-
I'm Jen..but you can call me NED!!!
Hi All, I'm coming off of official "lurking" status to join the group. I'm 39 and at the end of August this year my husband and I took my oldest daughter to college 8 hours away and while there ended up in the ER wtih an emergency colectomy of my sigmoid colon because it was completely blocked. I had little symptoms just a…
-
Colorectal Update
Thanks so much to all of you wonderful people out there!!! I have no idea how to answer each one of you that wrote to me this last week. I am most definately seeking a new Dr. I am located in Sacramento, California. I am looking into a referral from my Dr to Stanford University here in California and also MD Anderson in…
-
diet changes
I was diagnosed with stage 1 in nov 07 after an excision of a polyp that was too big to be removed during a colonoscopy I had in oct 07. the surgeon said my best chance for a cure would be the removal of my rectum and anus. well I chose to modify my diet and exercise more instead, with regular checkups to monitor for a…
-
I'm new; have questions
What does NED stand for? I read a post where someone was concerned about a CEA of 23. I'd rejoice if mine was that. I've been as high as 670 and as low as 10 and all kinds of numbers in between. Is there something I'm not being told? Lastly, I was diagnosed (is that what dx means) Oct 12, 2006. Have stage 4 colon cancer…
-
Prayer request for Young Survivor
I am requesting your prayers for an acquaintence from church. She is 38 years old and was diagnosed the end of August with stage 4 CC with liver mets when her baby was 3 months old. She began exhibiting symptoms while pregnant, but they wouldn't do anything until after the birth. Of course, because of her age they weren't…
-
Youtube.com
you can go and check out some of my moms documentary on Youtube.com , in the search section type in cancer stricken a courageous battle. or try copy and pasting this http://youtube.com/watch?v=fAOYy2Ipirs Hope you all enjoy, Vision TV may pick up the whole documentary.
-
colorectal cancer metastasized in liver
I am a 43 y.o. female. On October 23, 2007, age 42, I was diagnosed with Stage 3 Colorectal Cancer. The only symptoms I had was very tired for about 2 months and rectal bleeding for about 4 days before contacting my general practice Dr. He scheduled me for a flex. sigmoidoscopy the very next day. They discovered the tumor…
-
Acupuncture Question
I've heard from various people that acupuncture helps with nausea and fatigue caused by chemo. The chemo treatment I'm on seems to be hitting me pretty hard, despite using "Emend" for the nausea and getting extra hydration at the cancer center. These things do help, but it's still no party. Any 'red flags' I need to be…
-
Friday Riddle / Teaser ANSWER
FAMILY PORTRAIT: The mother, father, son, daughter, uncle, aunt, brother, sister, cousin, nephew, and niece of a family are all present at a family gathering. A photo is taken of them all. What is the lease number of people in the photo? ANSWER: There are four people in the photo. A brother and a sister, the brother's son…
-
Legs hurt
Hello all you Semi-Colons! I have been off of chemo now for 3 months. (that's a good thing!) My legs hurt, deep inside. When I stand for long periods of time or go shopping for very long, they ache. Is this normal, after chemo? Anyone have any remedies? I have an Onc appointment in February and will ask then but until…
-
CT update
Stage 4,colon surgey 9/06, chemo, liver resection 2/07, chemo, lung mets and resection 11/07. Just got back from Stanford and the results from the Jan 2nd scan looked good. It was nice to come out of his office not scheduling a surgery or with a prescription to pick up. While it is a long road and the odds are still tough,…
-
prayers answered
Hey,Hey,Hey, I have always believed that prayer changes things and for anyone who doesnt I have absolute proof. Last week I had a routine mammogram, found 2 lumps and went in for an ultrasound, dr said we need to do a core biopsy and possibly surgery. Of course I freaked after just getting over rectal cancer, radiation,…
-
Friday Riddle / Teaser
FAMILY PORTRAIT: The mother, father, son, daughter, uncle, aunt, brother, sister, cousin, nephew, and niece of a family are all present at a family gathering. A photo is taken of them all. What is the lease number of people in the photo?
