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NED
Well, after three more months of Folfox with Cyramza, I had a PET scan yesterday and the great news is that I am NED.....again. We begin targeted Cyramza as a maintenance chemo tomorrow for at least one year with the hopes that it will kill any potential microscopic cells that may remain. Wahoo, any good news is always…
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Aches & Pains
This time around the Xeloda seems to be hitting me with a side effect. Muscle and joint pains. I feel like a little old lady getting up, taking my shuffling steps and eventually standing upright. Once I get moving it's okay, with the exception of shoulder pain which remains a constant. As I sit here tonight, my thighs,…
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Erbitux RASH!!!
I have begun the first of two 3-month chemo plans that include weekly infusions of Erbitux. Like before, I get a terrible looking and very uncomfortable rash on my face. I want to stop this drug, however I am told it works well with my other chemo drugs (5FU; Folfiri) Any experience with this drug, the rash and most…
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Stage VI Mets to bronchi middle of chest.
Hi new here. Stage VI with Mets to my bronchial tube. Great big middle one. Thank God for all you people here.
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prochlorperazine For nausea?
seems a bit harsh to me to prescribe this which is more of anti physcotic than anything else. I was wondering what everyone else was given for nausea? and when do you start taking it? My husband's first chemo is Thursday and while he is not worried I am a wreck with worry. Also, I keep reading days3-4 are the hardest for…
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Hiccups
poor hubby has the worst case of hiccups, thankfully from old posts I searched on here I know it's a side effect. Just waiting for them to call back with what they are going to do. He is On Folfiri chemo with avastin. They pumped him full of zofran so who knows which thing is doing it, he is taking in stride. It's making…
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Xeloda (maintenace pills)
My husband is done with chemo and now he will be put on Xeloda. These are maintenance pills. Can anyone tell me their experience with Xeloda? Do the also keep killing the tumor?
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Folfiri and crappy feeling stomach
Would anyone who had folfiri chemo please comment on how they felt afterwards. The day of chemo, I feel very "off" - possibly the 4 steroid pills (told to control nausea and get no sleep that first night) and the anti-nausea pills - and then the avastin and the chemo cocktail. My eyes are very affected (think it is the…
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CEA level - false positive?
Has anyone ever been told that their CEA level was a false positive? i'm so nervous as my last CEA was much higher than my original diagnosis. I've been cancer free since Sept. 2016. I had a blood test in August which showed the high CEA, followed by a clear CT scan of the chest, abdomen, pelvis area. My oncologoist…
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Stage IV Colon Cancer Remission Stories, Please?
Hello, I had posted in the anal cancer forum, and they suggested I come here as well: My dad was diagnosed with Stage IV Colon Cancer in June. He was complaining of indigestion and pain in his stomach till we dragged him to the ER. After a CAT Scan, they saw a mass in his colon (the tie between the small and large…
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results of ct scans post treatment
Hi all, My husband just had his last folfox "mop up" chemo for his rectal cancer on Sept 15th. He had chest and abdomen ct scans done 1 1/2 weeks later. Everything looked good except for a very small spot on his liver that the doctor does not think is anything, maybe even a shadow. It is too small to biopsy so he will have…
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Ten years after
It's the tenth anniversity of my diagnosis, on Monday, also my sweet wife"s birthday. Sep. puts so many things on my mind, our anniversary[Sep. 1], 3 years from Labor Day surgery[Sep. 6]. Mixed feelings everywhere, I feel like I have a shot at life beyond constant cancer tests and treatments. Three surgeries, two to get it…
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Curious about scan timing
after your chemo is finished how soon do they usually schedule you for a scan? I'm 4 wk post my mop up chemo, have an appointment with my oncologist in a couple of days, and I'm curious how often every ones getting scanned. Thanks
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Metasticized to liver, need encouragement please
My husband, mother-in-law, and Imet with my surgeon so he cpuld take a quick look at progress and discuss prep for my Oct. 3rd surgery to remove my large rectal tumor. He shared the results of the CT scan which revealed a small tumor on my liver and another near the perinium (sp?). After 28 radiation treatments and Xeloda…
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md Anderson tips
since my last post, DH has started chemo and is on his 2nd cycle. He is having some side effects, but for the most part he is doing well. He had the baseball size tumor removed in July a month later a liver ablation. Our oncologist is great and encouraged a 2nd opinion which we are in the process of setting up. Since chemo…
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Colorectal cancer that has spread to para aortic lymph nodes
My dad,77,was diagnosed w/colorectal cancer in 6/13.He did oral chemo & radiation asap,surgery 12/13, IV chemo ended 6/14.He just had a Petscan. Results show a new moderately hypermetabolic left para-aortic lymph node w/ an SUV max of 5.1,about 1 cm.Report says this is highly suspicious.My dad's oncologist was puzzled…
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Half way scan anxiety
Hi Everyone, im new to this and this is my first post. I've read many post which have given me hope and motivation. My mother (aged79) was diagnosed with bowel cancer, she has had major surgery and 6 round of folfox. It's been difficult but overall her FBC's have been good. We are now faced with the upcoming scan and are…
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Instead of Cancer...
