-
Looks like no Avastin today either
so since they took the Irinotecan out, and now the Avastin due to high blood pressure all he is getting is Folfox. I am so worried this will never shrink those two metastasis in his liver down enough for surgery in two more treatments. He does not pay attention and did not listen when she told him she wanted him on bp…
-
Guilt, Happiness, and Confusion
Everyone: I spoke with my surgeon yesterday morning (he returned my phone call) and asked him about the surgical pathological report. In a condescending tone he said that he thought that he had shared that with me in the hospital. I bit my tongue and did not respond in kind. This is why I had an aversion to this guy.…
-
Ozone Therapy
I wonder anybody had Ozone therapy for advanced colon cancer. I appreciate for any feedback I will also do some research about it. I never had Ozone therapy but came out on the internet.
-
New to Board stage 4 Colon Cancer
Hello, I wanted to introduce myself as I am new to the board. I am 42 and this year was diagnosed with stage 4 colon cancer with met to the liver. I found out by going to the ER for adbominal pain and they found a spot on my liver during ct scan. I found out I had cancer and I was in absolute shock. I had no symptoms, felt…
-
Any one familiar with Lonsurf?
I last posted my rant about doctors that won't talk to you on Feb 3. I have gotten my second opinion, more genetic test results and retesting and more information frm my doctor than the first 20 visits. I also found out he had sent two different samples to two different labs for KRAS testing - and got two different…
-
Jim (airborne72) and Grace (lizard44)
I think you both have surgeries tomorrow, I wanted to wish you both well and let you know I will be thinking about you both. Here is to a successful, uneventful surgery, with a quick recovery for you both!
-
How do you deal with the pressure from the mass in the rectum?
The mass makes it hard to do BMs and it's getting increasingly harder to pass gas or even water from laxatives. There is some pressure on the urinary tract as well. I have four days until treatment starts and I often feel like I'm not going to make it to treatment - and then I really want the treatment to shrink the tumor…
-
One treatment and my husband is in the ER
he is having severe stomach pains, he was trying to pass it off as just gas but it became very obvious he was in horrible pain. He wasn't throwing up, did not have a fever, and was able to go to the bathroom, so I have no clue. He is almost a week out from the first infusion day. Honestly all the meds list side effects…
-
Stage 4 Colon Cancer - Tumor removed?
Has anyone have Stage 4 Colon Cancer and had their main tumor removed prior or after chemo? Our oncologist keeps on saying no on the surgery without really explaining the reason. So not sure if it's really medically no good or if it has to deal with hospital "politics/insurance/statistics"?
-
How is it when taking your port out?
This coming Tuesday will be my last infusion on folfox 5fu. Then they'll take the pump out on Thursday. I had a blood test last Friday, and so I had a chance to talk to My onc. My onc told me I will have the schedule lined up...first is my port, I will finally get rid of it in 3 weeks after my last infusion!! I asked her…
-
Lonsurf Treatment Success???
My husband was just offered the opportunity to try Lonsurf as a final treatment options. He was diagnosed with Stage IV Colon Cancer in October of 2012, and has been been on several chemo drugs previously. After six months of Stivarga, CT Scans reveal that cancer is still continuing to spread. It's very heart breaking, as…
-
Hot chemo
has anyone had hot chemo treatment.Any input would be appriatted.
-
A message from Lizard (Grace)
Grace has aksed if I would pass on a message of thanks to all of you, for your thoughts, good wishes and prayers. She is still in the hospital, of course, and doesn't have the password to get into her CSN account. She has read your sweet messages, and is so grateful. Tru
-
Does stress cause vomiting?
I'm curious if I'm the only one in this boat. Even now, if I get stressed enough I can end up singing to the porcelain god. It wasn't like that before this started. If anything, if I got stressed I'd end up eating more but never got sick like this. If this is common, is it permenant or does it pass with time?
-
Xeloda High Deductible
I was just prescribed Xeloda and my pharmacy is saying that I have to $400.00 deductible. Is this possible that for a cancer medication I have to pay such a high deductible??? Does anyone have to pay this much? What are we supposed to do? Dont take it and die??