-
Bumpy Road
Here's my story, I'll be 46 in several weeks, Dec 04 I was diagnoses w/ CRC and liver mets. I had two lesions on my right side and one on my left. Six weeks into my Folfox treatment the lesions on my liver disappeared. Several months later I had a colon resection, several months after that I had 5wks of radiation. That…
-
Newbie from the Northwest
I've recently been diagnosed with stage 3 colo-rectal cancer. The cancer was through the colon wall (right where the colon/rectum meet) and had infected around 20 lymph nodes. All tests show that the cancer hasn't spread, but then they also said the lymph nodes weren't affected. Yeah right. Had surgery November 14th. My…
-
5 years
It's been 5 years since I was diagnosed with rectal cancer (stage III). I wish I could say I am 5 years NED and "cured". That is not the case. I have had two recurrences (both solitary mets in the lung -- treated with surgery followed by chemo). However, I am NED TODAY -- and have been since my last surgery a year ago. I'm…
-
genetics
Check this out! Fascinating. I wonder if I have this gene?? http://www.fightcolorectalcancer.org/news/2008/01/colon_cancer_gene_traced_a_sin.php Sorry, I don't know how to add a hyperlink to this site, so you'll have to cut and paste. -Susan
-
I have a question
I have been Ned probably since surgery July 2006,and my last scans tests etc.were done in September 2007, I have my next follow up appt. next Tuesday,I think the Dr. told me that this time was going to be only bloodwork,I am stage 3a and 1 and a half year from surgery,my question is what is the the average protocol as far…
-
Question...
Hi everyone. Just have a question. After my dad had his surgery two years ago,his bowel movements haven't been the same. He gets constipated more often than before. Over the past few months, it seemed as if his bowel movements were regulated again. Now, he told me that he has been constipated for a couple weeks. I am…
-
me again thanks for prayers
Hi, Thanks so much for the prayers and hugs sent my way. The ultrasound showed two lumps in my breast that I will have biopsed on Jan. 25th. I really feel like this is going to be okay. You all are great. Robin
-
GOOD NEWS
I went to the onc today and my CEA is down to 3.5 I asked if that made me NED. He said yes my PET and CT scan showed nothing so I'm NED. I'm very happy and I thanked the good Lord for my being NED today!
-
Help!!! Doctor is not
Hi there, My dad is stage iv with mets to the bones. He has not been able to get chemo for two months because he was having severe reactions to the premeds. Has anyone had this experience? I took him for a second opinion and the doctor seem to think there were things that could still be done. Unfortunately, the second…
-
CT Update
Update for my much needed support system, Stage IV dx July 05, 2nd line chemo campostar and erbitux, 1st scan with new chemo-no new tumors and some shrinkage, really good news as my husband was so sick the past 2 months, bad bad labs and thyroid with diarrea so bad at times I didn't think he would make it, BUT, now that…
-
2 Different opinons on CT scans
I am so confused. My last 2 ct scans are being read completely different by 2 different places. My local radiologist says I have one liver tumor. When we sent the scans to Mayo, they say there are multiple lesions on my liver. We know there were multiple tumors in the beginning. Anyone have this happen? I am stageIV, have…
-
Xeloda and Humana
Hi all and Happy New Year. I am beside myself as I just found out that Humana has changed the classification of Xeloda from a Class 2 to Class 4. This means that my co-pay for one cycle has gone from $35 to $450!!! What I don't get is that they did not notify me or my onc when I began treatment about 3 weeks ago. The…
-
Exercise Question
I had my surgery November 14th, which included an ileostomy and am now going through chemo. My question is exercise related. I am 44, female and prior to surgery exercised at the YMCA 3-5 days a week. Nothing extreme, just water aerobics, stationary bike/elipctical and some basic weight lifting routines. Not all on the…
-
I'm back from long break
Hi Everyone! Sorry that I was away for such a long time for those I know. Hello to all the new people. I have missed everyone that I have met on this board but I was trying to get myself together. For those that are new, I'm a stage 3 colon cancer survivor as of Dec. 19th 2007. Yeah me! 9 out of 12 rounds of chemo. Still a…
-
3rd time around way to difficult
Started folfox again...waiting on insurance to approve Avastin..can u believe that ? They said that because is not proven to work/or not to work...insurance sometimes give us a hard time....anyways...I kind of forgot how tired I used to feel 3 years ago....my skin is sooooo dry that it's breaking out...but I am still…
-
Just whining
I had my yearly physical today heart, kidneys, liver, lungs, prostate, thyroid, blood pressure chorestrol, etc all good or better than good. Still NED from the colon cancer. Then the doc looks at my face and says that little red pin prick on your face is likely Basal cell carcinoma. So I get to see another doctor with a…
-
Insurance Help
Hi All, Through my job I have become aware of a resource for cancer survivors. The Cancer Legal Resource Center is a non profit organization that helps people with legal issues related to cancer such as trouble with insurance companies. The toll free hotline number is 1-866-THE-CLRC or 1-866-843-2572. Their website is…