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oldies
Hi Everyone...this is franny. It has been 4 years in October since I first posted here. I dont checkin like I used to either. I have lost several friends here as well and sometimes it gets hard not to see their posts. I am still NED and about to have my colonscopy again on January 21. I still get all anxious before this…
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New Stoma site questions
I recently under went surgery, post chemo and radiation, to remove most of my rectum along with a bowel resection....there were complications and I had to have a second surgery (3 weeks after the first) which required a colostomy. I am two weeks post second surgery and my incision area is easing up on my pain but the stoma…
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Celebrate 2007
Hi All, I have been away for a while. Finished chemo 4 weeks ago, went on vacation, then busy with Christmas. Anyway 2007 was a year of change for me. I was dx in April, surgery, radiation/chemo, more chemo and now trying to adjust to the side effects and new bowels. I celebrate 2007 because it was a year of awakening to…
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New Year's Resolution
Simply, to live another year! My best to all on this wonderful site. Linda
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High ALP on blood test?
Hi, I am stage III colorectal-had radiation, chemo, surgery, now am halfway through a six month FolFox round. I received a copy of my blood tests, and saw an ALP of 239, the normal range being 50-136. The doctor did not mention it to me. Of course, like a dork I looked up what a high level means on the net, and just got…
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Happy New Year
As a long time lurker I would like to wish everyone a very happy and joyous new year. I have willingly taken so much from everyone that posts, but have not given anything back! As a stage 3c rectal cancer survivor, I want to let everyone know that there is hope, even when the doctors say there isn't. My doctors were very…
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protocel?
Hello, Someone was just telling my husband about protocel. He says it is the miracle cure for cancer that no one knows about and it is the "world's greatest antioxidant". Has anyone heard of it? I reasearched online and read about it on the Sloan Kettering site that discusses alternative treatments. Of course, lots of…
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Intimacy
Ok Here it goes, an embarrassing topic but one that I'm in need of support on. To be honest sex has taken a back seat since my diagnosis. My hubby of 23 years has been very patient but he's beginning to hint for more, and lets face it we are only 41 and not ready to let go of this part of our relationship. The problem…
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Update MOM
well we made it through Christmas, but today she didn't have a bowel movement, I am a little nervous, she eats mainly liquid/creamy soups and some bread, and remember she came home with a possible whole/perforation in the colon, its been since Dec 2nd since they confirmed this, even though they are amazed that she is still…
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Ten Ways to Relax and Reduce Stress
Stress and Relaxation: Ten Ways to Relax and Reduce Stress http://www.drweil.com/drw/u/id/ART00536 The following are some wonderful ways to reduce anxiety, agitation and stress and promote relaxation, calm and peace within yourself. Some techniques take practice, and most require some commitment on your part to achieve…
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Stress and pain
For the past month I have experienced alot of stabbing pains in both sides of my upper body. They would come and go and make be generally miserable. The culprit is stress! I did too much traveling, bought a new house, moving from Tx to Fl and all the moving worries...My Dr. prescribed some Xanex to take as needed and the…
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shortness of breath
Lately I've been having a feeling of pressure on my chest, and find myself gasping for air. I was told this is a reaction to the chemo drug Oxy. Anyone else experience this?
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Out of options? Then you could try this
The drug referred to below is only available via the FMFs Compassionate Use Program so if other treatments are unsuccessful you could contact them and try it. It is a hormone antagonist and quite well tolerated as meds go: Their website link is: http://feminist.org/rrights/compassionateuse.asp 2004: Effects of mifepristone…
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hard knot on stomach
hey you guys havent been here in a while..but something kinda got me nervous.. I am feeling a hard marble shaped knot on my stomach about four inches down from my breast.. when I am constipated it gets harder and its sore now..I know I am going to the doc..but have any of you had this? I am praying its just a syst or…
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Where are all the oldies?
I check most days if I am home, but no posts from the golden oldies, where are you? Foxy, from down under NZ.