-
News
I am a new member who is one year out of treatment. I just found out today that I have developed CML, which is a chronic form of leukemia. It is apparently easy to manage and treat but it just kind of discourages me because I thought once I took care of the colon cancer, I would be NED. I will be posting in the Leukemia…
-
Side effects or something else
* Hi everyone. My mom has stage 4 colon cancer with mets to liver and possible omental involvement. She had her second cycle of folfiri and erbitux. She's in severe pain. Abdominal pain and also generalized body aches and bone pains. Shes very lethargic. And says her heart is sinking. Anyone else experience this?
-
Questions
i can't seem to find any direct answers to this, so I was hoping someone here could. Husband had his first treatment Thursday, disconnect around 4 Saturday, followed by neulasta shot. He got Folfox with Irinotecan and avastin so I know first treatment is probably the easiest but when are side effects the worst? I thought…
-
NEED FEEDBACK ON THIS LONELY ROAD
My DH took his 6th Chemo today. half way to twelve.......twice a month home with 26hour 5fu at home. Our routine is go to prompt care in the back to get need back in port sometimes bloodwork. Then talk Onocologist . He starts out with how are you an seens to hit on the negitives more than uplifting...which I AM AWEAROF THE…
-
BRHMichigan
I'm assuming you had your surgery already, so if you are able to respond to this message when you get a chance to let us know how you are doing it would be wonderful. I'm praying and hopeful that the surgery went well and you will have a speedy recovery. It's going to be difficult at first to get used the the new normal,…
-
Chemo meds
Are Avastin, 5fu, Oxaliplatin and Leucovorin first line treatments of stage IV colon cancer with liver mets? I believe the onocologist said every two wks for 12 rounds. Cant get my husband to go for diet/or other helps........What are your experiences with these Chemo meds.........
-
PET scan / Cancer spread to other parts of the body?
Anyone's oncologist refuse to order the PET scan? Stage 3 rectal caner in 2015...clear CT scans since then. Now elevated CEA levels..I want a PET scan and oncologist says they are of no value. She explained that if the type of cancer I have was to spread, it would spread in the chest, pelvis, abdomen area...has anyone had…
-
NED
Well, after three more months of Folfox with Cyramza, I had a PET scan yesterday and the great news is that I am NED.....again. We begin targeted Cyramza as a maintenance chemo tomorrow for at least one year with the hopes that it will kill any potential microscopic cells that may remain. Wahoo, any good news is always…
-
Aches & Pains
This time around the Xeloda seems to be hitting me with a side effect. Muscle and joint pains. I feel like a little old lady getting up, taking my shuffling steps and eventually standing upright. Once I get moving it's okay, with the exception of shoulder pain which remains a constant. As I sit here tonight, my thighs,…
-
Erbitux RASH!!!
I have begun the first of two 3-month chemo plans that include weekly infusions of Erbitux. Like before, I get a terrible looking and very uncomfortable rash on my face. I want to stop this drug, however I am told it works well with my other chemo drugs (5FU; Folfiri) Any experience with this drug, the rash and most…
-
Stage VI Mets to bronchi middle of chest.
Hi new here. Stage VI with Mets to my bronchial tube. Great big middle one. Thank God for all you people here.
-
prochlorperazine For nausea?
seems a bit harsh to me to prescribe this which is more of anti physcotic than anything else. I was wondering what everyone else was given for nausea? and when do you start taking it? My husband's first chemo is Thursday and while he is not worried I am a wreck with worry. Also, I keep reading days3-4 are the hardest for…
-
Hiccups
poor hubby has the worst case of hiccups, thankfully from old posts I searched on here I know it's a side effect. Just waiting for them to call back with what they are going to do. He is On Folfiri chemo with avastin. They pumped him full of zofran so who knows which thing is doing it, he is taking in stride. It's making…
-
Xeloda (maintenace pills)
My husband is done with chemo and now he will be put on Xeloda. These are maintenance pills. Can anyone tell me their experience with Xeloda? Do the also keep killing the tumor?
-
Folfiri and crappy feeling stomach
Would anyone who had folfiri chemo please comment on how they felt afterwards. The day of chemo, I feel very "off" - possibly the 4 steroid pills (told to control nausea and get no sleep that first night) and the anti-nausea pills - and then the avastin and the chemo cocktail. My eyes are very affected (think it is the…