Off the Oxaliplatin!
cheryltaco
Member Posts: 39
Saw my onco last week. Apparently I did have some sort of reaction to the Oxy drug. He said it is rare to suffer from the kind of symptoms I had but not unheard of. He thinks it was either an allergic reaction ,or the dose could have been too high. Either way he's not taking any chances. So he pulled me off the drug, and has decided at least for now to keep me on the Xeloda only. I will have more testing done in March and depending on the results, he will decide what treatment if any will be needed or changed. Anyway, I just wanted to thank you all for your posts to my meltdown blog, and share the awesome news that I have been removed from that toxic treatment regime!
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I know how you feel. I was on oxy and it was horrible. My onc took me off of it after 5 treatments, I had real problems with my legs. I had mixed feelings about it, I know it's the newest and most successful drug as of today but the side effects are nasty. It felt so good to be off of it, I just pray I won't be sorry about it next month.
I feel so good now, so good to be off chemo!! There is life after chemo...0 -
That Oxy is a long term issue. I managed to have 16 treatments of it along with the 5-fu and Avastin. I am now 8 months from the last treatment and still have the neuropathy in my feet and my throat is so sore in this cold weather. My fingers are OK so that is something. After my NED and recurrance, I am now on Folfiri and CPT-11 and doing pretty well on it. One thing I have learned is to just accept the fact that I will be very tired on chemo week and not get upset with myself. I just sleep alot and do the necessities and remain thankful I am still in great shape the next week. Good luck to youl.0
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I'm glad your doctor is working with you on this and didn't just dismiss your symptoms. I'm on Oxaliplatin but I've only had 2 treatments so far. My doctor checks with me each week to see what's going on as far as side effects. So far the neuropathy only affects my tongue and mouth a little bit, but I will be watching very closely for other adverse effects.0
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It's nasty stuff. I'm toward the end of a 6 month Folfox, and my doctor nixed the Oxy last week. I can't feel my feet, fingers, my teeth feel weird, plus I was having the most caustic nasty bm's on earth. I'm starting to feel better. I'm also taking Neurontin, and it makes me feel weird and doesn't help too much. Now I worry...was it enough? Do you ever worry like that? Every time they decide to skip treatment I get scared.0
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Glad you were able to get off the oxal and feeling better. God Bless,
Diane0 -
This was the drug that gave me my two 'NDE''s. At one point, I was so afraid to sleep, because I felt that I needed to think to breathe....WHEW! I'm glad to hear that your onc is so close in touch with you...AND is willing to accept that his treatment regime needs to be changed for you!
Hugs, Kathi0
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