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Brain mets
My wife had the Gamma Knife done at the Cleveland Clinic three weeks ago for 7 brain mets. She has been very tired and weak. I`m not sure if they did her any good or not. The other night she thought she was ready to die. Her breathing was very shallow and slow. It appears her time is very short. Can anybody tell me who has…
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CEA level
I'm a little confuse on my CEA level. I just had my 3 month post check up and my CEA was 2.4. I thought that was normal but after reading other posts it leaves me to wonder if that is high. My Surgeon say it was great and we just don't want it to go up. My onc doesn't say much just says I'm doing great. Am I over reacting…
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Merry Christmas to All
Just wanted to say thanks to all of you for being here. Wow its now another year and I am so grateful for this year. Husband diagnosed Stage IV Colorectal Cancer 1/5/06 and today NED. Yes there are MIRACLES and for all you just keep that chin up. Thanks to everyone for listening to me with the ups and downs, the good and…
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Merry Christmas, It's 5 years clear now
Merry Christmas and ahappy, healthy and prosperous new year to one and all. I just recently passed my 5th anniversary for colon cancer surgery and am clear! Of course, I still watch my diet for both bowel and heart health, and have also been heart healthy since my triple bypass in May, 2003.
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Merry Christmas to all of you!!!!
You are all at the top of my list for people to thank this year. I am so glad to have found this site. It has been a huge help to me in coping with everything this past year. Even though I have never met any of you, I feel like I have. I read this site several times a day. I laugh, I cry, I worry, I pray, and I thank God…
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reply to foxy----who yu callin' an oldie gal?
Hullo all. First of all I want to send you all rainbows and huggs(you oldies know 'bout tha rainbows). Then to everyone please have the very best xmas and an even better new year. Jen and I wish you the very best in the years to come and pray with all our hearts that those of you battling hard times right now can overcome…
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Foxy rules
Hi Virginia, Forget Christmas ,forget new year we have a bigger celebration. Fourteen candles each for a year of survival. Congratulations and my love to you virginia. The christmas gift that you and all the oldies give is hope. I know we have suffered some terrible losses this year but we still have a lot of triumphs…
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LIVER METS, SURGERY OR NOT
Hi all, My dad has been diagnosed for colon cancer since March 2007 and just recently ct scan showed mets to liver with 6 tiny tumours of less than 1cm. We have had many professional opinions whether he should have surgery, RFA or simply just continue chemo. We have heard that his liver is not healthy enough to risk to…
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The Best News
I had my first colonoscopy (since I was dx'd a year ago) this week. Doctor's office just called and................................................................................................................................................... NO EVIDENCE OF DISEASE!!!!!!!!!!!! Naked Happy Dance>>>>>>>>>>>>>>Whew..was…
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NED again
Just had my two year colonscopy today and Doc says still NED. He then informed me that he wouldn't need to see me again for three years.
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ct results
Not what I needed.....all tumors are still there, some are stable some have grown ( Dr. not concerned cause they only grew 1-3 mm) but there are 2 new ones. So we are changing cocktails..we are going from Erbitux & CPT 11 to Folfox Plus . That cocktail ( without Avastin) kept me in remission fro a year...so now we are…
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The end of an era...
Hi All, Just wanted to share that I got my port removed last Friday. When it was done I felt like I had put the majority of the c--p behind me, although I realize that it will never REALLY be behind me. It just felt great to get the Alien out of my chest. I know, I know. It was a godsend; no puncturing veins every time, no…
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Update
I had my lung RFA done on Wednesday, 12/19. I came home yesterday. The procedure was a success. The tumor is gone and I'm now "cancer free" again. What a wonderful Christmas present to me. I have some pain in my shoulder but all and all I feel great and ready to celebrate Christmas. I hope everyone of you have a very Merry…
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I am a 35 year old male with stage IV colon cancer
Hello. I was diagnosed with stage 4 colon cancer last January. Here is a quick breakdown of my experience: Jan 16th: Diagnosed. Stage 4 with 3 mets on liver. My CEA was 11. Jan 18th: I had 97% of my colon removed. I also had 33 lymph nodes taken out (3 out of 33 came back positive) Jan 31st: Came home from the hospital Feb…
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clinical trial
I'm wondering if there is any one knows any personal story about clinical trial called PANVAC-VF for "NED" stage IV patients. Thanks in advance!