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Colorectal Cancer

Anal squamous cell - why no research?
I am told this cancer of mine is rare so there is no standard of care to treat it d/t no research on it. I am interrested in just how many of us are out there. Couldn't we start and movement, like breast cancer patients did, to get the research going? I believe there are allot of us but we are suffering silently. I'd like…
Hi Guys!
It was a year in July that my brother died from this dreaded disease. I chose the name Uncle Buddy because that's what my kids called my brother, Hughie. He was only 52 when he passed away. I was blessed to have him i my life. It has been hard for me to come back here, but I've missed so many of you. You were all a great…
Chow down. Weight loss correlated to lower survival rates.
Once again, from the "for what it's worth" department, a new study indicates weight loss (even for the overweight) is correlated with lower survival rates. https://www.ncbi.nlm.nih.gov/pubmed/28841225 At the 5-year postdiagnostic survey, 2049 participants reported higher (53%; median plus 5 kg), unchanged (12%), or lower…
Oncologist question Specialist or no specialist?
we switched to a new oncologist in May, he is general medical oncologist. Today I got a call from the hospital the dr who did his ERCP referered us to an oncologist at Yale who specializes in gastrointestinal cancers. I don't know if he didn't know we had one already or if he thought she might be better for us. You can't…
New Study: Glycemic index of foods and initial occurrence of colon cancer.
For what it's worth. I was not going to post this, but after thinking about it a bit, there might be people who are interested, so here it is (if you are not interested in this, please just pass this post by). In fact, it can be a guide for the best possible diet to avoid recurrence. The science has very much shifted in…
43 Yr Old Wife Diagosed with Rectal Cancer Last Week
After having some rectal bleeding on and off for a few years, my wife got a colonoscopy on Aug 7th. Doc came out and told me she did not have hemorroids (as she thought) but instead a very large polyp. He explained that it would be removed tomorrow morning by EMR since the doctor experienced in that procedure would need to…
Colon Cancer Survivors
Although the news report seems obvious it's encouraging that leading a healthy lifestyle after diagnosis and treatment reduces recurrence. http://www.nbcnews.com/health/health-news/colon-cancer-survivors-live-longer-healthy-habits-n761231 Here's to tree nuts! Cindy
Worry! Chemo treatments have to stop right now
My husband is remission rectal cancer stage 4 with spread in and on abdominal wall. He received is first chemo 3 weeks ago, after his abdominal wound heal. But his first chemo got him so bad, that he been in the hospital almost 3 weeks. Vomiting nonstop, hydrated, blockage in his small intestine. Pain on his stomach is…
Vectibix- my latest treatments
Many of you know what happened with the Vectibix the last time I tried it in February. My body overreacted and I became what my onc described as toxic. I had a terrible rash and inflamed nerve endings which made it burn. I bled on my sheets and would have to brush scabs out of my bed every morning. My ears were almost…
My Mother is 81 and was diagnosed with colon cancer which has metastasized to her liver. I have ques
Neuprin
Anyone take these shots for raising your white counts? Looks like that is my next thing if my counts are still down on Monday. Anyone have good or bad stories about it? Thanks all. Have a great night and wonderful weekend. Barb
Looking for feedback
Hi All, On August 30th I am scheduled to have the 7th of 12 treatments for my stage 3C colon cancer; the treatment is Folfox 5FU. My concern all along has been to not get to the point of life long neuropathy. My concdern is, I am 10 days out from my last treatment and I still have sensitivity to cold, with the electric…
What to do when having acid reflux attack?
Right now, I am a mess!! Having an acid reflux and not knowing what to do is truly a downer. Please share your remedy with me, would you please???
Watery, Blurry Eyes
I have noticed over the past three treatments that I am beginning to experience a constant watery eye problem. The problem also seems to be getting worse as the treatments go along. It is also causing me to have a blurry and itchy right eye. Has anyone had this issue with treatments and if so was there anything that you…
chemo option question
so although this is my husband's second time the cancer has been in his liver, this will be his first time using chemo. He wants to work during this, and try to continue his normal routine as much as possible. I agree I think it's good also. So my question is the first time chemo was offered it was no choice you did the…
Checking in: Free hollister ostomy supplies