I wanted to present this to the forum and see what others might offer. So much of what we read on this forum is negative, yet real. Cancer sucks and I do not deny that. But what I want to know is what others do to divert their focus from cancer; to instead direct their activities to something unrelated to pain, medication,…
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Small Bowel Cancer
Hi there, I just wanted to introduce myself and maybe get some infor and advice and information from all of you. I haven't officially been diagnosed with cancer yet, so I don't know a specific type or staging. But from all the tests so far, it looks like things are going that way. The cancer is actually small bowel, but I…
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Dead Tumor
I spoke to the surgeon the other day and saw my x-rays. The tumor is still there which isn't a surprise considering I'm still constipated. He said it's most likely non-viable. The PET scan is due in a couple weeks and I just finished chemo/radiation a couple weeks back. Has anynone else completed the 28 session regiment…
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Liver resection... Yes or no?
So my mom was diagnosed with stage 4 cancer December 16. Had a right hemicolextiny. Well it was initially stage 3c but due to spots on her liver they changed it to stage 4. She has had 12 cycles of folfox plus Avastin. Her CEA started rising in July. A pet scan in August showed three lesions in liver all increased in size…
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My dad was just diagnosed with stage four colon cancer.
My dad went to hospital a few daydays ago and they found a large tumor in right side of colon. They removed it and it was cancer. 5 of 12 lympnodes showed positive for cancer too. They also think that he has microscopic tumors in belly. He has three nodules on his liver. He is 67 but not in horrible shape he just never…
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Cancer Cachexia
I just watched this video of Robin Gibb (Bee Gees) singing at a charity event in the last days of his life. He was so gaunt, and no doubt was in the stage called cachexia. Plus, he was singing a song about death. Have to admire the man for his strength. Showing us the way to go. May I be as brave. Here is the video, for…
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maintence
DH had scan on 22nd then 5th chemo and results on Sept 25. Mets on liver have shrunk 30 and 10% BUT oncologist said all small ones have to disapear before he is elgible for any other treatment or liver resection. He said 12 rounds of chemo then maintence. Can maintenence continue to shrink tumors. He also said chemo can…
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Newly diagnosed stage IV colorectal cancer
Hello everyone. I'd like to thank all who communicate and offer support on this forum. God bless you. it's amazing how much help you can be to a stranger. I'm 36 and a father of 3 wonderful kids ages 6,8,and 12. I am married to an amazing woman and have an incredible support system of family and friends. Most importantly I…
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New member-very afraid
Hello, I'll get straight to the point. I am a 30-year-old obese male. I suffer from anxiety and panic disorder. I've had fears of having colon cancer for several years now on and off whenever I notice blood in my stool. I was having urgency and diarrhea a few weeks after changing my diet. I wasn't sure if the diet change…
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Diet Questions Among Others--
Thank you to everyone who has responed to my first message yesterday were I just told a brief stroy of my situation. I have read alot of the other messager and notice there is alot about diet changes. Did your Drs. suggest this? Something you read? I was just wondering since I have never been told to change by diet habits…
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long term side effects?
Hiya all. I am curious to know if any of you have/or have had the following problems. In the last 2 months I have been getting incredible pain from my shoulder joints(both shoulders) and it is especially painfull in the mornings. It also often wakes me at night. Ok..it may well be unrelated to cancer or to the after…
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say hi from china.
hi all : we are chinese , living in ZhuHai , GuangDong , China ! My wife was diagnosed colon cancer stage IV July 2017. she just 32 , We are actively facing treatment about 3 times , we trust will be better day by day ! god bless everyone ! - eric
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Blood clot urgency
My sister was having some neck pain and the doctors think she has a blood clot most likely from the mediport. They did an MRI. They want to do an ultrasound to confirm on Monday. They do not seem to think this is a dangerous situation. Has that been anyone else's experience? This is freaking me out. My buddy is a vascular…