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The Best News
I had my first colonoscopy (since I was dx'd a year ago) this week. Doctor's office just called and................................................................................................................................................... NO EVIDENCE OF DISEASE!!!!!!!!!!!! Naked Happy Dance>>>>>>>>>>>>>>Whew..was…
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NED again
Just had my two year colonscopy today and Doc says still NED. He then informed me that he wouldn't need to see me again for three years.
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ct results
Not what I needed.....all tumors are still there, some are stable some have grown ( Dr. not concerned cause they only grew 1-3 mm) but there are 2 new ones. So we are changing cocktails..we are going from Erbitux & CPT 11 to Folfox Plus . That cocktail ( without Avastin) kept me in remission fro a year...so now we are…
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The end of an era...
Hi All, Just wanted to share that I got my port removed last Friday. When it was done I felt like I had put the majority of the c--p behind me, although I realize that it will never REALLY be behind me. It just felt great to get the Alien out of my chest. I know, I know. It was a godsend; no puncturing veins every time, no…
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Update
I had my lung RFA done on Wednesday, 12/19. I came home yesterday. The procedure was a success. The tumor is gone and I'm now "cancer free" again. What a wonderful Christmas present to me. I have some pain in my shoulder but all and all I feel great and ready to celebrate Christmas. I hope everyone of you have a very Merry…
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I am a 35 year old male with stage IV colon cancer
Hello. I was diagnosed with stage 4 colon cancer last January. Here is a quick breakdown of my experience: Jan 16th: Diagnosed. Stage 4 with 3 mets on liver. My CEA was 11. Jan 18th: I had 97% of my colon removed. I also had 33 lymph nodes taken out (3 out of 33 came back positive) Jan 31st: Came home from the hospital Feb…
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clinical trial
I'm wondering if there is any one knows any personal story about clinical trial called PANVAC-VF for "NED" stage IV patients. Thanks in advance!
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Out of Options
Well, I knew this day would come. After 6 years, we have run out of drugs. We thought that Hopkins could help us but all they offered was a clinical trial. We really do not want this. I called Cancer Treatment Centers of America and spoke to a wonderful gentlemen who told me to go to ever major cancer treatment center in…
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A Holiday Wish to My Family Here
I wish you all a Very Merry Christmas. May you be surrounded by the comfort of family and friends near or far, May you find true Peace , Love and and Hope. May your blessings be abundant and your troubles be few in the New Year. God Bless you all. Love you all and Keep the faith! Diane
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Guess what they said?
well I met with the team of Oncologist, nurses, paliative care and social worker... about my mom coming home on friday... they are all AMAZED on how well my mom is doing its been 3 weeks and still strong (since they last said she would only have 3 days to live) My mom is walking with a walker and is eating and keeping it…
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MERRY CHRISTMAS TO MY FAMILY HERE
I will be unplugged from 21 Dec - 1 Jan and wanted to make sure pass this message on: I hope everyone in our family here has a WONDERFUL Christmas and a Joyous New Year!! :) To be honest, I consider everyone on this board part of MY family.
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xeloda
I am going to be starting my chmo with xeloda this week along with radiation for rectal cancer. They said that I would not get very sick at all and would not lose any of my hair. but I am seeing where some folks have lost their hair and all. Has anyone had any experience with this drug and if so what should I expect?
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Christmas Poem
'Twas The Night Before Christmas A Christmas Poem by Pastor Jim Kamerer 'Twas the night before Christmas and as I looked round my tent, I couldn't believe all the money I'd spent For trains and dolls, for trinkets and toys Some for the girls and some for the boys. I looked round once more to be sure things were right; The…
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Still in Limbo - Inconclusive
After meeting with the surgeon tonite, we are, unfortunately, still in limbo but feel a tiny bit encouraged. The largest growth seen on the ct/mri may be scar tissue or may not be. The MRI cannot definitively tell the difference. A PET scan will now be scheduled, and even if it lights up, a biopsy may need to be done to…
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Friday Riddle / Teaser - ANSWER
PLGreg got the correct answer. CONGRATS!!!!!!! ANSWER: The amphibian is TOAD TO - In the direction of: toward (English) AD - In the direction of: toward (Latin)
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The BEST present....a LAWYER!!!
