAT scans, a colonoscopy and a biopsy i was diagnosed with colon cancer went thru surgery and found out that the cancer has spread to the abdominal wall not touching any organ…
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Our deepest sympathies to Stonybrook
I was very sorry to read about your husband's passing and I know our forum members will want to share their condolences, so I hope that you don't mind my starting a new thread. It is surely a pain that will never go away, a loss that cannot be replaced. I pray that you will be good to yourself, and take the time to grieve…
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Reservatol: another excuse for a glass of wine
Here is a new reservatol article: Another good excuse to have a glass of red wine tonight. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5537345/
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Ileostomy Reversal...OMG!!
Hello everyone!! Well, it finally happened...the ileostomy (for some reason i no longer remember how to spell that word!) has been reversed! However...i'm not all that thrilled about it at the moment, or at all. Tiny, if you read this...i know you know what i'm talking about. And i really don't want to scare anyone who is…
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anyone with B-RAF mutation CRC? Seeking alternative cures..
Hi, over the past 18 months my sister has undergone 3 different chemo treatments for her Stage IV CRC. While some treatments have shown initial effectiveness, evenually that effectiveness declines. She is ready to try new things - like Oreganol oil, Mushroom medicine, etc..Anyone have any input about this? She has a rare…
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Question About Adjuvant Treatment
Hi all, I am new to the forum. My wife was diagnosed with rectal cancer on March 23rd of this year. We have already gone through new-adjuvant treatment as well as LAR surgery a few weeks ago. The final staging, according to the pathology report, was T2N0M0 or Stage I. We have a follow up appointment in a few weeks with the…
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Allergic Reaction to Oxaliplatin
I completed my third round of Folfox yesterday but even with the onc reducing the oxy dose prior to treatment, as soon as I began the oxy drip, I started having an allergic reaction. Severe burning and itching on the bottom of my feet and hands and a visible blister rash on my wrist. My vitals seemed to be okay but they…
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Has Anyone used essential oils from Young Living Company
I wonder has anybody used essential oils to improve immune system. Some research indicates they are beneficial but I want to hear from someone who actually used it If there is any.
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Average Recovery Time
Everyone: I will complete my 25 sessions of Xeloda and radiation next Monday (thank goodness). So far, I have not had any serious issues and hopefully I will not have any. But, this is my question - on average, how long does it take before I will regain my appetite, rid myself of this yucky taste in my mouth, stop having…
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Are we vulnerable to viruses while on chemo?
I know our immune systenm is low but I'm not sure it's the same with all chemos? Maybe some are worse than others for that? I'm on Vectibix and when I see my onc she always stresses that I'm sun sensitive and to be careful but hasn't said anything about low immunity issues. My husband has been battling a stomach bug that…
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Scans
I asked our surgeon today (Who we will see in two wks for the last time) as she said our onocologist will be the one we will see for hubs care from then on but.........asked about scan I thought 2nd or 3rd round they would check? She said 12th last one and not to worry if liver mets weren't smaller if they just weren't…