Dear all, i joined the group few months ago to look for advices and support for my busband's cancer stage 4 treament. After flighting with cancer for more than two years, suffering for pain day and night, side effects of chemo, my busband passed away in my arms yesterday. There wilol be no more morphine or oxycondme. He is…
Rectal cancer stage IV and spread to abdominal walls
Hi there, My husband just got another diagnosed that his cancer is return and spread to his abdominal walls. Last year he had rectal cancer stage 4, he was in the clear stage for couples months. But now, the rectal cancer is back more aggressively with stage 4 and spread to his abdominal walls. Thr problrm is he have open…
Colostomy bag operation
i am possibly facing surgery to get a colostomy bag. Can some of you give insight on living with "the bag". I obviously don't want it, but I need to continue my chemo, and want to survive as long as i can. Thanks all.
Swimming with colostomy bag
Now that mom has had a colostomy/ileostomy/ostomy ( I get so confused), her major concern is living to see another summer and SWIMMING! Summer has been her favorite season hands down, because she loves the beach and to SWIM! SWIM! SWIM! SWIM! We don't have our own pool. We rely on beaches and trips to swimmable lakes and…
Clinical trials
Hi, Is anyone here familiar with any of the following clinical trials? https://www.mskcc.org/cancer-care/types/colon/clinical-trials
Newbie Waiting on results
Howdy!! I found these forums while researching colon cancer. My father had colon cancer and I started having symptoms about 3 1/2 yrs ago. My symptoms got worse in the last 18mo, with increased blood in my stool, mucus, and stomach pains almost every day and at least 2-3 times a day. I am going to be 49 next week and had…
The Cycle of Life
Everyone: When I was diagnosed with rectal cancer in mid May my primary concern was what impact it would have on my daughter-in-law, who was pregnant with our first grandchild. She lost her father to lung cancer at an early age and that loss remains with her. I did not want to increase that pain by being yet another father…
So today after a second ERCP in two weeks we finally know his cancer is back
its been months of hell and a ton of jaundice. The two tumors on his liver are both metastasis from the original cancer. He did not do chemo after his original colon surgery in 2010, or after his liver resection in 2014. Now he has no choice and last time when they explained it to him he panicked. Part of me thinks maybe…
Where to buy men's pants that you can wear with colostomy?
Having trouble finding pants for husband, he is tired of wearing 'jogging' pants all the time. Would like to buy blue jeans or kaki pants, but the waist cuts right in the middle of his colostomy bag. His bag is kind of low, and is in a awful spot for clothing. He would need pants with elastic waist. Does anyone know places…
74 yo mom with Stage IV Perlmutter vs Sloan Kettering plus trtmts
My mom is 74 and we just has the shocking discovery that she has Stage IV colorectal cancer. It was discovered during a CT scan when she couldn't move her bowels for over a week. She had surgery but the mass in the upper left quadrant was "stuck" and the surgeon said it was too dangerous to remove, so he left it and gave…
New study indicates Melatonin increases the effectiveness of 5FU
A new study (abstract only in link) indicates melatonin increases the effectiveness of 5FU: https://www.ncbi.nlm.nih.gov/pubmed/28819759 Once again, from the "for what it is worth" department, here is additional melatonin information from my rather disorganized notes: Preliminary positive: 2017 article,…
Y 90 side effects
I had the first round of spheres last week. The first night was, to say the least, awful! I am so tired and sleep all the time. Anyone got any ideas on how to get the ebergy up? I walk in the A.M. to try and "jumpstart" things but by noon I am wiped! I am hoping that this is all worth it. Anyone with a good story form this…
Liver appearance and function after Y90 Theraspheres
Hi everyone, I am interested in learning from anyone who had the Y90 procedure what your outcome was and how the tumors and liver looked after the procedure. I just saw results from the first CT scan since I had the Theraspheres injected into my liver. I must say my liver looks terrible. There are white spots and lines all…
CEA rising while taking chemo
Hi, i'm currently taking Folfox and my CEA is rising a little. Should i be concern? Does this mean that the chemo is not working. My doctor told me that I have 2 more treatments to go and then she will put me in maintenace pills.
How Long?
Everyone: I realize that there is not a "correct" answer to this question, so ballpark estimates are welcome. My wife and I had to terminate a social outing/visit this evening due to my level of discomfort. That was disappointing to both of us. During the one hour drive home she asked me how long it is suppose to take…

Colorectal Cancer

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