As most of you know, my daughter passed last January at the hands of the institution she was staying at. I went thru alot of indescision as to persue it, and finally, when I read the coroner's report, decided to look for a lawyer. I had 7 turn me down in the space of 2 months. Then, on Steph's birthday (man! Was THAT…
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Follow up
I would be interested to know how regularly you have follow up tests in the US (a lot more frequently than we do in the UK, for sure!). I was diagnosed with Stage III colon cancer in February 2007 and finished chemotherapy in August. I had a scan in September (all clear!) and am scheduled to have a colonoscopy in February…
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Friday Riddle / Teaser - LATE
Sorry for the delay, but work has been soooo busy. RIDDLE / TEASER: One syllable an amphibian I vow. If you cut me in half, I'm syllables two; I'm English, I'm Latin, the one and the other; What's English in one half is Latin in the other.
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bowel changes
Helo everyone, I am a seven year BC survivor and feel very fortunate to have found this site back in 2000 at my DX. Everyone here has had experience and has advice and understanding. I just had a colonospy for some bowel changes. Nothing was found, but my Dr still took 2 bioposies. I have been troubled with colitis a…
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Dr. Hamer.
Any opinions/theories/experiences with Dr. Hamer's theory that before the development of the Cancer tumor a lesion will be visible on a brain scan that looks like a stroke to the untrained eye. The lesion is caused by emotional trauma and the area of the brain that it develops in will determine the later tumor. The theory…
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Apprehension, Excitement & Disappointment
The day is greeting me with both apprehension and excitement. Our appearance on the Montel Williams show airs today. Montel gave me the opportunity to explain my early symptoms and how I was misdiagnosed. Early screening is a message I hope many people learn from the show. The thought of saving just one life brings me…
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Loma Linda Doctors? Any good ones?
I am looking to get a second opinion for my dad. Anyone know any good oncologist at Loma Linda Medical Center? Lv2scrap
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UCLA doctors? Know of any good ones?
Can anyone tell me of a great UCLA oncologist specializing in colon cancer? Thanks, lv2scrap
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Update on my Mom
well my moms ankles are swollen up (what can she do to help this?), she barely can stand and walks a little with assistance, she is still in good spirits, still pain, they put a patch on her called fentanol 100 micro (what ever that means) she still gets break through meds every 8 to 12 hours, we will find out tomorrow if…
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Port/ central line - I'm so confused.
- after 2 rounds of chemo the doctor is talking about removing the port/ central line. From what I read people have chemo for months and months for colon cancer. - The doctor IS talking about removing the "rest of the colon tumor" - but does 2 treatment sound like it would make a tumor small enough?! - are the ports /…
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Three Years NED
I don't post too often any longer but still read the posts frequently, and wanted to share. I am just back from a follow-up visit with my oncologist. I'm at 3 years this month. The onc said everything was going good. WHEW! I always get nervous as these visits come up and was especially nervous for this one although I…
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Best Christmas Present!
Hello Everyone! I was diagnosed 6/05 as colon cancer T3N2M1 and had surgery removing about 1 foot of colon and then had 12 cycles of Folfox, Avastin, and Leucovorin every 2 wks. Yesterday I had a CT scan that showed NO CANCER! My doctor said it should have been all over my body by now. He actually even congratulated me!…
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Still in Limbo, waiting
Well, hubby had mri tuesday at different hospital than the 11/27 ct and we have appointment back at surgeons on this tuesday. Still waiting to find out if the situation did indeed get worse or not. Nobody should have to go through this ..ever. I did get the ct report which did indicate that one "supposed met" increased…
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3 month check-up
I had my 3 month check up and my CEA was 2.4. I can't believe it has been almost 1 year since I was dx. My colonoscopy will be Jan 22.with hope of a clean scope. For all the newbies stay positive it will come to a end and you will feel better with time. My last year has been such a journey. I couldn't do without my…
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NED
Husband had colonoscopy Wed. All clear. Thanks for all your prayers and all of you have mine daily. God bless, Kaye